#FrontotemporalDegeneration
LightNews LightNews
curemaptftd.bsky.social
On #FTDAwarenessWeek, we’re asking the world to learn about frontotemporal dementia, the most common form of dementia for those under 60. #dementia #ftd #frontotemporaldegeneration
Cure MAPT FTD
YouTube video by Cure MAPT FTD
youtu.be
September 22, 2025 at 9:53 PM
ftdregistry.bsky.social
Carrie Milliard, MS, CGC, CCRC, Director of the FTD Disorders Registry, is at @theaftd.bsky.social's Research Roundtable this week, sharing how the Registry is helping build a research-ready community and move FTD research forward.

#FTDResearch #FrontotemporalDegeneration #endFTD
September 23, 2026 at 2:44 PM
ftdregistry.bsky.social
Why is recruiting participants for rare disease research so challenging?

Read about the challenges of rare disease research recruitment and how we can help address them: ftdregistry.org/press/why-ra...

#endFTD #FrontotemporalDegeneration #RareDiseaseResearch #FTDResearch
September 22, 2026 at 4:09 PM
brainsupportnet.bsky.social
The Association for Frontotemporal Degeneration - Advancing breakthroughs in neuroscience to elevate life. www.theaftd.org

Care Indeed - Your Partner in Exceptional Senior Care. www.careindeed.com

#FrontotemporalDegeneration
June 23, 2025 at 5:31 PM
ftdregistry.bsky.social
You do not need a diagnosis to join. Anyone with an interest in FTD research can be part of the Registry: www.FTDRegistry.org

#FTDResearch #FrontotemporalDegeneration #endFTD
Your participation makes a difference. Anyone with an interest in FTD research can join the FTD Disorders Registry. Eligible adults in the US and Canada may also participate in the Registry Research Study. Your information is kept safe and confidential. Your participation helps researchers today and for generations to come. www.FTDregistry.org
July 9, 2026 at 2:37 PM
oceansolitudeme.bsky.social
🆘 #WorldFTDAwarenessWeek 🌎 🆘

Prayers 🙏🏻 Funding 💰 Research 🔬 are ALL needed to help those afflicted with (and their families affected by) #FTD (like #DieHard actor🎗️ #BruceWillis 🎬 🎭 ) 🙏🏻

#FrontoTemporalDegeneration #FTD

www.yahoo.com/entertainmen...
Bruce Willis’ Wife Says They Are Now Living Separately Amid Dementia Battle
Bruce Willis has been moved into a separate home, according to his wife Emma Heming Willis, amid his two-year battle with dementia. Heming, 47, expressed that it was “one of the hardest decisions” she...
www.yahoo.com
September 26, 2025 at 4:43 PM
theaftd.bsky.social
#FrontotemporalDegeneration is the most common dementia for people under 60, yet it’s frequently misdiagnosed. It can affect personality, behavior, language, and movement—impacting families, work, and finances in ways that set it apart from #Alzheimer’s.

🔗 Learn more about FTD: bit.ly/3DySdGa
Promotional graphic for Brain Awareness Week 2025, featuring an illustration of a brain divided into the frontal and temporal lobes with a caption that reads "What is FTD?" Explanation text states that Frontotemporal Degeneration (FTD) affects the frontal and/or temporal lobes of the brain. Logo of AFTD is visible, encouraging viewers to swipe to learn more. Infographic for #BrainAwarenessWeek2025 showing types of Frontotemporal Degeneration (FTD). The pie chart divides FTD into five parts: PSP, bvFTD, PPA, FTD-ALS, and CBS. Each section is accompanied by a brief description of the symptoms or effects, such as personality changes, movement issues, and language decline. Swipe to learn more. Image displaying an infographic titled "FTD is frequently misdiagnosed as:" followed by four colored circles with Alzheimer's, Depression, Parkinson’s, and a psychiatric condition. The text explains that FTD (Frontotemporal Degeneration) shares symptoms like personality changes and language comprehension issues with these conditions. The hashtags #BrainAwarenessWeek2025 and #AFTD are included.
March 11, 2025 at 1:49 PM
ftdregistry.bsky.social
When someone is diagnosed with FTD, families often ask what comes next.

The FTD Disorders Registry is a valuable resource to share early.

Learn more: ftdregistry.org/for-healthca...

#FTDResearch #FTDRegistry #endFTD #frontotemporaldegeneration
August 27, 2026 at 7:25 PM
ftdregistry.bsky.social
Recruiting for FTD research?

The FTD Disorders Registry can help researchers better understand potential study populations and support recruitment for approved studies.

Learn more at www.FTDRegistry.org

#endFTD #FTDResearch #frontotemporaldegeneration #FTDRegistry
August 20, 2026 at 12:23 PM
ftdregistry.bsky.social
Every person who joins the FTD Disorders Registry helps move research forward.

Real impact starts with participation.

Join in July: www.FTDRegistry.org

#endFTD #FTDResearch #FTD #frontotemporaldegeneration
July 21, 2026 at 12:15 PM