#ERDERA
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⏳ Just 20 days to go! Have you registered yet?
Join ERDERA’s Knowledge Exchange Meeting on Drug Repurposing for Rare Diseases, taking place in Riga & online on 25–26 November.
👉 Explore the agenda, meet the speakers & register: https://loom.ly/yPXfXKY
#ERDERA #RareDiseases
November 2, 2026 at 7:00 AM
rarediseasectn.bsky.social
Dr Daria Julkowska, ERDERA
Prof Atif Awan, National Rare Disease Office
Prof Amy Jayne McKnight, Queen's University Belfast

Together, the session brings European, national and cross-border perspectives into the conversation.
October 30, 2026 at 3:11 PM
erdera.bsky.social
👉 EURORDIS-Rare Diseases Europe has launched the European Blueprint for Rare Diseases, setting out priorities for a future EU Action Plan on Rare Diseases. 💫 ERDERA welcomes this important step towards coordinated European action. #RareDiseases #ERDERA #EURORDIS
October 30, 2026 at 12:32 PM
erdera.bsky.social
🧬 AI, clinical trials, emerging therapies and the future of rare disease research were all part of the conversation at #WODC2026.
👉 Find out what was discussed and how #ERDERA contributed: https://loom.ly/dY6Ud8A
#RareDiseases #EUHealth
November 3, 2026 at 8:52 AM
erdera.bsky.social
🚀 A week ago, the ERDERA General Assembly Meeting set the stage for the partnership’s third year.
👇Discover the key discussions, takeaways and priorities of the 3rd ERDERA General Assembly Meeting 🔗 https://loom.ly/FAHGrq4
#ERDERA #RareDiseases #RareDiseaseResearch #EuropeanResearch
October 28, 2026 at 12:05 PM
cnag-eu.bsky.social
🧬What ethical challenges arise in Advanced Therapy Medicinal Products (ATMP) research, and how can resolving them become an advantage?

Today, @erdera.bsky.social Ethics & Regulatory Webinar with Joana Namorado

📅 13:00 CET
💻 Online
🔗 loom.ly/lZ8lmm8
#RareDiseases #ATMPs #ERDERA #Research #CNAG
November 2, 2026 at 8:15 AM
erdera.bsky.social
Europe already has many of the standards needed to make better use of rare disease data. Now, the challenge is putting them into practice. 👉 The new ERDERA policy brief sets out how: https://loom.ly/Tnx-wFw
#HealthData #ERDERA @ec.europa.eu
October 27, 2026 at 7:08 AM
bbmrieric.bsky.social
💡 Welcome back to our #ProjectThursday

We collect news from the biobanking world for you here in one article.
Enjoy 🤝

❗️ Article: buff.ly/itWKPi5

Today with news from:
@nextgentraining.bsky.social
#ERDERA
@ericforum.bsky.social
#EPPerMed
#EPND
#RISCALE
#ISIDORe

👋 See you here next week! 💙🧡
October 29, 2026 at 8:18 AM
agencerecherche.bsky.social
[Préannonce] L’ANR s’associe au lancement prochain de l’appel transnational conjoint ERDERA 2027 - Catalyser la recherche collaborative pour les maladies rares récemment identifiées.
⏳ Date limite de soumission des pré-propositions : le 1er février 2027
➡ anr.fr/fr/detail/ca...
October 28, 2026 at 9:06 AM
oligogirl.bsky.social
#apaperaday @erdera special part 4 is another @mdpiopenaccess.bsky.social paper, by Taran et al in Pharmaceutics on the characterization of a generic nusinersen version, where authors compared it with commercial batches. Doi doi: 10.3390/pharmaceutics18020178
October 23, 2026 at 7:54 AM
erdera.bsky.social
That’s a wrap on ERDERA’s 3rd General Assembly Meeting! 🎉
176 participants in Coimbra and 300+ online came together for three days of scientific exchange, strategic discussions and collaboration.
🤝 Thank you to everyone who contributed!
More insights to come!
#ERDERA #RareDiseases
October 23, 2026 at 11:47 AM
erdera.bsky.social
🧬 From individual cases to new treatment pathways.
At the #ERDERA Open Session, European, regulatory & scientific perspectives came together to explore how innovation can reach people living with ultra-rare diseases. 🔎 Read more: https://loom.ly/TOF09_8
#RareDiseases #UltraRareDiseases
October 22, 2026 at 4:48 PM
bbmrieric.bsky.social
💡 Welcome back to our #ProjectThursday

We collect news from the biobanking world for you here in one article: buff.ly/BiYImCX

Today:
#Bioindustry40
#Bigpicture
@nextgentraining.bsky.social
#CANDLE
#EPND
#EPPerMed
#ERDERA
@ericforum.bsky.social
#QUANTUM
#UNCANConnect

👋 See you next week! 💙🧡
October 22, 2026 at 7:19 AM
erdera.bsky.social
📢 The ERDERA #JTC2027 pre-announcement is live!
This year’s call will focus on recently identified rare diseases, helping build the knowledge and evidence needed for future therapeutic development.
🔗 Find out more: https://loom.ly/OAMDCAk
#RareDiseases
October 22, 2026 at 9:15 AM
erdera.bsky.social
🚀 ERDERA’s 3rd General Assembly Meeting has kicked off in Coimbra!
As we reflect on our progress in Year 2, our community is coming together to discuss what comes next and shape the road ahead for Year 3.
💡Stay tuned for more from #ERDERA!
October 21, 2026 at 10:08 PM
erdera.bsky.social
⏳ Not long to go!
Join ERDERA at the World Orphan Drug Congress Europe 2026 in Amsterdam for our interactive workshop, “AI for Rare Diseases: From Promise to Practice”, on 26 October at 10:00 AM to explore how AI can move from promise to meaningful practice.
👉 Learn more: https://loom.ly/FQvdeRY
October 19, 2026 at 7:03 AM
erdera.bsky.social
👀 What’s on at the #REACTCongress 2027?

The programme and speakers are waiting to be explored! 🧬🎤

Discover what’s on the agenda, who’s taking the stage and start planning your Congress experience. 👉 https://loom.ly/_fGiC04

#RareDiseases #ERDERA
October 15, 2026 at 7:45 AM
bbmrieric.bsky.social
💡 Welcome back to our #ProjectThursday

We collect the latest news from the biobanking world for you here in one article.
Enjoy! 🤝

❗️ Article: buff.ly/FdgsFtw

Today with:

#biobankcy
#ERDERA
#EPPerMed
@ericforum.bsky.social
@cancerinfoportal.bsky.social
#UNCANConnect

👋 See you here next week 💙🧡
October 15, 2026 at 7:04 AM
eurordis.bsky.social
⏳ Thought about applying? Maybe even bookmarked the page?

Only 3 days left to apply for the Open Academy x ERDERA Schools 2027!

📍 Barcelona | 7–10 June
⏰ Don't let the deadline make the decision for you, apply by 16 October: https://go.eurordis.org/OAERDERASchool
October 13, 2026 at 3:01 PM
erdera.bsky.social
🧬 What ethical challenges arise in ATMP research, and how can resolving them become an advantage?
Join the next #ERDERA Ethics & Regulatory Webinar with Joana Namorado.
📅 2 Nov 2026 | 13:00 CET
💻 Online
🔗 Find out more & register: https://loom.ly/lZ8lmm8
#RareDiseases #ATMP #ResearchEthics
October 12, 2026 at 7:33 AM
cvega.bsky.social
Somos unos erdera 😅
October 9, 2026 at 12:47 PM
eurordis.bsky.social
💊 Heading to Barcelona for the #OpenAcademy x ERDERA Schools?

Extend your learning with the #REMEDi4ALL Repurposing Bootcamp and explore how patient representatives can help move promising ideas forward.

📍 Barcelona | 10–11 June
⏰ Apply by 16 Oct: https://go.eurordis.org/Remedi4allTraining
Group of professionals discussing and reviewing documents in a meeting setting for a drug repurposing bootcamp.
October 10, 2026 at 3:00 PM
visivisita.bsky.social
erdera, técnicamente, es un idioma que no es el euskera, erdeldun el que habla un idioma que no es euskera
October 9, 2026 at 2:27 PM
erdera.bsky.social
💡 Join the ERDERA Knowledge Exchange Meeting on Drug Repurposing for Rare Diseases, and exchange experiences and best practices between underrepresented and high-performing countries.
📅 25-26 November 2026
📍 Riga & online
🔗 Find out more & register: https://loom.ly/yPXfXKY
ERDERA Knowledge Exchange Meeting on Drug Repurposing for Rare Diseases - ERDERA
Discover practical pathways to repurpose medicines for rare diseases, exchange experiences and best practices between underrepresented and high-performing countries, and build new partnerships at the ERDERA Knowledge Exchange Meeting in Riga on 25-26 November.
erdera.org
October 9, 2026 at 9:27 AM
bbmrieric.bsky.social
Today with news from:
#Bioindustry40
#biobank.cy
#CANDLE
#canSERV
#EPND
#EPPerMed
#ERDERA
@ericforum.bsky.social
@cancerinfoportal.bsky.social
#GDI
#ISIDORe
#PERIFORMANCE
#PRIMTECH3R
#RISCALE
#QUANTUM
#UNCANConnect

🔗 Article link: buff.ly/ACv4qUr

🧵 2/2
October 8, 2026 at 9:37 AM