A big thank you to everyone who participated, shared their knowledge and helped make the 2026 Summit a success.
#IKCC #KidneyCancer #PatientAdvocacy #GlobalHealth
#IKCC #KidneyCancer #PatientAdvocacy #GlobalHealth
October 12, 2026 at 12:00 PM
A big thank you to everyone who participated, shared their knowledge and helped make the 2026 Summit a success.
#IKCC #KidneyCancer #PatientAdvocacy #GlobalHealth
#IKCC #KidneyCancer #PatientAdvocacy #GlobalHealth
🌍 Two days of connection, learning and collaboration!
The 2026 IKCC Global Kidney Cancer Summit brought together more than 50 patient advocates, healthcare professionals and kidney cancer experts from around the world in Prague, Czech Republic, on 10–11 October.
The 2026 IKCC Global Kidney Cancer Summit brought together more than 50 patient advocates, healthcare professionals and kidney cancer experts from around the world in Prague, Czech Republic, on 10–11 October.
October 12, 2026 at 12:00 PM
🌍 Two days of connection, learning and collaboration!
The 2026 IKCC Global Kidney Cancer Summit brought together more than 50 patient advocates, healthcare professionals and kidney cancer experts from around the world in Prague, Czech Republic, on 10–11 October.
The 2026 IKCC Global Kidney Cancer Summit brought together more than 50 patient advocates, healthcare professionals and kidney cancer experts from around the world in Prague, Czech Republic, on 10–11 October.
This is the 5th IKCC Global Patient Survey, marking 10 years of collecting data specific to the experiences of people living with #KidneyCancer. This milestone makes it possible to track trends and demonstrate changes over time.
https://bit.ly/IKCC_Kidney_Cancer_Global_Survey
#AcceleratingCures
https://bit.ly/IKCC_Kidney_Cancer_Global_Survey
#AcceleratingCures
October 6, 2026 at 8:00 PM
This is the 5th IKCC Global Patient Survey, marking 10 years of collecting data specific to the experiences of people living with #KidneyCancer. This milestone makes it possible to track trends and demonstrate changes over time.
https://bit.ly/IKCC_Kidney_Cancer_Global_Survey
#AcceleratingCures
https://bit.ly/IKCC_Kidney_Cancer_Global_Survey
#AcceleratingCures
🌱 IKCC Grants 2026: Meet our Seed & Grow Grant recipient
We’re pleased to recognise the Feliciana Mshanga Memorial Cancer Foundation (Tanzania) as a 2026 Seed & Grow Grant recipient.
We’re pleased to recognise the Feliciana Mshanga Memorial Cancer Foundation (Tanzania) as a 2026 Seed & Grow Grant recipient.
October 6, 2026 at 11:01 AM
🌱 IKCC Grants 2026: Meet our Seed & Grow Grant recipient
We’re pleased to recognise the Feliciana Mshanga Memorial Cancer Foundation (Tanzania) as a 2026 Seed & Grow Grant recipient.
We’re pleased to recognise the Feliciana Mshanga Memorial Cancer Foundation (Tanzania) as a 2026 Seed & Grow Grant recipient.
🏛️ Tomorrow: Kidney cancer takes centre stage at the European Parliament
On 1 October, IKCC, represented by Olivier Exertier, will join experts in Brussels to discuss kidney cancer prevention, the impact of EU investment, and where research and innovation can make the biggest difference.
On 1 October, IKCC, represented by Olivier Exertier, will join experts in Brussels to discuss kidney cancer prevention, the impact of EU investment, and where research and innovation can make the biggest difference.
September 30, 2026 at 11:34 AM
🏛️ Tomorrow: Kidney cancer takes centre stage at the European Parliament
On 1 October, IKCC, represented by Olivier Exertier, will join experts in Brussels to discuss kidney cancer prevention, the impact of EU investment, and where research and innovation can make the biggest difference.
On 1 October, IKCC, represented by Olivier Exertier, will join experts in Brussels to discuss kidney cancer prevention, the impact of EU investment, and where research and innovation can make the biggest difference.
Please help #kidneycancer patients, the IKCC patient survey is now open.
Take 15minutes to complete the survey, your experiences will help shape kidney cancer care for the next decade.
For more info and complete the survey please follow the link:
actionkidneycancer.org/get-involved...
Take 15minutes to complete the survey, your experiences will help shape kidney cancer care for the next decade.
For more info and complete the survey please follow the link:
actionkidneycancer.org/get-involved...
September 30, 2026 at 8:24 AM
Please help #kidneycancer patients, the IKCC patient survey is now open.
Take 15minutes to complete the survey, your experiences will help shape kidney cancer care for the next decade.
For more info and complete the survey please follow the link:
actionkidneycancer.org/get-involved...
Take 15minutes to complete the survey, your experiences will help shape kidney cancer care for the next decade.
For more info and complete the survey please follow the link:
actionkidneycancer.org/get-involved...
🧬 The HLRCC Alliance brings together patients, clinicians, and scientists across Europe, the USA, Canada, Asia, and Australia to tackle rare, hereditary kidney cancer, with support from ERN eUROGEN, ERKNet, ERN GENTURIS, the IKCC, and others.
🔗 eurogen-ern.eu/urology-week...
🔗 eurogen-ern.eu/urology-week...
September 29, 2026 at 7:02 PM
🧬 The HLRCC Alliance brings together patients, clinicians, and scientists across Europe, the USA, Canada, Asia, and Australia to tackle rare, hereditary kidney cancer, with support from ERN eUROGEN, ERKNet, ERN GENTURIS, the IKCC, and others.
🔗 eurogen-ern.eu/urology-week...
🔗 eurogen-ern.eu/urology-week...
Chaired by Margaret Hickey, the session brought together voices from across the cancer community:
💬 Michael Jewett, IKCC Past-Chair
💬 Olivier Exertier, Executive Director, IKCC
💬 Alex Filicevas, Executive Director, World Bladder Cancer Patient Coalition
💬 Siew Chin Lui, Lymphoma Coalition
💬 Michael Jewett, IKCC Past-Chair
💬 Olivier Exertier, Executive Director, IKCC
💬 Alex Filicevas, Executive Director, World Bladder Cancer Patient Coalition
💬 Siew Chin Lui, Lymphoma Coalition
September 29, 2026 at 1:30 PM
Chaired by Margaret Hickey, the session brought together voices from across the cancer community:
💬 Michael Jewett, IKCC Past-Chair
💬 Olivier Exertier, Executive Director, IKCC
💬 Alex Filicevas, Executive Director, World Bladder Cancer Patient Coalition
💬 Siew Chin Lui, Lymphoma Coalition
💬 Michael Jewett, IKCC Past-Chair
💬 Olivier Exertier, Executive Director, IKCC
💬 Alex Filicevas, Executive Director, World Bladder Cancer Patient Coalition
💬 Siew Chin Lui, Lymphoma Coalition
🤝 Putting patients at the heart of cancer care
At the #WorldCancerCongress in Hong Kong, IKCC organised a session exploring “Promoting Shared Decision Making in Cancer Care”, highlighting the importance of giving patients an active role in decisions about their care.
At the #WorldCancerCongress in Hong Kong, IKCC organised a session exploring “Promoting Shared Decision Making in Cancer Care”, highlighting the importance of giving patients an active role in decisions about their care.
September 29, 2026 at 1:30 PM
🤝 Putting patients at the heart of cancer care
At the #WorldCancerCongress in Hong Kong, IKCC organised a session exploring “Promoting Shared Decision Making in Cancer Care”, highlighting the importance of giving patients an active role in decisions about their care.
At the #WorldCancerCongress in Hong Kong, IKCC organised a session exploring “Promoting Shared Decision Making in Cancer Care”, highlighting the importance of giving patients an active role in decisions about their care.
We are delighted to be working with @ikccorg.bsky.social on the 5th IKCC Global Patient Survey.
Please help us by taking the 15 minute survey, your experiences will make a difference to other kidney cancer patients.
For info please follow the link:
actionkidneycancer.org/get-involved...
Please help us by taking the 15 minute survey, your experiences will make a difference to other kidney cancer patients.
For info please follow the link:
actionkidneycancer.org/get-involved...
📢 Today, on World Cancer Research Day, the 5th IKCC Global Patient Survey on Kidney Cancer is now open!
People who have been diagnosed with kidney cancer and carers are invited to share patient experiences and insights in the online survey:https://bit.ly/IKCC_Kidney_Cancer_Global_Survey
People who have been diagnosed with kidney cancer and carers are invited to share patient experiences and insights in the online survey:https://bit.ly/IKCC_Kidney_Cancer_Global_Survey
September 24, 2026 at 9:55 AM
We are delighted to be working with @ikccorg.bsky.social on the 5th IKCC Global Patient Survey.
Please help us by taking the 15 minute survey, your experiences will make a difference to other kidney cancer patients.
For info please follow the link:
actionkidneycancer.org/get-involved...
Please help us by taking the 15 minute survey, your experiences will make a difference to other kidney cancer patients.
For info please follow the link:
actionkidneycancer.org/get-involved...
📢 Today, on World Cancer Research Day, the 5th IKCC Global Patient Survey on Kidney Cancer is now open!
People who have been diagnosed with kidney cancer and carers are invited to share patient experiences and insights in the online survey:https://bit.ly/IKCC_Kidney_Cancer_Global_Survey
People who have been diagnosed with kidney cancer and carers are invited to share patient experiences and insights in the online survey:https://bit.ly/IKCC_Kidney_Cancer_Global_Survey
September 24, 2026 at 9:00 AM
📢 Today, on World Cancer Research Day, the 5th IKCC Global Patient Survey on Kidney Cancer is now open!
People who have been diagnosed with kidney cancer and carers are invited to share patient experiences and insights in the online survey:https://bit.ly/IKCC_Kidney_Cancer_Global_Survey
People who have been diagnosed with kidney cancer and carers are invited to share patient experiences and insights in the online survey:https://bit.ly/IKCC_Kidney_Cancer_Global_Survey
On first day of the #WorldCancerCongress in Hong Kong, Michael Jewett Past Chair of IKCC board, made a presentation about « Gaps in Kidney Cancer Care in Low- and Middle Income vs. High Income Countries: IKCC Global Patient Survey Results ».
September 24, 2026 at 8:12 AM
On first day of the #WorldCancerCongress in Hong Kong, Michael Jewett Past Chair of IKCC board, made a presentation about « Gaps in Kidney Cancer Care in Low- and Middle Income vs. High Income Countries: IKCC Global Patient Survey Results ».
Our September newsletter is here! 🌍
Discover the latest from the global kidney cancer community, including the launch of the 5th Global Patient Survey, research updates, global collaborations and more.
Read it here: buff.ly/8SEi5gE
#KidneyCancer #IKCC
Discover the latest from the global kidney cancer community, including the launch of the 5th Global Patient Survey, research updates, global collaborations and more.
Read it here: buff.ly/8SEi5gE
#KidneyCancer #IKCC
September 22, 2026 at 3:46 PM
Our September newsletter is here! 🌍
Discover the latest from the global kidney cancer community, including the launch of the 5th Global Patient Survey, research updates, global collaborations and more.
Read it here: buff.ly/8SEi5gE
#KidneyCancer #IKCC
Discover the latest from the global kidney cancer community, including the launch of the 5th Global Patient Survey, research updates, global collaborations and more.
Read it here: buff.ly/8SEi5gE
#KidneyCancer #IKCC
🌍 The World Kidney Day 2027 campaign has launched!
As a World Kidney Day partner, IKCC is pleased to support the campaign and its theme, “Kidneys, Heart and Metabolism: The Core of Your Health”, highlighting the close connection between kidney, cardiovascular and metabolic health.
As a World Kidney Day partner, IKCC is pleased to support the campaign and its theme, “Kidneys, Heart and Metabolism: The Core of Your Health”, highlighting the close connection between kidney, cardiovascular and metabolic health.
September 22, 2026 at 8:41 AM
🌍 The World Kidney Day 2027 campaign has launched!
As a World Kidney Day partner, IKCC is pleased to support the campaign and its theme, “Kidneys, Heart and Metabolism: The Core of Your Health”, highlighting the close connection between kidney, cardiovascular and metabolic health.
As a World Kidney Day partner, IKCC is pleased to support the campaign and its theme, “Kidneys, Heart and Metabolism: The Core of Your Health”, highlighting the close connection between kidney, cardiovascular and metabolic health.
We’re pleased to see Dr. Michael Jewett, IKCC Board Past Chair, presenting findings from the 2025 IKCC Global Patient Survey at the upcoming World Cancer Congress 2026 in Hong Kong.
📅 Thursday, 24 September 2026
🕐️ 12:20–13:20
📅 Thursday, 24 September 2026
🕐️ 12:20–13:20
September 16, 2026 at 3:03 PM
We’re pleased to see Dr. Michael Jewett, IKCC Board Past Chair, presenting findings from the 2025 IKCC Global Patient Survey at the upcoming World Cancer Congress 2026 in Hong Kong.
📅 Thursday, 24 September 2026
🕐️ 12:20–13:20
📅 Thursday, 24 September 2026
🕐️ 12:20–13:20
📅 1 October 2026
🕛 12:00–13:15
📍 European Parliament, Brussels
Seats are limited, register here: buff.ly/D6QbkCR
#KidneyCancer #EUHealth #CancerPolicy #IKCC
🕛 12:00–13:15
📍 European Parliament, Brussels
Seats are limited, register here: buff.ly/D6QbkCR
#KidneyCancer #EUHealth #CancerPolicy #IKCC
Microsoft Forms
buff.ly
September 15, 2026 at 11:02 AM
📅 1 October 2026
🕛 12:00–13:15
📍 European Parliament, Brussels
Seats are limited, register here: buff.ly/D6QbkCR
#KidneyCancer #EUHealth #CancerPolicy #IKCC
🕛 12:00–13:15
📍 European Parliament, Brussels
Seats are limited, register here: buff.ly/D6QbkCR
#KidneyCancer #EUHealth #CancerPolicy #IKCC
Almost half of all kidney cancers could be prevented if smoking were eliminated and healthy body weight maintained.
IKCC, represented by Olivier Exertier, will be joining experts at the #EuropeanParliament, hosted by MEP Tilly Metz and MEP Romana Jerkovic.
IKCC, represented by Olivier Exertier, will be joining experts at the #EuropeanParliament, hosted by MEP Tilly Metz and MEP Romana Jerkovic.
September 15, 2026 at 11:02 AM
Almost half of all kidney cancers could be prevented if smoking were eliminated and healthy body weight maintained.
IKCC, represented by Olivier Exertier, will be joining experts at the #EuropeanParliament, hosted by MEP Tilly Metz and MEP Romana Jerkovic.
IKCC, represented by Olivier Exertier, will be joining experts at the #EuropeanParliament, hosted by MEP Tilly Metz and MEP Romana Jerkovic.
We’re pleased to welcome Kidney Research UK to the IKCC global network.💙
Together, we’re strengthening collaboration and the global voice for people affected by kidney cancer.
Explore our global kidney cancer community:
ikcc.org/about-ikcc/o...
#IKCC #KidneyResearchUK
Together, we’re strengthening collaboration and the global voice for people affected by kidney cancer.
Explore our global kidney cancer community:
ikcc.org/about-ikcc/o...
#IKCC #KidneyResearchUK
September 10, 2026 at 3:04 PM
We’re pleased to welcome Kidney Research UK to the IKCC global network.💙
Together, we’re strengthening collaboration and the global voice for people affected by kidney cancer.
Explore our global kidney cancer community:
ikcc.org/about-ikcc/o...
#IKCC #KidneyResearchUK
Together, we’re strengthening collaboration and the global voice for people affected by kidney cancer.
Explore our global kidney cancer community:
ikcc.org/about-ikcc/o...
#IKCC #KidneyResearchUK
We’re pleased to see Olivier Exertier from IKCC joining the panel session “Promoting Shared Decision Making in Cancer Care” at the upcoming World Cancer Congress 2026 in Hong Kong.
📅 Friday, 25 September 2026
🕐 16:40–17:40
📅 Friday, 25 September 2026
🕐 16:40–17:40
September 9, 2026 at 3:02 PM
We’re pleased to see Olivier Exertier from IKCC joining the panel session “Promoting Shared Decision Making in Cancer Care” at the upcoming World Cancer Congress 2026 in Hong Kong.
📅 Friday, 25 September 2026
🕐 16:40–17:40
📅 Friday, 25 September 2026
🕐 16:40–17:40
Olivier Exertier will represent the IKCC, bringing the voice of the kidney cancer community to this important discussion.
IKCC is committed to supporting the kidney cancer community and making sure the needs and experiences of people affected by kidney cancer are heard.
#KidneyCancer #EUHealth
IKCC is committed to supporting the kidney cancer community and making sure the needs and experiences of people affected by kidney cancer are heard.
#KidneyCancer #EUHealth
September 8, 2026 at 11:01 AM
Olivier Exertier will represent the IKCC, bringing the voice of the kidney cancer community to this important discussion.
IKCC is committed to supporting the kidney cancer community and making sure the needs and experiences of people affected by kidney cancer are heard.
#KidneyCancer #EUHealth
IKCC is committed to supporting the kidney cancer community and making sure the needs and experiences of people affected by kidney cancer are heard.
#KidneyCancer #EUHealth
Improving health literacy can help people feel more informed and empowered in decisions about their care. However, there are still gaps to address.
Explore more: buff.ly/CuldoiH
#IKCC #KidneyCancer
Explore more: buff.ly/CuldoiH
#IKCC #KidneyCancer
https://ikcc.org/wp-content/uploads/2025/05/2025_GPS_Highlights_Reports_IKCC_A4_interactive.pdf
ikcc.org
September 7, 2026 at 3:02 PM
Improving health literacy can help people feel more informed and empowered in decisions about their care. However, there are still gaps to address.
Explore more: buff.ly/CuldoiH
#IKCC #KidneyCancer
Explore more: buff.ly/CuldoiH
#IKCC #KidneyCancer
🔎 Understanding your kidney cancer diagnosis
The 4th IKCC Global Patient Survey found encouraging improvements in patients’ knowledge and understanding. In 2024, fewer people reported that important aspects of their diagnosis were not explained in a way they could understand.
The 4th IKCC Global Patient Survey found encouraging improvements in patients’ knowledge and understanding. In 2024, fewer people reported that important aspects of their diagnosis were not explained in a way they could understand.
September 7, 2026 at 3:02 PM
🔎 Understanding your kidney cancer diagnosis
The 4th IKCC Global Patient Survey found encouraging improvements in patients’ knowledge and understanding. In 2024, fewer people reported that important aspects of their diagnosis were not explained in a way they could understand.
The 4th IKCC Global Patient Survey found encouraging improvements in patients’ knowledge and understanding. In 2024, fewer people reported that important aspects of their diagnosis were not explained in a way they could understand.
I mean, there's probably more than one in the news at any given time, they just have enough money to keep their explorations of decadence quiet...
m.youtube.com/watch?v=ikCC...
m.youtube.com/watch?v=ikCC...
Swans - Celebrity Lifestyle
YouTube video by SWANS
m.youtube.com
September 5, 2026 at 7:50 AM
I mean, there's probably more than one in the news at any given time, they just have enough money to keep their explorations of decadence quiet...
m.youtube.com/watch?v=ikCC...
m.youtube.com/watch?v=ikCC...
👏 Congratulations, Omogbeminiyi, and thank you for your contribution to improving cancer care!
#KidneyCancer #PatientSupport #IKCC #ScholarshipAward
#KidneyCancer #PatientSupport #IKCC #ScholarshipAward
September 4, 2026 at 2:02 PM
👏 Congratulations, Omogbeminiyi, and thank you for your contribution to improving cancer care!
#KidneyCancer #PatientSupport #IKCC #ScholarshipAward
#KidneyCancer #PatientSupport #IKCC #ScholarshipAward
🏆 Congratulations to Omogbeminiyi Ojole (NG), one of the recipients of the 2026 IKCC Allied Healthcare Professional Scholarship Award!
September 4, 2026 at 2:02 PM
🏆 Congratulations to Omogbeminiyi Ojole (NG), one of the recipients of the 2026 IKCC Allied Healthcare Professional Scholarship Award!