#CSFLeak. Treatment of patients with spinal #CSFLeaks in the UK needs a fundamental rethink. The leaks cause severe neurological problems. So you need CSFLeak specialists, neurologists, surgeons and embolization experts to coordinate. It fails miserably. 2yrs since finding it and still waiting!!!

Little patient voices video on #CSFleaks
I should also be in there a couple of times.

It's patient views, as in this conference patients could present next to providers, researchers and doctors.

youtu.be/dDjop7lGWPM?...

#Liquorverlustsyndrom
#spinalleak
#CSFleaks
#iatrogenicleak
#chronicleak

We have a decent community on fb if you’re on there, I run r/csfleaks on reddit but I’m a bad admin on there lol

🚨 We're excited to announce our seventh speaker, Dr. Ayman Qureshi, consultant neuro radiologist at NHNN. Join to learn about blood patching techniques for spinal CSF leaks. Register 👉🏻 csfleak.uk/event/webina...
#CSFLeakAssociation #CSFleaks

🎯 Making waves at #BASH2025! Our trustee Bern connected with 300+ healthcare professionals on CSF leaks, alongside Dr Sanjay Cheema's expert presentation.
Huge thanks to Bern for 3 days of tireless advocacy! 💪
#CSFLeaks #SIH #standupforcsfleakers #CSFLeakAssociation

My mom just posted this for my #birthday today. See that huge scar on my neck? That was from my #healthinsurance denying an mri for six months. I ended up with two huge spinal surgeries, for #csfleaks. All I want for my bday is #medicareforall😉🎂

I've rescheduled all of the care to try to make this trip happen in April

Endocrinology busy until August due to clinician shortages which sucks I'm suffering a lot

Please keep sharing so I can meet my GFM neurosurgery goal and survive

#SevereME #EDS #Chiari #MESpine #CSFLeaks #Neurosurgery