#C19LAP
C19LAP has opened up our 2026 Volunteer form. We are seeking committed individuals who can help expand our capacity, strengthen our operations, and support the continued growth and impact of our mission.

docs.google.com/forms/d/e/1F...
Long COVID Volunteers 2026 (C19LAP)
C19LAP is a patient-founded and patient-led Long COVID nonprofit organization based in the United States. Our work is dedicated entirely to advancing awareness, education, resources, cross-sector coll...
docs.google.com
April 14, 2026 at 11:05 PM
At C19LAP, we believe one thing is clear: education is the foundation of an effective, scaled response to #LongCOVID. This is how we move from awareness → action → impact.

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April 14, 2026 at 5:23 PM
The COVID-19 Longhauler Advocacy Project’s (C19LAP) founder, Karyn Bishof, recently joined the Association of State and Territorial Health Officials (@ASTHO) and public health leaders for a powerful webinar during #LongCOVIDAwareness Month.

Watch here: www.astho.org/communicatio...

#LongCOVID
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Living With Long COVID: Stories, Science, and Public Health
www.astho.org
April 14, 2026 at 5:23 PM
#LongCOVIDAwareness Month Roundup!

Many secured meetings, connected with lawmakers, & helped move this work forward—& we want to highlight & build on that momentum.

Tell us what you did! Meetings, outreach, events, or any action taken with C19LAP:
docs.google.com/forms/d/1yqP...
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docs.google.com
April 2, 2026 at 9:44 PM
Join C19LAP founder Karyn Bishof and the Association of State and Territorial Health Officials alongside other panelists for a webinar on March 31st from 1-2:15 p.m. ET to discuss #LongCOVID during #LongCOVIDAwareness Month.
Long COVID continues to affect millions, often in ways that go unseen.

Join ASTHO on March 31 for a virtual conversation on lived experience, emerging challenges, and opportunities to strengthen awareness and support.

To register: https://discover.astho.org/4b0XPqN.
@doh.wa.gov
March 11, 2026 at 12:11 AM
Education drives awareness, informs clinicians, shapes research, strengthens policy, and protects communities.

For six years, people living with #LongCOVID have volunteered their time through C19LAP, as an all-volunteer, patient-led organization —& together, we’ve accomplished a tremendous amount.
March 2, 2026 at 1:02 AM
As people unequally bear the burden of “returning to normal” we need to take care of those who can’t. www.longhauler-advocacy.org
Home | C19LAP | COVID-19 Longhauler Advocacy Project
As the COVID-19 Longhauler Advocacy Project (C19LAP), a grassroots, patient-led 501(c)(3) nonprofit, we stand at the forefront of combating Long COVID and its sweeping effects on our community.
www.longhauler-advocacy.org
February 11, 2026 at 8:30 PM
March is Long Haul Covid Awareness month, and the Long Haul Advocacy has built a ton of resources to share and spread awareness. I hope many of you can help the cause next month I am on the mailing list and their website will be updated soon: www.longhauler-advocacy.org
Home | C19LAP | COVID-19 Longhauler Advocacy Project
As the COVID-19 Longhauler Advocacy Project (C19LAP), a grassroots, patient-led 501(c)(3) nonprofit, we stand at the forefront of combating Long COVID and its sweeping effects on our community.
www.longhauler-advocacy.org
February 8, 2026 at 3:25 PM
Long COVID is ongoing. So is our commitment to visibility, prevention, and patient-led action. Let’s move into March organized, unified, and paced.

View our announcement and Preparation Guide here: bit.ly/LCA26PGE 11/
March is Long COVID Awareness Month! The COVID-19 Longhauler Advocacy Project (C19LAP), alongside other Long COVID organizations and advocates, has actions and events planned throughout the month of M...
We strongly encourage community members to begin participating in February by mailing letters to lawmakers, agencies, media outlets, and other decision-makers. These letters should then be followed up...
bit.ly
February 7, 2026 at 11:21 PM
Every action counts, from a single share or teal light in your home, to organizing meetings with decision-makers, to standing visibly with a Street Team. Small and large efforts together create real impact.
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March is Long COVID Awareness Month! The COVID-19 Longhauler Advocacy Project (C19LAP), alongside other Long COVID organizations and advocates, has actions and events planned throughout the month of M...
We strongly encourage community members to begin participating in February by mailing letters to lawmakers, agencies, media outlets, and other decision-makers. These letters should then be followed up...
bit.ly
February 7, 2026 at 11:21 PM
4. Save the date for Topic Days and help amplify our daily Fact of the Day throughout March by liking, sharing, and reposting.

Kick off Long COVID Awareness Month on March 1 by updating your (new!) profile picture frame and posting throughout the month using #LongCOVID and #LongCOVIDAwareness.
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March is Long COVID Awareness Month! The COVID-19 Longhauler Advocacy Project (C19LAP), alongside other Long COVID organizations and advocates, has actions and events planned throughout the month of M...
We strongly encourage community members to begin participating in February by mailing letters to lawmakers, agencies, media outlets, and other decision-makers. These letters should then be followed up...
bit.ly
February 7, 2026 at 11:21 PM
2. Draft your Long COVID Awareness Day and Week posts now so they are ready to publish in March with minimal effort.
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March is Long COVID Awareness Month! The COVID-19 Longhauler Advocacy Project (C19LAP), alongside other Long COVID organizations and advocates, has actions and events planned throughout the month of M...
We strongly encourage community members to begin participating in February by mailing letters to lawmakers, agencies, media outlets, and other decision-makers. These letters should then be followed up...
bit.ly
February 7, 2026 at 11:21 PM
We encourage the Long COVID community to thoughtfully prioritize spoons for the actions and moments that will have the greatest impact.
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March is Long COVID Awareness Month! The COVID-19 Longhauler Advocacy Project (C19LAP), alongside other Long COVID organizations and advocates, has actions and events planned throughout the month of M...
We strongly encourage community members to begin participating in February by mailing letters to lawmakers, agencies, media outlets, and other decision-makers. These letters should then be followed up...
bit.ly
February 7, 2026 at 11:21 PM
February is our foundational month. Outreach and preparation now opens doors and preserves spoons and health for sustained visibility and action in March, especially for Long COVID Awareness day (3/15) and Long COVID Awareness Week (3/15-21).
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March is Long COVID Awareness Month! The COVID-19 Longhauler Advocacy Project (C19LAP), alongside other Long COVID organizations and advocates, has actions and events planned throughout the month of M...
We strongly encourage community members to begin participating in February by mailing letters to lawmakers, agencies, media outlets, and other decision-makers. These letters should then be followed up...
bit.ly
February 7, 2026 at 11:21 PM
We’re proud to launch the #LongCOVIDAwareness Month 2026 Preparation Guide which is a coordinated roadmap designed to help our community prepare early, pace sustainably, and take meaningful action together. 2/
March is Long COVID Awareness Month! The COVID-19 Longhauler Advocacy Project (C19LAP), alongside other Long COVID organizations and advocates, has actions and events planned throughout the month of M...
We strongly encourage community members to begin participating in February by mailing letters to lawmakers, agencies, media outlets, and other decision-makers. These letters should then be followed up...
bit.ly
February 7, 2026 at 11:21 PM
Opportunities are open beyond C19LAP community members. We welcome other Long COVID groups and organizations to reach out to contact@longhauler-advocacy.org if they wish to collaborate on this initiative.

Please consider sharing this initiative. TY!
#LongCOVIDAwareness #LongCOVIDAwareness2026
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January 4, 2026 at 7:16 PM
Still in the mood for holiday giving?

Your gift can make a world of difference when supporting the work of the COVID-19 Longhauler Advocacy Project.

Consider giving today!
www.longhauler-advocacy.org/support-our-...
Support Our Mission | C19LAP | COVID-19 Longhauler Advocacy Project
By partnering with C19LAP, donating, volunteering, or simply amplifying our message, you help us move the needle significantly. As we continue to grow and tackle the challenges of Long COVID, includi...
www.longhauler-advocacy.org
December 26, 2025 at 5:07 PM
C19LAP will honor our top 5 fundraisers w/ 100 3M N95 masks, a #LongCOVID Awareness shirt & wristband. Donate or create a campaign to help C19LAP’s continuity, expansion, & success here: https://bit.ly/FR4LC26 #GivingTuesday #GivingSeason
December 7, 2025 at 7:25 PM
C19LAP drives Long COVID legislation and work nationwide, bringing forward the lived experiences of our community to develop the needed solutions. Your contribution fuels this work: https://bit.ly/FR4LC26 #LongCOVID #GivingTuesday #PublicHealthMatters #GigingSeason
December 7, 2025 at 2:15 AM
C19LAP plays a central role in national public health education, providing guidance to medical specialty societies, clinicians, researchers, medical students, & state and local health departments. Help support our work: https://bit.ly/FR4LC26

#LongCOVID #GivingTuesday #GivingSeason
December 6, 2025 at 7:30 PM
Guidance from public health officials has lacked since the start of the pandemic. C19LAP has filled those gaps and needs your help to continue to do so! Your support ensures families and clinicians have access to essential resources. https://bit.ly/FR4LC26
#LongCOVID #GivingTuesday #GivingSeason
December 6, 2025 at 3:10 PM
C19LAP, as a patient-led, volunteer organization, has built the largest #LongCOVID network in the US. Your generosity helps scale this impact. https://bit.ly/FR4LC26
#LongCOVID #GivingTuesday #PublicHealthMatters #GivingSeason
December 6, 2025 at 12:45 AM
We are transforming more than 60 C19LAP chapters into coordinated statewide #LongCOVID systems to create the national infrastructure families and clinicians need.

Help power this expansion and drive progress: https://bit.ly/FR4LC26
#GivingTuesday #Donate #GivingSeason
December 5, 2025 at 1:01 PM