Your mental health matters: https://bit.ly/4jEt387
Self-care, mindfulness, support groups, and therapy can all help you cope 💙
#HereditaryAngioedema #HAEAwareness #MentalHealthMatters #ChronicIllness #RareDisease #PatientSupport #AngioedemaNewsToday #Bionews
Self-care, mindfulness, support groups, and therapy can all help you cope 💙
#HereditaryAngioedema #HAEAwareness #MentalHealthMatters #ChronicIllness #RareDisease #PatientSupport #AngioedemaNewsToday #Bionews
September 27, 2026 at 6:46 PM
Your mental health matters: https://bit.ly/4jEt387
Self-care, mindfulness, support groups, and therapy can all help you cope 💙
#HereditaryAngioedema #HAEAwareness #MentalHealthMatters #ChronicIllness #RareDisease #PatientSupport #AngioedemaNewsToday #Bionews
Self-care, mindfulness, support groups, and therapy can all help you cope 💙
#HereditaryAngioedema #HAEAwareness #MentalHealthMatters #ChronicIllness #RareDisease #PatientSupport #AngioedemaNewsToday #Bionews
Your mental health matters: https://bit.ly/4jEt387
Self-care, mindfulness, support groups, and therapy can all help you cope 💙
#HereditaryAngioedema #HAEAwareness #MentalHealthMatters #ChronicIllness #RareDisease #PatientSupport #AngioedemaNewsToday #Bionews
Self-care, mindfulness, support groups, and therapy can all help you cope 💙
#HereditaryAngioedema #HAEAwareness #MentalHealthMatters #ChronicIllness #RareDisease #PatientSupport #AngioedemaNewsToday #Bionews
June 8, 2026 at 6:46 PM
Your mental health matters: https://bit.ly/4jEt387
Self-care, mindfulness, support groups, and therapy can all help you cope 💙
#HereditaryAngioedema #HAEAwareness #MentalHealthMatters #ChronicIllness #RareDisease #PatientSupport #AngioedemaNewsToday #Bionews
Self-care, mindfulness, support groups, and therapy can all help you cope 💙
#HereditaryAngioedema #HAEAwareness #MentalHealthMatters #ChronicIllness #RareDisease #PatientSupport #AngioedemaNewsToday #Bionews
Discover Natalie's story: https://bit.ly/4jZNcWd
Do you get it? Share your experience in the comments.
#Angioedema #HAE #HAEDiagnosis #RareDisease #HAEAwareness #AngioedemaNews #Bionews
Do you get it? Share your experience in the comments.
#Angioedema #HAE #HAEDiagnosis #RareDisease #HAEAwareness #AngioedemaNews #Bionews
June 28, 2026 at 6:46 PM
Discover Natalie's story: https://bit.ly/4jZNcWd
Do you get it? Share your experience in the comments.
#Angioedema #HAE #HAEDiagnosis #RareDisease #HAEAwareness #AngioedemaNews #Bionews
Do you get it? Share your experience in the comments.
#Angioedema #HAE #HAEDiagnosis #RareDisease #HAEAwareness #AngioedemaNews #Bionews
Your mental health matters: https://bit.ly/4jEt387
Self-care, mindfulness, support groups, and therapy can all help you cope 💙
#HereditaryAngioedema #HAEAwareness #MentalHealthMatters #ChronicIllness #RareDisease #PatientSupport #AngioedemaNewsToday #Bionews
Self-care, mindfulness, support groups, and therapy can all help you cope 💙
#HereditaryAngioedema #HAEAwareness #MentalHealthMatters #ChronicIllness #RareDisease #PatientSupport #AngioedemaNewsToday #Bionews
February 28, 2026 at 12:31 AM
Your mental health matters: https://bit.ly/4jEt387
Self-care, mindfulness, support groups, and therapy can all help you cope 💙
#HereditaryAngioedema #HAEAwareness #MentalHealthMatters #ChronicIllness #RareDisease #PatientSupport #AngioedemaNewsToday #Bionews
Self-care, mindfulness, support groups, and therapy can all help you cope 💙
#HereditaryAngioedema #HAEAwareness #MentalHealthMatters #ChronicIllness #RareDisease #PatientSupport #AngioedemaNewsToday #Bionews
Your mental health matters: https://bit.ly/4jEt387
Self-care, mindfulness, support groups, and therapy can all help you cope 💙
#HereditaryAngioedema #HAEAwareness #MentalHealthMatters #ChronicIllness #RareDisease #PatientSupport #AngioedemaNewsToday #Bionews
Self-care, mindfulness, support groups, and therapy can all help you cope 💙
#HereditaryAngioedema #HAEAwareness #MentalHealthMatters #ChronicIllness #RareDisease #PatientSupport #AngioedemaNewsToday #Bionews
September 23, 2026 at 6:46 PM
Your mental health matters: https://bit.ly/4jEt387
Self-care, mindfulness, support groups, and therapy can all help you cope 💙
#HereditaryAngioedema #HAEAwareness #MentalHealthMatters #ChronicIllness #RareDisease #PatientSupport #AngioedemaNewsToday #Bionews
Self-care, mindfulness, support groups, and therapy can all help you cope 💙
#HereditaryAngioedema #HAEAwareness #MentalHealthMatters #ChronicIllness #RareDisease #PatientSupport #AngioedemaNewsToday #Bionews
Your mental health matters: https://bit.ly/4jEt387
Self-care, mindfulness, support groups, and therapy can all help you cope 💙
#HereditaryAngioedema #HAEAwareness #MentalHealthMatters #ChronicIllness #RareDisease #PatientSupport #AngioedemaNewsToday #Bionews
Self-care, mindfulness, support groups, and therapy can all help you cope 💙
#HereditaryAngioedema #HAEAwareness #MentalHealthMatters #ChronicIllness #RareDisease #PatientSupport #AngioedemaNewsToday #Bionews
December 31, 2025 at 12:31 AM
Your mental health matters: https://bit.ly/4jEt387
Self-care, mindfulness, support groups, and therapy can all help you cope 💙
#HereditaryAngioedema #HAEAwareness #MentalHealthMatters #ChronicIllness #RareDisease #PatientSupport #AngioedemaNewsToday #Bionews
Self-care, mindfulness, support groups, and therapy can all help you cope 💙
#HereditaryAngioedema #HAEAwareness #MentalHealthMatters #ChronicIllness #RareDisease #PatientSupport #AngioedemaNewsToday #Bionews
Your mental health matters: https://bit.ly/4jEt387
Self-care, mindfulness, support groups, and therapy can all help you cope 💙
#HereditaryAngioedema #HAEAwareness #MentalHealthMatters #ChronicIllness #RareDisease #PatientSupport #AngioedemaNewsToday #Bionews
Self-care, mindfulness, support groups, and therapy can all help you cope 💙
#HereditaryAngioedema #HAEAwareness #MentalHealthMatters #ChronicIllness #RareDisease #PatientSupport #AngioedemaNewsToday #Bionews
July 31, 2025 at 11:31 PM
Your mental health matters: https://bit.ly/4jEt387
Self-care, mindfulness, support groups, and therapy can all help you cope 💙
#HereditaryAngioedema #HAEAwareness #MentalHealthMatters #ChronicIllness #RareDisease #PatientSupport #AngioedemaNewsToday #Bionews
Self-care, mindfulness, support groups, and therapy can all help you cope 💙
#HereditaryAngioedema #HAEAwareness #MentalHealthMatters #ChronicIllness #RareDisease #PatientSupport #AngioedemaNewsToday #Bionews
Your mental health matters: https://bit.ly/4jEt387
Self-care, mindfulness, support groups, and therapy can all help you cope 💙
#HereditaryAngioedema #HAEAwareness #MentalHealthMatters #ChronicIllness #RareDisease #PatientSupport #AngioedemaNewsToday #Bionews
Self-care, mindfulness, support groups, and therapy can all help you cope 💙
#HereditaryAngioedema #HAEAwareness #MentalHealthMatters #ChronicIllness #RareDisease #PatientSupport #AngioedemaNewsToday #Bionews
February 17, 2026 at 7:46 PM
Your mental health matters: https://bit.ly/4jEt387
Self-care, mindfulness, support groups, and therapy can all help you cope 💙
#HereditaryAngioedema #HAEAwareness #MentalHealthMatters #ChronicIllness #RareDisease #PatientSupport #AngioedemaNewsToday #Bionews
Self-care, mindfulness, support groups, and therapy can all help you cope 💙
#HereditaryAngioedema #HAEAwareness #MentalHealthMatters #ChronicIllness #RareDisease #PatientSupport #AngioedemaNewsToday #Bionews
Discover Hollie's story: https://bit.ly/4lDaF0K
From patient to powerhouse, she’s now fighting for a healthcare system that truly sees rare disease patients. 👊
#Angioedema #HAE #RareDiseaseWarrior #Bionews #HAEAwareness #AngioedemaAwareness #AngioedemaNewsToday #InvisibleIllness #Misdiagnosed
From patient to powerhouse, she’s now fighting for a healthcare system that truly sees rare disease patients. 👊
#Angioedema #HAE #RareDiseaseWarrior #Bionews #HAEAwareness #AngioedemaAwareness #AngioedemaNewsToday #InvisibleIllness #Misdiagnosed
September 22, 2026 at 11:31 PM
Discover Hollie's story: https://bit.ly/4lDaF0K
From patient to powerhouse, she’s now fighting for a healthcare system that truly sees rare disease patients. 👊
#Angioedema #HAE #RareDiseaseWarrior #Bionews #HAEAwareness #AngioedemaAwareness #AngioedemaNewsToday #InvisibleIllness #Misdiagnosed
From patient to powerhouse, she’s now fighting for a healthcare system that truly sees rare disease patients. 👊
#Angioedema #HAE #RareDiseaseWarrior #Bionews #HAEAwareness #AngioedemaAwareness #AngioedemaNewsToday #InvisibleIllness #Misdiagnosed
Your mental health matters: https://bit.ly/4jEt387
Self-care, mindfulness, support groups, and therapy can all help you cope 💙
#HereditaryAngioedema #HAEAwareness #MentalHealthMatters #ChronicIllness #RareDisease #PatientSupport #AngioedemaNewsToday #Bionews
Self-care, mindfulness, support groups, and therapy can all help you cope 💙
#HereditaryAngioedema #HAEAwareness #MentalHealthMatters #ChronicIllness #RareDisease #PatientSupport #AngioedemaNewsToday #Bionews
February 13, 2026 at 7:46 PM
Your mental health matters: https://bit.ly/4jEt387
Self-care, mindfulness, support groups, and therapy can all help you cope 💙
#HereditaryAngioedema #HAEAwareness #MentalHealthMatters #ChronicIllness #RareDisease #PatientSupport #AngioedemaNewsToday #Bionews
Self-care, mindfulness, support groups, and therapy can all help you cope 💙
#HereditaryAngioedema #HAEAwareness #MentalHealthMatters #ChronicIllness #RareDisease #PatientSupport #AngioedemaNewsToday #Bionews
My place in the HAE Family is HAE-HS3OST6 (heparan sulfate-glucosamine 3-sulfotransferase 6). More research is needed to determine how mutations in the HS3OST6 gene cause bradykinin mediated swelling characterized as HAE.
#HAEday2025 #HAEAwareness #HAE #HereditaryAngioedema
#HAEday2025 #HAEAwareness #HAE #HereditaryAngioedema
May 16, 2025 at 1:45 PM
My place in the HAE Family is HAE-HS3OST6 (heparan sulfate-glucosamine 3-sulfotransferase 6). More research is needed to determine how mutations in the HS3OST6 gene cause bradykinin mediated swelling characterized as HAE.
#HAEday2025 #HAEAwareness #HAE #HereditaryAngioedema
#HAEday2025 #HAEAwareness #HAE #HereditaryAngioedema
Manage and prevent swelling: https://bit.ly/3He43qS
#AngioedemaCare #HAEAwareness #PatientSupport #RareDiseaseCommunity #HealthTips #AngioedemaNews #Bionews
#AngioedemaCare #HAEAwareness #PatientSupport #RareDiseaseCommunity #HealthTips #AngioedemaNews #Bionews
March 7, 2026 at 12:31 AM
Manage and prevent swelling: https://bit.ly/3He43qS
#AngioedemaCare #HAEAwareness #PatientSupport #RareDiseaseCommunity #HealthTips #AngioedemaNews #Bionews
#AngioedemaCare #HAEAwareness #PatientSupport #RareDiseaseCommunity #HealthTips #AngioedemaNews #Bionews
May 16th is World HAE Day 💙
As the CT Rare Advocate — and someone living with HAE with Normal C1 Inhibitor — this day is personal to me.
You may be rare, but you're not alone!
#rareDisease #rareDiseaseAwareness
#HAEDay #HereditaryAngioedema #HAEAwareness
As the CT Rare Advocate — and someone living with HAE with Normal C1 Inhibitor — this day is personal to me.
You may be rare, but you're not alone!
#rareDisease #rareDiseaseAwareness
#HAEDay #HereditaryAngioedema #HAEAwareness
May 16, 2026 at 2:00 PM
May 16th is World HAE Day 💙
As the CT Rare Advocate — and someone living with HAE with Normal C1 Inhibitor — this day is personal to me.
You may be rare, but you're not alone!
#rareDisease #rareDiseaseAwareness
#HAEDay #HereditaryAngioedema #HAEAwareness
As the CT Rare Advocate — and someone living with HAE with Normal C1 Inhibitor — this day is personal to me.
You may be rare, but you're not alone!
#rareDisease #rareDiseaseAwareness
#HAEDay #HereditaryAngioedema #HAEAwareness
Today is HAE awareness day! #HAEday #HAEAwareness
Let’s raise awareness of #HereditaryAngioedema, a rare and often misunderstood condition. Be #active4HAE and register for our webinar to learn more about HAE! 🎗️
Join us at 18:00 BST next Wednesday: bit.ly/445BHIG
Let’s raise awareness of #HereditaryAngioedema, a rare and often misunderstood condition. Be #active4HAE and register for our webinar to learn more about HAE! 🎗️
Join us at 18:00 BST next Wednesday: bit.ly/445BHIG
Join leading clinical immunologists for an in-depth webinar on #HAE perception, early treatment and management strategies.
🗓️ Wednesday 21 May 2025
💻 Webinar
✔️ Free for healthcare professionals
🔗 Register here: bit.ly/445BHIG
🗓️ Wednesday 21 May 2025
💻 Webinar
✔️ Free for healthcare professionals
🔗 Register here: bit.ly/445BHIG
May 16, 2025 at 8:42 AM
Today is HAE awareness day! #HAEday #HAEAwareness
Let’s raise awareness of #HereditaryAngioedema, a rare and often misunderstood condition. Be #active4HAE and register for our webinar to learn more about HAE! 🎗️
Join us at 18:00 BST next Wednesday: bit.ly/445BHIG
Let’s raise awareness of #HereditaryAngioedema, a rare and often misunderstood condition. Be #active4HAE and register for our webinar to learn more about HAE! 🎗️
Join us at 18:00 BST next Wednesday: bit.ly/445BHIG
Get the full story: https://bit.ly/46pkGuk
#HAEAwareness #HereditaryAngioedema #DelayedDiagnosis #KnowTheSigns #ChronicIllness #RareDiseaseAwareness #AngioedemaNews #Bionews
#HAEAwareness #HereditaryAngioedema #DelayedDiagnosis #KnowTheSigns #ChronicIllness #RareDiseaseAwareness #AngioedemaNews #Bionews
July 31, 2025 at 2:02 PM
Find strategies to manage and prevent swelling: https://bit.ly/3He43qS
#AngioedemaCare #HAEAwareness #PatientSupport #RareDiseaseCommunity #HealthTips #AngioedemaNews #Bionews
#AngioedemaCare #HAEAwareness #PatientSupport #RareDiseaseCommunity #HealthTips #AngioedemaNews #Bionews
March 28, 2026 at 6:46 PM
Find strategies to manage and prevent swelling: https://bit.ly/3He43qS
#AngioedemaCare #HAEAwareness #PatientSupport #RareDiseaseCommunity #HealthTips #AngioedemaNews #Bionews
#AngioedemaCare #HAEAwareness #PatientSupport #RareDiseaseCommunity #HealthTips #AngioedemaNews #Bionews
May 16th is Hereditary Angioedema Day (#HAE Day). 10 years ago, I was diagnosed with HAE with Normal C1 Inhibitor (HAE-nl-C1INH). This is the rarest form of an already rare disease. HAE is estimate to affect approximately 1 in 50,000 people.
#HAEDay2025 #HAEAwareness #HereditaryAngioedema haeday.org
#HAEDay2025 #HAEAwareness #HereditaryAngioedema haeday.org
May 16, 2025 at 1:45 PM
May 16th is Hereditary Angioedema Day (#HAE Day). 10 years ago, I was diagnosed with HAE with Normal C1 Inhibitor (HAE-nl-C1INH). This is the rarest form of an already rare disease. HAE is estimate to affect approximately 1 in 50,000 people.
#HAEDay2025 #HAEAwareness #HereditaryAngioedema haeday.org
#HAEDay2025 #HAEAwareness #HereditaryAngioedema haeday.org
HAE-nl-C1INH subtypes include: HAE-FXII, HAE-PLG, HAE-KNG1, HAE-ANGPT1, HAE-MYOF, HAE-HS3OST6, HAE-UNK. 2 additional genes have been identified, but more research is needed to determine if they are HAE or fall into a different disease category: HAE-CPN1 and HAE-DAB2IP.
#HAEDay2025 #HAEAwareness #HAE
#HAEDay2025 #HAEAwareness #HAE
May 16, 2025 at 1:45 PM
HAE-nl-C1INH subtypes include: HAE-FXII, HAE-PLG, HAE-KNG1, HAE-ANGPT1, HAE-MYOF, HAE-HS3OST6, HAE-UNK. 2 additional genes have been identified, but more research is needed to determine if they are HAE or fall into a different disease category: HAE-CPN1 and HAE-DAB2IP.
#HAEDay2025 #HAEAwareness #HAE
#HAEDay2025 #HAEAwareness #HAE