This talk is part of #LivingWellAgeingWell (2025–2026), supporting people with bleeding disorders as they age. Explore the resource hub 👉️ buff.ly/fATZ0kR
#BleedingDisorders #Haemophilia #MentalHealth #HealthyAgeing
#BleedingDisorders #Haemophilia #MentalHealth #HealthyAgeing
Living Well, Ageing Well • EHC Community
Living Well, Ageing Well
buff.ly
September 21, 2026 at 8:30 AM
This talk is part of #LivingWellAgeingWell (2025–2026), supporting people with bleeding disorders as they age. Explore the resource hub 👉️ buff.ly/fATZ0kR
#BleedingDisorders #Haemophilia #MentalHealth #HealthyAgeing
#BleedingDisorders #Haemophilia #MentalHealth #HealthyAgeing
🎙️ New EHC #LivingWellAgeingWell Virtual Café Talk on #MentalHealth and Isolation in Ageing People with #BleedingDisorders! Two critical issues in our community which yet don't always get the spotlight in clinical settings. Here's why this conversation matters 🧵👇️
September 21, 2026 at 8:30 AM
🎙️ New EHC #LivingWellAgeingWell Virtual Café Talk on #MentalHealth and Isolation in Ageing People with #BleedingDisorders! Two critical issues in our community which yet don't always get the spotlight in clinical settings. Here's why this conversation matters 🧵👇️
👉 Read the guide: www.ehc.eu/wp-content/u...
#WorldPatientSafetyDay #SafeCareForLife #BleedingDisorders #Haemophilia #VonWillebrandDisease
#WorldPatientSafetyDay #SafeCareForLife #BleedingDisorders #Haemophilia #VonWillebrandDisease
September 17, 2026 at 1:49 PM
It gives adults with #BleedingDisorders a practical framework — #TILT (Type, Intensity, Location, Time) — to describe what their pain feels like, where it is & when it happens.
September 17, 2026 at 1:49 PM
It gives adults with #BleedingDisorders a practical framework — #TILT (Type, Intensity, Location, Time) — to describe what their pain feels like, where it is & when it happens.
Pain that is named is pain that can be managed, together. That's the idea behind our new EHC guide, "I want to talk about my pain today!", launched on #WorldPatientSafetyDay today 🧵👇 #SafeCareForLife #BleedingDisorders
September 17, 2026 at 1:49 PM
Pain that is named is pain that can be managed, together. That's the idea behind our new EHC guide, "I want to talk about my pain today!", launched on #WorldPatientSafetyDay today 🧵👇 #SafeCareForLife #BleedingDisorders
Read the new EHC guide for adults with #BleedingDisorders on how to talk about pain with healthcare professionals 👉️ buff.ly/Fejz8aA
#WorldPatientSafetyDay #SafeCareForLife #BleedingDisorders #Haemophilia #VonWillebrandDisease
#WorldPatientSafetyDay #SafeCareForLife #BleedingDisorders #Haemophilia #VonWillebrandDisease
September 17, 2026 at 1:00 PM
Read the new EHC guide for adults with #BleedingDisorders on how to talk about pain with healthcare professionals 👉️ buff.ly/Fejz8aA
#WorldPatientSafetyDay #SafeCareForLife #BleedingDisorders #Haemophilia #VonWillebrandDisease
#WorldPatientSafetyDay #SafeCareForLife #BleedingDisorders #Haemophilia #VonWillebrandDisease
Thank you to everyone who shared their story with us. ❤️🩹 #WorldPatientSafetyDay #SafeCareForLife #BleedingDisorders #Haemophilia #VonWillebrandDisease
September 17, 2026 at 1:00 PM
Thank you to everyone who shared their story with us. ❤️🩹 #WorldPatientSafetyDay #SafeCareForLife #BleedingDisorders #Haemophilia #VonWillebrandDisease
Their experiences remind us why speaking up about pain matters & why every conversation about #Pain is a step toward better, safer care. #WorldPatientSafetyDay #SafeCareForLife #BleedingDisorders #Haemophilia #VonWillebrandDisease
September 17, 2026 at 1:00 PM
Their experiences remind us why speaking up about pain matters & why every conversation about #Pain is a step toward better, safer care. #WorldPatientSafetyDay #SafeCareForLife #BleedingDisorders #Haemophilia #VonWillebrandDisease
Behind our new guide, “I want to talk about my pain today!”, are the voices of people living with #BleedingDisorders, who generously shared what #Pain has really been like for them. 🧵👇 #WorldPatientSafetyDay #SafeCareForLife
September 17, 2026 at 1:00 PM
Behind our new guide, “I want to talk about my pain today!”, are the voices of people living with #BleedingDisorders, who generously shared what #Pain has really been like for them. 🧵👇 #WorldPatientSafetyDay #SafeCareForLife
👉 Read the guide: buff.ly/Fejz8aA
#WorldPatientSafetyDay #SafeCareForLife #BleedingDisorders #Haemophilia #VonWillebrandDisease
#WorldPatientSafetyDay #SafeCareForLife #BleedingDisorders #Haemophilia #VonWillebrandDisease
September 17, 2026 at 10:00 AM
It gives adults with #BleedingDisorders a practical framework — #TILT (Type, Intensity, Location, Time) — to describe what their pain feels like, where it is & when it happens.
September 17, 2026 at 10:00 AM
It gives adults with #BleedingDisorders a practical framework — #TILT (Type, Intensity, Location, Time) — to describe what their pain feels like, where it is & when it happens.
This #WorldPatientSafetyDay, we're marking that principle & we've got something new in the works to help make those conversations easier. Stay tuned. 👀 #SafeCareForLife #BleedingDisorders #Haemophilia #VonWillebrandDisease
September 17, 2026 at 7:00 AM
This #WorldPatientSafetyDay, we're marking that principle & we've got something new in the works to help make those conversations easier. Stay tuned. 👀 #SafeCareForLife #BleedingDisorders #Haemophilia #VonWillebrandDisease
But #Pain that is clearly described is pain that can be managed. When patients with #BleedingDisorders & clinicians talk openly about what pain feels like, where it is & how it changes, that conversation becomes a powerful tool in safe, effective care.
September 17, 2026 at 7:00 AM
But #Pain that is clearly described is pain that can be managed. When patients with #BleedingDisorders & clinicians talk openly about what pain feels like, where it is & how it changes, that conversation becomes a powerful tool in safe, effective care.
#BleedingDisorders share that same long-term, lifelong nature. For many living with one, #Pain is part of daily reality: the sudden warning of an acute bleed, the daily ache of chronic joint damage, or pain linked to menstrual bleeding.
September 17, 2026 at 7:00 AM
#BleedingDisorders share that same long-term, lifelong nature. For many living with one, #Pain is part of daily reality: the sudden warning of an acute bleed, the daily ache of chronic joint damage, or pain linked to menstrual bleeding.
On UK National #FitnessDay we’re thinking about #exercise! Physical activity can have positive benefits for people with #bleedingdisorders. Haemnet's Project GYM resources provide guidance on safe exercise, expert tips on strength training & advice for trainers.
#HemeSky #MedSky
#HemeSky #MedSky
September 16, 2026 at 6:00 AM
On UK National #FitnessDay we’re thinking about #exercise! Physical activity can have positive benefits for people with #bleedingdisorders. Haemnet's Project GYM resources provide guidance on safe exercise, expert tips on strength training & advice for trainers.
#HemeSky #MedSky
#HemeSky #MedSky
💡All new articles in Bleeding Disorders: Care & Practice now include a plain language summary.
New and forthcoming in #BDCP...
🔗 https://loom.ly/uIXcNF8
#BDCP #haemophilia #pharmacokinetics #bleedingdisorders #mentalhealth #surgery #inhibitors #emicizumab #prophylaxis
#HemeSky #MedSky
New and forthcoming in #BDCP...
🔗 https://loom.ly/uIXcNF8
#BDCP #haemophilia #pharmacokinetics #bleedingdisorders #mentalhealth #surgery #inhibitors #emicizumab #prophylaxis
#HemeSky #MedSky
September 10, 2026 at 8:01 AM
💡All new articles in Bleeding Disorders: Care & Practice now include a plain language summary.
New and forthcoming in #BDCP...
🔗 https://loom.ly/uIXcNF8
#BDCP #haemophilia #pharmacokinetics #bleedingdisorders #mentalhealth #surgery #inhibitors #emicizumab #prophylaxis
#HemeSky #MedSky
New and forthcoming in #BDCP...
🔗 https://loom.ly/uIXcNF8
#BDCP #haemophilia #pharmacokinetics #bleedingdisorders #mentalhealth #surgery #inhibitors #emicizumab #prophylaxis
#HemeSky #MedSky
Download the accompanying #LivingWellAgeingWell Guide on Staying Mobile & Preventing Falls, with practical tips designed for the #BleedingDisorders community 📄 buff.ly/BfofLpW
That's a wrap for #WorldPTDay 2026 — small adjustments, big benefits!
That's a wrap for #WorldPTDay 2026 — small adjustments, big benefits!
September 8, 2026 at 7:00 AM
Download the accompanying #LivingWellAgeingWell Guide on Staying Mobile & Preventing Falls, with practical tips designed for the #BleedingDisorders community 📄 buff.ly/BfofLpW
That's a wrap for #WorldPTDay 2026 — small adjustments, big benefits!
That's a wrap for #WorldPTDay 2026 — small adjustments, big benefits!
#Physiotherapy is also about prevention. For people with #BleedingDisorders, staying mobile & avoiding falls matters even more — a fall can mean a bleed. Revisit our #LivingWellAgeingWell Café Talk on Staying Mobile & Preventing Falls 🎥 buff.ly/apySEQg
#WorldPTDay
#WorldPTDay
Ageing Strong: Staying Mobile and Preventing Falls
EHC Virtual Café Talk #3 – Staying Mobile and Preventing Falls
Join the European Haemophilia Consortium (EHC) for another episode of our educational series on ageing with bleeding disorders. Host…
youtu.be
September 8, 2026 at 7:00 AM
#Physiotherapy is also about prevention. For people with #BleedingDisorders, staying mobile & avoiding falls matters even more — a fall can mean a bleed. Revisit our #LivingWellAgeingWell Café Talk on Staying Mobile & Preventing Falls 🎥 buff.ly/apySEQg
#WorldPTDay
#WorldPTDay
And join us at the #EHCRoundTable on #CardiovascularCare in #BleedingDisorders, taking place at the European Parliament in Brussels on 29 September & bringing together experts to dig deeper into these questions. Register now, seats are limited 👀 buff.ly/K6GJGG9
Round Table on Bleeding Disorders and Cardiovascular Care in Europe • European Haemophilia Consortium (EHC)
This Round Table discussion will be hosted by MEP Aurelijus Veryga at the European Parliament in Brussels.
www.ehc.eu
September 8, 2026 at 7:00 AM
And join us at the #EHCRoundTable on #CardiovascularCare in #BleedingDisorders, taking place at the European Parliament in Brussels on 29 September & bringing together experts to dig deeper into these questions. Register now, seats are limited 👀 buff.ly/K6GJGG9
Missed our #LivingWellAgeingWell Webinar on Cardiovascular Issues & Other Comorbidities in #BleedingDisorders in partnership with @erneurobloodnet.bsky.social? Catch up here 🎥 buff.ly/ICUGnVv
#WorldPTDay
#WorldPTDay
Cardiovascular Issues and Other Comorbidities
EHC – ERN-EuroBloodNet “Topic on Focus: Ageing with a Bleeding Disorder”
Webinar #4: Cardiovascular Issues and Other Comorbidities
Speakers: Prof Roger Schutgens (University Medical Center Utrecht,…
youtu.be
September 8, 2026 at 7:00 AM
Missed our #LivingWellAgeingWell Webinar on Cardiovascular Issues & Other Comorbidities in #BleedingDisorders in partnership with @erneurobloodnet.bsky.social? Catch up here 🎥 buff.ly/ICUGnVv
#WorldPTDay
#WorldPTDay
This year's #WorldPTDay theme — cardiovascular disease & stroke — matters for the #BleedingDisorders community too: how to stay active safely, how treatment interacts with heart health & what care teams need to consider.
September 8, 2026 at 7:00 AM
This year's #WorldPTDay theme — cardiovascular disease & stroke — matters for the #BleedingDisorders community too: how to stay active safely, how treatment interacts with heart health & what care teams need to consider.
We're marking this #WorldPTDay with our #ThisWay webinar on #Ergonomics and #Physiotherapy, featuring Andrea Wittenbecher, designed with the needs of people with #BleedingDisorders in mind.
September 8, 2026 at 7:00 AM
We're marking this #WorldPTDay with our #ThisWay webinar on #Ergonomics and #Physiotherapy, featuring Andrea Wittenbecher, designed with the needs of people with #BleedingDisorders in mind.
Today is #WorldPTDay 🌍 For people with #BleedingDisorders, #Physiotherapy is central to protecting joint health, managing pain & staying independent. This year's global theme: cardiovascular disease & stroke. 🧵👇️
September 8, 2026 at 7:00 AM
Today is #WorldPTDay 🌍 For people with #BleedingDisorders, #Physiotherapy is central to protecting joint health, managing pain & staying independent. This year's global theme: cardiovascular disease & stroke. 🧵👇️
In this week's NBDF Wednesday Webinar: a whole panel of experts will help us navigate the big changes to #Medicaid coming in January.
Learn what the #BleedingDisorders #community needs to do to prepare!
Live Q&A
Sept 9 2PM ET
Pre-register (FREE): bleeding.org/events
Learn what the #BleedingDisorders #community needs to do to prepare!
Live Q&A
Sept 9 2PM ET
Pre-register (FREE): bleeding.org/events
Upcoming Events for the Bleeding Disorders Community | NBDF
Discover in-person and virtual events to connect with the bleeding disorders community. Stay informed about upcoming gatherings, workshops, and conferences.
bleeding.org
September 7, 2026 at 4:37 PM
In this week's NBDF Wednesday Webinar: a whole panel of experts will help us navigate the big changes to #Medicaid coming in January.
Learn what the #BleedingDisorders #community needs to do to prepare!
Live Q&A
Sept 9 2PM ET
Pre-register (FREE): bleeding.org/events
Learn what the #BleedingDisorders #community needs to do to prepare!
Live Q&A
Sept 9 2PM ET
Pre-register (FREE): bleeding.org/events
For more on living with a bleeding disorder, why not explore our archives?
Haemcast is available across podcast platforms, or you can tune in here: https://loom.ly/A4UWu6M
#Haemophilia #VonWillebrandDisease #GlanzmannThrombasthenia #BleedingDisorders #Podcast
#HemeSky #MedSky
Haemcast is available across podcast platforms, or you can tune in here: https://loom.ly/A4UWu6M
#Haemophilia #VonWillebrandDisease #GlanzmannThrombasthenia #BleedingDisorders #Podcast
#HemeSky #MedSky
September 4, 2026 at 8:01 AM
For more on living with a bleeding disorder, why not explore our archives?
Haemcast is available across podcast platforms, or you can tune in here: https://loom.ly/A4UWu6M
#Haemophilia #VonWillebrandDisease #GlanzmannThrombasthenia #BleedingDisorders #Podcast
#HemeSky #MedSky
Haemcast is available across podcast platforms, or you can tune in here: https://loom.ly/A4UWu6M
#Haemophilia #VonWillebrandDisease #GlanzmannThrombasthenia #BleedingDisorders #Podcast
#HemeSky #MedSky