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It's the International Day of Persons with Disabilities.

We will continue to advocate until all those living with leukodystrophy get the support and treatment they deserve.

#AlexTLC #HelpToHope #HelpToCope #Leukodystrophy #RareDisease #IDPD
December 3, 2025 at 7:00 AM
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Teemill are offering free UK Shipping this weekend! No code is needed.

https://alex-tlc.teemill.com/

#AlexTLC #HelpToCope #HelpToHope #Leukodystrophy #LeukodystrophyAwareness #Teemill #CyberWeek
January 2, 2026 at 8:01 AM
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An important message from our CEO, Sara.

Please share our posts, sign up to #easyfundraising and donate if you can. Small acts really add up.

https://linktr.ee/Alextlccharity

#AlexTLC #HelpToCope #HelpToHope #Leukodystrophy
December 24, 2025 at 10:59 AM
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Anyone affected by leukodystrophy can attend our Community Weekend for free.

Please donate and help us to continue to bring the leukodystrophy community together each year.

www.justgiving.com/campaign/ale...

#alextlc #helptocope #helptohope #leukodystrophy #communityweekend #appeal
April 15, 2025 at 7:50 AM
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It's #VolunteersWeek

Today we're saying a big thank you to Chris, who has been our Corporate Fundraising Volunteer since November. Chris has already made a big impact by securing £900 in corporate donations!

#AlexTLC #HelpToCope #HelpToHope #Volunteer

June 2, 2026 at 6:02 PM
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Please join us in saying a big thank you to Steve Caines and his family and friends for raising a fantastic £260 at a party hosted by Steve. We really appreciate their continued support 💙

#AlexTLC #HelpToCope #HelpToHope #ThankYou #Fundraising
April 2, 2026 at 5:01 PM
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Our counsellor, Mel, has created some resources to help cope during the festive period ❄💙

To download a PDF version, including a plain printable copy, please visit: https://alextlc.org/news/coping-during-the-festive-season/

#AlexTLC #Leukodystrophy #HelpToCope #HelpToHope
December 8, 2025 at 5:01 PM
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Please join us in wishing Gregor good luck this morning, as he takes on the Kingston Break-fest Run, in memory of Cameron Harrison 💙

https://www.justgiving.com/page/gregor-smith-1

Thank you, Gregor!

#AlexTLC #HelpToCope #HelpToHope #KinstoneBreakFest #Running #Fundraising
March 8, 2026 at 7:00 AM
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Today we are remembering Alexander Laurie Hunt, 12th May 1993 – 19th December 2012 💙

We are also sending thoughts and hugs to Alex's Mum, our wonderful CEO Sara, and his brother Ayden 💖

#AlexTLC #HelpToCope #HelpToHope #Leukodystrophy
December 19, 2025 at 7:00 AM
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We are recruiting!

Are you an experienced Trusts and Grants Fundraiser who is looking for an exciting new challenge? If so, we could have the perfect job for you!

https://alextlc.org/about/join-our-team/

Please share!

#AlexTLC #HelpToCope #HelpToHope #TrustsAndGrants #Fundraising
May 14, 2026 at 6:01 PM
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Our lucky 50/50 Cash Draw winner for November has won £183, with number 12!

Sign up now to be in with a chance of winning in the December draw 💰 🎅

https://alextlc.org/donate/5050-cash-draw/

#AlexTLC #HelpToCope #HelpToHope #CashDraw #CharityDraw #CashPrize #Win
November 4, 2025 at 7:01 PM
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February News Round-Up is out today 📩
This month we will be sharing about Rare Disease Day, our counselling service, lighting up our stained glass window and newborn screening updates 💙
Join our mailing list: https://alextlc.org/newsletter-sign-up/
#AlexTLC #Leukodystrophy #HelpToCope #HelpToHope
February 24, 2026 at 6:02 PM
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Please join us in saying a big thank you to Toby, who raised an incredible £3,339.19 for Alex TLC by running the London Marathon. Toby took on the challenge for his partner's mum, Debbie, who lives with leukodystrophy 💙

Thank you, Toby!

#AlexTLC #HelpToCope #HelpToHope #LondonMarathon #ThankYou
May 22, 2026 at 5:01 PM
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Today we're saying a big thank you to Andrew, who raised £768.27 plus Gift Aid by completing the Leeds Marathon for his Nephew, who was recently diagnosed with adrenoleukodystrophy 💙

Thank you, Andrew, what an achievement!

#AlexTLC#HelpToCope #HelpToHope #LeedsMarathon #Fundraising
June 4, 2026 at 12:01 PM
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It's #SmallCharityWeek

This week, we're sharing the voices of people supported by Alex TLC 💙

Liyana's mum says:

"Alex TLC has been helpful to us by sharing the experiences of others and letting us know that many families are experiencing similar problems”

#AlexTLC #HelpToCope #HelpToHope
June 24, 2026 at 6:01 AM
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It's #SmallCharityWeek

This week, we're sharing the voices of people supported by Alex TLC 💙

Bronwen's daughter says:

“Mum has dementia due to her leukodystrophy and I’m her carer. Having someone there to offer guidance or just to listen is a lifeline for me ”

#AlexTLC #HelpToCope #HelpToHope
June 26, 2026 at 6:00 AM
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A family in Spain is trying to connect people living with PI4KA-related hypomyelinating leukodystrophy in Europe. If you or your loved one is affected, and you'd like us to pass on your details, please email: info@alextlc.org

Please share 💙

#AlexTLC #HelpToCope #HelpToHope #Leukodystrophy #PI4KA
August 12, 2026 at 6:00 AM
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Given the impending 5th heatwave of 2026 🥵 we thought we'd share some of our community's tips for keeping cool in the hot weather. Huge thanks to everyone who responded to our ask last month.

alextlc.org/our-community/ask-our-community/

#AlexTLC #HelpToCope #HelpToHope #HeatWave #KeepCool

August 10, 2026 at 11:30 AM
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Please join us in saying a big thank you to Kellie and Ellie, for taking part in the 100K 2026 Race to the Stones, and raising an incredible £1055 for Alex TLC, in support of Lily 💙

Thank you both so much 🏃‍♀️🏃‍♀️

#AlexTLC #HelpToCope #HelpToHope #RaceToTheStones
August 5, 2026 at 6:01 PM
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Are you a partner of an adult with leukodystrophy?

Join our online meeting tomorrow, 5th Aug, 6–7:30pm BST.

Email info@alextlc.org for the link.

#AlexTLC #HelpToCope #HelpToHope #Leukodystrophy #CareAboutRare #SupportGroup
August 4, 2026 at 6:00 PM
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Would you consider donating a prize to help make our Community Weekend Raffle a real success?

We’ve created an Amazon Wishlist with plenty of easy options to choose from:

https://www.amazon.co.uk/hz/wishlist/ls/18984NK0B4WXD

#AlexTLC #HelpToCope #HelpToHope #Raffle #WishList
July 30, 2026 at 6:00 PM
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Applications are now open for disability entries and assisted wheelchair entries to the Double TCS London Marathon 2027.

More info: https://www.londonmarathonevents.co.uk/london-marathon/participants-disabilities

#AlexTLC #HelpToCope #HelpToHope #LondonMarathon
July 28, 2026 at 11:00 AM
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Ask our community for July 💙

This month we'd like to know if you have any tips for keeping yourself or your loved ones cool in the hot weather we've been having? ☀️

Please comment below or send your suggestions to info@alextlc.org 📨

#AlexTLC #Leukodystrophy #HelpToCope #HelpToHope
July 25, 2026 at 6:00 PM
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Our 'Partners of affected adults' online meeting, originally scheduled for 29th July has had to be changed to Wednesday 5th August at 18:00 BST (UK time).

If you'd like to attend this meeting, please email: info@alextlc.org

#AlexTLC #HelpToCope #HelpToHope #Leukodystrophy

July 10, 2026 at 12:01 PM
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Our June News Round-Up is out today 📩

We will share about about our children's book being translated into french, how to get involved in 'Wear It Blue' and our YouTube short videos.

Join our mailing list: https://alextlc.org/newsletter-sign-up/

#AlexTLC #Leukodystrophy #HelpToCope #HelpToHope
June 30, 2026 at 5:00 PM