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klyddig.bsky.social
Sa detta precis så högt jag bara kunde bland en massa AIK supportrare på vägen till tunnelbanan från matchen
factitia.bsky.social Bildskön dynamitard 🧨 @factitia.bsky.social · Apr 14
Stockholmare är verkligen sågär:
"Hur kan du bo nånstans där det inte finns opera, jazzklubbar och 500 restauranger som serverar mellanrätter?!"
*tillbringar 60% av sin fritid i kollektivtrafiken*
April 14, 2025 at 8:06 PM
angioedemanews.bsky.social
#HAE #HappyHalloween #HAEAwareness #ChronicIllnessCommunity #InvisibleIllness #RareDiseaseDay #HereditaryAngioedema #SupportRare #RareDiseaseAwareness #ChronicLife #SpoonieHalloween #BioNews #AngioedemaNews
October 31, 2025 at 2:04 PM
immunodeficiencyuk.bsky.social
He loves it! And says it is no longer sore getting the needle in."

By offering practical support, we’re ensuring no one faces this journey alone.

This #SmallCharityWeek, help us spread awareness and grow our impact.

#SmallCharityBigImpact #PIDAwareness #SupportRare 4/4
June 24, 2025 at 6:25 AM
caprin1-foundation.bsky.social
CAPRIN1 variants are rare — with only 24 reported cases. In order to get vital funding for research we're trying to get as many people possible tested to reflect true prevalence.

🌍 Do you have a confirmed variant? Get in touch: caprin1foundation.org/participate-...

#RareDisease #SupportRare
December 8, 2025 at 11:01 AM
amcsupport.bsky.social
Rare Diseases Day 🦓

Today, we celebrate our RARE friends & push for awareness, research, and support to create real change! 🌟⚕️

🔗 Learn more: amcsupport.org


🔗 Learn more: www.rarediseaseday.org

#RareDiseaseDay #RareIsStrong #SupportRare #AMCSI #Arthrogryposis #RAREfriends #Hope #Advocacy
All three images have a different colored gradient background: light blue to dark blue, light green to dark blue, & one pink to dark blue, representing the three colors from the RARE Disease Day hands logo. Each contains a large blue AMCSI ribbon on the left side, and on the right, it says AMC It’s Not Only Our Story… There’s power in joined voices *Awareness *Advocacy * Research * Hope with the RARE Diseseas Day hands logo emblem & the title RARE DISEASE DAY® & the date of FEBRUARY 28, 2025 written under it. At the bottom on the left are the Facebook, Instagram, BlueSky, TikTok, YouTube, & X logos with @AMCSUPPORT & the hashtag #RareDiseaseDay in yellow. All three images have a different colored gradient background: light blue to dark blue, light green to dark blue, & one pink to dark blue, representing the three colors from the RARE Disease Day hands logo. Each contains a large blue AMCSI ribbon on the left side, and on the right, it says AMC It’s Not Only Our Story… There’s power in joined voices *Awareness *Advocacy * Research * Hope with the RARE Diseseas Day hands logo emblem & the title RARE DISEASE DAY® & the date of FEBRUARY 28, 2025 written under it. At the bottom on the left are the Facebook, Instagram, BlueSky, TikTok, YouTube, & X logos with @AMCSUPPORT & the hashtag #RareDiseaseDay in yellow. All three images have a different colored gradient background: light blue to dark blue, light green to dark blue, & one pink to dark blue, representing the three colors from the RARE Disease Day hands logo. Each contains a large blue AMCSI ribbon on the left side, and on the right, it says AMC It’s Not Only Our Story… There’s power in joined voices *Awareness *Advocacy * Research * Hope with the RARE Diseseas Day hands logo emblem & the title RARE DISEASE DAY® & the date of FEBRUARY 28, 2025 written under it. At the bottom on the left are the Facebook, Instagram, BlueSky, TikTok, YouTube, & X logos with @AMCSUPPORT & the hashtag #RareDiseaseDay in yellow.
February 28, 2025 at 1:03 PM
angioedemanews.bsky.social
#Angioedema #AngioedemaAwareness #HereditaryAngioedema #HAE #RareDisease #RareDiseaseAwareness #ChronicIllness #InvisibleIllness #HealthAwareness #PatientAdvocacy #SupportRare #LivingWithHAE #MedicalAwareness #ChronicDiseaseAwareness #BioNews #AngioedemaNews
August 7, 2026 at 2:03 PM
nova-hs.bsky.social
💡 Light Up for Rare – Rare Disease Day 2025 💜💙💚
This Rare Disease Day, we are coming together to Light Up for Rare and shine a spotlight on the 300 million people worldwide living with a rare disease.

#LightUpForRare #RareDiseaseDay #SupportRare #RareButNotAlone #ThankYouNHS
February 28, 2025 at 10:57 AM
mikaerefoundation.bsky.social
Meet Luka, a sweet boy with NKH. His mom says, “We focus on quality over quantity. Every day with him is a gift.” NKH is rare, life-limiting, and brutal - no family chooses this. That’s why we fight for a cure, because Luka deserves a future. 💙 #CureNKH #RareDiseaseAwareness #SupportRare
August 11, 2025 at 9:12 AM
angioedemanews.bsky.social
#Angioedema #AngioedemaAwareness #HereditaryAngioedema #HAE #RareDisease #RareDiseaseAwareness #ChronicIllness #InvisibleIllness #HealthAwareness #PatientAdvocacy #SupportRare #LivingWithHAE #MedicalAwareness #ChronicDiseaseAwareness #BioNews #AngioedemaNews
June 24, 2026 at 2:03 PM
angioedemanews.bsky.social
Link in bio to learn more about angioedema.

#Angioedema #RareDisease #InvisibleIllness #ChronicIllness #RareDiseaseAwareness #PatientVoices #DisabilityAwareness #HealthEducation #ChronicIllnessAwareness #SupportRare
April 9, 2026 at 2:04 PM
frtdermatology.bsky.social
February is Rare Disease Awareness Month! 🌍

During this month, let’s stand together to raise awareness, show support, and advocate for better healthcare for those affected by rare diseases. Every voice matters!

#RareDiseaseDay #LightUpForRare #SupportRare #HealthcareForAll
February 10, 2025 at 4:22 PM
peoplecare.bsky.social
🧬 We Give a Damn About Rare Disease 💙

Because 1 in 10 people living with a rare disease isn’t rare at all.

We're here to listen, learn, and take action—because rare shouldn't mean invisible.

💪🏽 Awareness.
🧠 Education.
❤️ Real human support.

#RareDiseaseAwareness #SupportRare #PeopleCareai
April 8, 2025 at 4:29 PM