If you know, you know. #DisabilityLife
May 3, 2025 at 1:16 PM
If you know, you know. #DisabilityLife
Learn about MG balance: https://bit.ly/4rp5Gnw
#MyastheniaGravis #MyastheniaGravisNews #LivingWithMG #ChronicIllnessJourney #DisabilityLife #Bionews
#MyastheniaGravis #MyastheniaGravisNews #LivingWithMG #ChronicIllnessJourney #DisabilityLife #Bionews
February 13, 2026 at 10:45 PM
Finally today, after almost 18 months, I am getting a plan from the NDIS! This is as exciting as finding a lost valium in an old dressing gown pocket! #disabilitylife
May 8, 2024 at 11:25 PM
Finally today, after almost 18 months, I am getting a plan from the NDIS! This is as exciting as finding a lost valium in an old dressing gown pocket! #disabilitylife
Little J, 13 years old: “Stop beating yourself up Momma. It’s okay you’re disabled, you just got to ask for more help when you need it, okay?” It was a good reminder to give myself the grace I give others, instead of beating myself up for the things I cannot do. #FamilyLife #DisabilityLife
February 19, 2025 at 12:34 AM
Little J, 13 years old: “Stop beating yourself up Momma. It’s okay you’re disabled, you just got to ask for more help when you need it, okay?” It was a good reminder to give myself the grace I give others, instead of beating myself up for the things I cannot do. #FamilyLife #DisabilityLife
Laying in bed counting the number of disabilities I have instead of sheep… 1,2,3…11, 12, 13…
#DisabilityLife #ChronicIllness #Autoimmune #AudHD #CopingStrategies
#DisabilityLife #ChronicIllness #Autoimmune #AudHD #CopingStrategies
March 27, 2025 at 3:02 AM
Laying in bed counting the number of disabilities I have instead of sheep… 1,2,3…11, 12, 13…
#DisabilityLife #ChronicIllness #Autoimmune #AudHD #CopingStrategies
#DisabilityLife #ChronicIllness #Autoimmune #AudHD #CopingStrategies
Drives me up the f'ing wall. I'm disabled with no car & have had to take my small dog to the vets by taxi. Often have had to call up to 5 companies. Nightmare.
Drivers should not be refusing guide dogs 🤬
#DisabilityLife
www.bbc.co.uk/news/article...
Drivers should not be refusing guide dogs 🤬
#DisabilityLife
www.bbc.co.uk/news/article...
Milton Keynes guide dog owner 'infuriated' by taxi ride refusals
Hannah Burgess says she has been repeatedly declined a ride when travelling with her guide dog.
www.bbc.co.uk
June 9, 2025 at 7:25 PM
Drives me up the f'ing wall. I'm disabled with no car & have had to take my small dog to the vets by taxi. Often have had to call up to 5 companies. Nightmare.
Drivers should not be refusing guide dogs 🤬
#DisabilityLife
www.bbc.co.uk/news/article...
Drivers should not be refusing guide dogs 🤬
#DisabilityLife
www.bbc.co.uk/news/article...
I'll get the paperwork done somehow, and will possibly not be forced to live on less than $11k next year, but it ain't gonna be much better than that
#DisabilityLife
#DisabilityLife
December 21, 2025 at 7:40 AM
I'll get the paperwork done somehow, and will possibly not be forced to live on less than $11k next year, but it ain't gonna be much better than that
#DisabilityLife
#DisabilityLife
#DisabilityLife
Depending on which autoimmune disease I rolled at character creation, this might be me too, in a few years!
Solidarity?
Depending on which autoimmune disease I rolled at character creation, this might be me too, in a few years!
Solidarity?
May 10, 2025 at 4:43 PM
#DisabilityLife
Depending on which autoimmune disease I rolled at character creation, this might be me too, in a few years!
Solidarity?
Depending on which autoimmune disease I rolled at character creation, this might be me too, in a few years!
Solidarity?
A peek inside our built-in media console 👀. But when it’s closed it’s solid, giving me another surface to steady myself if needed. #disabilitylife
March 9, 2025 at 10:09 PM
A peek inside our built-in media console 👀. But when it’s closed it’s solid, giving me another surface to steady myself if needed. #disabilitylife
I went back to bed this morning and got three more hours of sleep somehow #DisabilityLife #FatigueMaxxing
October 30, 2024 at 5:51 PM
I went back to bed this morning and got three more hours of sleep somehow #DisabilityLife #FatigueMaxxing
Now settling into bed to rest because I am POOPED!! #DisabilityLife
March 30, 2025 at 9:59 PM
Now settling into bed to rest because I am POOPED!! #DisabilityLife
Let’s retire the word “lazy.” You’re not lazy for needing breaks, rest, or creative adjustments. You’re building a workflow that works for you, and that’s powerful.
#SelfCompassion #DisabilityLife
#SelfCompassion #DisabilityLife
January 19, 2026 at 11:26 PM
Let’s retire the word “lazy.” You’re not lazy for needing breaks, rest, or creative adjustments. You’re building a workflow that works for you, and that’s powerful.
#SelfCompassion #DisabilityLife
#SelfCompassion #DisabilityLife
Medical gaslighting is real.
People with chronic illnesses know this better than anyone.
It cost me days of crippling pain and indignity, but it can easily cost us our lives.
#ChronicIllness #EDS #DisabilityLife
People with chronic illnesses know this better than anyone.
It cost me days of crippling pain and indignity, but it can easily cost us our lives.
#ChronicIllness #EDS #DisabilityLife
July 26, 2025 at 6:03 PM
Medical gaslighting is real.
People with chronic illnesses know this better than anyone.
It cost me days of crippling pain and indignity, but it can easily cost us our lives.
#ChronicIllness #EDS #DisabilityLife
People with chronic illnesses know this better than anyone.
It cost me days of crippling pain and indignity, but it can easily cost us our lives.
#ChronicIllness #EDS #DisabilityLife
I have a permanent spinal disability. It took me a long time for me to accept that truth. The pain is my constant as is my will. I cannot stop the pain happening but I can control my reaction to it. So I choose to fight with everything I’ve got. #DisabilityLife
February 5, 2025 at 8:17 PM
I have a permanent spinal disability. It took me a long time for me to accept that truth. The pain is my constant as is my will. I cannot stop the pain happening but I can control my reaction to it. So I choose to fight with everything I’ve got. #DisabilityLife
Still plugging away at this - and while I wish I could finish it tonight, I am exhausted even after sleeping much of the weekend.
Y’all know I’m tired when I stop mid-block! 😑
#CraftSky #DisabilityLife
Y’all know I’m tired when I stop mid-block! 😑
#CraftSky #DisabilityLife
April 7, 2026 at 12:38 AM
Still plugging away at this - and while I wish I could finish it tonight, I am exhausted even after sleeping much of the weekend.
Y’all know I’m tired when I stop mid-block! 😑
#CraftSky #DisabilityLife
Y’all know I’m tired when I stop mid-block! 😑
#CraftSky #DisabilityLife
Learn about MG balance: https://bit.ly/4rp5Gnw
#MyastheniaGravis #MyastheniaGravisNews #LivingWithMG #ChronicIllnessJourney #DisabilityLife #Bionews
#MyastheniaGravis #MyastheniaGravisNews #LivingWithMG #ChronicIllnessJourney #DisabilityLife #Bionews
March 23, 2026 at 9:45 PM
A shelf of books.
That’s what it takes.
I’ll be sleeping again after a half hour chat with my nibling too, as that’s always exhausting as well.
#chronicIllness #DisabilityLife #OrLackOfAny
That’s what it takes.
I’ll be sleeping again after a half hour chat with my nibling too, as that’s always exhausting as well.
#chronicIllness #DisabilityLife #OrLackOfAny
February 6, 2025 at 10:28 AM
A shelf of books.
That’s what it takes.
I’ll be sleeping again after a half hour chat with my nibling too, as that’s always exhausting as well.
#chronicIllness #DisabilityLife #OrLackOfAny
That’s what it takes.
I’ll be sleeping again after a half hour chat with my nibling too, as that’s always exhausting as well.
#chronicIllness #DisabilityLife #OrLackOfAny
That #DisabilityLife when “overdoing it” means going into two stores, doing your short exercises, & sitting upright on a futon all day. Ow.
Anyway. Cancelled the stuff I was planning to do tomorrow to recuperate. Grumpy about it. #POTS #ChronicPain
Anyway. Cancelled the stuff I was planning to do tomorrow to recuperate. Grumpy about it. #POTS #ChronicPain
January 11, 2025 at 4:36 AM
That #DisabilityLife when “overdoing it” means going into two stores, doing your short exercises, & sitting upright on a futon all day. Ow.
Anyway. Cancelled the stuff I was planning to do tomorrow to recuperate. Grumpy about it. #POTS #ChronicPain
Anyway. Cancelled the stuff I was planning to do tomorrow to recuperate. Grumpy about it. #POTS #ChronicPain
Just discovered one of my college classes is on the 4th floor with no elevator.
What a nice day to be a cane user
#disabilitylife
What a nice day to be a cane user
#disabilitylife
December 6, 2024 at 10:46 PM
Just discovered one of my college classes is on the 4th floor with no elevator.
What a nice day to be a cane user
#disabilitylife
What a nice day to be a cane user
#disabilitylife
Getting SSDI approval is a big step, but benefits may not cover all expenses, and you’ll face Continuing Disability Reviews.
#DisabilitySupport #DisabilityLife #ApplyForSSDI #SSDI #AllsupSSDI
#DisabilitySupport #DisabilityLife #ApplyForSSDI #SSDI #AllsupSSDI
March 25, 2026 at 6:00 PM
Getting SSDI approval is a big step, but benefits may not cover all expenses, and you’ll face Continuing Disability Reviews.
#DisabilitySupport #DisabilityLife #ApplyForSSDI #SSDI #AllsupSSDI
#DisabilitySupport #DisabilityLife #ApplyForSSDI #SSDI #AllsupSSDI
TL;DR: My CNS tumor meds kept me stable, but my insurance lapsed, so I can’t get my injection this month. Symptoms are returning, and recovery is rough. Just sharing for transparency.
#ChronicIllness #BrainTumor #MigraineWarrior #DisabilityLife #HealthStruggles #disabled #OneDayAtATime
#ChronicIllness #BrainTumor #MigraineWarrior #DisabilityLife #HealthStruggles #disabled #OneDayAtATime
February 17, 2025 at 6:24 AM
TL;DR: My CNS tumor meds kept me stable, but my insurance lapsed, so I can’t get my injection this month. Symptoms are returning, and recovery is rough. Just sharing for transparency.
#ChronicIllness #BrainTumor #MigraineWarrior #DisabilityLife #HealthStruggles #disabled #OneDayAtATime
#ChronicIllness #BrainTumor #MigraineWarrior #DisabilityLife #HealthStruggles #disabled #OneDayAtATime
I applied for and got an interview for a part time role that was perfect for me and my disability needs.
However, they didn't want me for the part-time role but thought the full-time one would have been a better fit.
So I didn't get either. #ChronicIllness #DisabilityLife
However, they didn't want me for the part-time role but thought the full-time one would have been a better fit.
So I didn't get either. #ChronicIllness #DisabilityLife
April 11, 2025 at 9:57 PM
I applied for and got an interview for a part time role that was perfect for me and my disability needs.
However, they didn't want me for the part-time role but thought the full-time one would have been a better fit.
So I didn't get either. #ChronicIllness #DisabilityLife
However, they didn't want me for the part-time role but thought the full-time one would have been a better fit.
So I didn't get either. #ChronicIllness #DisabilityLife
Learn about MG balance: https://bit.ly/4rp5Gnw
#MyastheniaGravis #MyastheniaGravisNews #LivingWithMG #ChronicIllnessJourney #DisabilityLife #Bionews
#MyastheniaGravis #MyastheniaGravisNews #LivingWithMG #ChronicIllnessJourney #DisabilityLife #Bionews
July 6, 2026 at 9:45 PM
@saltspringislandbc.bsky.social
snowed in on salt spring, 7 days and counting… #DisabilityLife #RuralLife
snowed in on salt spring, 7 days and counting… #DisabilityLife #RuralLife
February 8, 2025 at 9:24 PM
@saltspringislandbc.bsky.social
snowed in on salt spring, 7 days and counting… #DisabilityLife #RuralLife
snowed in on salt spring, 7 days and counting… #DisabilityLife #RuralLife