#ForUsItsPersonal
Join us at the #CTRareDiseaseForum on March 17, 2026, at The Jackson Laboratory in Farmington! We’re excited to connect with peers to discuss collaboration, data, and innovation in rare disease research. See you there!
www.rareLifesolutions.com
#rareLifeSolutions #RareDisease #ForUsItsPersonal
March 10, 2026 at 2:05 PM
We're grateful for our family, friends, and the rare disease community that inspires us every day. rareLife solutions wishes you a Thanksgiving full of comfort, joy, and meaningful moments.
#HappyThanksgiving #WeKnowRare #CareAboutRare #RareDiseaseAwareness #ForUsItsPersonal
November 27, 2025 at 3:08 PM
August is #SMAAwarenessMonth. rareLife supports everyone affected by spinal muscular atrophy (SMA)—a rare genetic disease that causes progressive muscle weakness but not limits on potential. Together, we advance awareness, research, and hope.
#ForUsItsPersonal #CareAboutRare #rareLifesolutions
August 11, 2026 at 2:04 PM
May is EDS & HSD Awareness Month. Often invisible, these conditions need greater recognition and care.
At rareLife solutions, we know rare—and for us, it’s personal.

#MakeMayMatter #EDSAwareness #HSDAwareness #rareLifeSolutions #RareDiseaseAwareness #WeKnowRare #ForUsItsPersonal #CareAboutRare
May 7, 2026 at 2:04 PM
Contact me at lwuerth@rarelifesolutions.com to connect and learn how we can make a difference in the lysosomal disease community and explore innovative solutions in lysosomal disease publications and scientific communications.
#WORLDSymposia #LysosomalDisease #RareDiseaseAwareness #ForUsItsPersonal
February 2, 2026 at 3:05 PM
It's #WorldAmyloidosisDay2025!
Amyloidosis stems from abnormal protein buildup that can cause organ failure, affecting the heart, kidneys, liver, spleen, & nervous system.
At rareLife, we bridge science & patient stories to drive better outcomes. contactus@rarelifesolutions.com
#ForUsItsPersonal
October 26, 2025 at 2:02 PM
Attending #ISMPPAcademy 2025 in Boston?
Join Hugh Bartlett, CMPP, Senior Director, Solutions Development at rareLife on November 14 for “Pharma–Agency Partnerships: Evolving Roles, Shared Goals.”
Connect with Hugh via Whova to chat about #RareDisease innovation!
#WeKnowRare #ForUsItsPersonal
November 13, 2025 at 5:04 PM
September 30 is #RareCancerDay! rareLife solutions is proud to stand with @NORD_rare and the Rare Cancer Coalition to raise awareness and support for those impacted by rare cancers. Join the zebra herd: https://bit.ly/RCD-23
#RareDiseaseAwareness #WeKnowRare #ForUsItsPersonal
September 30, 2025 at 4:05 PM
Rare disease is complex—and so are the people living it. At rareLife, we combine scientific expertise with a deep understanding of patients, caregivers, and communities to build solutions that improve outcomes and access.
Learn more at www.rarelifesolutions.com
#TestimonialTuesday #ForUsItsPersonal
January 27, 2026 at 3:05 PM
Wishing our clients, friends, and colleagues a joyful holiday season. We celebrate the patients, advocates, and caregivers who inspire our work and look forward to delivering innovative solutions that make a difference in the year ahead.
#HappyHolidays #WeKnowRare #CareAboutRare #ForUsItsPersonal
December 16, 2025 at 3:05 PM
rareLife solutions is heading to WODC USA 2026.
Hugh Bartlett will be in Boston June 9-11 connecting with innovators advancing rare disease research, drug development, and patient access. We know rare. We think rare. Let’s connect.
#WODC2026 #RareDisease #OrphanDrugs #WeKnowRare #ForUsItsPersonal
June 4, 2026 at 2:04 PM
Rare disease is complex—and so are the people living it. At rareLife, we combine scientific expertise with a deep understanding of patients, caregivers, and communities to build solutions that improve outcomes and access. Learn more at www.rarelifesolutions.com #TestimonialTuesday #ForUsItsPersonal
July 28, 2026 at 2:04 PM
On International #MPSAwarenessDay, we stand with individuals affected by mucopolysaccharidoses (MPS) and mucolipidoses (ML), rare lysosomal storage disorders associated with progressive multisystem disease. Awareness drives earlier diagnosis, research, and action.
#MLAwareness #ForUsItsPersonal
May 15, 2026 at 2:06 PM
Contact me at lwuerth@rarelifesolutions.com to connect and learn how we can make a difference in the lysosomal disease community and explore innovative solutions in lysosomal disease publications and scientific communications.
#WORLDSymposia #LysosomalDisease #RareDiseaseAwareness #ForUsItsPersonal
February 5, 2026 at 2:05 PM
Contact me at lwuerth@rarelifesolutions.com to connect and learn how we can make a difference in the lysosomal disease community and explore innovative solutions in lysosomal disease publications and scientific communications.
#WORLDSymposia #LysosomalDisease #RareDiseaseAwareness #ForUsItsPersonal
February 4, 2026 at 2:06 PM
Contact me at lwuerth@rarelifesolutions.com to connect and learn how we can make a difference in the lysosomal disease community and explore innovative solutions in lysosomal disease publications and scientific communications.
#WORLDSymposia #LysosomalDisease #RareDiseaseAwareness #ForUsItsPersonal
February 3, 2026 at 2:05 PM
August is SMA Awareness Month—a time to spotlight the strength, needs, and voices of the SMA community.
Learn how you can get involved or attend an event: https://loom.ly/-gGpEJs
Let’s raise awareness, amplify stories, and stand together.
#SMAawarenessmonth #WeKnowRare #ForUsItsPersonal
August 1, 2025 at 4:05 PM