Working on a new illustration, honouring Caregivers. This is of @pruiz47.bsky.social and her carepartner, Juan. @parkinsoncanada.bsky.social @parkinsonseurope.bsky.social
June 1, 2025 at 1:49 PM
Working on a new illustration, honouring Caregivers. This is of @pruiz47.bsky.social and her carepartner, Juan. @parkinsoncanada.bsky.social @parkinsonseurope.bsky.social
We are live now with our third panel on growing up with #Parkinsons, tips for children when Parkinson's is all they know on our WPC #carepartner webinar on Children's and Parkinson's.
April 24, 2025 at 8:09 PM
We are live now with our third panel on growing up with #Parkinsons, tips for children when Parkinson's is all they know on our WPC #carepartner webinar on Children's and Parkinson's.
WPC CarePartner Webinar, covering the topic of Children and #Parkinsons.
Thursday, April 24, 2025, 12PM – 5PM ET
Cost: Free, Registration required
Learn More: www.worldpdcoalition.org/4thcarepartner
Made possible w/ support from Supernus Pharmaceuticals & Mitsubishi Tanabe Pharma America.
Thursday, April 24, 2025, 12PM – 5PM ET
Cost: Free, Registration required
Learn More: www.worldpdcoalition.org/4thcarepartner
Made possible w/ support from Supernus Pharmaceuticals & Mitsubishi Tanabe Pharma America.
March 21, 2025 at 6:09 PM
WPC CarePartner Webinar, covering the topic of Children and #Parkinsons.
Thursday, April 24, 2025, 12PM – 5PM ET
Cost: Free, Registration required
Learn More: www.worldpdcoalition.org/4thcarepartner
Made possible w/ support from Supernus Pharmaceuticals & Mitsubishi Tanabe Pharma America.
Thursday, April 24, 2025, 12PM – 5PM ET
Cost: Free, Registration required
Learn More: www.worldpdcoalition.org/4thcarepartner
Made possible w/ support from Supernus Pharmaceuticals & Mitsubishi Tanabe Pharma America.
📢 Save the date & Register!
CarePartner Webinar on Children and #Parkinsons.
🔷When: Thursday, April 24, 2025, 12PM – 5PM ET
🔷Where: Online
🔷Cost: Free, but registration is required
🔷Learn More & Register: www.worldpdcoalition.org/4thcarepartner
CarePartner Webinar on Children and #Parkinsons.
🔷When: Thursday, April 24, 2025, 12PM – 5PM ET
🔷Where: Online
🔷Cost: Free, but registration is required
🔷Learn More & Register: www.worldpdcoalition.org/4thcarepartner
April 3, 2025 at 2:59 PM
📢 Save the date & Register!
CarePartner Webinar on Children and #Parkinsons.
🔷When: Thursday, April 24, 2025, 12PM – 5PM ET
🔷Where: Online
🔷Cost: Free, but registration is required
🔷Learn More & Register: www.worldpdcoalition.org/4thcarepartner
CarePartner Webinar on Children and #Parkinsons.
🔷When: Thursday, April 24, 2025, 12PM – 5PM ET
🔷Where: Online
🔷Cost: Free, but registration is required
🔷Learn More & Register: www.worldpdcoalition.org/4thcarepartner
The second panel of the WPC #CarePartner webinar on Children and #Parkinsons is live now discussing supporting your parent, near and far.
April 24, 2025 at 6:17 PM
The second panel of the WPC #CarePartner webinar on Children and #Parkinsons is live now discussing supporting your parent, near and far.
🦋 Care Partner vs Caregiver.
🌺 A distinction that makes all the difference.
✨ 'I'm living. My husband is caring WITH me. He becomes my care GIVER when I can no longer partner with him.'
- Bobbie Joe Cavazos 🌞🌛
⚕🛌🏻🧓🏼👵🏠
#MindCrowd #CarePartner #Caregiver #Bluesky
🌺 A distinction that makes all the difference.
✨ 'I'm living. My husband is caring WITH me. He becomes my care GIVER when I can no longer partner with him.'
- Bobbie Joe Cavazos 🌞🌛
⚕🛌🏻🧓🏼👵🏠
#MindCrowd #CarePartner #Caregiver #Bluesky
June 24, 2025 at 6:37 PM
🦋 Care Partner vs Caregiver.
🌺 A distinction that makes all the difference.
✨ 'I'm living. My husband is caring WITH me. He becomes my care GIVER when I can no longer partner with him.'
- Bobbie Joe Cavazos 🌞🌛
⚕🛌🏻🧓🏼👵🏠
#MindCrowd #CarePartner #Caregiver #Bluesky
🌺 A distinction that makes all the difference.
✨ 'I'm living. My husband is caring WITH me. He becomes my care GIVER when I can no longer partner with him.'
- Bobbie Joe Cavazos 🌞🌛
⚕🛌🏻🧓🏼👵🏠
#MindCrowd #CarePartner #Caregiver #Bluesky
Hi, everyone! Excited to be with you all tonight on my first #Bluesky chat. I’m Shawn from Binghamton, NY and I am a former #carepartner to my mom, Wendy, who passed from #GBM in June 2018. I’m here to connect with fellow #braintumor #advocates. #btsm
June 8, 2025 at 11:07 PM
Hi, everyone! Excited to be with you all tonight on my first #Bluesky chat. I’m Shawn from Binghamton, NY and I am a former #carepartner to my mom, Wendy, who passed from #GBM in June 2018. I’m here to connect with fellow #braintumor #advocates. #btsm
Expressing solidarity with the Wexford family denied access to their mother in her final moments in 2025, Kieran relates his own experience &joins the call for carepartner legalisation
#CarePartner #5YearsCampaigning #HumanRightsDoNotGrowOld
#CovidInquiry
www.rte.ie/news/ireland...
#CarePartner #5YearsCampaigning #HumanRightsDoNotGrowOld
#CovidInquiry
www.rte.ie/news/ireland...
Wexford hospital apologises to family of elderly patient
Wexford General Hospital has apologised to the family of an elderly woman who died there earlier this year, saying it was not the level of standard it aims for.
www.rte.ie
November 15, 2025 at 8:25 PM
Expressing solidarity with the Wexford family denied access to their mother in her final moments in 2025, Kieran relates his own experience &joins the call for carepartner legalisation
#CarePartner #5YearsCampaigning #HumanRightsDoNotGrowOld
#CovidInquiry
www.rte.ie/news/ireland...
#CarePartner #5YearsCampaigning #HumanRightsDoNotGrowOld
#CovidInquiry
www.rte.ie/news/ireland...
Starting a new #Parkinson's medication can be a big change, but you don’t have to navigate it alone.
Our free 10-Week Medication Guide offers tools, tips & resources for both you and your #carepartner, helping you take the next step, together.
📥 Download here: www.parkinson.ca/resources/ed...
Our free 10-Week Medication Guide offers tools, tips & resources for both you and your #carepartner, helping you take the next step, together.
📥 Download here: www.parkinson.ca/resources/ed...
August 12, 2025 at 5:23 PM
Starting a new #Parkinson's medication can be a big change, but you don’t have to navigate it alone.
Our free 10-Week Medication Guide offers tools, tips & resources for both you and your #carepartner, helping you take the next step, together.
📥 Download here: www.parkinson.ca/resources/ed...
Our free 10-Week Medication Guide offers tools, tips & resources for both you and your #carepartner, helping you take the next step, together.
📥 Download here: www.parkinson.ca/resources/ed...
"She's just as smart, funny, witty as she's always been. She's still mom. She does a lot and she's a fighter." - Robert Coley, Jr. at the WPC #carepartner #parkinsons webinar
April 24, 2025 at 6:42 PM
"She's just as smart, funny, witty as she's always been. She's still mom. She does a lot and she's a fighter." - Robert Coley, Jr. at the WPC #carepartner #parkinsons webinar
"It was inspiring to see my mom trying to make the best of it, trying to educate us, writing a book, running a podcast, it's been so fun and inspiring. My siblings and I talk about how "mom is a rockstar" and how proud we are of her." - Nastassia Donoho #Carepartner #parkinsons
April 24, 2025 at 4:53 PM
"It was inspiring to see my mom trying to make the best of it, trying to educate us, writing a book, running a podcast, it's been so fun and inspiring. My siblings and I talk about how "mom is a rockstar" and how proud we are of her." - Nastassia Donoho #Carepartner #parkinsons
Journaling Together -Feb 18 | Virtual
Every 3rd Wednesday of the month, from 5-6 pm PT/8-9 pm ET, the Brian Grant Foundation hosts a #journaling session for people with #Parkinsons and their Care Partners.
See below for details!
#Writing #CarePartner #MentalHealth #Wellbeing
tinyurl.com/6hrcpsee
Every 3rd Wednesday of the month, from 5-6 pm PT/8-9 pm ET, the Brian Grant Foundation hosts a #journaling session for people with #Parkinsons and their Care Partners.
See below for details!
#Writing #CarePartner #MentalHealth #Wellbeing
tinyurl.com/6hrcpsee
Journaling Together - Brian Grant Foundation
Journaling Together - Discover a wide range of events at the Brian Grant Foundation, from educational talks and interactive classes to community meetups and more, supporting those with Parkinson's.
tinyurl.com
February 12, 2026 at 10:15 PM
Journaling Together -Feb 18 | Virtual
Every 3rd Wednesday of the month, from 5-6 pm PT/8-9 pm ET, the Brian Grant Foundation hosts a #journaling session for people with #Parkinsons and their Care Partners.
See below for details!
#Writing #CarePartner #MentalHealth #Wellbeing
tinyurl.com/6hrcpsee
Every 3rd Wednesday of the month, from 5-6 pm PT/8-9 pm ET, the Brian Grant Foundation hosts a #journaling session for people with #Parkinsons and their Care Partners.
See below for details!
#Writing #CarePartner #MentalHealth #Wellbeing
tinyurl.com/6hrcpsee
Craft and Chat
#Art has been shown to benefit Parkinson’s on a physical, emotional, social, and cognitive level.
Brian Grant Foundation invites you and your #carepartner to a social hour of crafting and chatting this October 30th!
Online- Free
#Parkinsons #MentalHealth
tinyurl.com/4k5u5sv7
#Art has been shown to benefit Parkinson’s on a physical, emotional, social, and cognitive level.
Brian Grant Foundation invites you and your #carepartner to a social hour of crafting and chatting this October 30th!
Online- Free
#Parkinsons #MentalHealth
tinyurl.com/4k5u5sv7
Craft and Chat - Brian Grant Foundation
Craft and Chat - Discover a wide range of events at the Brian Grant Foundation, from educational talks and interactive classes to community meetups and more, supporting those with Parkinson's.
tinyurl.com
October 23, 2025 at 10:43 PM
Craft and Chat
#Art has been shown to benefit Parkinson’s on a physical, emotional, social, and cognitive level.
Brian Grant Foundation invites you and your #carepartner to a social hour of crafting and chatting this October 30th!
Online- Free
#Parkinsons #MentalHealth
tinyurl.com/4k5u5sv7
#Art has been shown to benefit Parkinson’s on a physical, emotional, social, and cognitive level.
Brian Grant Foundation invites you and your #carepartner to a social hour of crafting and chatting this October 30th!
Online- Free
#Parkinsons #MentalHealth
tinyurl.com/4k5u5sv7
Neurological Palliative Care: The Evolution from Carepartner to Caregiver - eHospice - goo.gl/alerts/QEqNWY #GoogleAlerts
Neurological Palliative Care: The Evolution from Carepartner to Caregiver
The McGill Council on Palliative Care and Palliative Care McGill are pleased to welcome Dr. Janis Miyasaki, neuropalliative care physician and University of Alb
goo.gl
April 8, 2026 at 10:06 AM
Neurological Palliative Care: The Evolution from Carepartner to Caregiver - eHospice - goo.gl/alerts/QEqNWY #GoogleAlerts
Connecting, learning & supporting one another at WPC 2026. Join our Care Partner Webinar Series Nov. 16–20! https://www.worldpdcoalition.org/page/2026carepartner #Parkinsons #CarePartner #WPC2026
September 3, 2026 at 6:05 PM
Connecting, learning & supporting one another at WPC 2026. Join our Care Partner Webinar Series Nov. 16–20! https://www.worldpdcoalition.org/page/2026carepartner #Parkinsons #CarePartner #WPC2026
More than 200 people were in attendance to learn about featured topics such as cognitive fitness, nutritional strategies, allowing for adaptations, neuro-fitness activities, laughter yoga, a carepartner conversation circle and more.
January 27, 2025 at 10:18 PM
More than 200 people were in attendance to learn about featured topics such as cognitive fitness, nutritional strategies, allowing for adaptations, neuro-fitness activities, laughter yoga, a carepartner conversation circle and more.
Parkinson’s is a family disease. Join our FREE Family & Care Partner webinars Nov. 16–20. Register now: https://www.worldpdcoalition.org/2026carepartner #Parkinsons #CarePartner
September 18, 2026 at 3:24 PM
Parkinson’s is a family disease. Join our FREE Family & Care Partner webinars Nov. 16–20. Register now: https://www.worldpdcoalition.org/2026carepartner #Parkinsons #CarePartner
Bravo to the FDA, CARRA and the passionate #patient and #carepartner representatives Miah, Elizabeth, McKenna, Chloe and Nia, and researchers for making the FDA Workshop to advance pediatric #lupus drug development a success! Mike drop! #LADAOrg @caringforlupus.bsky.social @annezab.bsky.social
August 1, 2026 at 1:12 AM
Bravo to the FDA, CARRA and the passionate #patient and #carepartner representatives Miah, Elizabeth, McKenna, Chloe and Nia, and researchers for making the FDA Workshop to advance pediatric #lupus drug development a success! Mike drop! #LADAOrg @caringforlupus.bsky.social @annezab.bsky.social
Craft and Chat
The Brian Grant Foundation is hosting an arts #workshop for people with #Parkinsons & their #carepartner, as creative activities support physical, emotional, social, & cognitive well-being.
Every Fourth Thursday of the month
8/28 - Online
#NeuroSky
briangrant.org/event/craft-...
The Brian Grant Foundation is hosting an arts #workshop for people with #Parkinsons & their #carepartner, as creative activities support physical, emotional, social, & cognitive well-being.
Every Fourth Thursday of the month
8/28 - Online
#NeuroSky
briangrant.org/event/craft-...
Craft and Chat - Brian Grant Foundation
Craft and Chat - Discover a wide range of events at the Brian Grant Foundation, from educational talks and interactive classes to community meetups and more, supporting those with Parkinson's.
briangrant.org
August 18, 2025 at 7:46 PM
Craft and Chat
The Brian Grant Foundation is hosting an arts #workshop for people with #Parkinsons & their #carepartner, as creative activities support physical, emotional, social, & cognitive well-being.
Every Fourth Thursday of the month
8/28 - Online
#NeuroSky
briangrant.org/event/craft-...
The Brian Grant Foundation is hosting an arts #workshop for people with #Parkinsons & their #carepartner, as creative activities support physical, emotional, social, & cognitive well-being.
Every Fourth Thursday of the month
8/28 - Online
#NeuroSky
briangrant.org/event/craft-...
Survey data show larger support networks, including everything from hobby groups and physical activity to home care services, were significantly associated with higher resilience in MS care partners. Connection matters.
www.doi.org/10.7224/1537...
#CarePartner #support #MultipleSclerosis
www.doi.org/10.7224/1537...
#CarePartner #support #MultipleSclerosis
Components of the Support Networks of Multiple Sclerosis Care Partners
Friends and family represent an important component of care partner support networks; care recipients are often ranked among the most important means of support.
www.doi.org
August 12, 2026 at 2:15 PM
Survey data show larger support networks, including everything from hobby groups and physical activity to home care services, were significantly associated with higher resilience in MS care partners. Connection matters.
www.doi.org/10.7224/1537...
#CarePartner #support #MultipleSclerosis
www.doi.org/10.7224/1537...
#CarePartner #support #MultipleSclerosis
Navigating #Parkinsons disease is hard
The #Brian Grant Foundation offers a free, online #Journaling Together workshop every 3rd Wednesday of the month for people with Parkinson’s & their #carepartner
Next Session: 7/16
#Writing #BrainHealth #NeuroSky #Health #Care
briangrant.org/event/journa...
The #Brian Grant Foundation offers a free, online #Journaling Together workshop every 3rd Wednesday of the month for people with Parkinson’s & their #carepartner
Next Session: 7/16
#Writing #BrainHealth #NeuroSky #Health #Care
briangrant.org/event/journa...
Journaling Together - Brian Grant Foundation
Journaling Together - Discover a wide range of events at the Brian Grant Foundation, from educational talks and interactive classes to community meetups and more, supporting those with Parkinson's.
briangrant.org
July 3, 2025 at 7:55 PM
Navigating #Parkinsons disease is hard
The #Brian Grant Foundation offers a free, online #Journaling Together workshop every 3rd Wednesday of the month for people with Parkinson’s & their #carepartner
Next Session: 7/16
#Writing #BrainHealth #NeuroSky #Health #Care
briangrant.org/event/journa...
The #Brian Grant Foundation offers a free, online #Journaling Together workshop every 3rd Wednesday of the month for people with Parkinson’s & their #carepartner
Next Session: 7/16
#Writing #BrainHealth #NeuroSky #Health #Care
briangrant.org/event/journa...
Sleep, Parkinson’s, and RBD -8/13
Free
Join Brian Grant Foundation for a discussion on how #Parkinsons disease affects #sleep and actionable strategies to improve rest and #wellness
#MentalHealth #CarePartner #Aging #neurodegeneration #NeuroSky #ElderCare #Caregiving
briangrant.org/event/relati...
Free
Join Brian Grant Foundation for a discussion on how #Parkinsons disease affects #sleep and actionable strategies to improve rest and #wellness
#MentalHealth #CarePartner #Aging #neurodegeneration #NeuroSky #ElderCare #Caregiving
briangrant.org/event/relati...
Sleep, Parkinson's, and RBD - Brian Grant Foundation
Sleep, Parkinson's, and RBD - Discover a wide range of events at the Brian Grant Foundation, from educational talks and interactive classes to community meetups and more, supporting those with Parkins...
briangrant.org
August 4, 2025 at 5:41 PM
Sleep, Parkinson’s, and RBD -8/13
Free
Join Brian Grant Foundation for a discussion on how #Parkinsons disease affects #sleep and actionable strategies to improve rest and #wellness
#MentalHealth #CarePartner #Aging #neurodegeneration #NeuroSky #ElderCare #Caregiving
briangrant.org/event/relati...
Free
Join Brian Grant Foundation for a discussion on how #Parkinsons disease affects #sleep and actionable strategies to improve rest and #wellness
#MentalHealth #CarePartner #Aging #neurodegeneration #NeuroSky #ElderCare #Caregiving
briangrant.org/event/relati...
Among 98 informal caregivers of people with MS, higher resilience tracked with better quality of life and lower caregiver burden. Personality mattered, too, as neuroticism pulled resilience down while extroversion and conscientiousness lifted it.
doi.org/10.7224/1537...
#resilience #CarePartner #MS
doi.org/10.7224/1537...
#resilience #CarePartner #MS
August 27, 2026 at 5:31 PM
Among 98 informal caregivers of people with MS, higher resilience tracked with better quality of life and lower caregiver burden. Personality mattered, too, as neuroticism pulled resilience down while extroversion and conscientiousness lifted it.
doi.org/10.7224/1537...
#resilience #CarePartner #MS
doi.org/10.7224/1537...
#resilience #CarePartner #MS
October seems like a long time to wait for a mass this size that could continue to grow rapidly. Can they scan you in a 3-4 weeks to ensure it is not actively growing? Hopefully your scan showed no masses anywhere in the abdomen. I am a carepartner for my husband who has stage 4 colorectal cancer.
August 11, 2026 at 7:30 PM
October seems like a long time to wait for a mass this size that could continue to grow rapidly. Can they scan you in a 3-4 weeks to ensure it is not actively growing? Hopefully your scan showed no masses anywhere in the abdomen. I am a carepartner for my husband who has stage 4 colorectal cancer.