#ECHDO
ECHDO AGM 2027 is coming to Cyprus!
📅 24–25 May 2027

💬 Help shape our AGM! Members are invited to suggest topics or volunteer to give a presentation or short pitch.
📩 Email ECHDO with your ideas by the end of November 2026.

#ECHDO #CHD
October 16, 2026 at 12:55 PM
📣 Introducing ECHDO Member Leaders’ Meetings! ❤️
A new online space for CHD patient organisation leaders across Europe to connect, share, learn & shape our community together! 🌍🤝

📅 5 November 2026
🕖 7 PM CET
💻 Online
🇨🇾 Topic: Ahead of Cyprus

#ECHDO #CHD #StrongerTogether
October 15, 2026 at 11:36 AM
En estos cómics salen personajes primigenios como Violet, Patty o Shermy y hasta algunos olvidados como Freida. Pero he echdo en falta a Pocilga
354) El pinchacito
355) El solitario de Woostock
356) Recién impreso
357) Joe Stockar
358) La mejor defensa
359) Definitivamente, el médico si está
360) Me quiere, no me quiere...
361) Zapatillas nuevas
362) El airetista
363) Los globos de la discoria
364) Contando ovejas
September 17, 2026 at 2:47 PM
Strength in Unity: Celebrating the Women of ECHDO 💜✨

​On this International Women’s Day, we are pausing to say thank you.
March 8, 2026 at 8:29 AM
The latest ECHDO Newsletter is out!

Read The ECHDO Beat – March 2026 here: sway.cloud.microsoft/YhCXnbXESw2E...

Follow us @echdoheart.
The ECHDO Beat - March 2026
Welcome to the latest ECHDO Newsletter
sway.cloud.microsoft
March 2, 2026 at 2:48 PM
👉 This is us. This is our mission.

CHD is not something you outgrow — it’s a lifelong condition, and care must reflect that. ❤️‍🩹 We advocate for better standards of medical and psychosocial care, access to safe medicines, and equal treatment across Europe. We are ECHDO. 🇪🇺
February 13, 2026 at 7:41 AM
🔊 Today, we kick off the Congenital Heart Disease Awareness Week. #HeartWeek

A week to speak louder about lifelong care, equity, and support.
♥️

🔖Tag us in your posts or use #ECHDO, and we’ll do our best to reshare.

#EveryBeatMatters

#CHDAwareness #advocacy
February 7, 2026 at 8:04 AM
🔔 MEMBER ALERT 🔔
Scam emails are circulating claiming to be from ECHDO or our President.

Official messages only come from ECHDO info or president email addresses.
We will never ask for money outside annual membership fees (always invoiced).

Please check your inbox for official comms.
January 20, 2026 at 1:56 PM
CHD knows no borders — and neither should our voices.
We’re inviting patients, families, volunteers, and organisations to join a shared ECHDO video for #CHDAwareness.

Instructions have been sent by email. If you’ve received the message, we’d love to hear from you. 💗

#EveryBeatMatters
January 14, 2026 at 1:17 PM
Sharing key events coming up for ECHDO over the next few months.
February is Congenital Heart Defect Awareness Month, so keep an eye out for our campaign launching soon. 🩷

These moments reflect what matters to us as a community: advocacy, learning, and collaboration.✨
January 12, 2026 at 12:52 PM
Seasons greetings from the ECHDO board. 🐧
Wishing our members, friends and supporters around the world a prosperous 2026. ✨️
December 23, 2025 at 4:57 PM
Our President Karen Tomlin’s story was selected for the EACH Summit exhibition 💙❤️

Her message: pulse oximetry for all newborns saves lives.
We stand with families and call for universal screening across Europe.

#ECHDO #EACHSummit #CHDawareness #PulseOxSavesLives

@europeansocietyofcardiology
December 12, 2025 at 1:32 PM
Introducing The ECHDO Beat! 🥁
Our new bimonthly newsletter is here to connect the CHD community across Europe. Get the first edition for:

Member updates 💙
Advocacy highlights 📢
Future plans 🌍

Read the inaugural issue! 👇
sway.cloud.microsoft/pC6ISSIgOzIe...

#ECHDO #CHD #HeartDisease #Newsletter
November 26, 2025 at 2:50 PM
ECHDO is entering a new chapter, having elected a new Board at it's General Assembly in Croatia earlier this year, with Karen Tomlin (UK) as the new President.

🔗 Read the full article on the ECHDO website. (Link in BIO)
www.echdo.eu/content/echd...
November 24, 2025 at 9:20 AM
A quote from ECHDO President, Karen Tomlin, on World Heart Day. 💞
September 29, 2025 at 12:24 PM
💙 Today is International Day of Charity.

ECHDO supports people with Congenital Heart Disease (CHD) of all ages - working to ensure access to the best possible care across Europe.

👉 Donate here: www.paypal.com/donate/?host...
September 5, 2025 at 9:22 AM
✨Announcing the new ECHDO Board for 2025! 💓

Karen Tomlin - President
Mirela Dežman - Vice President
Michelle Woods - Treasurer
Xenia Patsalidou
Amin Houari - Secretary
Tsvetoslav Naydenov
Katarina Stano

More on specific role assignment soon.
May 16, 2025 at 1:18 PM
Prof. Edward Callus receives the ECHDO Fellow Award at Annual AGM & Conference in Croatia Split. 👏

Get the full story here: www.echdo.eu/content/prof...

#PoliclinicoSanDonato | grupposandonato
May 16, 2025 at 10:27 AM
✨ 𝐖𝐡𝐨 𝐚𝐫𝐞 𝐭𝐡𝐞 𝐩𝐞𝐨𝐩𝐥𝐞 𝐛𝐞𝐡𝐢𝐧𝐝 𝐄𝐂𝐇𝐃𝐎? ✨

Visit the website to read the BIO's of our board members: 👉 www.echdo.eu/board

#ECHDO #HeartCharity #CHDAwareness #CHDCommunity #GlobalHeartCommunity
March 4, 2025 at 12:44 PM
Last Tuesday we wrapped up our year with our end-of-year online member social gathering. Swipe through to see our Agenda & some snaps from our Taskmaster challenge!
Thanks to our members for their support this year.

🐧Season’s Greetings from the ECHDO Board. ✨

#EndOfYear #WRAPUP #CHD #HeartCharity
December 20, 2024 at 9:57 AM
Read about the team of people behind #ECHDO. 💓
www.echdo.eu/our-team

#CHD #HeartCharity
November 28, 2024 at 9:54 AM
Hello #Bluesky! 👋 We're new here. 😁

The European Congenital Heart Disease Organisation works for Congenital Heart Disease (#CHD) patients of all ages, gaining knowledge from parents of children with CHD and from adult patients to achieve common goals. ❣️

👉 www.echdo.eu
#ECHDO #Europe #HeartCharity
November 20, 2024 at 11:46 AM
Qué pelazo has echdo, Pozik 😁 Egunones
July 28, 2026 at 6:32 AM