#Huntingtons
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chrisboftheeast.bsky.social
No, way too treatable. Needs a prion disease, or Huntingtons. Needs to know what is happening and how hopeless the situation is.
November 8, 2026 at 3:14 AM
faransaberi.bsky.social
We are 6 months away from the first disease-modifying #Huntingtons cure. #GeneTherapy 🧬
November 5, 2026 at 5:31 PM
abridley.bsky.social
What if this man suffers from Huntingtons Disesase? Is it okay to get help?
November 3, 2026 at 3:47 PM
worbler.bsky.social
now playing on uncertain.fm » Huntingtons, "Things Are Gonna Get Better"
November 7, 2026 at 2:36 AM
longevitytech.bsky.social
https://longevity.technology/news/repeat-offender-huntingtons-and-the-dna-repair-clock/
November 3, 2026 at 12:25 PM
workincharities.bsky.social
🌟 Events and Engagement Officer at HUNTINGTONS DISEASE ASSOCIATION
Birmingham area, £32.0k
➡️ Apply by 24 Nov
https://www.workincharities.co.uk/job/events-and-engagement-officer-82d664c1
November 3, 2026 at 11:05 AM
redrocket.bsky.social
Interesting #fibro news .

www.fredhutch.org/en/news/rele...

Studied 2.5 million ppl. Find Links with a Gene related to Huntingtons

#Fibromyalgia
Largest-ever genetic study of fibromyalgia points to a neurological origin of the disorder and opens the door to new treatments
In a landmark study published in Nature Medicine, an international team of researchers have identified new genetic risk factors associated with fibromyalgia syndrome.
www.fredhutch.org
November 4, 2026 at 9:40 AM
pharmaphorum.bsky.social
The #FDA is due to deliver a decision on #uniQure's #genetherapy for neurodegenerative disorder #Huntingtons by 1st May next year, after granting a #priorityreview for the candidate.

pharmaphorum.com/news/uniqure...
uniQure set for May FDA verdict on Huntington's gene therapy
The FDA has started its review of uniQure's gene therapy for neurodegenerative disorder Huntington's, but will require an advisory committee meeting.
pharmaphorum.com
November 3, 2026 at 12:15 PM
gmj-georgia.bsky.social
Roche's program discontinuation reflects business strategy rather than scientific rejection, while competing programs advance and government agencies expand gene therapy initiatives.

https://news.gmj.ge/briefs/what-roches-huntingtons-exit-means-for-patients-and-the-future-of-gene-therapy/
What Roche’s Huntington’s Exit Means for Patients and the Future of Gene Therapy
Roche's program discontinuation reflects business strategy rather than scientific rejection, while competing programs advance and government agencies expand gene therapy initiatives.
news.gmj.ge
November 1, 2026 at 5:28 PM
tiramika.bsky.social
i was a kid when she went but i'm glad, and she's definitely doing her best to make it up to us now we're adults. in her case i have more empathy than like abusive ex friends cause hers was partially caused by something she doesn't have control of [huntingtons]
October 28, 2026 at 10:55 AM
sightrecords.bsky.social
🤐😗🍐🤐😗🪨🤐🪨😗🤐🪨😗🌾🍀🍐🌾🍐🍀🍀🌾🍐🌾🍐🌾🍐🍀🌾🍀🍐🌾🍀🍐🍀🌾🍐🌾🍀🍐🌾🍀🍐🍀🖤🍐🍀🌾🍐🍀🍐🖤🖤🍀🍐🖤🍀🍐🍐🖤🍀🖤🍀🍐🖤🍀🍐🖤🍀🍐🖤🍐🍀🍀🖤🍐🍀🖤🍐🖤🍐🍐🖤🖤🍐🖤🍀🍐🍀🍐🖤🖤🍐🖤🍐🍀🖤🍐🍀🍐🖤🍀🍐🖤🍀🖤🍐🖤🍐🍀🖤🍐🍀🍀🖤🍐🖤🍀🍐🖤🍀🍐🍀🖤🍐🖤🍀🍐🖤🍃🖤🍃🖤🍀🍐🍀🖤🍀🖤🍃🖤🍃🖤🍀🍃🍀🖤🍃🍀🖤🍃🍀🖤🍃🍀🖤🍃🍀🖤🍐🍀🖤🍃🖤🍐🍀🖤🍀🍐🍀🖤🍐🍀🍐🍀🖤🍐🖤🍐🖤🖤🖤🍃🖤🍃🍀🖤😀🖤😀🍀🖤😀🍀🍀🖤😀🍀🖤😀😀🖤🍀🖤😀😀🖤😀🖤😀🖤😀🍀🍀🍀🍀🖤😀🖤😀🖤😀🍀🖤🍀🖤🍀😀🖤😀🍀🖤😀🍀🍀🖤😀🖤🍀👻🍀🍀👻
v.lemon8-app.com/al/OgyMUSxdpm
Lemon8 · Fire Max 11 Tablet with 11" display | 64 GB · @Life With The Huntingtons
See the full post on Lemon8
v.lemon8-app.com
November 2, 2026 at 7:02 PM
eyebark.bsky.social
They've found a way to prevent and even somewhat reverse the effects of huntingtons disease 🥹 my brother will get to grow old and look like the old wizard of his dreams
October 25, 2026 at 3:21 PM
medindonews.bsky.social
Access to Huntington’s pathway risks becoming ‘postcode lottery’

https://bit.ly/4hHzqKd
##HD #huntingtons #huntingtonsdisease #hse #slaintecare @HSELive @Slaintecare
October 25, 2026 at 2:45 PM
wowk13news.bsky.social
Supporters gathered at Barboursville Park for the 2026 Team Hope Walk, an event supporting people affected by Huntington’s disease.

https://www.wowktv.com/news/west-virginia/cabell-county-wv/team-hope-walk-brings-families-together-in-barboursville-to-support-huntingtons-disease-community/ 
Image 1
October 25, 2026 at 2:45 PM
abenomicon.bsky.social
3.5 huntingtons, not great, not terrible
October 22, 2026 at 8:19 PM
gmj-georgia.bsky.social
The first disease-modifying therapy offers clinical benefit to 41,000 symptomatic Huntington's disease patients in the United States.

https://news.gmj.ge/briefs/41000-americans-with-huntingtons-disease-now-have-access-to-first-disease-modifying-treatment/
41,000 Americans With Huntington’s Disease Now Have Access to First Disease-Modifying Treatment
The first disease-modifying therapy offers clinical benefit to 41,000 symptomatic Huntington's disease patients in the United States.
news.gmj.ge
October 25, 2026 at 5:27 PM
medindonews.bsky.social
Despite the recent publication of a HSE plan, access to the care pathway for people with Huntington’s disease is likely to become a ‘postcode lottery’, according to Prof Orla Hardiman

https://bit.ly/4hHzqKd
##HD #huntingtons #huntingtonsdisease #hse #slaintecare @HSELive @Slaintecare
October 24, 2026 at 3:10 PM
dhnlov.bsky.social
FTD, Huntingtons, Parkinsons, Alzheimers all affect regions in the brain that direct behaviors, curiosity, empathy et al
October 22, 2026 at 6:33 PM
medindonews.bsky.social
Access to Huntington’s pathway risks becoming ‘postcode lottery’

https://bit.ly/4hHzqKd
##HD #huntingtons #huntingtonsdisease #hse #slaintecare @HSELive @Slaintecare
October 22, 2026 at 2:45 PM
medindonews.bsky.social
Despite the recent publication of a HSE plan, access to the care pathway for people with Huntington’s disease is likely to become a ‘postcode lottery’, according to Prof Orla Hardiman

https://bit.ly/4hHzqKd
##HD #huntingtons #huntingtonsdisease #hse #slaintecare @HSELive @Slaintecare
October 21, 2026 at 3:10 PM
medindonews.bsky.social
Access to Huntington’s pathway risks becoming ‘postcode lottery’

https://bit.ly/4hHzqKd
##HD #huntingtons #huntingtonsdisease #hse #slaintecare @HSELive @Slaintecare
October 19, 2026 at 2:45 PM
medindonews.bsky.social
Despite the recent publication of a HSE plan, access to the care pathway for people with Huntington’s disease is likely to become a ‘postcode lottery’, according to Prof Orla Hardiman

https://bit.ly/4hHzqKd
##HD #huntingtons #huntingtonsdisease #hse #slaintecare @HSELive @Slaintecare
October 18, 2026 at 3:10 PM
gmj-georgia.bsky.social
The first disease-modifying treatment for Huntington's disease demonstrates measurable slowing of cognitive and motor decline in symptomatic patients.

https://news.gmj.ge/briefs/historic-milestone-first-disease-modifying-therapy-halts-huntingtons-disease-progression/
Historic Milestone: First Disease-Modifying Therapy Halts Huntington’s Disease Progression
The first disease-modifying treatment for Huntington's disease demonstrates measurable slowing of cognitive and motor decline in symptomatic patients.
news.gmj.ge
October 18, 2026 at 5:27 PM
reograyfox.bsky.social
My friend Apollo Puma (who used to live here in the Seattle area) Wanted me to make post here to let those who know him, that he is back in the hospital because of his cancer and Huntingtons (which is fatal)

He wanted to chat with me this evening because he had a fall and with tests today ...
1/3
October 17, 2026 at 7:09 AM
medindonews.bsky.social
Access to Huntington’s pathway risks becoming ‘postcode lottery’

https://bit.ly/4hHzqKd
##HD #huntingtons #huntingtonsdisease #hse #slaintecare @HSELive @Slaintecare
October 16, 2026 at 2:45 PM