#CureHD
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viscountofipac.bsky.social
Speaking at tonight’s Council meeting about #huntingtonsdisease and bringing awareness! #cureHD
May 14, 2025 at 9:24 PM
viscountofipac.bsky.social
Didn’t have room for the tags #huntingtonsdisease #cureHD
#inittoendit
December 6, 2024 at 12:49 AM
hdfcures.bsky.social
"Congratulations to the global Huntington's disease community. This result belongs to everyone." @profwild.bsky.social #curehd

www.youtube.com/watch?v=bhEx...
Huntington's disease successfully treated for first time | BBC News
YouTube video by BBC News
www.youtube.com
September 24, 2025 at 8:42 PM
hdreach.bsky.social
Brandi is in Houston for the HSG conference! Always great to connect with others in the HD community, learn what's happening in research and care, and bring new ideas back. 💙

#HDReach #ReachForHope #ReachingForHope #curehd #curejhd #raredisease #huntingtonsdisease #hd #jhd #huntingtons
September 25, 2026 at 7:31 PM
hdfcures.bsky.social
We're thrilled to announce that Nancy Wexler's memoir, "My Life, My Science: Pursuing a Cure for #Huntingtonsdisease" is now available! Purchase from the publisher: tinyurl.com/NW-book-CSHL or on Amazon . #nancywexlermemoir #bookrelease #wexlermemoir #coldspringharborlaboratory #curehd
March 10, 2026 at 2:03 PM
hdfcures.bsky.social
@rarediseaseday.bsky.social #curehd #huntingtonsdisease
February 27, 2026 at 5:41 PM
hdfcures.bsky.social
What books featuring #HuntingtonsDisease have impacted you? Please join our Book Corner conversation and add your recommendations to the HD community in the comments below. #HDAwarenessMonth #HDAwareness #HDAM #CureHD
May 8, 2026 at 2:59 PM
viscountofipac.bsky.social
#EnrollHD appointment today! Went very well! Really enjoy being part of #huntingtonsdisease and working to #cureHD
June 10, 2025 at 6:51 PM
hdreachgameoverhd.bsky.social
H and Hailey reflect on a time where they were eating out in public with their father and the police were called. This is why #education and #awareness is so important!

#hdreachgameoverhd #huntingtonsdisease #curehd #curejhd #twitch #fyp #gamer #advocacy #huntingtonsdiseaseawareness💙💜 #fortnite
May 20, 2025 at 11:02 PM
hdfcures.bsky.social
Rachel Harding & Leora Fox from @hdbuzzfeed.bsky.social will join us on 9/9 to share the buzz from HDF’s recent HD2026 Symposium. They'll recap some of the exciting science from the meeting and hold a live Q&A.
Register Now: us06web.zoom.us/.../501.../W...
#curehd #HD2026 #researchspotlightwebinars
August 25, 2026 at 2:26 PM
hdreach.bsky.social
Meetup Reminders for TOMORROW & NEXT WEEK. www.hdreach.org/community/ev... 💙💜 #HDreach #ReachForHope #ReachingForHope #curehd #curejhd #raredisease #huntingtonsdisease #hd #jhd #huntingtons #letstalkabouthd
March 19, 2026 at 1:04 PM
hdreachgameoverhd.bsky.social
The crew plays R.E.P.O. for the first time! Erika is worth $0 #hdreachgameoverhd #huntingtonsdisease #curehd #curejhd #hdreach #gamer #twitch #repo #hilarious #funny #horror

www.tiktok.com/t/ZTj4uwohn/
The crew plays R.E.P.O. for the first time! Erika is worth $0 #hdreachgameoverhd #huntingtonsdisease #curehd #curejhd #hdreach #gamer #twitch #repo #hilarious #funny #horror
TikTok video by HD Reach Game Over
www.tiktok.com
June 2, 2025 at 10:35 PM
hdreachgameoverhd.bsky.social
The #RaidTrain4HD has moved to Scotland! Join the stream and hang with us in the chat @speedysparrow.vtubers.social

www.twitch.tv/speedy_sparrow

#twitch #huntingtonsdisease #awareness #fundraiser #curehd #24hours #live
May 23, 2026 at 11:14 AM
hdfcures.bsky.social
HDF President Nancy Wexler was recently profiled in HD Insights following her newly published memoir My Life, My Science: Pursuing a Cure for Huntington’s Disease.

huntingtonstudygroup.org/hd-insights/...

#cureHD #NancyWexler #mylifemyscience @cshlnews.bsky.social
My Life, My Science | Huntington Study Group
Nancy Wexler shares her personal and scientific journey in Huntington’s disease, reflecting on groundbreaking discoveries, her memoir My Life, My Science, and hope for future treatments.
huntingtonstudygroup.org
April 10, 2026 at 3:43 PM
hdreach.bsky.social
We Need Volunteers for Education Day 2026! 💙💜 Learn more and sign up to volunteer: www.signupgenius.com/go/8050945AC...

#HDReach #ReachForHope #ReachingForHope #curehd #curejhd #raredisease #huntingtonsdisease #hd #jhd
March 24, 2026 at 7:37 PM
hdreachgameoverhd.bsky.social
Storytime Stream TONIGHT!
Sam and Matteo’s Huntington’s disease story while vibing on Minecraft. Come hang!
Twitch.tv/hdreachgameoverhd
YouTube.com/@hdreachgameoverhd
Kick.com/hdreachgameoverhd
Facebook.com/hdreach

#huntingtonsdisease #curehd #curejhd #hdreachgameoverhd #minecraft #streamer
May 20, 2025 at 6:20 PM
hdfcures.bsky.social
HDF is proud to announce our 2026 postdoctoral fellowships & grants. We've awarded over $2 million to international scientists focused on finding #treatments & #cures for #Huntingtonsdisease.

Visit hdfoundation.org/grants-fello... to learn more.

#curehd #research #funding
May 5, 2026 at 4:12 PM
hdfcures.bsky.social
Read HDF President #NancyWexler 's interview with Columbia University about her newly published memoir My Life, My Science: Pursuing a Cure for Huntington’s Disease about her life & work as an HD researcher. tinyurl.com/NW-Columbia-...
#curehd @cshlnews.bsky.social @columbiauniversity.bsky.social
Devoting Your Life to Studying the Disease That Afflicts You
In “My Life, My Science,” Nancy Wexler, a longtime professor of neuropsychology at CUIMC, describes her pursuit of the causes and a cure for Huntington’s disease.
news.columbia.edu
March 25, 2026 at 2:45 PM
hdreach.bsky.social
💙🙏🏼💙 Let’s Celebrate Our #HDHeroes!

Our HD Heroes are the heart of our community. Share your story to inspire and connect with others. Together, we #ReachForHope and keep pushing for a cure.

www.hdreach.org/community/hd...

#HDReach #ReachForHope #ReachingForHope #curehd #curejhd #raredisease
February 26, 2026 at 11:31 PM
hdreach.bsky.social
Join our Fantasy Football League and raise funds for HD! For just $25, you get to play all season long and connect with some amazing people.

www.hdreach.org/community/fa...

#HDReach #ReachForHope #ReachForAwareness #curehd #curejhd #raredisease #huntingtonsdisease #hd #jhd #huntingtons
July 20, 2026 at 2:30 PM
hdreach.bsky.social
RDU TONIGHT!! Walk-ins are welcome but please register if you can. If there are no signups, the event will be cancelled. www.hdreach.org/community/ev... 💙💜 #HDreach #ReachForHope #ReachingForHope #curehd #curejhd #raredisease #huntingtonsdisease #hd #jhd #huntingtons #letstalkabouthd
February 25, 2026 at 2:30 PM
hdfcures.bsky.social
Inspired by the advocates, families & HD community, 5 #Huntingtonsdisease orgs came together to champion the future of rare disease innovation at the FDA. Every day matters for HD families. We'll continue advocating together for a brighter future. #RareDisease #PatientAdvocacy #HDCommunity #curehd
May 19, 2026 at 9:09 PM
hdreach.bsky.social
We’re excited to share a sneak peek of the high-level agenda for Education Day on April 17–18 in Cary, NC! 💙 www.hdreach.org/conference/2...

#HDReach #ReachForHope #ReachingForHope #curehd #curejhd #raredisease #huntingtonsdisease #hd #jhd #huntingtons #letstalkabouthd
March 16, 2026 at 6:59 PM
hdreach.bsky.social
If you’re celebrating a July birthday, we invite you to consider choosing to support families impacted by Huntington’s disease instead of receiving gifts.

 #HDReach #ReachForHope #ReachingForHope #curehd #raredisease #huntingtonsdisease #hd #jhd #huntingtons #letstalkabouthd

buff.ly/FxlCywT

💙🙏🏼💙
July 1, 2026 at 1:15 PM
hdfcures.bsky.social
There have been remarkable breakthroughs in science & clinical trials recently. For the first time, we can envision potential treatments for #Huntingtonsdisease. There's still work to be done. Your gift ensures critical research continues for HD. hdfoundation.org/donate
#cureHD
December 2, 2025 at 4:29 PM