#HAE #HereditaryAngioedema #RareDisease #HumanSideOfRare #RareDiseaseAwareness #HAEAwareness #ChronicIllness #PatientAdvocacy #RareCommunity #HAEForum #BioNews #AngioedemaNews

Have you ever thought you understood something about someone, only to realize you were completely wrong?

🔗 Read Shawna’s column - https://bit.ly/4yEsoeQ

#HumanSideOfRare #RareDisease #MyastheniaGravis #MyastheniaGravisNews #Bionews

Have you ever wondered if a devastating diagnosis could actually change your life for the better?

This week, I was reflecting on a column over at ALS News Today by my Bionews colleague Dagmar Munn - https://bit.ly/4xxJQRp

#HumanSideOfRare #RareDisease #ALS #FriedreichsAtaxia

One of my favorite things about living in the rare disease community isn’t just the advocacy, the awareness, or the fight for better treatments. It’s the people.

#sleepypeeps#NarcolepsyAwareness #humansideofrare #patientadvocate #dosleepjustice