If MCAS saved this plane I'm going to lose it
September 30, 2026 at 11:31 PM
If MCAS saved this plane I'm going to lose it
Related: if anyone WITH MCAS has recs for meal replacement drinks that don't contain MCAS triggers I'd love links (from people WITH MCAS ONLY, I do not have the energy to explain repeatedly why 99% of options are impossible)
Note to everyone I have texts/emails outstanding from bc it's easier than individual responses: I'm gonna be super slow to respond because the embodiment bullshit is rapidly escalating and I am clinging to "functional" by my very battered fingernails, I am hoping to get SOME relief soonish --
April 15, 2026 at 12:32 PM
Related: if anyone WITH MCAS has recs for meal replacement drinks that don't contain MCAS triggers I'd love links (from people WITH MCAS ONLY, I do not have the energy to explain repeatedly why 99% of options are impossible)
So if you've got a weird symptom that fits with MCAS, there's a very good chance it's MCAS.
September 29, 2026 at 3:23 PM
So if you've got a weird symptom that fits with MCAS, there's a very good chance it's MCAS.
On to #MCAS.
MCAS is very challenging to diagnose, and mast cells can release hundreds of mediators, potentially, it's not all about tryptase levels.
Lots of crossover with MCAS, #LongCOVID, #MECFS.
MCAS is very challenging to diagnose, and mast cells can release hundreds of mediators, potentially, it's not all about tryptase levels.
Lots of crossover with MCAS, #LongCOVID, #MECFS.
September 5, 2025 at 6:07 PM
On to #MCAS.
MCAS is very challenging to diagnose, and mast cells can release hundreds of mediators, potentially, it's not all about tryptase levels.
Lots of crossover with MCAS, #LongCOVID, #MECFS.
MCAS is very challenging to diagnose, and mast cells can release hundreds of mediators, potentially, it's not all about tryptase levels.
Lots of crossover with MCAS, #LongCOVID, #MECFS.
MCAS life
September 29, 2026 at 4:17 PM
MCAS life
lol massive MCAS episode as soon as they hit me with the contrast and now they're freaking
September 12, 2025 at 6:38 PM
lol massive MCAS episode as soon as they hit me with the contrast and now they're freaking
For my MCAS friends 💓
October 11, 2025 at 10:09 PM
For my MCAS friends 💓
The grocery store has a giant bowl of cut up fruit on special that HAS NO STRAWBERRIES IN IT. (Say it with me: they're a MCAS trigger and I'm allergic!)
December 20, 2025 at 9:31 PM
The grocery store has a giant bowl of cut up fruit on special that HAS NO STRAWBERRIES IN IT. (Say it with me: they're a MCAS trigger and I'm allergic!)
20% have MCAS? As in that many people have this ticking time bomb and don’t know? Fuck.
September 29, 2026 at 3:05 PM
20% have MCAS? As in that many people have this ticking time bomb and don’t know? Fuck.
Oh my God. A contractor for the state of #Massachusetts used AI to score MCAS standardized tests. It resulted in incorrect scores on about 1,400 tests, which had to be rescored.
#mapoli
#mapoli
'No rhyme or reason': AI grading issue affects hundreds of MCAS essays
The use of AI to score Massachusetts’ standardized MCAS tests resulted in errors that affected hundreds of exams, the NBC10 Investigators learned.
www.nbcboston.com
September 13, 2025 at 2:45 AM
Oh my God. A contractor for the state of #Massachusetts used AI to score MCAS standardized tests. It resulted in incorrect scores on about 1,400 tests, which had to be rescored.
#mapoli
#mapoli
So in most people who don't have actual MCAS, the reaction to Novavax will *probably* be lesser. But the spike protein is still a mast cell degranulation trigger, and MCAS is *really* underdiagnosed (the guess at true prevalence by the consensus-2 diagnostic standard is about 15-17%!)
September 29, 2026 at 2:51 PM
So in most people who don't have actual MCAS, the reaction to Novavax will *probably* be lesser. But the spike protein is still a mast cell degranulation trigger, and MCAS is *really* underdiagnosed (the guess at true prevalence by the consensus-2 diagnostic standard is about 15-17%!)
This is probably because MCAS is a sensitizing disorder and a lot of long COVID behaves almost identically to MCAS: the likelihood is the people with the MCAS-like long COVID had a predilection to it before and enough exposures to mast cell sensitizers was enough to activate the disease.
September 21, 2025 at 9:10 PM
This is probably because MCAS is a sensitizing disorder and a lot of long COVID behaves almost identically to MCAS: the likelihood is the people with the MCAS-like long COVID had a predilection to it before and enough exposures to mast cell sensitizers was enough to activate the disease.
MY CLINIC DOCTOR KNEW WHAT MCAS WAS AND SUGGESTED IT HERSELF, BAM WE’RE COOKING WITH GAS BAYBEEEE
September 17, 2025 at 7:09 PM
MY CLINIC DOCTOR KNEW WHAT MCAS WAS AND SUGGESTED IT HERSELF, BAM WE’RE COOKING WITH GAS BAYBEEEE
only 34 weeks average wait to see the allergy consultant query MCAS!
April 1, 2026 at 6:21 PM
only 34 weeks average wait to see the allergy consultant query MCAS!
Ceterizine recall y'all
"The recalled medication is distributed by Rising Pharma Holdings Inc. and comes in 100-tablet HDPE bottles with NDC number 16571-401-10. The affected lot numbers are GY825029, GY825030, GY825031, and GY825032, all with expiration dates of October 2028."
#NEISvoid
#MCAS
"The recalled medication is distributed by Rising Pharma Holdings Inc. and comes in 100-tablet HDPE bottles with NDC number 16571-401-10. The affected lot numbers are GY825029, GY825030, GY825031, and GY825032, all with expiration dates of October 2028."
#NEISvoid
#MCAS
From the MCAS community on Reddit: Nationwide Recall Issued for Cetirizine Allergy Tablets Over Contamination Risk
Explore this post and more from the MCAS community
www.reddit.com
July 22, 2026 at 1:05 AM
March 30, 2025 at 10:18 AM
I love whenever I mention this, someone always has this "oh my god, WHAT" reaction! Citations:
pubmed.ncbi.nlm.nih.gov/32324159/
pubmed.ncbi.nlm.nih.gov/42240520/
Screenshot is from second paper. Primary author on both (Afrin) is basically THE most knowledgeable person in the world about MCAS.
pubmed.ncbi.nlm.nih.gov/32324159/
pubmed.ncbi.nlm.nih.gov/42240520/
Screenshot is from second paper. Primary author on both (Afrin) is basically THE most knowledgeable person in the world about MCAS.
![An alternative perspective, now called "consensus-2" [25, 50] (Table 1), emerged almost simultaneously but regards MCAS as prevalent (approximately 17-20% of the Western population) [15, 51] and commonly presenting with diverse manifestations stemming from diverse profiles of aberrant release of MC mediators with very diverse effects [52, 53].](https://cdn.bsky.app/img/feed_thumbnail/plain/did:plc:ocsbmyulc2grbq3esflddyj6/bafkreiau6aluv6pnsr453oixc67rwjnwo2sre7w76fmk5hf2ivwaoaa4hq)
September 29, 2026 at 3:03 PM
I love whenever I mention this, someone always has this "oh my god, WHAT" reaction! Citations:
pubmed.ncbi.nlm.nih.gov/32324159/
pubmed.ncbi.nlm.nih.gov/42240520/
Screenshot is from second paper. Primary author on both (Afrin) is basically THE most knowledgeable person in the world about MCAS.
pubmed.ncbi.nlm.nih.gov/32324159/
pubmed.ncbi.nlm.nih.gov/42240520/
Screenshot is from second paper. Primary author on both (Afrin) is basically THE most knowledgeable person in the world about MCAS.
Heute ist #MCASAwarenessDay.
Und noch immer gilt:
Wer an MCAS leidet, kämpft nicht nur gegen den eigenen Körper – sondern auch gegen Unwissen, Vorurteile und medizinische Ignoranz.
#MCAS steht für Mastzellaktivierungssyndrom, eine Erkrankung, bei der sogenannte Mastzellen im Körper
1/4
Und noch immer gilt:
Wer an MCAS leidet, kämpft nicht nur gegen den eigenen Körper – sondern auch gegen Unwissen, Vorurteile und medizinische Ignoranz.
#MCAS steht für Mastzellaktivierungssyndrom, eine Erkrankung, bei der sogenannte Mastzellen im Körper
1/4
October 20, 2025 at 12:34 PM
Heute ist #MCASAwarenessDay.
Und noch immer gilt:
Wer an MCAS leidet, kämpft nicht nur gegen den eigenen Körper – sondern auch gegen Unwissen, Vorurteile und medizinische Ignoranz.
#MCAS steht für Mastzellaktivierungssyndrom, eine Erkrankung, bei der sogenannte Mastzellen im Körper
1/4
Und noch immer gilt:
Wer an MCAS leidet, kämpft nicht nur gegen den eigenen Körper – sondern auch gegen Unwissen, Vorurteile und medizinische Ignoranz.
#MCAS steht für Mastzellaktivierungssyndrom, eine Erkrankung, bei der sogenannte Mastzellen im Körper
1/4
But I'm so loud about MCAS because it was underdiagnosed even before COVID and COVID is enough of a mast cell sensitizing event that a LOT of people with subclinical MCAS are having it triggered post-COVID because MCAS is a sensitizing disorder, etc.
August 21, 2025 at 7:53 PM
But I'm so loud about MCAS because it was underdiagnosed even before COVID and COVID is enough of a mast cell sensitizing event that a LOT of people with subclinical MCAS are having it triggered post-COVID because MCAS is a sensitizing disorder, etc.
May 10, 2026 at 11:44 AM
MCAS and Histamine: Diet isn’t the Only Answer
Often people think of MCAS as only impacting histamine. They adopt a restrictive low histamine diet - but don’t improve.
This article explains why that is and explores other lifestyle modifications and tips to reduce flare ups:
/9
Often people think of MCAS as only impacting histamine. They adopt a restrictive low histamine diet - but don’t improve.
This article explains why that is and explores other lifestyle modifications and tips to reduce flare ups:
/9
MCAS and Histamine - Diet isn't the ONLY Answer
Mast Cell Activation Syndrome is a beast of a condition that can impact every part of your life. The good news is there are many things you can do on your own to improve symptoms and reduce flares.
www.disabledginger.com
December 7, 2024 at 3:29 AM
MCAS and Histamine: Diet isn’t the Only Answer
Often people think of MCAS as only impacting histamine. They adopt a restrictive low histamine diet - but don’t improve.
This article explains why that is and explores other lifestyle modifications and tips to reduce flare ups:
/9
Often people think of MCAS as only impacting histamine. They adopt a restrictive low histamine diet - but don’t improve.
This article explains why that is and explores other lifestyle modifications and tips to reduce flare ups:
/9
If you’re dealing with Long Covid - there’s a chance you’re also dealing with MCAS and/or POTS/Dysautonomia.
They’re two of the most common comorbids - and can have a devastating impact on quality of life.
New allergies? Alcohol intolerance? Dizziness? Fatigue? Fainting?
A mega 🧵 of resources
They’re two of the most common comorbids - and can have a devastating impact on quality of life.
New allergies? Alcohol intolerance? Dizziness? Fatigue? Fainting?
A mega 🧵 of resources
December 7, 2024 at 3:28 AM
If you’re dealing with Long Covid - there’s a chance you’re also dealing with MCAS and/or POTS/Dysautonomia.
They’re two of the most common comorbids - and can have a devastating impact on quality of life.
New allergies? Alcohol intolerance? Dizziness? Fatigue? Fainting?
A mega 🧵 of resources
They’re two of the most common comorbids - and can have a devastating impact on quality of life.
New allergies? Alcohol intolerance? Dizziness? Fatigue? Fainting?
A mega 🧵 of resources
ADHS, PTBS, ME/CFS, POTS, MCAS.
Ich fühle mich wie ein Abkürzungssammelalbum.
Ich fühle mich wie ein Abkürzungssammelalbum.
January 3, 2026 at 9:33 PM
ADHS, PTBS, ME/CFS, POTS, MCAS.
Ich fühle mich wie ein Abkürzungssammelalbum.
Ich fühle mich wie ein Abkürzungssammelalbum.
vom Bildungssystem fallen gelassen, wahlweise ignoriert, stigmatisiert, vorverurteilt und in Lebensgefahr gebracht.
Betroffene verhungern unbehandelt im MCAS-Schub, während Hausärzte die Behandlung ablehnen weil die betroffene Person „sich weigert“ Hilfe (=Psychotherapie) anzunehmen, da sie ja
Betroffene verhungern unbehandelt im MCAS-Schub, während Hausärzte die Behandlung ablehnen weil die betroffene Person „sich weigert“ Hilfe (=Psychotherapie) anzunehmen, da sie ja
September 30, 2026 at 1:35 PM
vom Bildungssystem fallen gelassen, wahlweise ignoriert, stigmatisiert, vorverurteilt und in Lebensgefahr gebracht.
Betroffene verhungern unbehandelt im MCAS-Schub, während Hausärzte die Behandlung ablehnen weil die betroffene Person „sich weigert“ Hilfe (=Psychotherapie) anzunehmen, da sie ja
Betroffene verhungern unbehandelt im MCAS-Schub, während Hausärzte die Behandlung ablehnen weil die betroffene Person „sich weigert“ Hilfe (=Psychotherapie) anzunehmen, da sie ja
So yeah, whether you have MCAS or not, meh, who knows: you clearly have SOMETHING that gets better when you treat it like MCAS, and treating it like MCAS is low-risk, so!
May 11, 2026 at 5:34 PM
So yeah, whether you have MCAS or not, meh, who knows: you clearly have SOMETHING that gets better when you treat it like MCAS, and treating it like MCAS is low-risk, so!