LightNews — News, ranked by scholars

clearkatrina57.bsky.social

@clearkatrina57.bsky.social

#LupusAwareness

#LivingWithLupus

#ChronicIllness

#AutoimmuneWarrior

#LupusSupport

#HealthJourney

#InvisibleIllness

February 17, 2026 at 9:04 AM

clearkatrina57.bsky.social

@clearkatrina57.bsky.social

#LupusAwareness

#LivingWithLupus

#ChronicIllness

#AutoimmuneWarrior

#LupusSupport

#HealthJourney

#InvisibleIllness

February 17, 2026 at 9:12 AM

ACR Journals

@acr-journals.bsky.social

Applying natural language processing to Reddit posts from r/Lupus & r/LupusSupport extracted experiences of lupus-related pain, including common types of pain, management strategies, and sociocultural, affective, & nociplastic dimensions of pain

Arthritis Care & Research
doi.org/10.1002/acr....

Topic modeling top 12 most prevalent pain-related topics over time on r/Lupus and r/LupusSupport

November 5, 2025 at 5:30 PM

clearkatrina57.bsky.social

@clearkatrina57.bsky.social

#LupusAwareness

#LivingWithLupus

#ChronicIllness

#AutoimmuneWarrior

#LupusSupport

#HealthJourney

#InvisibleIllnessLUPUS CAN'T DEFINE ME

April 6, 2026 at 5:31 PM

CreakyJoints®

@creakyjoints.bsky.social

Thinking about lupus clinical trials? Join Dr. Philip Mease as he explains what clinical trials involve and how they might benefit you! Perfect for anyone considering this next step on their health journey.

🎙️ Listen Now! creakyjoints.org/clinical-tri...
#LupusSupport #ClinicalTrials #LupusChat

Clinical Trials Talks

Whether you're thinking about joining a trial or just curious about the process, this podcast offers patient-friendly insights into clinical trials.

creakyjoints.org

March 21, 2025 at 8:22 PM

Lupus UK

@lupusuk.bsky.social

Come along to our Virtual Support Groups in May. 💜

Our groups offer a safe space for individuals to learn more about #lupus and connect with others who are going through similar experiences.

Contact support@lupusuk.org.uk for more information.

#LupusSupport #SupportGroup #LupusCommunity

April 30, 2026 at 10:30 AM

Lupus UK

@lupusuk.bsky.social

The poster highlights the prevalence of people in the UK living with #lupus and signposts our support services to those who may not have heard of us.

#LupusUK #1in1000 #KnowLupus #LupusSupport #MakeLupusVisible #LupusAwareness #InvisibleIllness

May 3, 2025 at 3:02 PM

Lupus UK

@lupusuk.bsky.social

Go purple for World Lupus Day

We’d love to see what you get up to! Share your photos via DM or by tagging us or emailing Nakita@lupusuk.org.uk

#Lupus #LupusUK #1in1000 #KnowLupus #LupusSupport #LupusCommunity #MakeLupusVisible #LupusAwareness #InvisibleIllness

May 3, 2025 at 12:03 PM

Lupus UK

@lupusuk.bsky.social

Come along to our August & September Virtual Support Groups! 💻📱

Our groups offer a safe space to learn more about #lupus and connect with others who are going through similar experiences. Email Support@LupusUK.org.uk for more. 💜

#LupusSupport #SupportGroup #LupusCommunity

August 3, 2026 at 12:30 PM

Lupus UK

@lupusuk.bsky.social

You can contact us, and we will respond during our operating hours, Monday - Friday from 9am - 5pm.
📨Email: support@lupusuk.org.uk
📞Phone: 01708 731251 (please leave a message)

Lupus can be lonely, but you are not alone. 💜

#WorldLupusDay #LupusSupport #MakeLupusVisible #LupusAwareness

May 10, 2026 at 11:02 AM

Lupus UK

@lupusuk.bsky.social

If you are unable to attend a focus group but would still like to share your views, you can complete our "Living with lupus" survey here: https://www.surveymonkey.com/r/lupusuk-survey-social

Thank you 💜

(3/3)

#Lupus #SLE #LupusCommunity #LupusSupport #Survey #PatientSurvey #FocusGroup

March 13, 2025 at 5:35 PM

geekykool.bsky.social

@geekykool.bsky.social

Help Support Geeky KOOL’s Morgan Straughan Comnick

www.geekykool.com/help-support...

#SupportMorgan
#CommunitySupport
#StrongerTogether
#GoFundMe
#Fundraising
#MutualAid
#PayItForward
#LupusWarrior
#LupusAwareness
#SpoonieSupport
#ChronicIllness
#InvisibleIllness
#LupusSupport

Help Support Geeky KOOL's Morgan Straughan Comnick - Geeky KOOL

At Geeky KOOL, we are more than just a team—we are a family. Today, we are reaching out to our community to ask for support for one of our own:

www.geekykool.com

March 14, 2026 at 10:52 PM

Lupus UK

@lupusuk.bsky.social

✉️ Please get in touch with Georgia@LupusUK.org.uk by Monday 28 September to find out more.

#LupusAwarenessMonth #LupusSupport #LupusCommunity

September 18, 2026 at 4:40 PM

Lupus UK

@lupusuk.bsky.social

All questions are optional and the survey is anonymous. Please email any questions to HeadOffice@LupusUK.org.uk.

For more information, visit https://lupusuk.org.uk/2025/03/04/survey/

#Lupus #SLE #LupusCommunity #LupusSupport #PatientSurvey

Your life with lupus: what you need, what you want | Lupus UK

Your life with lupus: what you need, what you want by Nakita | Mar 4, 2025 | Blog, Latest News Lupus UK is 35 years old in 2025, and we are taking this opportunity to develop our aims and priorities for the coming years. Your voice matters, and we are listening. We want to understand the needs and w...

lupusuk.org.uk

March 4, 2025 at 2:35 PM

Lupus UK

@lupusuk.bsky.social

Living with #lupus or supporting a loved one, awaiting a diagnosis, or live with an associated condition?

Come along to the Lupus UK Devon & Cornwall Online Community Virtual Meet!

🗓️Wednesday 23rd September
🕧 12pm-1pm
💻📱Online

👉 Sign up: Infoday@lupusuk.org.uk

#Devon #Cornwall #LupusSupport

September 16, 2026 at 9:04 AM

Lupus UK

@lupusuk.bsky.social

For more information and details on signing up or staying informed about future support groups, email Support@LupusUK.org.uk💜

#LupusSupport #SupportGroup #LupusCommunity

September 9, 2026 at 1:03 PM

Lupus UK

@lupusuk.bsky.social

You can contact us via:
📨 Email: support@lupusuk.org.uk
📞 Phone: 01708 731251 (please leave a message)
🌐 Web: https://lupusuk.org.uk/contact-us/

🔗For more information, visit https://lupusuk.org.uk/need-to-talk/

#LupusSupport #LupusDiagnosis