✨ Celebrating collective impact at the @eurordis.bsky.social #BlackPearlAwards! ✨
Monday night, we honoured those making a difference in the rare disease community. Proud that Daria Julkowska, #ERDERA Coordinator, was part of the Black Pearl Committee! 💜 #RareDiseaseDay
Monday night, we honoured those making a difference in the rare disease community. Proud that Daria Julkowska, #ERDERA Coordinator, was part of the Black Pearl Committee! 💜 #RareDiseaseDay
February 26, 2025 at 8:22 AM
✨ Celebrating collective impact at the @eurordis.bsky.social #BlackPearlAwards! ✨
Monday night, we honoured those making a difference in the rare disease community. Proud that Daria Julkowska, #ERDERA Coordinator, was part of the Black Pearl Committee! 💜 #RareDiseaseDay
Monday night, we honoured those making a difference in the rare disease community. Proud that Daria Julkowska, #ERDERA Coordinator, was part of the Black Pearl Committee! 💜 #RareDiseaseDay
By bridging geographic and systemic barriers, The Ehlers-Danlos Society has created a scalable, transformative model that amplifies patient voices. For this reason we are delighted to dedicate the 2026 Black Pearl Membership Award to TheEDSociety. #BlackPearlAwards
🌟https://go.eurordis.org/Awardees
🌟https://go.eurordis.org/Awardees
December 2, 2025 at 4:29 PM
By bridging geographic and systemic barriers, The Ehlers-Danlos Society has created a scalable, transformative model that amplifies patient voices. For this reason we are delighted to dedicate the 2026 Black Pearl Membership Award to TheEDSociety. #BlackPearlAwards
🌟https://go.eurordis.org/Awardees
🌟https://go.eurordis.org/Awardees
This year’s #BlackPearlAwards welcomes Felix Klieser🎺
Born without arms, he began playing French horn at 5 and became an internationally acclaimed soloist. His artistry is powerful, and truly distinctive. We can’t wait to share this moment with you: https://go.eurordis.org/black-pearl-reg
Born without arms, he began playing French horn at 5 and became an internationally acclaimed soloist. His artistry is powerful, and truly distinctive. We can’t wait to share this moment with you: https://go.eurordis.org/black-pearl-reg
February 14, 2026 at 8:00 AM
This year’s #BlackPearlAwards welcomes Felix Klieser🎺
Born without arms, he began playing French horn at 5 and became an internationally acclaimed soloist. His artistry is powerful, and truly distinctive. We can’t wait to share this moment with you: https://go.eurordis.org/black-pearl-reg
Born without arms, he began playing French horn at 5 and became an internationally acclaimed soloist. His artistry is powerful, and truly distinctive. We can’t wait to share this moment with you: https://go.eurordis.org/black-pearl-reg
💙 This award celebrates the people who make the rare disease community stronger through their time, passion and commitment.
Nominate an inspiring volunteer for the EURORDIS #BlackPearlAwards 2027 now 👉 https://go.eurordis.org/BPA2027
Nominate an inspiring volunteer for the EURORDIS #BlackPearlAwards 2027 now 👉 https://go.eurordis.org/BPA2027
July 31, 2026 at 7:00 AM
💙 This award celebrates the people who make the rare disease community stronger through their time, passion and commitment.
Nominate an inspiring volunteer for the EURORDIS #BlackPearlAwards 2027 now 👉 https://go.eurordis.org/BPA2027
Nominate an inspiring volunteer for the EURORDIS #BlackPearlAwards 2027 now 👉 https://go.eurordis.org/BPA2027
💎 Registrations are now open for the 15th EURORDIS Black Pearl Awards!
Celebrate the achievements shaping the future of the rare disease community.
🗓 24 Feb 2026 | 📍 Brussels & Online
👉 Register now: https://go.eurordis.org/BPA2026
#BlackPearlAwards #EURORDIS #RareDiseases #Advocacy
Celebrate the achievements shaping the future of the rare disease community.
🗓 24 Feb 2026 | 📍 Brussels & Online
👉 Register now: https://go.eurordis.org/BPA2026
#BlackPearlAwards #EURORDIS #RareDiseases #Advocacy
November 11, 2025 at 8:00 AM
💎 Registrations are now open for the 15th EURORDIS Black Pearl Awards!
Celebrate the achievements shaping the future of the rare disease community.
🗓 24 Feb 2026 | 📍 Brussels & Online
👉 Register now: https://go.eurordis.org/BPA2026
#BlackPearlAwards #EURORDIS #RareDiseases #Advocacy
Celebrate the achievements shaping the future of the rare disease community.
🗓 24 Feb 2026 | 📍 Brussels & Online
👉 Register now: https://go.eurordis.org/BPA2026
#BlackPearlAwards #EURORDIS #RareDiseases #Advocacy
⏰ Thought you’d missed your chance to nominate? There’s still time!
Nominations for the #BlackPearlAwards 2027 are now open until 11 September.
If someone’s work for the rare disease community deserves recognition, now is your chance to put them forward. 👉https://go.eurordis.org/BPA2027
Nominations for the #BlackPearlAwards 2027 are now open until 11 September.
If someone’s work for the rare disease community deserves recognition, now is your chance to put them forward. 👉https://go.eurordis.org/BPA2027
September 9, 2026 at 3:00 PM
⏰ Thought you’d missed your chance to nominate? There’s still time!
Nominations for the #BlackPearlAwards 2027 are now open until 11 September.
If someone’s work for the rare disease community deserves recognition, now is your chance to put them forward. 👉https://go.eurordis.org/BPA2027
Nominations for the #BlackPearlAwards 2027 are now open until 11 September.
If someone’s work for the rare disease community deserves recognition, now is your chance to put them forward. 👉https://go.eurordis.org/BPA2027
🌟 Who will be the next EURORDIS #BlackPearlAwards Young Advocate?
We're looking for outstanding advocates aged 30 or under who are raising awareness and creating lasting change for people living with a rare disease. Nominate them today! 👉 https://go.eurordis.org/BPA2027
We're looking for outstanding advocates aged 30 or under who are raising awareness and creating lasting change for people living with a rare disease. Nominate them today! 👉 https://go.eurordis.org/BPA2027
July 10, 2026 at 3:00 PM
🌟 Who will be the next EURORDIS #BlackPearlAwards Young Advocate?
We're looking for outstanding advocates aged 30 or under who are raising awareness and creating lasting change for people living with a rare disease. Nominate them today! 👉 https://go.eurordis.org/BPA2027
We're looking for outstanding advocates aged 30 or under who are raising awareness and creating lasting change for people living with a rare disease. Nominate them today! 👉 https://go.eurordis.org/BPA2027
🌟 Nominations for the 2027 EURORDIS #BlackPearlAwards are now open! Know someone making a difference in the rare disease community? Or could that person be you?
Nominate your rare disease champion today. 🔗 Submit your nomination: https://go.eurordis.org/BPA2027
Nominate your rare disease champion today. 🔗 Submit your nomination: https://go.eurordis.org/BPA2027
June 8, 2026 at 4:02 PM
🌟 Nominations for the 2027 EURORDIS #BlackPearlAwards are now open! Know someone making a difference in the rare disease community? Or could that person be you?
Nominate your rare disease champion today. 🔗 Submit your nomination: https://go.eurordis.org/BPA2027
Nominate your rare disease champion today. 🔗 Submit your nomination: https://go.eurordis.org/BPA2027
✨ Relive the 15th #BlackPearlAwards through the moments that shaped the evening!
From inspiring speeches to celebrating this year’s awardees, the night honoured leadership and innovation in the rare disease community. 📸 Explore the photo gallery: https://go.eurordis.org/BPA
From inspiring speeches to celebrating this year’s awardees, the night honoured leadership and innovation in the rare disease community. 📸 Explore the photo gallery: https://go.eurordis.org/BPA
March 10, 2026 at 4:15 PM
✨ Relive the 15th #BlackPearlAwards through the moments that shaped the evening!
From inspiring speeches to celebrating this year’s awardees, the night honoured leadership and innovation in the rare disease community. 📸 Explore the photo gallery: https://go.eurordis.org/BPA
From inspiring speeches to celebrating this year’s awardees, the night honoured leadership and innovation in the rare disease community. 📸 Explore the photo gallery: https://go.eurordis.org/BPA
⚫ Today is the day! The 15th #BlackPearlAwards take place tonight, celebrating leadership and impact in the rare disease community!
Tune in live at 8pm to show your support for the people working to build a better future for the rare disease community.🎥 https://go.eurordis.org/register
Tune in live at 8pm to show your support for the people working to build a better future for the rare disease community.🎥 https://go.eurordis.org/register
February 24, 2026 at 4:25 PM
⚫ Today is the day! The 15th #BlackPearlAwards take place tonight, celebrating leadership and impact in the rare disease community!
Tune in live at 8pm to show your support for the people working to build a better future for the rare disease community.🎥 https://go.eurordis.org/register
Tune in live at 8pm to show your support for the people working to build a better future for the rare disease community.🎥 https://go.eurordis.org/register
🔔Final reminder: early-bird rates for the #BlackPearlAwards Ceremony end midnight tonight.
Secure your place at this key moment to recognise leadership, innovation and collaboration in the rare disease community. #EURORDISAwards2026
🎟️ Register now: https://go.eurordis.org/black-pearl-reg
Secure your place at this key moment to recognise leadership, innovation and collaboration in the rare disease community. #EURORDISAwards2026
🎟️ Register now: https://go.eurordis.org/black-pearl-reg
January 9, 2026 at 4:15 PM
🔔Final reminder: early-bird rates for the #BlackPearlAwards Ceremony end midnight tonight.
Secure your place at this key moment to recognise leadership, innovation and collaboration in the rare disease community. #EURORDISAwards2026
🎟️ Register now: https://go.eurordis.org/black-pearl-reg
Secure your place at this key moment to recognise leadership, innovation and collaboration in the rare disease community. #EURORDISAwards2026
🎟️ Register now: https://go.eurordis.org/black-pearl-reg