The COVID-19 Longhauler Advocacy Project is proud to announce V2 of our Comprehensive Guide to Long COVID! #CGLC #C19LAPCGLC www.longhauler-advocacy.org/2024cglc
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Comprehensive Guide | C19LAP | COVID-19 Longhauler Advocacy Project
The COVID-19 Longhauler Advocacy Project is dedicated to supporting those affected by long COVID through comprehensive resources and the latest information. Our new guide, the C19LAP Comprehensive Gui...
www.longhauler-advocacy.org
November 11, 2024 at 4:49 PM
The COVID-19 Longhauler Advocacy Project is proud to announce V2 of our Comprehensive Guide to Long COVID! #CGLC #C19LAPCGLC www.longhauler-advocacy.org/2024cglc
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As people unequally bear the burden of “returning to normal” we need to take care of those who can’t. www.longhauler-advocacy.org
Home | C19LAP | COVID-19 Longhauler Advocacy Project
As the COVID-19 Longhauler Advocacy Project (C19LAP), a grassroots, patient-led 501(c)(3) nonprofit, we stand at the forefront of combating Long COVID and its sweeping effects on our community.
www.longhauler-advocacy.org
February 11, 2026 at 8:30 PM
As people unequally bear the burden of “returning to normal” we need to take care of those who can’t. www.longhauler-advocacy.org
March 1st Kicks Off #LongCOVID Awareness Month!
Join us during #LongCOVIDAwareness2025 to raise #LongCOVIDAwareness, promote #LongCOVIDEducation, & advocate for needed #LongCOVIDResources & to #PreventandCureLongCOVID!
Stay tuned for #C19LAP actions & events coming soon!
Join us during #LongCOVIDAwareness2025 to raise #LongCOVIDAwareness, promote #LongCOVIDEducation, & advocate for needed #LongCOVIDResources & to #PreventandCureLongCOVID!
Stay tuned for #C19LAP actions & events coming soon!
March 1, 2025 at 10:46 PM
March 1st Kicks Off #LongCOVID Awareness Month!
Join us during #LongCOVIDAwareness2025 to raise #LongCOVIDAwareness, promote #LongCOVIDEducation, & advocate for needed #LongCOVIDResources & to #PreventandCureLongCOVID!
Stay tuned for #C19LAP actions & events coming soon!
Join us during #LongCOVIDAwareness2025 to raise #LongCOVIDAwareness, promote #LongCOVIDEducation, & advocate for needed #LongCOVIDResources & to #PreventandCureLongCOVID!
Stay tuned for #C19LAP actions & events coming soon!
We’re thrilled to announce the reopening of the C19LAP Long COVID Awareness Shop!
threecubsboutique.com/collections/...
threecubsboutique.com/collections/...
December 13, 2024 at 6:45 PM
We’re thrilled to announce the reopening of the C19LAP Long COVID Awareness Shop!
threecubsboutique.com/collections/...
threecubsboutique.com/collections/...
Many thanks to our reader Dana Barnett who alerted us to this info, and to the disability advocates who quickly responded to my request for comment!!
@c19lap.bsky.social is a great source for more resources about accommodations: www.longhauler-advocacy.org/2024cglc
@c19lap.bsky.social is a great source for more resources about accommodations: www.longhauler-advocacy.org/2024cglc
Comprehensive Guide to LC | C19LAP | COVID-19 Longhauler Advocacy Project
The COVID-19 Longhauler Advocacy Project is dedicated to supporting those affected by long COVID through comprehensive resources and the latest information. Our new guide, the C19LAP Comprehensive Gui...
www.longhauler-advocacy.org
February 11, 2025 at 5:39 PM
Many thanks to our reader Dana Barnett who alerted us to this info, and to the disability advocates who quickly responded to my request for comment!!
@c19lap.bsky.social is a great source for more resources about accommodations: www.longhauler-advocacy.org/2024cglc
@c19lap.bsky.social is a great source for more resources about accommodations: www.longhauler-advocacy.org/2024cglc
Today marks five years since the COVID-19 Longhauler Advocacy Project (C19LAP) was born out of urgency, out of frustration, and out of the unshakable belief that patients deserve to be heard, believed, and protected.
Read more here:https://longhauler-advocacy.org/so/47PUuRQjx?languageTag=en
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Read more here:https://longhauler-advocacy.org/so/47PUuRQjx?languageTag=en
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Today marks five years since the COVID-19 Longhauler Advocacy Project (C19LAP) was born out of urgency, out of frustration, and out of the unshakable belief that patients deserve to be heard, believed...
In Community, C19LAP Leadership
longhauler-advocacy.org
June 28, 2025 at 10:34 PM
Today marks five years since the COVID-19 Longhauler Advocacy Project (C19LAP) was born out of urgency, out of frustration, and out of the unshakable belief that patients deserve to be heard, believed, and protected.
Read more here:https://longhauler-advocacy.org/so/47PUuRQjx?languageTag=en
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Read more here:https://longhauler-advocacy.org/so/47PUuRQjx?languageTag=en
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🚨BREAKING: Today Sen. Bernie Sanders and
Covid-19 Longhauler Advocacy Project announced a resolution to formally designate March 15 as Long Covid Awareness Day. Read about it in @thesicktimes.bsky.social.
thesicktimes.org/2024/03/15/s...
Covid-19 Longhauler Advocacy Project announced a resolution to formally designate March 15 as Long Covid Awareness Day. Read about it in @thesicktimes.bsky.social.
thesicktimes.org/2024/03/15/s...
Sen. Bernie Sanders introduces resolution to formalize Long Covid Awareness Day - The Sick Times
Today Senator Bernie Sanders and the Covid-19 Longhauler Advocacy Project (C19LAP) announced a resolution to formally designate March 15 as Long Covid Awareness Day. “This resolution is a major step i...
thesicktimes.org
March 15, 2024 at 3:27 PM
🚨BREAKING: Today Sen. Bernie Sanders and
Covid-19 Longhauler Advocacy Project announced a resolution to formally designate March 15 as Long Covid Awareness Day. Read about it in @thesicktimes.bsky.social.
thesicktimes.org/2024/03/15/s...
Covid-19 Longhauler Advocacy Project announced a resolution to formally designate March 15 as Long Covid Awareness Day. Read about it in @thesicktimes.bsky.social.
thesicktimes.org/2024/03/15/s...
So many people:
“wHY dO I feEL sO sIcK?”
Seriously, the @c19lap.bsky.social
Comprehensive Guide to #LongCOVID is a game changer and labor of love. PLEASE— share it with people looking for information & utilize it yourself. Most desired resources are in it. www.longhauler-advocacy.org/2024cglc
“wHY dO I feEL sO sIcK?”
Seriously, the @c19lap.bsky.social
Comprehensive Guide to #LongCOVID is a game changer and labor of love. PLEASE— share it with people looking for information & utilize it yourself. Most desired resources are in it. www.longhauler-advocacy.org/2024cglc
Comprehensive Guide to LC | C19LAP | COVID-19 Longhauler Advocacy Project
The COVID-19 Longhauler Advocacy Project is dedicated to supporting those affected by long COVID through comprehensive resources and the latest information. Our new guide, the C19LAP Comprehensive Gui...
www.longhauler-advocacy.org
January 14, 2025 at 3:16 AM
So many people:
“wHY dO I feEL sO sIcK?”
Seriously, the @c19lap.bsky.social
Comprehensive Guide to #LongCOVID is a game changer and labor of love. PLEASE— share it with people looking for information & utilize it yourself. Most desired resources are in it. www.longhauler-advocacy.org/2024cglc
“wHY dO I feEL sO sIcK?”
Seriously, the @c19lap.bsky.social
Comprehensive Guide to #LongCOVID is a game changer and labor of love. PLEASE— share it with people looking for information & utilize it yourself. Most desired resources are in it. www.longhauler-advocacy.org/2024cglc
Thank you to everyone who joined our recent webinar hosted by Kantor & Kantor, LLP in collaboration with the COVID-19 Longhauler Advocacy Project (C19LAP).
The webinar recording is available here: www.youtube.com/watch?v=RFCM...
#LongCOVID #disability #C19LAP
Longhauler-advocacy.org
The webinar recording is available here: www.youtube.com/watch?v=RFCM...
#LongCOVID #disability #C19LAP
Longhauler-advocacy.org
Navigating Long COVID, SSDI, and Disability Insurance: What Patients Need to Know
YouTube video by COVID-19 Longhauler Advocacy Project
www.youtube.com
November 19, 2025 at 11:34 PM
Thank you to everyone who joined our recent webinar hosted by Kantor & Kantor, LLP in collaboration with the COVID-19 Longhauler Advocacy Project (C19LAP).
The webinar recording is available here: www.youtube.com/watch?v=RFCM...
#LongCOVID #disability #C19LAP
Longhauler-advocacy.org
The webinar recording is available here: www.youtube.com/watch?v=RFCM...
#LongCOVID #disability #C19LAP
Longhauler-advocacy.org
Five Years Later: The Ongoing COVID & Long COVID Crisis, & the Future of Public Health
Join C19LAP founder, @KBishof.bsky.social & @mtosterholm.bbsky.social,
@CIDRAP.bsky.social
Director (UM), for a webinar on March 12th at 3pm EST.
Register & share: bit.ly/c19lapostweb
#LongCOVIDAwareness2025
Join C19LAP founder, @KBishof.bsky.social & @mtosterholm.bbsky.social,
@CIDRAP.bsky.social
Director (UM), for a webinar on March 12th at 3pm EST.
Register & share: bit.ly/c19lapostweb
#LongCOVIDAwareness2025
February 26, 2025 at 2:50 PM
Five Years Later: The Ongoing COVID & Long COVID Crisis, & the Future of Public Health
Join C19LAP founder, @KBishof.bsky.social & @mtosterholm.bbsky.social,
@CIDRAP.bsky.social
Director (UM), for a webinar on March 12th at 3pm EST.
Register & share: bit.ly/c19lapostweb
#LongCOVIDAwareness2025
Join C19LAP founder, @KBishof.bsky.social & @mtosterholm.bbsky.social,
@CIDRAP.bsky.social
Director (UM), for a webinar on March 12th at 3pm EST.
Register & share: bit.ly/c19lapostweb
#LongCOVIDAwareness2025
Today, #C19LAP met with the office of U.S. Senator Marshall to elevate the needs and priorities of the #LongCOVID community.
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November 7, 2025 at 11:23 PM
Today, #C19LAP met with the office of U.S. Senator Marshall to elevate the needs and priorities of the #LongCOVID community.
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From preventing COVID, to acute testing, treatment, and documentation, to infection plans and assessing current data, Chapter 1 of the C19LAP Comprehensive Guide to Long COVID is the go to place for credible and scientifically driven information.
www.longhauler-advocacy.org/2024cglc
www.longhauler-advocacy.org/2024cglc
Comprehensive Guide to LC | C19LAP | COVID-19 Longhauler Advocacy Project
The COVID-19 Longhauler Advocacy Project is dedicated to supporting those affected by long COVID through comprehensive resources and the latest information. Our new guide, the C19LAP Comprehensive Gui...
www.longhauler-advocacy.org
December 23, 2024 at 5:12 PM
From preventing COVID, to acute testing, treatment, and documentation, to infection plans and assessing current data, Chapter 1 of the C19LAP Comprehensive Guide to Long COVID is the go to place for credible and scientifically driven information.
www.longhauler-advocacy.org/2024cglc
www.longhauler-advocacy.org/2024cglc
Join C19LAP founder Karyn Bishof and the Association of State and Territorial Health Officials alongside other panelists for a webinar on March 31st from 1-2:15 p.m. ET to discuss #LongCOVID during #LongCOVIDAwareness Month.
Long COVID continues to affect millions, often in ways that go unseen.
Join ASTHO on March 31 for a virtual conversation on lived experience, emerging challenges, and opportunities to strengthen awareness and support.
To register: https://discover.astho.org/4b0XPqN.
@doh.wa.gov
Join ASTHO on March 31 for a virtual conversation on lived experience, emerging challenges, and opportunities to strengthen awareness and support.
To register: https://discover.astho.org/4b0XPqN.
@doh.wa.gov
March 11, 2026 at 12:11 AM
Join C19LAP founder Karyn Bishof and the Association of State and Territorial Health Officials alongside other panelists for a webinar on March 31st from 1-2:15 p.m. ET to discuss #LongCOVID during #LongCOVIDAwareness Month.
NEW: Sen. Bernie Sanders has introduced a resolution to formally recognize #LongCovidAwarenessDay, in collaboration with the Covid-19 Longhauler Advocacy Project.
Sen. Bernie Sanders introduces resolution to formalize Long Covid Awareness Day - The Sick Times
Today Senator Bernie Sanders and the Covid-19 Longhauler Advocacy Project (C19LAP) announced a resolution to formally designate March 15 as Long Covid Awareness Day. “This resolution is a major step i...
thesicktimes.org
March 15, 2024 at 3:30 PM
NEW: Sen. Bernie Sanders has introduced a resolution to formally recognize #LongCovidAwarenessDay, in collaboration with the Covid-19 Longhauler Advocacy Project.
C19LAP helped define Long COVID at the national level. This definition now guides clinicians, researchers, and disability determinations.
Support the organization carrying this work into every state: https://bit.ly/FR4LC26
#LongCOVID #GivingTuesday #PublicHealthMatters
Support the organization carrying this work into every state: https://bit.ly/FR4LC26
#LongCOVID #GivingTuesday #PublicHealthMatters
December 2, 2025 at 12:30 AM
C19LAP helped define Long COVID at the national level. This definition now guides clinicians, researchers, and disability determinations.
Support the organization carrying this work into every state: https://bit.ly/FR4LC26
#LongCOVID #GivingTuesday #PublicHealthMatters
Support the organization carrying this work into every state: https://bit.ly/FR4LC26
#LongCOVID #GivingTuesday #PublicHealthMatters
C19LAP firmly believes that education is the nucleus for all that needs to happen in the #LongCOVID space. Our strengths are education, resource development, and cross-sector convening. C19LAP is doing the work, everyday, to
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November 3, 2025 at 10:57 PM
C19LAP firmly believes that education is the nucleus for all that needs to happen in the #LongCOVID space. Our strengths are education, resource development, and cross-sector convening. C19LAP is doing the work, everyday, to
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On Wednesday we had the honor of hosting a webinar “Five Years Later: The Ongoing #COVID & #LongCOVID Crisis & the Future of Public Health”
w/ @mtosterholm Dir. Of @CIDRAP & #C19LAP founder @K_Bishof for #LongCOVIDAwareness Day.
Watch the webinar here: www.youtube.com/embed/FHqq5N...
w/ @mtosterholm Dir. Of @CIDRAP & #C19LAP founder @K_Bishof for #LongCOVIDAwareness Day.
Watch the webinar here: www.youtube.com/embed/FHqq5N...
YouTube
www.youtube.com
March 15, 2025 at 10:21 PM
On Wednesday we had the honor of hosting a webinar “Five Years Later: The Ongoing #COVID & #LongCOVID Crisis & the Future of Public Health”
w/ @mtosterholm Dir. Of @CIDRAP & #C19LAP founder @K_Bishof for #LongCOVIDAwareness Day.
Watch the webinar here: www.youtube.com/embed/FHqq5N...
w/ @mtosterholm Dir. Of @CIDRAP & #C19LAP founder @K_Bishof for #LongCOVIDAwareness Day.
Watch the webinar here: www.youtube.com/embed/FHqq5N...
We're Hiring!
Available Positions:
1. Director of Development & Major Gifts
2. Director of Digital Content & Social Media Growth
Apply or share today! www.longhauler-advocacy.org/job-opportun...
#LongCOVID #PublicHealth #Nonprofit #Jobs #Hiring
Available Positions:
1. Director of Development & Major Gifts
2. Director of Digital Content & Social Media Growth
Apply or share today! www.longhauler-advocacy.org/job-opportun...
#LongCOVID #PublicHealth #Nonprofit #Jobs #Hiring
Job Opportunities | C19LAP | COVID-19 Longhauler Advocacy Project
Join a Patient-Led Long COVID Nonprofit Focused on Putting the Public Back in Public Health and Driving Systemic Change.
www.longhauler-advocacy.org
February 5, 2025 at 5:26 PM
We're Hiring!
Available Positions:
1. Director of Development & Major Gifts
2. Director of Digital Content & Social Media Growth
Apply or share today! www.longhauler-advocacy.org/job-opportun...
#LongCOVID #PublicHealth #Nonprofit #Jobs #Hiring
Available Positions:
1. Director of Development & Major Gifts
2. Director of Digital Content & Social Media Growth
Apply or share today! www.longhauler-advocacy.org/job-opportun...
#LongCOVID #PublicHealth #Nonprofit #Jobs #Hiring
Is Covid Rewriting the Rules of Aging? Brain Decline Alarms Doctors as millions of long-Covid patients continue to struggle with cognitive difficulties.
Ft: C19LAP BOD Ken Todd.
www.wsj.com/health/welln...
Ft: C19LAP BOD Ken Todd.
www.wsj.com/health/welln...
Is Covid Rewriting the Rules of Aging? Brain Decline Alarms Doctors
Millions of long-Covid patients continue to struggle with cognitive difficulties.
www.wsj.com
April 14, 2025 at 4:16 PM
Is Covid Rewriting the Rules of Aging? Brain Decline Alarms Doctors as millions of long-Covid patients continue to struggle with cognitive difficulties.
Ft: C19LAP BOD Ken Todd.
www.wsj.com/health/welln...
Ft: C19LAP BOD Ken Todd.
www.wsj.com/health/welln...
The COVID-19 Longhauler Advocacy Project’s (C19LAP) founder, Karyn Bishof, recently joined the Association of State and Territorial Health Officials (@ASTHO) and public health leaders for a powerful webinar during #LongCOVIDAwareness Month.
Watch here: www.astho.org/communicatio...
#LongCOVID
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Watch here: www.astho.org/communicatio...
#LongCOVID
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Living With Long COVID: Stories, Science, and Public Health
www.astho.org
April 14, 2026 at 5:23 PM
The COVID-19 Longhauler Advocacy Project’s (C19LAP) founder, Karyn Bishof, recently joined the Association of State and Territorial Health Officials (@ASTHO) and public health leaders for a powerful webinar during #LongCOVIDAwareness Month.
Watch here: www.astho.org/communicatio...
#LongCOVID
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Watch here: www.astho.org/communicatio...
#LongCOVID
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Our team heads to the American Public Health Associations conference. #APHA2025 Is the biggest public health assoc. & conference. C19LAP will present 3x & exhibit. We are wishing our team health & success as they connect w/ thousands to help advance solutions to Long COVID!
October 30, 2025 at 4:52 PM
Our team heads to the American Public Health Associations conference. #APHA2025 Is the biggest public health assoc. & conference. C19LAP will present 3x & exhibit. We are wishing our team health & success as they connect w/ thousands to help advance solutions to Long COVID!
In just a few weeks, I will have had long covid for five years. Check out Long Covid Day 2025 info. here:
www.longhauler-advocacy.org/2024cglc
www.longhauler-advocacy.org/2024cglc
Comprehensive Guide to LC | C19LAP | COVID-19 Longhauler Advocacy Project
The COVID-19 Longhauler Advocacy Project is dedicated to supporting those affected by long COVID through comprehensive resources and the latest information. Our new guide, the C19LAP Comprehensive Gui...
www.longhauler-advocacy.org
March 15, 2025 at 1:12 PM
In just a few weeks, I will have had long covid for five years. Check out Long Covid Day 2025 info. here:
www.longhauler-advocacy.org/2024cglc
www.longhauler-advocacy.org/2024cglc
C19LAP has opened up our 2026 Volunteer form. We are seeking committed individuals who can help expand our capacity, strengthen our operations, and support the continued growth and impact of our mission.
docs.google.com/forms/d/e/1F...
docs.google.com/forms/d/e/1F...
Long COVID Volunteers 2026 (C19LAP)
C19LAP is a patient-founded and patient-led Long COVID nonprofit organization based in the United States. Our work is dedicated entirely to advancing awareness, education, resources, cross-sector coll...
docs.google.com
April 14, 2026 at 11:05 PM
C19LAP has opened up our 2026 Volunteer form. We are seeking committed individuals who can help expand our capacity, strengthen our operations, and support the continued growth and impact of our mission.
docs.google.com/forms/d/e/1F...
docs.google.com/forms/d/e/1F...
The COVID-19
Longhauler Advocacy Project
Our new guide, the C19LAP Comprehensive Guide to Long COVID V2 has been meticulously updated and expanded to ensure it addresses the evolving needs of our community.
#Treatement #C19LAP #LongCovid
www.longhauler-advocacy.org/2024cglc
Longhauler Advocacy Project
Our new guide, the C19LAP Comprehensive Guide to Long COVID V2 has been meticulously updated and expanded to ensure it addresses the evolving needs of our community.
#Treatement #C19LAP #LongCovid
www.longhauler-advocacy.org/2024cglc
Comprehensive Guide | C19LAP | COVID-19 Longhauler Advocacy Project
The COVID-19 Longhauler Advocacy Project is dedicated to supporting those affected by long COVID through comprehensive resources and the latest information. Our new guide, the C19LAP Comprehensive Gui...
www.longhauler-advocacy.org
November 12, 2024 at 11:51 PM
The COVID-19
Longhauler Advocacy Project
Our new guide, the C19LAP Comprehensive Guide to Long COVID V2 has been meticulously updated and expanded to ensure it addresses the evolving needs of our community.
#Treatement #C19LAP #LongCovid
www.longhauler-advocacy.org/2024cglc
Longhauler Advocacy Project
Our new guide, the C19LAP Comprehensive Guide to Long COVID V2 has been meticulously updated and expanded to ensure it addresses the evolving needs of our community.
#Treatement #C19LAP #LongCovid
www.longhauler-advocacy.org/2024cglc