#CHDAwareness
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badbagelbruja.bsky.social
I’m also an adult CHD survivor. It runs in my family. For the prevalence of CHD it is grossly under researched and underfunded. It wasn’t until after I had my son that any doctor could tell me the risk was even 3%. #heartmonth #CHDawareness #1in100
February 11, 2025 at 6:37 PM
badbagelbruja.bsky.social
I’ve been slacking but it’s Heart Month and 7th-14th is #CHDawareness 12 years ago today my youngest son had his 2nd (of 3) open heart surgery, a bilateral Glenn. He was 7 months old. #1in100 babies are born worldwide with CHD. #TOF #SingleVentricle
February 10, 2025 at 8:02 PM
echdoheart.bsky.social
❤️‍🩹 For many children living with congenital heart disease, school can look a little different.

📷 today’s photo: Emanuela (8), living her best life while growing up with a single-ventricle heart. Follow her journey at @katarina_stano | IG

#EveryBeatMatters #CHDAwareness #HeartMonth #CHDinSCHOOL
February 16, 2026 at 6:48 AM
echdoheart.bsky.social
❤️‍🩹 In up to 50% of cases, there is no clearly identified cause of congenital heart defects.

It’s not the food you ate.
Not a step you missed.
Nor a step you took.

You're not alone. ♥️

#EveryBeatMatters #CHDAwareness #HeartMonth
February 15, 2026 at 8:13 AM
echdoheart.bsky.social
🔊 Today, we kick off the Congenital Heart Disease Awareness Week. #HeartWeek

A week to speak louder about lifelong care, equity, and support.
♥️

🔖Tag us in your posts or use #ECHDO, and we’ll do our best to reshare.

#EveryBeatMatters

#CHDAwareness #advocacy
February 7, 2026 at 8:04 AM
echdoheart.bsky.social
❤️‍🩹 That first surgery is one of the hardest moments a parent can face. You prepare for appointments, but not for walking your tiny baby into a surgical ward.

Resilience isn’t the absence of fear — it’s standing anyway.

These surgeries save lives. ♥️

#EveryBeatMatters #CHDAwareness #HeartMonth
February 6, 2026 at 9:54 AM
echdoheart.bsky.social
CHD knows no borders — and neither should our voices.
We’re inviting patients, families, volunteers, and organisations to join a shared ECHDO video for #CHDAwareness.

Instructions have been sent by email. If you’ve received the message, we’d love to hear from you. 💗

#EveryBeatMatters
January 14, 2026 at 1:17 PM
echdoheart.bsky.social
Our President Karen Tomlin’s story was selected for the EACH Summit exhibition 💙❤️

Her message: pulse oximetry for all newborns saves lives.
We stand with families and call for universal screening across Europe.

#ECHDO #EACHSummit #CHDawareness #PulseOxSavesLives

@europeansocietyofcardiology
December 12, 2025 at 1:32 PM
echdoheart.bsky.social
Living with a heart condition isn’t just about big milestones. It’s about the small victories: a good walk, a laugh with friends, a day that feels “normal.” Those moments are everything. 💛

#CHD #WorldHeartDay #CHDAwareness
September 29, 2025 at 1:12 PM
echdoheart.bsky.social
To everyone managing medication, lifestyle changes, hospital visits, and the mental load that comes with a heart condition: we see you. We’re in your corner, always.

#WorldHeartDay #CHD #CHDAwareness
September 29, 2025 at 1:09 PM
echdoheart.bsky.social
🔔 ADVERTISE IN OUR ANNUAL REPORT! 🔔
We're offering:
½ page: 300 Euros
1 page: 500 Euros
Email: info@echdo.eu for more! 💞
👉 www.echdo.eu/content/adve...

#CongenitalHeartDisease #CHD #Fundraising #Advertising #Cardiology #HeartHealth #PatientAdvocacy #CHDAwareness
March 28, 2025 at 3:24 PM
echdoheart.bsky.social
✨ 𝐖𝐡𝐨 𝐚𝐫𝐞 𝐭𝐡𝐞 𝐩𝐞𝐨𝐩𝐥𝐞 𝐛𝐞𝐡𝐢𝐧𝐝 𝐄𝐂𝐇𝐃𝐎? ✨

Visit the website to read the BIO's of our board members: 👉 www.echdo.eu/board

#ECHDO #HeartCharity #CHDAwareness #CHDCommunity #GlobalHeartCommunity
March 4, 2025 at 12:44 PM
echdoheart.bsky.social
💖 Thank You for a Heartfelt Heart Month! 💖

As we wrap up Heart Month, we want to take a moment to say a BIG thank you to each and every one of you who has helped raise awareness for #CHD. Your support means the world to us. 🙏

#HeartMonth #CHDawareness #CongenitalHeartDisease #StrongerTogether
February 28, 2025 at 1:42 PM
echdoheart.bsky.social
𝐇𝐞𝐚𝐫𝐭 𝐭𝐨 𝐇𝐞𝐚𝐫𝐭 𝐜𝐨𝐧𝐯𝐞𝐫𝐬𝐚𝐭𝐢𝐨𝐧𝐬 are important and is a part of our overall health and well-being. It also means asking for help and learning how to help yourself.💓

🐧 Read our blog post: www.echdo.eu/content/how-...

#CHDAwareness #HeartMonth #HeartHealth #HeartToHeart #CHD | @echdoheart #ECHDOHeart
February 21, 2025 at 3:13 PM
echdoheart.bsky.social
👋 Hey Everyone! A reminder for tonight's webinar with Robbie Burns at 19:00 CET.💗

Those who have registered should have received the link via email, please check your junk mail folders. If you'd like to sign up, it's not too late! 😇https://shorturl.at/lV2Ii (In BIO)

#CHD #HeartMonth #chdawareness
February 19, 2025 at 1:11 PM
echdoheart.bsky.social
𝐓𝐎𝐃𝐀𝐘 𝐢𝐬 𝐎𝐔𝐑 𝐃𝐀𝐘! ❣️Let's spread the word.

📅 𝐒𝐢𝐠𝐧 𝐮𝐩 𝐟𝐨𝐫 𝐑𝐨𝐛𝐛𝐢𝐞 𝐁𝐮𝐫𝐧𝐬' 𝐖𝐞𝐛𝐢𝐧𝐚𝐫 on his experience of CHD 19 Feb 19:00 CET
T: shorturl.at/XkQhA

💗 𝐅𝐨𝐥𝐥𝐨𝐰, like and share out posts!

🐧 𝐇𝐞𝐥𝐩 𝐮𝐬 continue our work by donating: shorturl.at/dfdct

#CHDAwareness #1in100 #ValentinesDay #CHD #ECHDOHeart
February 14, 2025 at 9:05 AM
echdoheart.bsky.social
Tomorrow is #FundraisingFriday & you can help us continue our work advocating for CHD patients by donating, which helps to keep our organisation running! 🙏 Thank you, from the bottom of our hearts.

👉 𝑫𝑶𝑵𝑨𝑻𝑬 𝑯𝑬𝑹𝑬: www.paypal.com/donate/?host...

#CHDAwareness #HeartMonth #CHD #HeartCommunity
February 6, 2025 at 12:19 PM
echdoheart.bsky.social
There are 𝟏𝟎𝟎 𝐇𝐞𝐚𝐫𝐭𝐬 in this image, and one of them is a bit different. Can you find the 𝐡𝐞𝐚𝐫𝐭 that is not like the others? Drop it in the comments when you find it! 👇

Help us raise awareness by sharing this post! 🙏

#CHDAwareness #1in100 #HeartHealth #HeartMonth #ValentinesDay #CHD | #ECHDOHeart
February 5, 2025 at 1:46 PM
echdoheart.bsky.social
👋 This month we're raising awareness of #CHD and the impact it has on those affected by the condition. Join us. 🙏 Share this post. Let's show our support for every Heart touched by CHD. 💞

#CHDAwareness #1in100 #HeartHealth #HeartMonth #ValentinesDay #CHD
January 31, 2025 at 5:48 PM
openheartart.bsky.social
Happy Valentines Day! It is all CHD awareness day. So, I saw my doctor to celebrate. 😅 good news: I get my pacemaker battery replaced next month! Getting my battery changed and seeing “mechanical complications” on my chart makes me feel like a robot. 🤖

#chd #disabledartist #chdawareness #disablity
February 14, 2025 at 6:22 PM
claire9389.bsky.social
29 yrs ago today my 4 yr old son had Open Heart Surgery ❤️‍🩹 A few weeks ago he turned 33 and is happy and healthy and we are so very blessed! Some things change you. This did. You never know what someone is going through. Be kind always 🙏🏻🙏🏻 #chdawareness
November 14, 2024 at 9:44 PM
mendedlittlehearts.bsky.social
As #BlackHistoryMonth and #HeartMonth comes to a close we're shining a light on black trailblazers in #CHD innovation❗

Swipe to learn more about Vivien T. Thomas and Dr. Josephine Isabel-Jones impact on the #CHDCommunity🫀➡️

#CHDAwareness #1in100 #CardioSky
February 28, 2025 at 10:48 PM
mendedlittlehearts.bsky.social
#CHDAwareness: Did you know at birth, a newborn's heart is the size of a walnut❓

Think about how skilled one must be to operate on something so small! Thank you to the amazing pediatric cardiovascular surgeons and healthcare teams for everything you do for the #CHDCommunity❣️

#1in100 #HeartMonth
February 5, 2025 at 8:11 PM
mendedlittlehearts.bsky.social
What are Congenital Heart Defects (#CHD)❓

Swipe➡️to learn more about Congenital Heart Defects, symptoms, and treatment options. Help us spread #CHDAwareness this #HeartMonth by sharing this post❤️

Learn more and access our resources below👇
mendedhearts.org/topic/congen...

#1in100
February 3, 2025 at 7:55 PM
nicolecobreads.bsky.social
#heartmonth #chdcoalition #chdawareness #22q11.2 #digeorge #heartwarrior #heartmom
February 1, 2025 at 3:50 PM