#FPIES
Beftnull FPies
March 10, 2025 at 3:56 PM
They have these itty little non-dairy ice cream cone things that were a godsend when our first was in the throes of FPIES
September 28, 2026 at 4:03 AM
A personal request with apologies, but I’m a bit desperate.

Does anyone have recommended reading/research on paediatric FPIES allergies, or happen to know any clinicians who are experts who might be willing to see me + small patient remotely or in person?
January 15, 2025 at 10:44 AM
my youngest had chronic fpies followed by a lot of dental issues and the panic in his eyes when even the suggestion of an appointment came up broke my heart every time. things are getting better now but I can still see the fear sometimes 😭
September 29, 2026 at 12:46 PM
This is from 2021 but it may still lead to some help for you.

fpiesfoundation.org/find-a-healt...
FPIES Foundation Online Provider Directory – The FPIES Foundation
fpiesfoundation.org
January 15, 2025 at 11:35 AM
As someone who struggled with an infant with fpies during the huge shortages three years ago, bless the pediatricians who helped us keep our kid fed during that nightmare
January 29, 2025 at 2:11 AM
(Also children with FPIES are often underweight and I promise he is fed and fight with him to eat daily 😭)
February 9, 2025 at 12:32 AM
Idk if anyone knows what Fpies is, but it’s a rare type of food allergy that my youngest gremlin suffers from.
And it’s been crazy because over the summer we finally found a protein that my gremlin can fully digest and in the last 5 months he has gained 13lbs! …
September 29, 2025 at 12:35 PM
A large pediatric Asian American FPIES cohort demonstrates distinguishing features, including a high proportion of egg FPIES and lack of common food co-associations. Understanding these differences may enhance clinicians’ ability to diagnose, manage FPIES. www.annallergy.org/article/S108...
Characterization of food protein-induced enterocolitis syndrome among Asian American children
Limited data currently exist regarding the clinical characteristics of food protein-induced enterocolitis syndrome (FPIES) among Asian American (AsA) children.
www.annallergy.org
March 20, 2026 at 3:51 PM
It is only covered if we get a particular diagnosis; it doesn’t cover FPIES, the condition we think Aster has (still waiting to see an allergist). One FPIES mommy blogger quit her job so they could go on WIC, which covers formula. The cruel optimism of “that let me spend more time with the kids” 🙃
August 7, 2024 at 2:17 AM
They are super shitty and always have been. I was just dumb and had assumed at some point they had at least GOOGLED Fpies 😐
December 15, 2024 at 5:22 PM
I'm glad that my allergist was able to be like yeah your stomach issues you've had since you were a baby are actually a diagnosable thing but the list of possible trigger foods for FPIES is so long
October 12, 2025 at 4:01 AM
Recurrent reactions only involving the GI tract hours after eating a specific food is consistent with Food Protein Induced Enterocolitis Syndrome, FPIES. Shellfish is a common trigger, particularly in adults but also in kids. There is no test for FPIES. Patients should be seen by an allergist
July 1, 2025 at 8:23 PM
We had a kid with FPIES/colic to the point that we needed that stupidly expensive amino acid formula, even our rather good insurance was a nightmare to get out covered. It’s leaving a huge for jackasses like this to sell formula that doesn’t work for slightly less than the stuff that does
November 15, 2025 at 2:12 PM
I get you! It took 5 years to get my son’s diagnosis because Fpies is rare (especially outside of infancy) and the allergists didn’t believe us or the pediatrician until we proved it 🙄
January 9, 2025 at 2:24 PM
The January 2026 issue of Annals of #Allergy, #Asthma & #Immunology is now available! Learn all about Food Protein Induced Enterocolitis Syndrome ( #FPIES ), so that you can provide the most up-to-date care to your patients. @annalsacaai.bsky.social #MedSky
www.annallergy.org/current
December 17, 2025 at 8:11 PM
For a literal baby, I think the risk of a random emergency goes up significantly (eg: we discovered my 1yo had egg fpies when he vomited uncontrollably in the car and turned sheet white about 45 minutes after eating scrambled eggs). For anyone older, they can't be trusted.
July 24, 2025 at 1:52 AM
Nutritional management is a cornerstone of care for infants with food protein-induced enterocolitis syndrome (FPIES). Learn more about the involvement of an allergist and a dietitian to ensure adequate growth, timely food introduction, caregiver confidence and more. https://loom.ly/RjAJ_qI
From breast to bite: Nutritional management in infantile food protein–induced enterocolitis syndrome (FPIES)
Food protein–induced enterocolitis syndrome (FPIES) is a non–IgE-mediated food allergy that presents primarily in infancy.
www.annallergy.org
January 15, 2026 at 3:04 PM
This year he finished his OT, finally got his official FPIES diagnosis (in the most dramatic way possible), got to cosplay with his aunties, went to Disney World, and per his birthday wish—got to play in snow!
March 16, 2025 at 1:25 PM
A study has novel data on fish-induced FPIES in Greek children and highlights its distinctive epidemiologic & clinical characteristics. Although cow’s milk & soy are common triggers globally, fish has emerged as a significant culprit in the Mediterranean. www.annallergy.org/article/S108...
Natural history and clinical characteristics of fish-induced food protein-induced enterocolitis syndrome (FPIES) in Greek children
Food protein-induced enterocolitis syndrome (FPIES) is a non–IgE-mediated food allergy presenting in infancy with delayed gastrointestinal symptoms. Although cow’s milk and soy are common triggers glo...
www.annallergy.org
August 11, 2026 at 3:43 PM
What am I? Cow’s milk is a major trigger globally, and other notable triggers include grains in the United States and Australia, fish in Europe, and hen’s egg in Japan. If you guessed food protein-induced enterocolitis syndrome (FPIES), you are correct. Learn more. https://loom.ly/CJ7S2S0

The evolution of food protein–induced enterocolitis syndrome (FPIES)
Global trends, emerging triggers, and natural history
www.annallergy.org
December 26, 2025 at 3:03 PM
JULY 2025: ALLERGY ARTICLES
Every month I search the internet for the best allergy news & research; here's what I found in July
- Wheat allergy
- Fish allergy
- Kiwi allergy
- Serum albumin proteins
- FPIES food ladder
- NEFF epinephrine nasal spray
& more
www.allergyresources.co.uk/2025-Jul-All...
August 2, 2025 at 10:15 AM
Hello! You can add me to that group. We are a multi-allergy, multi epi carrying family (between us: peas, lentils, chickpeas, peanut, egg, milk plus one case of FPIES to avocado - and a vegetarian. We are bad dinner party guests)
September 19, 2025 at 7:55 AM
The FPIES Foundation global registry offers doctors a vital first step in researching this #pediatrics #children

medicalnewstoday.com/releases/26925…
The FPIES Foundation global registry offers doctors a vital first step in researching this rare allergy
The FPIES Foundation is excited to launch 'The FPIES Foundation Global Registry'.
t.co
December 9, 2024 at 3:34 PM
Seconding the fact that it’s never too late to start masking again! I made it my New Year’s resolution to start masking again after going to a con in 2024 where I didn’t mask but one of my friends, who has a kiddo with FPIES, did (their kiddo getting sick can bring back allergies to certain foods).
June 3, 2025 at 6:21 AM