#ChronicLife
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msnewstoday.bsky.social
Being chronically ill means my health is always trending ... backward. #ChronicLife
November 2, 2026 at 1:30 AM
achronicvoice.com
"I name #spiders in my home. There have been a lot but I still remember Fierce Freda who lived in the corner of my bathroom for ages & kept all the summer flies away. Sadly she disappeared 1 day & I found her in a heap on the floor.": buff.ly/FKlmzrv

by @RaisieBay.bsky.social
#spoonie #ChronicLife
Chronic Illness Writing Prompts October/November
Approaching, Dreading, Naming, Depending, Regaining
buff.ly
October 26, 2026 at 8:30 PM
msnewstoday.bsky.social
I’m not mad at my body. I’m just still learning to negotiate with it. #ChronicLife
October 27, 2026 at 12:30 AM
myseveralworlds.com
"The true heartbreak of living with chronic illness is being forced to relive the worst moments of it over and over again." via @serenebutterfly.bsky.social at My Brain Lesion and Me
🔗
Read it: www.brainlesionandme.com/reliving-hea...

#Spoonie #ChronicIllness #ChronicPain #Disability #ChronicLife
Reliving Heartbreak: Life With A Chronic Illness –
Living with chronic illness is heartbreaking. Heartbreak that is repeated again and again as its worst moments are replayed over and over.
www.brainlesionandme.com
October 28, 2026 at 4:47 AM
k8droste.bsky.social
One not fun side effect of Crohn’s Disease/treatment is dental issues. I was at the dentist 3 days this week & im going again on Monday. #ChronicLife #ChronicIllness
October 25, 2026 at 1:22 AM
msnewstoday.bsky.social
Having a chronic illness means learning to make joy small but mighty. #ChronicLife
October 23, 2026 at 12:30 AM
stillrollingoutdoors.com
#ChronicIllness weight moves in both directions, neither a discipline problem. Cycles with #medication load, #inflammation, #hormonal shifts. Treating it as a moral failing doesn't just miss the point. Adds load to what's already difficult.

buff.ly/cqzq5uH

#MentalHealth #Autoimmune #ChronicLife
Healing Terrain: When the Gap Isn't Your Fault
Why the Gap Between Effort and Outcome Isn't You
buff.ly
October 23, 2026 at 5:40 PM
achronicvoice.com
"I am very happy that I have an abstract accepted for America’s big #rheumatology #conference #ACR26, which is happening in Orlando this Nov. This will be my first time (ever, in my life) presenting a #scientific poster.": buff.ly/FbyLDaK

by SarahSisbot
#ChronicIllness #disability #ChronicLife
Oct/Nov Writing Prompts for the Chronically Ill and Disabled
Finalizing my ACR poster, beautiful pictures of my elbow, naming my disease, and a stellar new preprint about synovial fibroblasts in RA
buff.ly
October 20, 2026 at 6:30 PM
shannonsindorf.bsky.social
My physical therapy equipment is everywhere. Bands on doorknobs. Weights on the coffee table. Foam rollers in corners. Ladder on the floor that gets tripped on twice a day, minimum.

But it reminds me to do it!

#ms #multiplesclerosis #chronicillness #mslife #chroniclife #autoimmune
October 19, 2026 at 7:46 PM
msnewstoday.bsky.social
Every doctor's appointment feels like a game of medical bingo. #ChronicLife
October 19, 2026 at 12:31 AM
alsnewstoday.bsky.social
Joy may look different now, but it still matters.

#ChronicLife
October 16, 2026 at 8:30 PM
shannonsindorf.bsky.social
I get three different kinds of infusions at the infusion center. I guess I can't blame them for getting confused and trying to cancel this morning's infusion because they thought I was trying to sneak in an extra dose of another drug.

#ms #multiplesclerosis #chronicillness #chroniclife #autoimmune
October 13, 2026 at 2:24 PM
byte-mii.bsky.social
Intense therapy session on Friday, weekend away, stressful train journeys, back to work today. My eyes want to close, my brain cannot function and body checked out before lunch. #ms #mssucks #fatigue #autoimmune #chroniclife #chronicillness
October 12, 2026 at 4:48 PM
msnewstoday.bsky.social
You start appreciating the little things when they take maximum effort. #ChronicLife
October 10, 2026 at 12:30 AM
achronicvoice.com
"I really enjoy #RoadTrips & find them relaxing, but that’s not something that’s possible within the #country ..there are nice nature trails & small #island getaways, but no real camping spots where you just go into #nature for a couple days.": buff.ly/CzUrCvx

#ChronicLife #singapore #disability
Invisible cities linkup: Singapore. The Pros and Cons of Living Here as Someone with Chronic Illnesses. Read on: A Chronic Voice .com
October 9, 2026 at 9:30 PM
achronicvoice.com
" #Scotland has so many beautiful sights. I suppose I’m a wee bit biased, but we do hv the most beautiful #scenery in the world. I was fortunate to hv seen much of it when I was more able to #travel, but #YouTube lets us revisit old favs.": buff.ly/mmaYMtO

by @despitepain.bsky.social
#ChronicLife
Travel Without the Hassle...No Packing Required - Despite Pain
Summer is upon us here in sunny Scotland. Except, it’s not very sunny. There’s been a heatwave south of the border, but most days it’s actually quite wet, and dreich here in Scotland. Perhaps it’s…
buff.ly
October 9, 2026 at 11:30 PM
achronicvoice.com
"Not dying in the #ICU was just the beginning. Now I had to learn how to live..Specialist after #specialist appeared until I had a #healthcare “team.” The trouble I was in was heavy & profoundly sobering.": buff.ly/QpJY8R6

by @stillrollingoutdoors.com
#ChronicIllness #ChronicLife #disabled #spoonie
Taking Kind Care
Understanding Was the Easy Part
buff.ly
October 7, 2026 at 8:30 PM
msnewstoday.bsky.social
I measure time in flares, fatigue, and the rare moments of calm. #ChronicLife
October 7, 2026 at 12:30 AM
sagenatural.bsky.social
#ChronicLIfe
October 5, 2026 at 4:16 PM
tomkindlon.bsky.social
Living a rock ‘n’ roll life: doing laps of the local green air (300 metres) to check battery length of my electric wheelchair! 😜

Didn’t get a great angle for this photo when I was taking one of many breaks lying on a bench.

#MEcfs #PwME #MyalgicEncephalomyelitis #SpoonieLife #ChronicLife
Photo of me and my electric wheelchair
October 3, 2026 at 6:30 PM
shannonsindorf.bsky.social
After two IVs and one blood draw in three days, my veins are pretty beaten up. I had the husband take photos and I was going to post one, but...ew.

#ms #multiplesclerosis #chronicillness #mslife #chroniclife #autoimmune
October 2, 2026 at 3:48 PM
achronicvoice.com
"Despite [her #ChronicIllnesses ], Cheyanne writes with such eloquence, fairness and joy. Her #blog posts are #authentic and filled with #wisdom & I love how she’s always willing to consider #perspectives different than her own.": buff.ly/FDEWOvB

#MCAS #ChronicallyIll #ChronicLife #ChronicIllness
Cheyanne Perry — Living a Full Life with Deadly Allergies. “It’s in My Blood” is a series that feature people with chronic illnesses, and also their passions and talents.
October 1, 2026 at 3:31 PM
mgnews.bsky.social
I don’t need comparisons. I need understanding. #ChronicLife
September 29, 2026 at 3:06 PM
achronicvoice.com
" #Home is where the… #medications are." — Yes, I feel 'safest' at home because I can reach out for any medication as needed. For more #ChronicIllness #memes & #humor: buff.ly/Evdi3QH

#ChronicLife #ChronicPain #disability #spoonie #ChronicallyIll #awareness #meme
Home is... where the medications are.
September 29, 2026 at 3:30 PM
serenebutterfly.bsky.social
In so much #pain that I cannot sleep. So, once again I have chosen to escape this reality and escape into a #book! Although it’s taking me much longer to read than usual, I have just finished my 100th book of the year which is a record for me!

#Painsomnia #ChronicLife
Belle's Enchanted Library Moment
ALT: Belle's Enchanted Library Moment
static.klipy.com
September 29, 2026 at 10:12 PM