#ISOQOL19
As mentioned before, I have been working on the introduction of #RegisteredReports at QLR for the better part of two years now.

Now that this process is coming to an end (see announcement around #ISOQOL19), I thought I point to some resources.

#WeekendReads

[Thread of ~10]
November 17, 2024 at 12:35 PM
#ISOQOL19 Poster available for download:

It presents #psychometric work on the #EQ5D in people living w #diabetes & severe #mentalillness-es.

Work was funded by @DiabetesUK & informs measurement in the ongoing DIAMONDS programme (@IMPACT_NIHR).

#HRQOL
November 17, 2024 at 12:24 PM
Took a while, but back from #SanDiego trip. On top of world leading #HRQOL science, some great days, immediately favourite places.

#ISOQOL19 #coffee #acai
#portsidegelato @Better_Buzz
November 17, 2024 at 12:24 PM
Arrived home from #ISOQOL19 or still travelling?

Why not read the three finalist papers of QLR's 2018 Article of the Year competition?

1)

2)

3)

#openaccess #psychometrics
@ISOQOL @SpringerPBH
November 17, 2024 at 12:24 PM
Yuelin Li describes analysing how complex sets of objects are related: The Infinite Relational Model.

[direct pdf link on model]

#machinelearning #Bayes
#ISOQOL19
November 17, 2024 at 12:24 PM
Presenting preparatory work for the DIAMONDS network at #ISOQOL19 (poster 3050):

Validity of diabetes-related psychosocial PROMss in people living with #diabetes & w/o comorbid severe mental illness.

#secondarydata #DAWN2 #mentalhealth #psychometrics
@IMPACT_NIHR
November 17, 2024 at 12:24 PM
What are the challenges when implementing & managing FAITHFUL electronic implementations of clinical outcome assessments?

@CaroAnfray describes the development of practical guidelines.

#ISOQOL19 #oralsession207
November 17, 2024 at 12:23 PM
Thoughts on how to optimise workflows for the collection of the #PHQ9 presented by @c_seegs.

How to integrate the patient voice better through #ePRO #implementation, was explored via #participatory action research:

#isoqol19 #oralsession207
#openaccess
November 17, 2024 at 12:23 PM
Benjamin Schalet starts with #NAMVitalSigns👇👇:

Their goal was to measure "engaged people" better.

#ISOQOL19 #oralsession207
November 17, 2024 at 12:23 PM
Large scale #implementation of PROMs in practice contexts, Rachel Sisodia:
4 million PROMs collected;
covering 51 medical specialties;
in 100 locations.

Collection success rate in first month highly predictive of services ever successful collecting.

#ISOQOL19 #oralsession207
November 17, 2024 at 12:23 PM
Tenbroeck Smith: The Dynamic Sustainability Framework supports the development, testing of falsifiable hypotheses & continued learning to advance the #implementation, transportability & impact of health services research:

#oralsession207 #isoqol19
November 17, 2024 at 12:23 PM
There is a role for #mixedmethods approaches to elicit supplementary data on patient experience & individual perceptions of benefit, risk & tradeoffs in drug development:

#ISOQOL19 #Symposium3
November 17, 2024 at 12:23 PM
QLR issued two calls for papers in 2019 (👇👇):
- Feedback call: 27 manuscripts invited;
- Nonpar IRT: 14 abstracts received, invitations under way!

The next call for papers deals with OVERTREATMENT & OVERMEDICALISATION:

#ISOQOL19
@ISOQOL @SpringerPBH
November 17, 2024 at 12:23 PM
Resources for engaging with the Normalization Process Theory are flagged up by
@CarlRMay
:

#implementationscience #ISOQOL19
November 17, 2024 at 12:23 PM
Amy Kilbourne presents on how to put these strategies and #researchdesign-s into practice based on their "Adaptive Implementation of Effective Programs Trial (ADEPT)":

#ISOQOL19
November 17, 2024 at 12:23 PM
Amy Kilbourne discusses different implementation strategies, for example based on this expert-defined classification:

#implementationscience #ISOQOL19
November 17, 2024 at 12:23 PM
Emmons demonstrates that PRECIS could be a useful tool that can help trialists to ensure that their design decisions are consistent with the stated purpose of the trial.

#researchdesign #ISOQOL19
#implementationscience
November 17, 2024 at 12:23 PM
Figures 1 and 2 of

were discussed in detail by Emmons at #ISOQOL19:
Challenges and solutions to #researchdesign problems in
#implementationscience
November 17, 2024 at 12:23 PM
Emmons refers audience to tools for research planning available at @WUICTS:

In particular, D&I Toolkits:

e.g., the research design tool:
[pdf direct link]

#researchdesign #implementationscience
#ISOQOL19
November 17, 2024 at 12:23 PM
Karen Emmons referring to the traditional "research pipeline", which is in need of considering much more the settings in which
- evidence is produced
- evidence is needed

#openaccess #ISOQOL19
#implementation
November 17, 2024 at 12:23 PM
Really interesting use of the #EQ5D-3L presented by Kenya Noronha, measuring #HRQOL losses due to a technological #disaster (#ISOQOL19;

- HRQoL loss 15-28%
- cumulative utility function lower than before accident.
November 17, 2024 at 12:23 PM
The development of the Portuguese #EQ5D-5L value set was discussed at #ISOQOL19. The paper can be read here:

#utilities #valuation #healtheconomics
November 17, 2024 at 12:23 PM
Presenting preparatory work for the DIAMONDS network at #ISOQOL19 (poster 1044):
Evaluating the validity of the #EQ5D-3L & describing #HRQoL in people living with #diabetes & w/o comorbid severe mental illness.

#secondarydata #DAWN2 #mentalhealth #psychometrics
@IMPACT_NIHR
November 17, 2024 at 12:23 PM
Todd DeWees presents #cuttingedge application of artificial neural network (ANN) analysis using #LIME to address the non-interpretability of ANN.

Some notes on LIME (not citrus-related), can be found here:

#ISOQOL19
November 17, 2024 at 12:23 PM
More useful & usable ways to assess PROs. @DrCGibbons presents #cuttingedge ways to identify narrower conditional prediction distributions.

IMPORT demo page:

Related #machinelearning tutorial by the team:

#ISOQOL19
November 17, 2024 at 12:23 PM