#IKCC
A big thank you to everyone who participated, shared their knowledge and helped make the 2026 Summit a success.

#IKCC #KidneyCancer #PatientAdvocacy #GlobalHealth
October 12, 2026 at 12:00 PM
Very much liked "the Circle of Chaos"! Thank you @katiekickscancer.bsky.social

Latest IKCC Global Survey demonstrates consistently higher barriers, lower SDM for #kidneycancer pts <29 years.
She hits EVERY point, some of which we don’t speak up on being a young adult with cancer. Kudos to you Katie! Thank you for bringing this to the masses at #ASCO25 👏🏻 #Cansky
June 2, 2025 at 7:07 PM
🌱 IKCC Grants 2026: Meet our Seed & Grow Grant recipient

We’re pleased to recognise the Feliciana Mshanga Memorial Cancer Foundation (Tanzania) as a 2026 Seed & Grow Grant recipient.
October 6, 2026 at 11:01 AM
IKCC is delighted to be part of #EAU26 in London, the renowned annual congress of the European Association of Urology. (1/5)
March 13, 2026 at 5:02 PM
Posting some great news for the Global #kidneycancer community. Every 2 years, the IKCC conducts a global patient survey. Just closed, the patient response has been truly outstanding -- 2,677 responses from 46 countries! Thanks to all of the patient orgs and clinicians who collaborated.
November 23, 2024 at 2:49 PM
Busy day at #ASCO25 for IKCC attendees yesterday. Multiple meetings and even some time to attend a few sessions providing intriguing presentations exploring RCC biomarkers.
June 1, 2025 at 1:32 PM
We’re looking forward to the IKCC Global Kidney Cancer Summit! Learn more about the event that starts tomorrow: ikcc.org/ikcc-news-no... #IKCC25
April 3, 2025 at 2:36 PM
The IKCC Board of Directors had the opportunity to meet face to face prior to the IKCC Global Kidney Cancer Summit in Madrid. Lots of great discussions! #IKCC25
April 4, 2025 at 1:43 PM
🌍 Two days of connection, learning and collaboration!

The 2026 IKCC Global Kidney Cancer Summit brought together more than 50 patient advocates, healthcare professionals and kidney cancer experts from around the world in Prague, Czech Republic, on 10–11 October.
October 12, 2026 at 12:00 PM
IKCC board members were on stage this morning at #IKCSEU26 in Paris for the session on the RCC patient experience. Claudia Ungarelli (Vice-Chair of IKCC) made a presentation “From Watching to Acting: A Journey from Surveillance to Treatment”. (1/3)
April 17, 2026 at 6:31 PM
Swans - Celebrity Lifestyle
YouTube video by SWANS
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October 3, 2025 at 2:25 AM
Eric Jonasch (Chair of IKCC) shared his vision on “Treatment Barriers and Shared Decision-Making Disparities in Kidney Cancer Across Europe: Results from the IKCC Global Patient Survey”, before presenting about “Developing a Data Collection Consortium for Hereditary RCC Syndromes”. (2/3)
April 17, 2026 at 6:31 PM
The RAS Korea Library Collection was officially donated to Soongsil University today, and the IKCC Research Library opened too. Honorary President Colin Crooks unveiled the signboard with Soongsil University President Lee Yoon-jae.
October 31, 2025 at 5:24 AM
At #IKCSEU25, Laurence Albiges (IGR & member of the IKCC Medical Advisory Board) and Maxine Tran (University College London) spoke about the importance of shared decision making for the treatment of kidney cancer patients. (1/2)
May 5, 2025 at 11:54 AM
Thank you to everyone who joined us for the 15th IKCC Global Kidney Cancer Summit in Madrid. The learning, the sharing and the connection are a clear reminder of what it means to be a part of IKCC. #IKCC25
April 7, 2025 at 3:53 PM
IKCC is honoured to participate in this promising initiative. discern.iarc.who.int #EWAC2025 (5/5)
DISCERN: Home
discern.iarc.who.int
May 29, 2025 at 9:00 PM
We were happy to have Dr Eric Jonasch of MD Anderson Cancer Center and Bryan Lewis of KidneyCAN at ASCO #GU25 representing IKCC. (Photos also include Dr Laurence Albiges, Dr Chris Labaki and patient advocate Howard McClurd.)

@mdanderson.bsky.social @kidneycan.bsky.social
February 16, 2025 at 12:45 PM
Day two of IKCC Global Kidney Cancer Conference has started we have been networking and sharing our experiences of supporting #kidneycancer patients.

We have also been listening to new idea's being shared by other patient organisations around the world and hope to learn from them.

#IKCC2025
April 5, 2025 at 7:03 AM
Excellent, thought-provoking presentation by Deb Maskens of IKCC on the % of patients that are not being reached by #KidneyCancer organisations and strategies to consider on how we can improve. #IKCC25 @debmaskens.bsky.social
April 6, 2025 at 8:10 PM
Margie Hickey, member of the Board of Directors, was honoured to represent IKCC at The Max Foundation Think Tank in Seattle. (1/2)
May 1, 2026 at 4:59 PM
Congratulations to Katharina Beyer, IKCC Board Chair Dr Michael Jewett, Board Ambassador Deb Maskens and others on receiving first prize! #EAU25 @debmaskens.bsky.social
March 21, 2025 at 1:16 PM
It's great to be at #IKCSNA25 in Denver. We've met with many leaders, including Gretchen Vaughan, President & CEO of the Kidney Cancer Association, and presented a poster on the IKCC Global Patient Survey.

(Photos: Dr Eric Jonasch, Dr Michael Jewett and Gretchen Vaughan)
#KidneyCancer
November 15, 2025 at 8:53 PM
Claudia Ungarelli, IKCC board member and ANTURE leadership team member, attended the Florence Multidisciplinary Expert Meeting on RCC last week. Thank you to Dr Riccardo Campi for organising the event and for ensuring the patient voice was included.
January 21, 2025 at 12:07 PM