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#lifraumeni #lifraumenisyndrome #livinglfs #iamlivinglfs #lifraumenisyndromeawareness #p53 #tp53 #tp53gene #cancergenetics #geneticcancer #geneticmutation #rarediseases #cancerfighter #breastcancer #breastcancerawarenessmonth #breastcancer #feelitonthefirst
October 2, 2026 at 1:26 PM
livinglfs.bsky.social
#lifraumeni #lifraumenisyndrome #livinglfs #iamlivinglfs #lifraumenisyndromeawareness #p53 #tp53 #tp53gene #cancergenetics #geneticcancer #geneticmutation #rarediseases #cancerfighter #genetictesting #saturdayquote
July 19, 2025 at 10:44 PM
livinglfs.bsky.social
Share if you love someone with LFS!

#lifraumeni #lifraumenisyndrome #livinglfs #iamlivinglfs #lifraumenisyndromeawareness #p53 #tp53 #tp53gene #cancergenetics #geneticcancer #geneticmutation #rarediseases #cancerfighter #rarediseaseday #lfsawareness #rarediseaseday2026
February 28, 2026 at 11:18 AM
livinglfs.bsky.social
#LivingLFS #LiFraumeniSyndrome #NSGC #GeneticCounseling #PatientAdvocacy
November 8, 2025 at 3:45 PM
livinglfs.bsky.social
#lifraumeni #lifraumenisyndrome #livinglfs #iamlivinglfs #lifraumenisyndromeawareness #p53 #tp53 #tp53gene #cancergenetics #geneticcancer #geneticmutation #rarediseases #cancerfighter #childhoodcancerawareness #childhoodcancerawarenessmonth #pediatriccancer #childhoodcancer #gogoldinseptember
September 29, 2026 at 6:12 PM
livinglfs.bsky.social
#lifraumeni #lifraumenisyndrome #livinglfs #iamlivinglfs #lifraumenisyndromeawareness #p53 #tp53 #tp53gene #cancergenetics #geneticcancer #geneticmutation #rarediseases #cancerfighter
January 19, 2026 at 4:20 PM
livinglfs.bsky.social
10 Days of Thankful.
We are Thankful for the countless researchers past and present who strive to find answers, treatments and options for our rare families with Li-Fraumeni Syndrome.

#lifraumeni #lifraumenisyndrome #livinglfs #iamlivinglfs #p53 #tp53 #tp53gene #LLFS #cancerresearch
November 16, 2025 at 12:55 PM
livinglfs.bsky.social
#lifraumeni #lifraumenisyndrome #livinglfs #iamlivinglfs #lifraumenisyndromeawareness #p53 #tp53 #tp53gene #cancergenetics #geneticcancer #geneticmutation #rarediseases #cancerfighter #genetictesting #saturdayquote
August 10, 2025 at 1:34 AM
livinglfs.bsky.social
#lifraumeni #lifraumenisyndrome #livinglfs #iamlivinglfs #lifraumenisyndromeawareness #p53 #tp53 #tp53gene #cancergenetics #geneticcancer #geneticmutation #rarediseases #cancerfighter #genetictesting #saturdayquote
June 28, 2025 at 8:42 PM
livinglfs.bsky.social
#lifraumeni #lifraumenisyndrome #livinglfs #iamlivinglfs #lifraumenisyndromeawareness #p53 #tp53 #tp53gene #cancergenetics #geneticcancer #geneticmutation #rarediseases #cancerfighter #genetictesting #saturdayquote
July 5, 2025 at 5:50 PM
livinglfs.bsky.social
#lifraumeni #lifraumenisyndrome #livinglfs #iamlivinglfs #p53 #tp53 #tp53gene #cancergenetics #geneticcancer #geneticmutation #rarediseases #cancerfighter #genetictesting #childhoodcancerawareness #childhoodcancerawarenessmonth #pediatriccancer #childhoodcancer #gogoldinseptember
September 13, 2025 at 11:22 AM
livinglfs.bsky.social
💙💚 We are Living LFS 💚💙

#lifraumeni #lifraumenisyndrome #livinglfs #iamlivinglfs #lifraumenisyndromeawareness #LFSawarenessmonth #lfsawareness #lfsawarenessday #lifraumenisyndromeawareness
#lifraumenisyndromeawarenessmonth
March 23, 2026 at 12:12 PM
livinglfs.bsky.social
💙💚 We are Living LFS 💚💙

#lifraumeni #lifraumenisyndrome #livinglfs #iamlivinglfs #lifraumenisyndromeawareness #LFSawarenessmonth #lfsawareness #lfsawarenessday #lifraumenisyndromeawareness
#lifraumenisyndromeawarenessmonth
March 22, 2025 at 10:43 AM
livinglfs.bsky.social
Read the blog post here: livinglfs.org/port-a-cath-...

#lifraumeni #lifraumenisyndrome #livinglfs #iamlivinglfs #lifraumenisyndromeawareness #p53 #tp53 #tp53gene #cancergenetics #geneticcancer #geneticmutation #rarediseases #cancerfighter #portacath #port
April 20, 2025 at 9:37 AM
livinglfs.bsky.social
Knowledge is power! Share LFS Facts throughout the month of March. Learn exactly what this rare genetic disease is about!
We are Living LFS!

www.LFSawareness.com

#LFSawarenessmonth #lfsawareness #lifraumeni #lifraumenisyndrome #livinglfs #iamlivinglfs #tp53 #geneticmutation #rarediseases
March 2, 2026 at 10:58 AM
livinglfs.bsky.social
Having a rare genetic mutation means you have to do a little educating about Li-Fraumeni syndrome. Not only to family & friends but in the medical field too sometimes. And of course, yourself! Knowledge is power, and you are your own best advocate.

www.LFSawareness.com

#livinglfs #iamlivinglfs
March 3, 2025 at 11:28 AM
livinglfs.bsky.social
People with Li Fraumeni Syndrome (LFS) have mutations in a gene called TP53. Do you know the difference between P53 and TP53? We do use them interchangeably a lot. P53 refers to the protein that the gene TP53 makes.

#livinglfs #iamlivinglfs #p53 #tp53 #tp53gene #lfsawarenessmonth #lfsawarenessday
March 4, 2025 at 11:34 AM
livinglfs.bsky.social
Irení is one of our 2026 Spring Hardship Grant recipients.

#lifraumeni #lifraumenisyndrome #livinglfs #iamlivinglfs #lifraumenisyndromeawareness #lifraumenisyndromeawarenessmonth #lfsawarenessmonth #lifraumenisyndromeawarenessday
#lfsawarenessday #hardshipgrants #LFShardshipgrants
March 22, 2026 at 2:39 PM
livinglfs.bsky.social
We are so excited to see you wear your Living LFS Awareness Day gear or #WearBlueForLFS this coming Friday, March 20th!

#lifraumenisyndrome #livinglfs #iamlivinglfs #lifraumenisyndromeawareness #lifraumenisyndromeawarenessmonth #lfsawarenessmonth #lifraumenisyndromeawarenessday #lfsawarenessday
March 17, 2026 at 3:04 PM
livinglfs.bsky.social
When you're diagnosed with LFS it's recommended a specific regiment of screenings is performed. Early detection saves lives!

livinglfs.org/resources/#s...

#lifraumeni #lifraumenisyndrome #livinglfs #iamlivinglfs #lfsawarenessmonth #lfsawarenessday
March 10, 2026 at 12:04 PM
livinglfs.bsky.social
People with Li Fraumeni syndrome (LFS) have mutations in a gene called TP53. Do you know the difference between P53 and TP53? We do use them interchangeably a lot. P53 refers to the protein that the gene TP53 makes.

#livinglfs #iamlivinglfs #p53 #tp53 #tp53gene #lfsawarenessmonth #lfsawarenessday
March 3, 2026 at 12:46 PM
livinglfs.bsky.social
ONE more week until Li-Fraumeni Syndrome Awareness Month! Here are ways you can participate. Check out our website for all details and links: LFSawareness.com

#LFSawarenessmonth #LFSawarenessday #marchislfsawarenessmonth #lfsawareness #lifraumeni #lifraumenisyndrome #livinglfs #iamlivinglfs
February 23, 2026 at 12:44 PM
livinglfs.bsky.social
Today is International Childhood Cancer Day, a global campaign to raise awareness for childhood cancer and support children and their families.

#lifraumeni #lifraumenisyndrome #livinglfs #iamlivinglfs #lifraumenisyndromeawareness #InternationalChildhoodCancerDay #pediatriccancer #childhoodcancer
February 15, 2026 at 11:15 AM
livinglfs.bsky.social
Thinking of all our friends who know cancering doesn't take a break for the holidays 💙💚


#lifraumeni #lifraumenisyndrome #livinglfs #iamlivinglfs #lifraumenisyndromeawareness #p53 #tp53 #tp53gene #cancergenetics #geneticcancer #geneticmutation #rarediseases #cancerfighter
December 22, 2025 at 11:34 AM
livinglfs.bsky.social
It's official, the 2026 Living LFS Jennifer Mallory Family Camp will be at Camp Korey in Mount Vernon, Washington, August 21-24, 2026! Mark your calendars now! Registration will open on January 3, 2026. More details to come.

www.campkorey.org

#livinglfs #livinglfsfamilycamp2026 #familycamp2026
December 19, 2025 at 11:20 AM