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Some reminders 😊🇵🇸

🍉🍉🍉🍉🍉🍉🍉🍉🍉🍉
#roblox #oblivioushd #hdcommunity #hdc #thebaconhair #thebaconhairmovie #thebaconhairroblox #thelastguest #thelastguestmovie #thelastguestroblox #moonanimator #moonanimator2 #sunanimator #freepalestine #freegaza #CeasefireNOW
March 3, 2024 at 5:39 AM
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Read Here: en.hdbuzz.net/unlocking-th...

#HDAwareness #HDResearch #HDCommunity #HealthyLiving #HuntingtonsDisease
May 19, 2025 at 10:36 PM
ehdn-news.bsky.social
We are deeply saddened by the loss of author and journalist Charlotte Raven. Charlotte was a passionate and powerful HD advocate and leaves behind an indelible legacy of courage and strength in the #HDcommunity.
January 23, 2025 at 10:10 AM
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See you there! HD Gratitude Day 2025... will share further details asap #HuntingtonsDisease #HDCommunity #RareDisease
February 25, 2025 at 12:59 PM
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Exciting update:

www.uclh.nhs.uk/news/uclh-la...

#HuntingtonsDisease #HDCommunity #RareDiseases
UCLH launches first in human study for Huntington’s Disease : University College London Hospitals NHS Foundation Trust
UCLH has recruited the first patient to a global trial of an investigational medication for adults with Huntington’s Disease (HD).
www.uclh.nhs.uk
December 5, 2024 at 11:41 AM
ehdn-news.bsky.social
The November issue of EHDN News is online!
Highlights include coverage of EHDN & Enroll-HD 2024 and an interview with the amazing Anne Rosser.
#HuntingtonsDisease #HDCommunity #RareDisease #ClinicalResearch
PM or email newsletter@euro-hd.net with your comments and views!
November 26, 2024 at 1:31 PM
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Registration for the EHDN Clinical Research Congress 2026 closes 14 August – we would love to see you there!

Register here: na.eventscloud.com/ereg/index.p...

#HuntingtonsDisease #HDCommunity #Advocacy #ClinicalResearch
August 10, 2026 at 12:46 PM
hdfcures.bsky.social
Inspired by the advocates, families & HD community, 5 #Huntingtonsdisease orgs came together to champion the future of rare disease innovation at the FDA. Every day matters for HD families. We'll continue advocating together for a brighter future. #RareDisease #PatientAdvocacy #HDCommunity #curehd
May 19, 2026 at 9:09 PM
ehdn-news.bsky.social
Our latest issue of EHDN News brings a wealth of updates from across EHDN and the wider #HDcommunity. Highlights include the Path4HD-ISS2 initiative and the latest developments from EHDN-endorsed studies as well as Enroll-HD and HDClarity: ehdn.org/wp-content/u...
#HuntingtonsDisease
#Research
March 2, 2026 at 9:33 AM
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Registration for the EHDN Clinical Research Congress 2026 closes 14 August – we would love to see you there!

Register here: na.eventscloud.com/ereg/index.p...

#HuntingtonsDisease #HDCommunity #Advocacy #ClinicalResearch
August 11, 2026 at 11:07 AM
hdbuzzfeed.bsky.social
Did you know?

Huntington’s disease is thought to affect about 1 in 7000 people. That’s about the same prevalence as ALS!

#HuntingtonsDisease #HDResearch #HealthyLiving #HDCommunity
May 4, 2025 at 10:14 AM
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**Bring your research to Kraków!**

The call for abstracts is open for the EHDN Clinical Research Congress, Kraków, 22–24 October 2026.

🗓️ Submit 1–30 June 2026: na.eventscloud.com/eSites/87596...

Questions: krakow2026@ehdn.org

#HuntingtonsDisease #EHDN2026 #ClinicalResearch #HDCommunity
June 23, 2026 at 4:00 PM
ehdn-news.bsky.social
**Bring your research to Kraków!**

The call for abstracts is open for the EHDN Clinical Research Congress, Kraków, 22–24 October 2026.

🗓️ Submit 1–30 June 2026: na.eventscloud.com/eSites/87596...

Questions: krakow2026@ehdn.org

#HuntingtonsDisease #EHDN2026 #ClinicalResearch #HDCommunity
June 16, 2026 at 11:20 AM
ehdn-news.bsky.social
Our latest newsletter is available online:

ehdn.org/wp-content/u...

Highlights include an interview with EHDN chair Patrick Weydt and insights into the latest work of the Imaging Working Group. #HuntingtonsDisease #HDCommunity
March 12, 2025 at 1:24 PM
fixelinstitute.bsky.social
🎬 Missed the HD Education Day Symposium? No worries! Catch up on all the insights and expert talks here: https://www.youtube.com/watch?v=q1HIpBSFAT4&list=PLZbl_Ullesg5v4DY-_oNlmV-Zso2dDgM6 📲 #HuntingtonsDisease #EducationDay #HDCommunity #BrainHealth
November 25, 2024 at 5:02 AM