#LHON
Marcelo Lusardi regained skateboarding after LHON blindness by relearning navigation with a cane and relying on tactile mapping and trusted sighted help.
Save What Matters
Curate Feeds | Make Collections | Customize Email Briefs
briefly.co
November 4, 2026 at 1:24 PM
Marcelo Lusardi regained skateboarding after LHON blindness by relearning navigation with a cane and relying on tactile mapping and trusted sighted help.
Save What Matters
Curate Feeds | Make Collections | Customize Email Briefs
briefly.co
November 4, 2026 at 1:23 PM
New paper out: Visual acuity changes in idebenone treatment‑naïve patients with Leber hereditary optic neuropathy: insights from the CRS-2 study.: Krawczynski, Maciej R; van Everdingen, Judith; Leroy, Bart P; et al.
Journal of neurology Vol. 273, no. 11, p. 690… | Thanks for sharing #dzne #papers
Visual acuity changes in idebenone treatment‑naïve patients with Leber hereditary optic neuropathy: insights from the CRS-2 study.
Krawczynski, Maciej R; van Everdingen, Judith; Leroy, Bart P; et al. Journal of neurology Vol. 273, no. 11, p. 690 Case Record Survey (CRS)-2 was an international, multicenter, retrospective study designed to characterize the natural history of vision loss and spontaneous recovery in patients with Leber hereditary optic neuropathy (LHON).Case records of idebenone treatment-naïve patients aged ≥12 years, with mit
dlvr.it
November 7, 2026 at 1:53 PM
Funded PhD at the MRC Mitochondrial Biology Unit, Cambridge, using a new LHON mouse model to study mtDNA disease and test genome-editing therapies. UK only. Closing date: 8th December

www.dementiaresearcher.nihr.ac.uk/job/phd-mito...
October 21, 2026 at 2:04 PM
Leber's Hereditary Optic Neuropathy LHON misdiagnosed as a multiple sclerosis. youtube.com/shorts/5WmIr...
MS Misdiagnosis Leber's Hereditary Optic Neuropathy LHON
YouTube video by Dr. Brandon Beaber
youtube.com
October 16, 2026 at 9:40 PM
The Moon in Her Eyes

Photo by lhon karwan on Unsplash Black hair and red lipsWalks through the crowdThrough shadows she slipsElectric demon or Wiccan automatonShe carries the moon in her eyesCurves on a dangerous roadDrives the men crazyTurn you from a man to a toadCan’t let her push me over a…
The Moon in Her Eyes
Photo by lhon karwan on Unsplash Black hair and red lipsWalks through the crowdThrough shadows she slipsElectric demon or Wiccan automatonShe carries the moon in her eyesCurves on a dangerous roadDrives the men crazyTurn you from a man to a toadCan’t let her push me over a cliffShe carries the moon in her eyes…
theauthorstew.ca
October 14, 2026 at 11:51 PM
Ophthopedia Update: Late-onset Leber hereditary optic neuropathy: disease triggers and prognostic factors in a large Italian cohort: Leber hereditary optic neuropathy (LHON) has always presented a paradox. Many carriers never lose vision, and others remain… #Ophthalmology #ophthotwitter #eyecare
Late-onset Leber hereditary optic neuropathy: disease triggers and prognostic factors in a large Italian cohort
Leber hereditary optic neuropathy (LHON) has always presented a paradox. Many carriers never lose vision, and others remain asymptomatic for decades before suddenly converting. The mutation is therefore necessary but not sufficient to cause blindness. This excellent paper by Battista et al1 (p. xxx) helps explain why.
dlvr.it
October 3, 2026 at 11:18 AM
Missed this one with Heather Cox Richardson & Jessica Tarlov (aka: the voice of reason around that table on Fox)
9/11/2026

www.youtube.com/watch?v=lhon... @hcrichardson.bsky.social @jessicatarlov.bsky.social
Jessica Tarlov | American Conversations
YouTube video by Heather Cox Richardson
www.youtube.com
October 1, 2026 at 12:58 PM
An unexpectedly grounding and simultaneously igniting conversation between @hcrichardon.bsky.social and @jessicatarlov.bsky.social on the latter’s recent book “I Disagree: Winning Arguments Without Losing Friends.”
I highly recommend taking the time to listen www.youtube.com/watch?v=lhon... o
Jessica Tarlov | American Conversations
YouTube video by Heather Cox Richardson
www.youtube.com
September 21, 2026 at 5:09 PM
#OurPoetryX #10WordsPoet
Iconic black dress
Classic style
A Memory
But still relatable
lhon karwan unsplash.com
September 20, 2026 at 8:42 PM
Jessica Tarlov, a truthful person who works for Fox News, has some tips from her book, "How to talk win an argument without losing friends", about how to talk to your Trump-supporting relatives.
www.youtube.com/watch?v=lhon...
Jessica Tarlov | American Conversations
YouTube video by Heather Cox Richardson
www.youtube.com
September 17, 2026 at 10:10 PM
Jessica Tarlov who, a truthful person who works for Fox News, has some tips from her book, "How to talk win an argument without losing friends", about how to talk to your Trump-supporting relatives and friends and convert them from the path to hell back to the light.
www.youtube.com/watch?v=lhon...
Jessica Tarlov | American Conversations
YouTube video by Heather Cox Richardson
www.youtube.com
September 15, 2026 at 2:03 PM
September 11, 2026

"Extraordinarily excited to be talking here today with Jessica Tarlov."

The book "sings" because of the way it is written.👏👏

"I Disagree: How to Win Arguments Without Losing Friends"

www.youtube.com/watch?v=lhon... @hcrichardson.bsky.social and @jessicatarlov.bsky.social
Jessica Tarlov | American Conversations
YouTube video by Heather Cox Richardson
www.youtube.com
September 13, 2026 at 4:06 PM
Hey everyone. If I've been quiet lately, it's because I lost a lot of vision this summer due to LHON. I'm adjusting, but I want to be clear: I'm still here, and I'll always be an active ABDL daddy, even if I go completely blind. Appreciate your patience and support!
#ABDL #LHON #VisuallyImpaired
September 11, 2026 at 4:58 PM
David Lemelin trouve que peu de politiciens quittent par sens de l’honneur.

www.carrefourdequebec.com/2026/09/lhon...
L’honneur et le fond du baril – Le Carrefour de Québec
pourquoi peu de politiciens quittent par sens de l’honneur et quand ils ont raté la cible sans atteindre ce qu’ils avaient promis?
www.carrefourdequebec.com
September 8, 2026 at 6:21 PM
#moonmystic #OurPoetryX #micropsycho 
They had hearts Made of shadow, Darker than Empty graves
lhon karwan unsplash.com
September 1, 2026 at 4:32 PM
Volei de praia em SP é legal pra CA RA LHON !
August 29, 2026 at 1:07 AM
Ophthopedia Update: Late-onset Leber Hereditary Optic Neuropathy: disease triggers and prognostic factors in a large Italian cohort: To characterize the clinical and genetic features, investigate disease triggers, and explore factors associated with visual… #Ophthalmology #ophthotwitter #eyecare
Late-onset Leber Hereditary Optic Neuropathy: disease triggers and prognostic factors in a large Italian cohort
To characterize the clinical and genetic features, investigate disease triggers, and explore factors associated with visual recovery in late-onset Leber Hereditary Optic Neuropathy (LHON).
dlvr.it
August 18, 2026 at 9:23 AM