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hcluganda.bsky.social
Canton Vaud aide les proche-aident #endFTD #svPPA
October 21, 2026 at 6:04 AM
ftdregistry.bsky.social
This month, our Quick Question asks: Do you track symptoms or progression over time?

Your response helps us better understand the experiences of people impacted by FTD.

ftdregistry.org/quick-questi...

#endFTD #FTDResearch #FTDDisordersRegistry
October 16, 2026 at 6:32 PM
curemaptftd.bsky.social
This year at ISFTD, Cure MAPT FTD spoke with colleagues in the international scientific community --- such as researchers and FTD specialists from around the globe --- to take next bold steps to create a world without MAPT FTD. Here are some of our highlights.

#ISFTD2026 #EndFTD
October 16, 2026 at 3:30 PM
ftdregistry.bsky.social
The FTD Disorders Registry will be at #ISFTD this week, connecting with researchers, partner organizations, and others working to move FTD research forward.

Learn what happens at an FTD research conference and why these meetings matter: ftdregistry.org/press/what-h...

#endFTD
October 7, 2026 at 2:07 PM
theaftd.bsky.social
We’ve put a spotlight on FTD—and now, we’re passing it on. 🔦

We’re honoring voices raising awareness, advancing research, and sharing FTD experiences.

Who will you pass the spotlight to? Tag someone making a difference and challenge them to share a message about FTD. ✨

🔗 : https://bit.ly/4AjWeXx
A poster with the message "Pass the Spotlight." Below, it reads "This week, people around the world put a spotlight on FTD. Now we're passing it on." There is a ribbon with "#endFTD" written on it, and a spotlight graphic shines from the top-right corner. A poster with a light blue background features a spotlight and text highlighting Emma Heming Willis for advocacy for people and families affected by FTD. The poster includes a megaphone icon and a ribbon with the hashtag #endFTD. Spotlight poster highlighting the AFTD Persons with FTD Advisory Council. Includes the phrase, "For ensuring the voices and perspectives of people living with FTD help shape AFTD's work," and the hashtag #endFTD. Features icons of a spotlight, three individuals, and a ribbon. Spotlight graphic highlighting "AFTD Volunteers and Ambassadors" for supporting the mission and aiding those affected by FTD. Includes heart and ribbon symbols with hashtag #endFTD.
October 4, 2026 at 5:08 PM
lariolas.bsky.social
FTD ei ole vain ikääntyneiden sairaus. FTD alkaa usein 40–65 vuoden iässä, jolloin moni on työelämässä, kasvattaa perhettä ja rakentaa tulevaisuuttaan.
Lähde: UEF aivotutkimusyksikkö

#endFTD #spotlightFTD
#worldftdawarenessweek #frontotemporaldementia #FTD #aivoterveys #sote #otsaohimolohkorappeuma
Lue Sirpan tarina - Muisti-lehti 2/2026 "Järkytys oli suuri, kun puolison luonne muuttui" Näin kertoo Itä-Suomen yliopiston (UEF) aivotutkimusyksikkö somessaan: Toisin kuin Alzheimerin tauti, FTD ei välttämättä ilmene aluksi muistioireina. Varhaisia merkkejä voivat olla muutokset esimerkiksi: persoonallisuudessa tai käyttäytymisessä, impulssikontrollissa, suunnittelussa ja päätöksenteossa, kielessä ja vuorovaikutuksessa, sosiaalisessa tilannetajussa tai arjen toimintakyvyssä. Nämä muutokset voidaan helposti tulkita stressiksi, uupumukseksi, ihmissuhdeongelmiksi tai mielenterveyden haasteiksi. Siksi haluamme nostaa FTD:n varhaiset merkit valokeilaan. Mitä aikaisemmin ne tunnistetaan, sitä suurempi merkitys sillä voi olla. FTD-tietoisuusviikolla jaetaan inhimillisiä, toiveikkaita ja henkilökohtaisia tarinoita, jotka tekevät FTD:tä näkyvämmäksi ja vähentävät sairauteen liittyvää yksinäisyyden tunnetta.
October 4, 2026 at 8:32 AM
ftdregistry.bsky.social
For World FTD Awareness Week, we’re putting a Spotlight on FTD Awareness.

Greater awareness can help people recognize frontotemporal degeneration, connect with support, and understand why research across these different diagnoses matters.

#spotlightFTD #endFTD
October 4, 2026 at 12:07 AM
theaftd.bsky.social
Advocacy takes many forms. ❤️

During World FTD Awareness Week, we’re putting advocacy in the spotlight and highlighting ways people raise awareness of FTD.

For some, it means sharing their story. For others, it means meeting with lawmakers or securing proclamations.

🔗: https://bit.ly/46q2Ea2
The image is a poster titled "Spotlight on Advocacy," featuring a spotlight illustration. It lists activities such as sharing stories, meeting with lawmakers, securing proclamations, raising awareness online, and highlighting FTD. A light blue ribbon with "#endFTD" is at the bottom right, and there's a note saying, "Every action helps create change!"
October 3, 2026 at 9:11 PM
curemaptftd.bsky.social
With the help of truly amazing healthcare professionals, our team has created a Frontotemporal Dementia (FTD) Rapid Decision Tree designed as a quick reference tool for frontline workers. Available on our website: curemaptftd.org

#SpotlightFTD #EndFTD #FrontotemporalDementia #HealthcareWorkers
Cure MAPT FTD
Cure MAPT FTD raises awareness of the mutation of the MAPT gene, causing Frontotemporal Dementia or FTD, assists a global network of MAPT families, and advocates for trials that will lead to a cure.
curemaptftd.org
October 3, 2026 at 1:00 PM
theaftd.bsky.social
Research has the power to move us forward. 🔦

During World FTD Awareness Week, we’re shining a spotlight on research and how our community can help.

The FTD Disorders Registry connects people with opportunities to participate in FTD research.

Explore research opportunities: https://bit.ly/47hm0yl
Spotlight on Research poster featuring the FTD Disorders Registry. A dark ribbon at the bottom right has the hashtag #endFTD. Spotlight graphic highlighting "Research Participation" for FTD research. Invitation to join the FTD Disorders Registry. Includes icons of a spotlight, magnifying glass with a book, and a ribbon with "#endFTD. Promotional graphic with a spotlight effect highlighting the text: 'Spotlight on... Being Research Ready.' Below, it explains that FTD is rare and Registry participants are crucial for research. There’s a microscope illustration and a blue awareness ribbon with '#endFTD'. Spotlight graphic highlighting FTD research. The text reads: "Spotlight on... NUMBERS HAVE POWER. With more than 2,940 people participating, the Registry helps turn individual experiences into insights that can support FTD research." A blue ribbon with "#endFTD" is displayed.
October 2, 2026 at 1:23 PM
pennftdc.bsky.social
In honor of FTD Awareness Week 2026, we are putting care partners in the spotlight. From our Co-Director Lauren Massimo, PhD, CRNP, FAAN, we want recognize the support and hard work of all care partners. #spotlightFTD #endFTD
October 2, 2026 at 2:30 PM
ftdregistry.bsky.social
For World FTD Awareness Week, we’re putting a Spotlight on Researchers.

Lauren Massimo, PhD, CRNP, FAAN, shares what gives her hope about the future of frontotemporal degeneration research.

#spotlightFTD #endFTD #WorldFTDAwarenessWeek #FTDResearch
October 2, 2026 at 11:38 AM
pennftdc.bsky.social
In honor of FTD Awareness Week 2026, we are putting researchers in the spotlight. From our Co-Director Corey McMillan, PhD, we want thank those who dedicate their careers to studying FTD. #spotlightFTD #endFTD

Visit our website to get more information on FTD Awareness Week!
October 1, 2026 at 1:42 PM
ftdregistry.bsky.social
For World FTD Awareness Week, we’re putting a Spotlight on Participants.

FTD research cannot move forward without people who take part. Every participant adds to what we can learn.

Numbers Have Power.

ftdregistry.org

#spotlightFTD #endFTD #FTDResearch
October 1, 2026 at 11:32 AM
curemaptftd.bsky.social
Since actor Bruce Willis's diagnosis of frontotemporal dementia (FTD) in 2023, his wife Emma Heming Willis has been a fierce advocate for greater FTD awareness. This awareness starts with frontline workers.

#SpotlightFTD #EndFTD #FrontotemporalDementia #HealthcareWorkers
October 1, 2026 at 4:01 PM
theaftd.bsky.social
Support can come from many places. 🩵

During World FTD Awareness Week, we’re shining a spotlight on the people and resources that help families navigate FTD. From loved ones to healthcare professionals, no one has to face FTD alone. ✨

Find an FTD support group: https://bit.ly/4iuJN4T
A poster with the text "Support can come from many places." Below, a list includes: Family and friends, Support groups, Healthcare professionals, The AFTD HelpLine, Others who understand the journey. A blue awareness ribbon features the hashtag #endFTD, placed under a spotlight on a light blue background.
October 1, 2026 at 5:51 PM
hcluganda.bsky.social
lnkd.in/p/eKBi9uRs #endFTD being misunderstood.
This year’s World Frontotemporal Dementia (FTD) Awareness Week is themed around putting the spotlight on FTD. As we reflect on the remarkable progress made in understanding FTD, and in developing… | ...
This year’s World Frontotemporal Dementia (FTD) Awareness Week is themed around putting the spotlight on FTD. As we reflect on the remarkable progress made in understanding FTD, and in developing bet...
lnkd.in
October 1, 2026 at 11:11 AM
theaftd.bsky.social
Today, we’re putting the FTD community in the spotlight. 🩵

During World FTD Awareness Week, we’re celebrating everyone living with FTD, supporting a loved one, volunteering, advocating, and working to #endFTD.

Tag someone who has made a difference in your FTD journey.

🔗: https://bit.ly/4AnPMyY
September 30, 2026 at 5:45 PM
ftdregistry.bsky.social
For World FTD Awareness Week, we’re putting a Spotlight on FTD Research.

Participants, families, researchers, clinicians, data and collaboration all help move research forward.

ftdregistry.org/press/what-d...

#spotlightFTD #endFTD #FTDResearch
September 30, 2026 at 11:54 AM
alzheimereurope.bsky.social
🧠This FTD Awareness Week, we're sharing a preview of our upcoming interview with Jordan and Cian Adams, The FTD Brothers. Thank you to both for speaking with us.

👉Read more about their inspiring work: theftdbrothers.com

#endFTD #spotlightFTD #WorldAlzheimersMonth
September 30, 2026 at 7:17 AM
pennftdc.bsky.social
In honor of FTD Awareness Week 2026, we are putting research participants in the spotlight! From the Research Staff at the Penn FTD Center, we thank all research participants for your willingness and dedication to FTD research. #spotlightFTD #endFTD
September 30, 2026 at 12:37 PM
theaftd.bsky.social
Sharing your story can help put FTD in the spotlight. 🩵

Download the slide that reflects your connection to FTD, share it on social media, and tag AFTD during World FTD Awareness Week.

Your voice helps others understand FTD.

Learn more and access the Social Media Toolkit: https://bit.ly/3Tw5vLE
Poster with a spotlight effect on the text "Put a Spotlight on FTD". Below is a download icon with the text, "Download and share the slide that fits your connection to FTD," and a ribbon with "#endFTD". A spotlight illuminates text reading "I AM LIVING WITH FTD." in large letters with "theaftd.org" below. There's a blue ribbon in the corner with "#endFTD" on it. A poster with the text "I am an FTD care partner" illuminated by a spotlight. The bottom includes a blue awareness ribbon with the hashtag "#endFTD" and a website URL theaftd.org. Poster featuring a large white circle with the text "I AM AN FTD RESEARCHER" in light blue. The website "theaftd.org" is at the bottom. A spotlight shines from the top right. A light blue ribbon at the bottom right features the hashtag "#endFTD.
September 29, 2026 at 5:58 PM
lariolas.bsky.social
🧪 🧬 🧫 🔬
"The Genetic Frontotemporal dementia Initiative (GENFI) is a group of research centres across Europe and Canada with expertise in familial frontotemporal dementia (FTD) and is co-ordinated by Professor Jonathan Rohrer .."

www.genfi.org

#spotlightftd #endFTD #worldftdawarenessweek
GENFI – The Genetic Frontotemporal Initiative
www.genfi.org
September 29, 2026 at 8:49 PM
ftdregistry.bsky.social
For World FTD Awareness Week, we’re putting a Spotlight on the FTD Disorders Registry.

Numbers Have Power. Because FTD is rare, every participant matters.

Learn more or join: www.ftdregistry.org

#spotlightFTD #endFTD
September 29, 2026 at 12:16 PM
pennftdc.bsky.social
In honor of FTD Awareness Week 2026, we are putting clinical research staff in the spotlight! From our Assistant Director and Clinical Research Program and Operations Lead, Dahlia Kamel, MS, we want to thank all staff that work in the field of FTD research. #spotlightFTD #endFTD
September 29, 2026 at 2:08 PM