It’s Never Give Up Day! Regardless of your path and what lies ahead, don’t give up. We know firsthand what perseverance can do.
For Expert SSDI Representation:
888-339-0743
allsup.help/ssdi-genbs
#NeverGiveUpDay #DisabilityLife #ExpertHelp #ApplyForSSDI #SSDI #AllsupSSDI
For Expert SSDI Representation:
888-339-0743
allsup.help/ssdi-genbs
#NeverGiveUpDay #DisabilityLife #ExpertHelp #ApplyForSSDI #SSDI #AllsupSSDI
August 19, 2026 at 3:10 PM
It’s Never Give Up Day! Regardless of your path and what lies ahead, don’t give up. We know firsthand what perseverance can do.
For Expert SSDI Representation:
888-339-0743
allsup.help/ssdi-genbs
#NeverGiveUpDay #DisabilityLife #ExpertHelp #ApplyForSSDI #SSDI #AllsupSSDI
For Expert SSDI Representation:
888-339-0743
allsup.help/ssdi-genbs
#NeverGiveUpDay #DisabilityLife #ExpertHelp #ApplyForSSDI #SSDI #AllsupSSDI
In a week—on 8/14—the transplant council decides if I’m fully listed for a kidney. Approved, declined, or deferred. I’ve been through so much to get here. The waiting is heavier than I expected. #KidneyTransplant #DisabilityLife #ChronicIllness #OrganDonation #TransplantJourney
August 6, 2025 at 2:27 PM
In a week—on 8/14—the transplant council decides if I’m fully listed for a kidney. Approved, declined, or deferred. I’ve been through so much to get here. The waiting is heavier than I expected. #KidneyTransplant #DisabilityLife #ChronicIllness #OrganDonation #TransplantJourney
CVC is out! Lidocaine, scalpel, pull, pressure—30 mins later, no bleeding. No moving or showers for 24 hrs. Accidentally walked into a 4’ tall staff member (blind life 😅). One less tube, one step closer to healing.
#DisabilityLife #CVCRemoval #BlindAndProud #ChronicIllness #MedicalWin #PatientLife
#DisabilityLife #CVCRemoval #BlindAndProud #ChronicIllness #MedicalWin #PatientLife
July 17, 2025 at 12:17 AM
CVC is out! Lidocaine, scalpel, pull, pressure—30 mins later, no bleeding. No moving or showers for 24 hrs. Accidentally walked into a 4’ tall staff member (blind life 😅). One less tube, one step closer to healing.
#DisabilityLife #CVCRemoval #BlindAndProud #ChronicIllness #MedicalWin #PatientLife
#DisabilityLife #CVCRemoval #BlindAndProud #ChronicIllness #MedicalWin #PatientLife
Now up to 10 days…
An able-bodied person would have been able to get out by now. But not being able to walk in the snow or get up independently if I slip and fall makes my wait time much longer. Hence the #DisabilityLife detail
An able-bodied person would have been able to get out by now. But not being able to walk in the snow or get up independently if I slip and fall makes my wait time much longer. Hence the #DisabilityLife detail
February 11, 2025 at 5:17 PM
Now up to 10 days…
An able-bodied person would have been able to get out by now. But not being able to walk in the snow or get up independently if I slip and fall makes my wait time much longer. Hence the #DisabilityLife detail
An able-bodied person would have been able to get out by now. But not being able to walk in the snow or get up independently if I slip and fall makes my wait time much longer. Hence the #DisabilityLife detail
@saltspringislandbc.bsky.social
snowed in on salt spring, 7 days and counting… #DisabilityLife #RuralLife
snowed in on salt spring, 7 days and counting… #DisabilityLife #RuralLife
February 8, 2025 at 9:24 PM
@saltspringislandbc.bsky.social
snowed in on salt spring, 7 days and counting… #DisabilityLife #RuralLife
snowed in on salt spring, 7 days and counting… #DisabilityLife #RuralLife
Saw cardiology for my post-POTS diagnosis today. Recommendations: stay inside when it’s hot outside.
Y’all. I live in Orlando. 😭🙏 #DisabilityLife #RareDisease #POTS #SaltLife
Y’all. I live in Orlando. 😭🙏 #DisabilityLife #RareDisease #POTS #SaltLife
December 24, 2025 at 10:33 PM
Saw cardiology for my post-POTS diagnosis today. Recommendations: stay inside when it’s hot outside.
Y’all. I live in Orlando. 😭🙏 #DisabilityLife #RareDisease #POTS #SaltLife
Y’all. I live in Orlando. 😭🙏 #DisabilityLife #RareDisease #POTS #SaltLife
When you get to see every provider in the practice because you’re “medically complex”. 🤣🤣🤣 So many new friends! Lol #ChronicIllness #RareDisease #DisabilityLife
December 24, 2025 at 2:10 PM
When you get to see every provider in the practice because you’re “medically complex”. 🤣🤣🤣 So many new friends! Lol #ChronicIllness #RareDisease #DisabilityLife
What else is happening with my body that I don’t understand?
I start PT this week finally. And I sent off my cheek swabs to the geneticist so I should get some answers in the next 2-3 weeks.
#ChronicIllness #ChronicPain #SuddenParalysis #NEISvoid #DisabilityLife #RareDisease
I start PT this week finally. And I sent off my cheek swabs to the geneticist so I should get some answers in the next 2-3 weeks.
#ChronicIllness #ChronicPain #SuddenParalysis #NEISvoid #DisabilityLife #RareDisease
July 9, 2025 at 12:41 AM
What else is happening with my body that I don’t understand?
I start PT this week finally. And I sent off my cheek swabs to the geneticist so I should get some answers in the next 2-3 weeks.
#ChronicIllness #ChronicPain #SuddenParalysis #NEISvoid #DisabilityLife #RareDisease
I start PT this week finally. And I sent off my cheek swabs to the geneticist so I should get some answers in the next 2-3 weeks.
#ChronicIllness #ChronicPain #SuddenParalysis #NEISvoid #DisabilityLife #RareDisease
I got my unlistened to voicemails down from 25+ to 11 today. That counts for something, right? 🥄🥄🥄 #DisabilityLife #ChronicIllness #ExecutiveFunction
June 6, 2025 at 3:27 AM
I got my unlistened to voicemails down from 25+ to 11 today. That counts for something, right? 🥄🥄🥄 #DisabilityLife #ChronicIllness #ExecutiveFunction
Have disabled influencers showcase your product. It will give authenticity to your claims of accessibility. #Accessibility #AccessibilityMatters #DisabilityLife #DisabledInfluencer
May 23, 2025 at 2:32 PM
Have disabled influencers showcase your product. It will give authenticity to your claims of accessibility. #Accessibility #AccessibilityMatters #DisabilityLife #DisabledInfluencer
Love it when I see a specialist trying to confirm or rule out a condition and they ask me why I bothered. Umm…because I need to understand how my body works? Especially if it’s doing weird things. 😒🦓 #ChronicPain #DisabilityLife #Hypermobility #PartialParalysis
May 22, 2025 at 10:40 PM
Love it when I see a specialist trying to confirm or rule out a condition and they ask me why I bothered. Umm…because I need to understand how my body works? Especially if it’s doing weird things. 😒🦓 #ChronicPain #DisabilityLife #Hypermobility #PartialParalysis
Saw the Rheumatologist today. Confirmed hypermobility. Recommended follow up with Geneticist. Called to schedule appointment. Next available is in September. Of 2026. This. Is. Insane. #ChronicIllness #ChronicPain #EDS #ChronicDisease #DisabilityLife
May 19, 2025 at 11:01 PM
Saw the Rheumatologist today. Confirmed hypermobility. Recommended follow up with Geneticist. Called to schedule appointment. Next available is in September. Of 2026. This. Is. Insane. #ChronicIllness #ChronicPain #EDS #ChronicDisease #DisabilityLife
May 18, 2025 at 2:35 AM
My iWatch warned me my “gait” was unsteady and suggested I’m at an increased fall risk for the next 12mo. I mean…it’s not wrong, but who’s going to tell her I’m in a wheelchair now? #DisabilityLife #ChronicIllness #ChronicPain
May 10, 2025 at 3:33 PM
My iWatch warned me my “gait” was unsteady and suggested I’m at an increased fall risk for the next 12mo. I mean…it’s not wrong, but who’s going to tell her I’m in a wheelchair now? #DisabilityLife #ChronicIllness #ChronicPain
Another day, another specialist visit. Being disabled is a fully time job. #DisabilityLife #Disability #Disabled
May 7, 2025 at 2:54 PM
Another day, another specialist visit. Being disabled is a fully time job. #DisabilityLife #Disability #Disabled
“You need to get out of the house more”. Yeah, I’d love to. But I can’t bathe without help and I’m not allowed to drive for 6mo. Sooo…🤷🏻♀️ #ChronicPain #MeningealCyst #ChronicIllness #Disabled #DisabilityLife
April 26, 2025 at 2:38 AM
“You need to get out of the house more”. Yeah, I’d love to. But I can’t bathe without help and I’m not allowed to drive for 6mo. Sooo…🤷🏻♀️ #ChronicPain #MeningealCyst #ChronicIllness #Disabled #DisabilityLife
Just discovered one of my college classes is on the 4th floor with no elevator.
What a nice day to be a cane user
#disabilitylife
What a nice day to be a cane user
#disabilitylife
December 6, 2024 at 10:46 PM
Just discovered one of my college classes is on the 4th floor with no elevator.
What a nice day to be a cane user
#disabilitylife
What a nice day to be a cane user
#disabilitylife
Finally today, after almost 18 months, I am getting a plan from the NDIS! This is as exciting as finding a lost valium in an old dressing gown pocket! #disabilitylife
May 8, 2024 at 11:25 PM
Finally today, after almost 18 months, I am getting a plan from the NDIS! This is as exciting as finding a lost valium in an old dressing gown pocket! #disabilitylife
Is anyone else having trouble finding a virtual seder this year? #ParshaChat #DisabilityLife
April 11, 2025 at 9:36 PM
Is anyone else having trouble finding a virtual seder this year? #ParshaChat #DisabilityLife
If you know, you know. #DisabilityLife
May 3, 2025 at 1:16 PM
If you know, you know. #DisabilityLife
It is truly a great medicine. But the hurdles that are in place to get medical, as well as the pricing, are eclipsing to the whole. But I survive but I'm back on a walker at 32. #funtimes #disabilitylife #assistivedevices
March 18, 2026 at 7:42 PM
It is truly a great medicine. But the hurdles that are in place to get medical, as well as the pricing, are eclipsing to the whole. But I survive but I'm back on a walker at 32. #funtimes #disabilitylife #assistivedevices
Rolling through life like 🚶♂️➡️🛞—turns out the pavement’s not disability-friendly or rent-friendly 😅🏠❌ Still, I’ve got jokes, wheels, and vibes 💪✨ #DisabilityLife #Homelessness #KeepRolling #StillStanding
June 4, 2026 at 4:45 AM
Rolling through life like 🚶♂️➡️🛞—turns out the pavement’s not disability-friendly or rent-friendly 😅🏠❌ Still, I’ve got jokes, wheels, and vibes 💪✨ #DisabilityLife #Homelessness #KeepRolling #StillStanding