All is fine ❤️ Ultrasound, ECG, blood tests and me feeling fine indicates my sarcoidosis isn't active atm. Next check up after a year. Relief 🥰

#CardiacSarcoidosis
#SydänSarkoidoosi

Off to my heart check up. 💓 Always a bit nervous. #CardiacSarcoidosis

🫀 Researchers at #MedUniVienna have identified the enzyme MMP12 as a new target for combating heart scarring in #CardiacSarcoidosis. The findings could pave the way for new treatments and improve the management of this often-underdiagnosed condition.

Find out more! ⬇️

📰 @atsblueeditor.bsky.social​

For reference, here's our work on CMR phenotyping:

pubmed.ncbi.nlm.nih.gov/40400457/
pubmed.ncbi.nlm.nih.gov/36103165/
pubmed.ncbi.nlm.nih.gov/31954639/
pubmed.ncbi.nlm.nih.gov/31070111/

#WhyCMR #sarcoidosis #cardiacsarcoidosis #CardioSky

#CaseReport: systemic + #CardiacSarcoidosis with persistent aPL positivity (no #Thrombosis). Useful reminder that aPL positivity ≠ #APS (APS typically requires antibodies + clinical events): pmc.ncbi.nlm.nih.gov/articles/PMC12754072 #AntiphospholipidSyndrome #Sarcoidosis #MedicalResearch #UKHealth

Had my last biologics Zessly (infliximab) infusion yesterday ❤️‍🩹 For now, anyway. Had it for over 1,5 years and it worked well for me. Had a heart check-up a couple of weeks ago, all seems fine. No sign of inflammation. #CardiacSarcoidosis

It's World Heart Day again! Here's my yearly reminder to take ANY heart symptoms seriously - something that might only feel minor to you could lead to something major ❤️‍🩹

#WorldHeartDay #MaailmanSydänpäivä #CardiacSarcoidosis #Sydänsarkoidoosi

I've started monitoring my blood pressure daily again after a long break. (Which had to do with the app..)

I figured it's beneficial now I'm anaemic and waiting for that to be sorted out. But as a heart patient, I'll continue doing this after it's sorted out, too.

#OmronEvolv #CardiacSarcoidosis

4 years ago today I was fitted my ICD (implantable cardioverter defibrillator) ❤️‍🩹 No shocks thankfully!

#CardiacSarcoidosis
#CardiacArrest #ICD

Some #CardiacSarcoidosis symptoms:

-Rapid/fluttering heart beat (palpitations)
-Irregular heartbeats (arrhythmias)
-Feeling fainty/loss of consciousness
-Blurry vision
-Chest pain/tightness
-Shortness of breath
-Lightheadedness
-Fatigue
-Swelling

#WorldHeartDay #Sydänsarkoidoosi

It's #WorldHeartDay! 💓 I have a rare heart disease called Cardiac Sarcoidosis (~20-25 people diagnosed a year in Finland). I like to raise awareness of it so people could seek help early ❤️‍🩹

Please take a moment to read to learn the symptoms ⬇️ #MaailmanSydänpäivä #CardiacSarcoidosis #Sydänsarkoidoosi

CW medical photo, i/v on hand

Sat on the red chair again today -Zessly day! ❤️‍🩹 My 5th infliximab infusion. (It's a biological medicine I get every 5 weeks to treat/prevent inflammation in my heart.) #CardiacSarcoidosis #Infliximab #HeartDisease

#NewProfilePic 🌺
#ADHDSky 😎
#ActuallyAutistic ✌🏻
#CardiacSarcoidosis ❤️‍🩹
#UlcerativeColitis 🧻

Heippa! I'm Päivi from Finland! 🇫🇮 I'm an autistic ADHDer, I love to talk about both #Autism and #ADHD. I also have #CardiacSarcoidosis, #UlcerativeColitis and likely #MCAS. I'm a #CardiacArrest survivor 2020 ❤️‍🩹 I work at a company that helps neurodivergents. Who are you? 🤗