We've seen a distinct drop in interest in these conditions as people have memory-holed COVID; they'd like to forget infection-associated chronic conditions, but they're impacting everyone, including kids. I'm the Scientific Director at #MEAction, and I advocate for #MECFS, #LongCOVID, & other IACCs.
Here's today's column on the astonishing, ongoing mistreatment of people with #ME/CFS. Please spread it far and wide: the only thing which can break the media's wall of indifference is seeing an article about the issue go viral. Thank you. 1/2
www.theguardian.com/commentisfre...
www.theguardian.com/commentisfre...
Abandoned, dismissed and gaslighted: there is no excuse for the way ME sufferers have been betrayed | George Monbiot
Changes in guidance and science seem to have little impact on millions of devastated lives. It’s a social crisis playing out behind closed doors, says Guardian columnist George Monbiot
www.theguardian.com
September 24, 2026 at 11:35 PM
We've seen a distinct drop in interest in these conditions as people have memory-holed COVID; they'd like to forget infection-associated chronic conditions, but they're impacting everyone, including kids. I'm the Scientific Director at #MEAction, and I advocate for #MECFS, #LongCOVID, & other IACCs.
In the before times, many of us who treated postural orthostatic tachycardia syndrome (POTS) and dysautonomia worked with folks who did not have associated IACCs. Many of us were unaware of IACCs because it wasn’t part of our training in a substantive way and what training we 2/
November 20, 2024 at 11:27 AM
In the before times, many of us who treated postural orthostatic tachycardia syndrome (POTS) and dysautonomia worked with folks who did not have associated IACCs. Many of us were unaware of IACCs because it wasn’t part of our training in a substantive way and what training we 2/
"Why Rheumatology Must Prepare for Infection-Associated Chronic Conditions (IACCs)"
batemanhornecenter.org/why-rheumato...
New @batemanhornecenter.bsky.social blog suggesting the rheumatology specialty should expand to include Infection-Associated Chronic Conditions (IACCs) such as #MECFS & #POTS
batemanhornecenter.org/why-rheumato...
New @batemanhornecenter.bsky.social blog suggesting the rheumatology specialty should expand to include Infection-Associated Chronic Conditions (IACCs) such as #MECFS & #POTS
Why Rheumatology Must Prepare for Infection-Associated Chronic Conditions
When The Lancet Rheumatology published Dr. Brittany Adler’s essay, Expanding the Rheumatology Lens: Should We Embrace POTS and Post-Infectious Syndromes?, it captured a reality many in the field have…
batemanhornecenter.org
September 28, 2025 at 12:19 PM
"Why Rheumatology Must Prepare for Infection-Associated Chronic Conditions (IACCs)"
batemanhornecenter.org/why-rheumato...
New @batemanhornecenter.bsky.social blog suggesting the rheumatology specialty should expand to include Infection-Associated Chronic Conditions (IACCs) such as #MECFS & #POTS
batemanhornecenter.org/why-rheumato...
New @batemanhornecenter.bsky.social blog suggesting the rheumatology specialty should expand to include Infection-Associated Chronic Conditions (IACCs) such as #MECFS & #POTS
These are the folks that most people will come to with the non-specific symptoms that often emerge at the start of IACCs, so it is imperative that these professionals know how to identify and diagnose them. IACCs should be a categorical part of a coherent differential Dx for 2/
January 26, 2025 at 9:38 PM
These are the folks that most people will come to with the non-specific symptoms that often emerge at the start of IACCs, so it is imperative that these professionals know how to identify and diagnose them. IACCs should be a categorical part of a coherent differential Dx for 2/
Feels like a good time for a thread about all things exercise for people living with infection (and exposure)-associated complex chronic illnesses (IACCs) such as #MECFS, #LongCOVID and chronic #Lyme /tick- and vector-borne illness. Let’s start with a trip down memory lane.
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1/
November 20, 2024 at 11:27 AM
Feels like a good time for a thread about all things exercise for people living with infection (and exposure)-associated complex chronic illnesses (IACCs) such as #MECFS, #LongCOVID and chronic #Lyme /tick- and vector-borne illness. Let’s start with a trip down memory lane.
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1/
with IACCs need multi-disciplinary care involving many specialists (our educational content attempts to highlight this), but for now let’s talk about how best to get infrastructure in place to ensure that IACCs are first identified, diagnosed and brought into the system in an 5/
January 26, 2025 at 9:38 PM
with IACCs need multi-disciplinary care involving many specialists (our educational content attempts to highlight this), but for now let’s talk about how best to get infrastructure in place to ensure that IACCs are first identified, diagnosed and brought into the system in an 5/
The Clinical Care Guide for #MECFS, #LongCOVID & IACCs is here! Download, share, and use it to support better care. BHC's approach is now freely available—designed to help providers manage complex conditions with clarity & compassion. Download it. Share it. Use it. bit.ly/432YdzF
May 9, 2025 at 7:56 PM
The Clinical Care Guide for #MECFS, #LongCOVID & IACCs is here! Download, share, and use it to support better care. BHC's approach is now freely available—designed to help providers manage complex conditions with clarity & compassion. Download it. Share it. Use it. bit.ly/432YdzF
We’re at the @keystonesymposia.bsky.social on Long COVID and related IACCs!
The conference is in Santa Fe, New Mexico and features talks, posters, and workshops from leading researchers 😷🏜️😷
The conference is in Santa Fe, New Mexico and features talks, posters, and workshops from leading researchers 😷🏜️😷
August 11, 2025 at 4:52 PM
We’re at the @keystonesymposia.bsky.social on Long COVID and related IACCs!
The conference is in Santa Fe, New Mexico and features talks, posters, and workshops from leading researchers 😷🏜️😷
The conference is in Santa Fe, New Mexico and features talks, posters, and workshops from leading researchers 😷🏜️😷
continues to produce work that is shining a light on the pathobiology of #LongCOVID and all IACCs that will inform research and care for decades to come (and likely as new IACCs emerge - an unsettling thought but undeniable as we see H5N1 on the horizon). So. TLDR: what can 14/
January 16, 2025 at 10:26 PM
continues to produce work that is shining a light on the pathobiology of #LongCOVID and all IACCs that will inform research and care for decades to come (and likely as new IACCs emerge - an unsettling thought but undeniable as we see H5N1 on the horizon). So. TLDR: what can 14/
People often ask, "how can an IACC be genetic tho?" but all IACCs have a genetic component, as far as I'm aware. hEDS would not be special in this regard.
And we say are often "triggered or *unmasked* by infection" not "often caused by" infection.
And we say are often "triggered or *unmasked* by infection" not "often caused by" infection.
September 25, 2026 at 11:40 AM
People often ask, "how can an IACC be genetic tho?" but all IACCs have a genetic component, as far as I'm aware. hEDS would not be special in this regard.
And we say are often "triggered or *unmasked* by infection" not "often caused by" infection.
And we say are often "triggered or *unmasked* by infection" not "often caused by" infection.
It’s really exciting how much progress the concept of infection-associated chronic conditions (IACCs, eg Long Covid, ME/CFS, POTS, Lyme, PANDAs, etc!) has made in getting established in science and advocacy.
Seems to me advancing that advocacy next will need visual branding. What color are IACCs? 🤔
Seems to me advancing that advocacy next will need visual branding. What color are IACCs? 🤔
April 28, 2025 at 8:33 PM
It’s really exciting how much progress the concept of infection-associated chronic conditions (IACCs, eg Long Covid, ME/CFS, POTS, Lyme, PANDAs, etc!) has made in getting established in science and advocacy.
Seems to me advancing that advocacy next will need visual branding. What color are IACCs? 🤔
Seems to me advancing that advocacy next will need visual branding. What color are IACCs? 🤔
Incredible. If any candidate wants to discuss COVID, #LongCOVID, or IACCs, HMU
Fun fact: @runforsomething.net is *still* averaging about 500 new people signing up every single day to consider a run for local office.
March 27, 2025 at 1:15 PM
Incredible. If any candidate wants to discuss COVID, #LongCOVID, or IACCs, HMU
Happy birthday to @bhanlon15.bsky.social and to us all—everyone with ME, LC and IACCs of all kinds are so lucky to be in community with him!
November 1, 2025 at 1:36 AM
Happy birthday to @bhanlon15.bsky.social and to us all—everyone with ME, LC and IACCs of all kinds are so lucky to be in community with him!
chronic #lyme and other IACCs. As always, massive thanks to all who contribute to our learning: patients, caregivers, community advocates, clinicians, clinic staff, researchers and research participants 🙏🏻🙏🏻🙏🏻 /end
January 26, 2025 at 9:38 PM
chronic #lyme and other IACCs. As always, massive thanks to all who contribute to our learning: patients, caregivers, community advocates, clinicians, clinic staff, researchers and research participants 🙏🏻🙏🏻🙏🏻 /end
Not knowing about PEM is proof positive you don't know IACCs.
Even if you're not studying #MECFS, omitting the possibility of PEM in a trial for #LongCOVID (where many meet criteria for #MECFS) or for common comorbidities, like fibro, hypermobility disorders like #EDS, or #POTS is in error.
Even if you're not studying #MECFS, omitting the possibility of PEM in a trial for #LongCOVID (where many meet criteria for #MECFS) or for common comorbidities, like fibro, hypermobility disorders like #EDS, or #POTS is in error.
November 21, 2025 at 3:56 PM
Not knowing about PEM is proof positive you don't know IACCs.
Even if you're not studying #MECFS, omitting the possibility of PEM in a trial for #LongCOVID (where many meet criteria for #MECFS) or for common comorbidities, like fibro, hypermobility disorders like #EDS, or #POTS is in error.
Even if you're not studying #MECFS, omitting the possibility of PEM in a trial for #LongCOVID (where many meet criteria for #MECFS) or for common comorbidities, like fibro, hypermobility disorders like #EDS, or #POTS is in error.
It’s a bloody good guide - the best I’ve seen for managing Long Covid, ME and IACCs. I’m already sharing widely - support if you can.
Link to guide ➡️ batemanhornecenter.org/wp-content/u...
Link to guide ➡️ batemanhornecenter.org/wp-content/u...
June 24, 2025 at 6:51 PM
It’s a bloody good guide - the best I’ve seen for managing Long Covid, ME and IACCs. I’m already sharing widely - support if you can.
Link to guide ➡️ batemanhornecenter.org/wp-content/u...
Link to guide ➡️ batemanhornecenter.org/wp-content/u...
Check out this new med school deck for IACCs!! I know a lot of hard work went into this. Please share widely #medsky #mecfs
www.reddit.com/r/medicalsch...
www.reddit.com/r/medicalsch...
From the medicalschoolanki community on Reddit: New deck for infection-associated chronic conditions (IACCs)
Explore this post and more from the medicalschoolanki community
www.reddit.com
February 24, 2025 at 6:48 PM
Check out this new med school deck for IACCs!! I know a lot of hard work went into this. Please share widely #medsky #mecfs
www.reddit.com/r/medicalsch...
www.reddit.com/r/medicalsch...
Getting ready for Day 2 at the #ICanCME2025 conference!
I'll be delivering a talk about neurodiversity in #pwME and IACCs in general. Hope to see you there!
I'll be delivering a talk about neurodiversity in #pwME and IACCs in general. Hope to see you there!
November 5, 2025 at 5:25 PM
Getting ready for Day 2 at the #ICanCME2025 conference!
I'll be delivering a talk about neurodiversity in #pwME and IACCs in general. Hope to see you there!
I'll be delivering a talk about neurodiversity in #pwME and IACCs in general. Hope to see you there!
April 23, 2026 at 9:01 PM
The Sick Times: “Long COVID advocacy is more than lobbying Congress: Here are some ways to get involved”
By Chelsea Rudman
People with infection associated chronic conditions (IACCs) use a broad range of strategies to fight for awareness and better care
thesicktimes.org/2025/11/11/l...
By Chelsea Rudman
People with infection associated chronic conditions (IACCs) use a broad range of strategies to fight for awareness and better care
thesicktimes.org/2025/11/11/l...
Long COVID advocacy is more than lobbying Congress: Here are some ways to get involved - The Sick Times
People with infection associated chronic conditions (IACCs) use a broad range of strategies to fight for awareness and better care.
thesicktimes.org
November 11, 2025 at 7:51 PM
The Sick Times: “Long COVID advocacy is more than lobbying Congress: Here are some ways to get involved”
By Chelsea Rudman
People with infection associated chronic conditions (IACCs) use a broad range of strategies to fight for awareness and better care
thesicktimes.org/2025/11/11/l...
By Chelsea Rudman
People with infection associated chronic conditions (IACCs) use a broad range of strategies to fight for awareness and better care
thesicktimes.org/2025/11/11/l...
We are now on Bluesky! 🦋
CrunchME is a patient-led project mapping the scientific, tech, advocacy and medical ecosystem around solving #MECFS, #LongCovid and other IACCs 💙
CrunchME is a patient-led project mapping the scientific, tech, advocacy and medical ecosystem around solving #MECFS, #LongCovid and other IACCs 💙
November 21, 2024 at 4:27 PM
We are now on Bluesky! 🦋
CrunchME is a patient-led project mapping the scientific, tech, advocacy and medical ecosystem around solving #MECFS, #LongCovid and other IACCs 💙
CrunchME is a patient-led project mapping the scientific, tech, advocacy and medical ecosystem around solving #MECFS, #LongCovid and other IACCs 💙
Attention med students! Want to learn more about ME/CFS, Long Covid, & other infection-associated chronic conditions? Head over to Reddit and ask questions about our Anki deck available on IACCs until 5 pm ET today. Flashcards are available to use now! www.reddit.com/r/medicalsch...
#MedStudent
#MedStudent
February 24, 2025 at 6:23 PM
Attention med students! Want to learn more about ME/CFS, Long Covid, & other infection-associated chronic conditions? Head over to Reddit and ask questions about our Anki deck available on IACCs until 5 pm ET today. Flashcards are available to use now! www.reddit.com/r/medicalsch...
#MedStudent
#MedStudent
Long Polio: not great either.
We desperately need to fund research on these infection-associated chronic conditions (IACCs). #TripleTheNIHBudget
We desperately need to fund research on these infection-associated chronic conditions (IACCs). #TripleTheNIHBudget
Bloomberg: 'Millions Are at Risk of Post-Polio Syndrome, and Health Systems Aren’t Ready'
'The UK health system hasn’t figured out how to care for its roughly 50,000 polio survivors, a problem soon to be replicated around the globe'
www.bloomberg.com/news/article...
'The UK health system hasn’t figured out how to care for its roughly 50,000 polio survivors, a problem soon to be replicated around the globe'
www.bloomberg.com/news/article...
Millions Are at Risk of Post-Polio Syndrome, and Health Systems Aren’t Ready
The UK health system hasn’t figured out how to care for its roughly 50,000 polio survivors, a problem soon to be replicated around the globe.
www.bloomberg.com
September 2, 2026 at 9:23 PM
Long Polio: not great either.
We desperately need to fund research on these infection-associated chronic conditions (IACCs). #TripleTheNIHBudget
We desperately need to fund research on these infection-associated chronic conditions (IACCs). #TripleTheNIHBudget
There is *no* good health insurance in the United States. I'm telling you this now. I have met dozens, hundreds?, of other patients with complex IACCs in the past several years, and literally not one of us has anything positive to say about our health insurance.
Not a fucking one.
Not a fucking one.
December 7, 2024 at 12:56 AM
There is *no* good health insurance in the United States. I'm telling you this now. I have met dozens, hundreds?, of other patients with complex IACCs in the past several years, and literally not one of us has anything positive to say about our health insurance.
Not a fucking one.
Not a fucking one.
Pretty interesting to see someone from the Cleveland Clinic arguing medicine needs to take IACCs much more seriously.
Infection-associated chronic conditions: Why aren’t we talking about these disorders?
www.healio.com/news/rheumat...
www.healio.com/news/rheumat...
Infection-associated chronic conditions: Why aren’t we talking about these disorders?
This month’s featured Healio Exclusive on the “evidence-based and ethically sound” definition of long COVID is particularly close to my heart. I believe it is one of the most insight...
www.healio.com
July 22, 2025 at 6:51 PM
Pretty interesting to see someone from the Cleveland Clinic arguing medicine needs to take IACCs much more seriously.