For World FTD Awareness Week, we’re putting a Spotlight on Researchers.

Lauren Massimo, PhD, CRNP, FAAN, shares what gives her hope about the future of frontotemporal degeneration research.

#spotlightFTD #endFTD #WorldFTDAwarenessWeek #FTDResearch

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"The Genetic Frontotemporal dementia Initiative (GENFI) is a group of research centres across Europe and Canada with expertise in familial frontotemporal dementia (FTD) and is co-ordinated by Professor Jonathan Rohrer .."

www.genfi.org

#spotlightftd #endFTD #worldftdawarenessweek

🌍 28.9.–4.10.2026, vietetään maailmanlaajuista #FTD tietoisuusviikkoa.

👉 Lue Sirpan tarina: muistiliitto.fi/jarkytys-oli...

Juttu on julkaistu Muisti-lehdessä 2/2026.

#endFTD #spotlightFTD
#worldftdawarenessweek #frontotemporaldementia #aivoterveys #sote #otsaohimolohkorappeuma
#tutkimus #raha

A proud day for the FRONTIER Group as we hosted our 2025 Information Day.

Huge thanks to our fantastic speakers, Olivier, David, Richard, Mirelle, and Manisha, for sharing their insights, and to Penny for her brilliant coordination in making the day such a success.

#WorldFTDAwarenessWeek
#endFTD

FTD impacts care partners too with stress, lost income & financial strain.

At #AAIC25, the FTD Disorders Registry showed how misdiagnosis & delays deepen that burden: ftdregistry.org/press/regist...

This #WorldFTDAwarenessWeek, let’s honor care partners & push for faster diagnoses.

FTD can steal your words, your connection, your voice. Join the FTD Disorders Registry to help researchers find treatments and a cure. www.FTDRegistry.org

#endFTD #FTDAwareness #WorldFTDAwarenessWeek #FTDResearch

FTD is genetic in about 20% of cases. Yet only 23.3% of people diagnosed and 12.4% of relatives have had genetic testing. Learn why this matters: ftdregistry.org/press/what-r...

#endFTD #WorldFTDAwarenessWeek #FTD #Genetics

FTD disorders can make someone seem like a stranger to their loved ones.

Registry data show three of the most distressing symptoms are impaired judgment, personality changes, and mood changes. www.ftdregistry.org

#WorldFTDAwarenessWeek #EndFTD #FTDAwareness #FTDResearch

During World FTD Awareness Week, we recognize the challenges care partners face. The daily demands of FTD can make research participation difficult, yet their voices are essential to progress.

Learn more: ftdregistry.org/press/how-ca...

#WorldFTDAwarenessWeek #endFTD #FTDResearch #FTDAwareness

Did you know that caring for someone with FTD can be one of the most demanding caregiving roles?

During this World FTD Awareness Week, we acknowledge the burden carers carry. For us, patients and their families are true partners in research.

#endFTD #WorldFTDAwarenessWeek

🆘 #WorldFTDAwarenessWeek 🌎 🆘

Prayers 🙏🏻 Funding 💰 Research 🔬 are ALL needed to help those afflicted with (and their families affected by) #FTD (like #DieHard actor🎗️ #BruceWillis 🎬 🎭 ) 🙏🏻

#FrontoTemporalDegeneration #FTD

www.yahoo.com/entertainmen...

FTD impacts more than health. It strains finances. Care partners say the top job effects are retiring early, cutting hours permanently, or cutting them temporarily.

Share your experience in this month’s Quick Question: ftdregistry.org/quick-questi...

#WorldFTDAwarenessWeek #EndFTD