#Cholangiocarcinoma’
Bile duct cancer (cholangiocarcinoma) is aggressive, and options were limited. Now, for specific tumors with FGFR2 mutations, a new drug, lirafugratinib, targets that exact mutation. In trials, 46% of patients saw tumors shrink, lasting ~1 year.
FDA Approves Lirafugratinib for Treating Cholangiocarcinoma Caused by FGFR2 Mutations
The FDA has approved lirafugratinib (Lyrfigtu), a new targeted therapy for patients with advanced cholangiocarcinoma, also known as bile duct cancer, that carries specific FGFR2 genetic mutations. Thi
www.mskcc.org
October 2, 2026 at 2:01 AM
An mRNA vaccine for cholangiocarcinoma was my biggest hope for survival.

I can’t articulate how depressing this is.
March 17, 2025 at 3:15 AM
HLB FDA approval — South Korea’s HLB Secures First FDA Anticancer Drug Approval for Cholangiocarcinoma
HLB FDA approval — South Korea's HLB Secures First FDA Anticancer Drug Approval for Cholangiocarcinoma
South Korea's HLB wins US FDA approval for cholangiocarcinoma treatment Liptivo, marking a historic milestone for the domestic biotech industry.
en.koreadaily.com
September 27, 2026 at 8:41 PM
Sydney Towle, who documented her treatment for a form of bile duct cancer called cholangiocarcinoma on social media, dies at 26.
Sydney Towle, social media content creator, dies at 26 of rare cancer
Towle was diagnosed with cholangiocarcinoma, a rare form of cancer, in 2023.
nbcnews.to
August 6, 2026 at 5:30 PM
Just remember the Trump administration is killing mRNA vaccine research and production. As cholangiocarcinoma is a related biliary cancer I was hopeful there would be a similar vaccine trial . Nope. Ugh.
April 19, 2026 at 1:51 AM
I lost my 30 year old son to cholangiocarcinoma….cancer of the bile ducts. I hate it too….
February 5, 2025 at 1:20 AM
9/ still a predatory edge to what she is doing.”

🔺️ Uh huh. That one is: "sick people who don't let me feel superior are threatening & dangerous."

🔹️The NYT notes that many critics "were armed with only an internet education in cholangiocarcinoma," yet they argued “We have receipts, medical...
August 6, 2026 at 6:28 PM
Hello, Bluesky!! 👋🏼👋🏼👋🏼 Welcome to the Cholangiocarcinoma Foundation! Our mission is to find a cure and improve the quality of life for cholangiocarcinoma patients. Together we can find a cure. #cureCCA
December 7, 2023 at 7:44 PM
Today is World Cholangiocarcinoma Day & I joined with other MSPs to highlight Cholangiocarcinoma (bile duct cancer), which is a primary liver cancer with rising case numbers in Scotland.

You can find out more from AMMF by clicking:-

ammf.org.uk

#WorldCCADay
February 19, 2026 at 3:02 PM
💚 Cholangiocarcinoma Awareness Month 💚

Knowing the signs of cholangiocarcinoma can lead to earlier diagnosis and better outcomes. 

Awareness saves lives. Talk to a doctor if you or someone you know is experiencing these symptoms. Help spread the word this Cholangiocarcinoma Awareness Month! 💚
February 15, 2025 at 4:01 PM
Tumour burden predicts outcomes after curative resection of multifocal intrahepatic cholangiocarcinoma
➡️ doi.org/10.1093/bjs/...
Tumour burden predicts outcomes after curative resection of multifocal intrahepatic cholangiocarcinoma
Liver resection for multifocal intrahepatic cholangiocarcinoma (ICC) remains controversial due to a poor prognosis, but this study highlights the importanc
doi.org
April 3, 2025 at 3:51 PM
I'm sorry, Kathy. ❤️
My husband was diagnosed with Cholangiocarcinoma last year, and he chose MAiD.
We all supported him as well.
January 12, 2026 at 6:32 PM
Thank you for writing this and I’m glad you made it this far. My brother didn’t. He was also diagnosed with cholangiocarcinoma at 42 in August 2022. He had a 2 year old daughter and a son due in January 2023. He died on October 11 2022 after literally willing his body to live that long.
March 12, 2026 at 2:06 PM
Personal update: After some reflection, I decided to share that I have #cholangiocarcinoma, a rare & aggressive #cancer. This has little to do with the focus of my posts here, but I hope that it can help raise #awareness of this serious #illness. More details at: AJStein.de/cholangio.htm
November 27, 2025 at 2:23 PM
Research on SERPINE1 in cholangiocarcinoma, published in Cells, highlights the potential of targeting PAI-1 for better therapies. This approach shows promise for improved treatments and opens doors to new medical strategies. scft.link/TC9lC
The Key to Cholangiocarcinoma Treatment Lies in SERPINE1 | Science Featured Series
Cholangiocarcinoma, a rare but highly aggressive cancer of the bile ducts, represents one of the most challenging battles in the fight against cancer. This ...
scft.link
December 13, 2024 at 11:42 AM
St. Louis friends - it's charity kit time!

Sam's Army: inspired by Sam Scherer, who passed from cholangiocarcinoma in 2022.

All jersey proceeds will be donated directly to the Cholangiocarcinoma Foundation.

tinyurl.com/yfh69xxz
March 27, 2025 at 12:55 PM
Hi, I’m supporting this fundraiser on GoFundMe. If you can, please consider supporting by donating or sharing the link. Every bit of support makes a huge difference.
gofund.me/14c9a2aa
Donate to Help me fight Cholangiocarcinoma to prolong my life., organised by Krystle Guiney
Help Me Fight Cholangiocarcinoma and Prolong My Life for My Childr… Krystle Guiney needs your support for Help me fight Cholangiocarcinoma to prolong my life.
gofund.me
January 16, 2025 at 1:23 PM
As a fellow cholangiocarcinoma victim (and terminal) my prayers are with you and your famil. Thank you for sharing your story.
March 12, 2026 at 3:50 PM
(Long) Commentrary🧵: Sydney Towle, who recently turned 26, has died of cholangiocarcinoma.

2 lessons to be learned from online responses to this TikTok influencer:

🔺️The public couldn't be worse at discerning fact from fiction.

🔺️Disabled & chronically ill folks...

www.nytimes.com/2026/08/06/s...
Sydney Towle, Who Chronicled Her Cancer on TikTok, Dies at 26 (Gift Article)
For an audience that grew to more than a million followers, she challenged assumptions about how people with serious illnesses should look and live.
www.nytimes.com
August 6, 2026 at 6:28 PM