Waiting for pharmacy to get my infliximab ready so doom scrolling it is
September 23, 2026 at 7:30 PM
Waiting for pharmacy to get my infliximab ready so doom scrolling it is
infliximab and schizoaffective disorders
October 29, 2025 at 3:28 PM
infliximab and schizoaffective disorders
I'm on a biologic (infliximab, a TNF inhibitor) and I got the flu + COVID vaccines together the first week of September. Maybe I should have waited, but that was the best weekend for me.
Those whose immune systems are more vulnerable are at a higher risk of getting sick with and experiencing severe symptoms of flu, COVID-19, and RSV.
Epidemiologist @cmyeaton.bsky.social gives her recommendations for vaccines this respiratory virus season.
🎧 t.jh.edu/ZXy7pM
Epidemiologist @cmyeaton.bsky.social gives her recommendations for vaccines this respiratory virus season.
🎧 t.jh.edu/ZXy7pM
September 23, 2026 at 3:09 PM
I'm on a biologic (infliximab, a TNF inhibitor) and I got the flu + COVID vaccines together the first week of September. Maybe I should have waited, but that was the best weekend for me.
Sooo war schön mit dir, ab nächster Woche gibts was neues.
Ich zeige eine Überreaktion auf Infliximab, nächste Woche gibts ein neues Mab.
Ich zeige eine Überreaktion auf Infliximab, nächste Woche gibts ein neues Mab.
October 10, 2025 at 8:05 PM
Sooo war schön mit dir, ab nächster Woche gibts was neues.
Ich zeige eine Überreaktion auf Infliximab, nächste Woche gibts ein neues Mab.
Ich zeige eine Überreaktion auf Infliximab, nächste Woche gibts ein neues Mab.
My mysterious labs remain mysterious (I had antibodies to infliximab before ever getting exposed to infliximab and now they are gone)
July 4, 2026 at 1:02 AM
My mysterious labs remain mysterious (I had antibodies to infliximab before ever getting exposed to infliximab and now they are gone)
On russian Telegram: Diseased in russia? Suck it up MF’s
Russia is expecting an acute shortage of drugs — hospitals have already stopped dispensing Infliximab, which is needed to treat Bechterew's disease, Crohn's disease, and rheumatoid arthritis.
1/2
Russia is expecting an acute shortage of drugs — hospitals have already stopped dispensing Infliximab, which is needed to treat Bechterew's disease, Crohn's disease, and rheumatoid arthritis.
1/2
March 22, 2025 at 1:35 AM
On russian Telegram: Diseased in russia? Suck it up MF’s
Russia is expecting an acute shortage of drugs — hospitals have already stopped dispensing Infliximab, which is needed to treat Bechterew's disease, Crohn's disease, and rheumatoid arthritis.
1/2
Russia is expecting an acute shortage of drugs — hospitals have already stopped dispensing Infliximab, which is needed to treat Bechterew's disease, Crohn's disease, and rheumatoid arthritis.
1/2
first maintenance dose of the infliximab down (4th dose overall)
July 29, 2026 at 9:07 PM
first maintenance dose of the infliximab down (4th dose overall)
Vieleicht habe ich gerade eine Dummheit gemacht.
3/4h in der parallen Sonne spatzieren, bei 34 Grad mit im Infliximab im Kreislauf.
Ooops.....
3/4h in der parallen Sonne spatzieren, bei 34 Grad mit im Infliximab im Kreislauf.
Ooops.....
August 13, 2025 at 12:08 PM
Vieleicht habe ich gerade eine Dummheit gemacht.
3/4h in der parallen Sonne spatzieren, bei 34 Grad mit im Infliximab im Kreislauf.
Ooops.....
3/4h in der parallen Sonne spatzieren, bei 34 Grad mit im Infliximab im Kreislauf.
Ooops.....
Jab day for @crohnscolitisfdn.bsky.social @crohnsandcolitisau.bsky.social infliximab working a treat.
September 25, 2026 at 7:03 PM
Jab day for @crohnscolitisfdn.bsky.social @crohnsandcolitisau.bsky.social infliximab working a treat.
I get infusion therapy with infliximab and take methotrexate and also diclofenac as needed
I try to drink turmeric tea too to help and eat less sugar
I try to drink turmeric tea too to help and eat less sugar
September 23, 2026 at 11:53 PM
I get infusion therapy with infliximab and take methotrexate and also diclofenac as needed
I try to drink turmeric tea too to help and eat less sugar
I try to drink turmeric tea too to help and eat less sugar
today’s workout brought to you by: day 3 of a second round of steroids + yesterday’s infliximab infusion = (as of today) immense relief, missing being a tripped out teenager with no responsibilities, and pearl jam.
May 31, 2025 at 12:22 AM
today’s workout brought to you by: day 3 of a second round of steroids + yesterday’s infliximab infusion = (as of today) immense relief, missing being a tripped out teenager with no responsibilities, and pearl jam.
August 28, 2025 at 6:06 PM
Health update: my heavy period finally ended after 5 weeks, thank god. I had an i/v Zessly/infliximab infusion (for my cardiac sarcoidosis) AND an i/v iron infusion today. Hysteroscopy next month to sort out the period issue.
Yes, periods are natural, but they also cause health problems for many!
Yes, periods are natural, but they also cause health problems for many!
January 24, 2025 at 10:12 PM
Health update: my heavy period finally ended after 5 weeks, thank god. I had an i/v Zessly/infliximab infusion (for my cardiac sarcoidosis) AND an i/v iron infusion today. Hysteroscopy next month to sort out the period issue.
Yes, periods are natural, but they also cause health problems for many!
Yes, periods are natural, but they also cause health problems for many!
🎧 Drug withdrawal in #IBD: a patient's perspective.
open.spotify.com/episode/3Tcf...
#crohns #crohnsdisease #ulcerativecolitis #inflammatoryboweldisease #infliximab
open.spotify.com/episode/3Tcf...
#crohns #crohnsdisease #ulcerativecolitis #inflammatoryboweldisease #infliximab
#19 Rachel reflects on staying in Crohn's remission, four years after stopping infliximab
open.spotify.com
October 26, 2025 at 9:17 AM
🎧 Drug withdrawal in #IBD: a patient's perspective.
open.spotify.com/episode/3Tcf...
#crohns #crohnsdisease #ulcerativecolitis #inflammatoryboweldisease #infliximab
open.spotify.com/episode/3Tcf...
#crohns #crohnsdisease #ulcerativecolitis #inflammatoryboweldisease #infliximab
Grants written during infliximab infusions
July 1, 2026 at 4:59 PM
Grants written during infliximab infusions
Infliximab infusion number two, to keep my Crohn's disease under control before surgery. The multinational #NHS workforce at Hurstwood Park at its best. #lovethenhshateracism
May 21, 2026 at 8:50 AM
Infliximab infusion number two, to keep my Crohn's disease under control before surgery. The multinational #NHS workforce at Hurstwood Park at its best. #lovethenhshateracism
this 4yro boy with relapsing Brain Tuberculomas despite anti TB therapy and steroids, was an “easier job” for me compared to kids with “long covid”.
added Infliximab as off label drug (oh, isn’t a scandal here that we use off labels?) and I treated it.
For #longcovid I wouldn’t be allowed
added Infliximab as off label drug (oh, isn’t a scandal here that we use off labels?) and I treated it.
For #longcovid I wouldn’t be allowed
February 26, 2025 at 9:50 PM
this 4yro boy with relapsing Brain Tuberculomas despite anti TB therapy and steroids, was an “easier job” for me compared to kids with “long covid”.
added Infliximab as off label drug (oh, isn’t a scandal here that we use off labels?) and I treated it.
For #longcovid I wouldn’t be allowed
added Infliximab as off label drug (oh, isn’t a scandal here that we use off labels?) and I treated it.
For #longcovid I wouldn’t be allowed
It's my pre-xmas hit of infliximab, and thanks to the amazing nurses in the SDMU at #ManchesterRoyalInfirmary I'm well looked after for the battle against #crohnsdisease. I'll be back here in six weeks for another dose!
December 13, 2024 at 11:10 AM
It's my pre-xmas hit of infliximab, and thanks to the amazing nurses in the SDMU at #ManchesterRoyalInfirmary I'm well looked after for the battle against #crohnsdisease. I'll be back here in six weeks for another dose!
It's that time again! Getting in my pre Christmas dose of infliximab! Keeping the Crohn's at bay for another eight weeks! #crohns #crohnscolitis #LGBTQ
November 10, 2023 at 11:09 AM
It's that time again! Getting in my pre Christmas dose of infliximab! Keeping the Crohn's at bay for another eight weeks! #crohns #crohnscolitis #LGBTQ
Generative AI is far from ready to be deployed in healthcare. Here’s my random list of drugs read into Co-Pilot this evening in a Galway accent 🇮🇪 . See if you can guess them all.
February 27, 2026 at 7:58 PM
Generative AI is far from ready to be deployed in healthcare. Here’s my random list of drugs read into Co-Pilot this evening in a Galway accent 🇮🇪 . See if you can guess them all.
Back again like the renegade master, for another dose of infliximab. The lovely ladies at the Manchester Royal Infirmary keeping me sane(ish) and looking after me. This is why the NHS needs to be looked after! #NHS #crohnsdisease #crohns
January 24, 2025 at 11:31 AM
Back again like the renegade master, for another dose of infliximab. The lovely ladies at the Manchester Royal Infirmary keeping me sane(ish) and looking after me. This is why the NHS needs to be looked after! #NHS #crohnsdisease #crohns
Absolutely, I think the lit here mostly helps with providing a sense of how aggressive to treat it (very, it's brain tissue being choked after all) as well as what steroid sparing agents seem to work best (Methotrexate, mebbe with infliximab)
September 15, 2026 at 1:19 PM
Absolutely, I think the lit here mostly helps with providing a sense of how aggressive to treat it (very, it's brain tissue being choked after all) as well as what steroid sparing agents seem to work best (Methotrexate, mebbe with infliximab)
I forgot about the prescription drug prices. In the US I probably would've died by 25. I've been on infliximab for over 20 years and it's one of the major things keeping my Crohn’s in check & me alive. It's expensive even in Europe, but in my country the price for citizens is capped.
January 29, 2025 at 1:38 PM
I forgot about the prescription drug prices. In the US I probably would've died by 25. I've been on infliximab for over 20 years and it's one of the major things keeping my Crohn’s in check & me alive. It's expensive even in Europe, but in my country the price for citizens is capped.
Morning lovelies😊
Going to play here for a while. The other sandpit is getting more vile by the second!
What's up w/ me:
In Sept I started #Infliximab Infusions& #Mounjaro. I was so ill/inflamed I was in full body crisis in danger of organ issues. On crutches 0 quality of life
Today QofL is 8/10
Going to play here for a while. The other sandpit is getting more vile by the second!
What's up w/ me:
In Sept I started #Infliximab Infusions& #Mounjaro. I was so ill/inflamed I was in full body crisis in danger of organ issues. On crutches 0 quality of life
Today QofL is 8/10
January 10, 2026 at 9:13 AM
Morning lovelies😊
Going to play here for a while. The other sandpit is getting more vile by the second!
What's up w/ me:
In Sept I started #Infliximab Infusions& #Mounjaro. I was so ill/inflamed I was in full body crisis in danger of organ issues. On crutches 0 quality of life
Today QofL is 8/10
Going to play here for a while. The other sandpit is getting more vile by the second!
What's up w/ me:
In Sept I started #Infliximab Infusions& #Mounjaro. I was so ill/inflamed I was in full body crisis in danger of organ issues. On crutches 0 quality of life
Today QofL is 8/10