💻Online-Fachvortrag: “#ME/CFS richtig einordnen: Zur Abgrenzung von psychischen Erkrankungen und zur Rolle der Psychotherapie"🩺
Am 2.12.25, 18:30-20:00Uhr wird Bettina Grande einen Fachvortrag halten, für den 2 Fortbildungseinheiten anrechenbar sind.
Nähere Infos:
👉 mecfs.at/aerztinnen/...
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Am 2.12.25, 18:30-20:00Uhr wird Bettina Grande einen Fachvortrag halten, für den 2 Fortbildungseinheiten anrechenbar sind.
Nähere Infos:
👉 mecfs.at/aerztinnen/...
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November 23, 2025 at 11:17 AM
📣📢Protestaktion 12.Mai📣📢
In 🇦🇹 gibt es mehr #ME/CFS Betroffene als Plätze im Ernst-Happel-Stadion!
Schon vor der Pandemie waren zwischen 26.000 - 80.000 Menschen in 🇦🇹 von ME/CFS betroffen. Expert:innen gehen davon aus, dass sich diese Zahl seit der Pandemie mindestens verdoppelt hat.
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In 🇦🇹 gibt es mehr #ME/CFS Betroffene als Plätze im Ernst-Happel-Stadion!
Schon vor der Pandemie waren zwischen 26.000 - 80.000 Menschen in 🇦🇹 von ME/CFS betroffen. Expert:innen gehen davon aus, dass sich diese Zahl seit der Pandemie mindestens verdoppelt hat.
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April 26, 2025 at 8:23 PM
1) There's a new review on Long Covid by Mark Faghy and (many familiar) co-authors.
I wanted to zoom in on their section on post-exertional malaise (PEM). I'm a bit skeptical, for example, about their statement that 50-80% of Long Covid patients experience PEM.
I wanted to zoom in on their section on post-exertional malaise (PEM). I'm a bit skeptical, for example, about their statement that 50-80% of Long Covid patients experience PEM.
May 2, 2026 at 10:33 AM
1) 🇸🇪 A Swedish study of 111 ME/CFS patients found reduced levels of vasopressin, a hormone that regulates water retention.
Low vasopressin could lead to low blood volume and some of the orthostatic symptoms that ME/CFS patients report.
Low vasopressin could lead to low blood volume and some of the orthostatic symptoms that ME/CFS patients report.
January 4, 2026 at 1:22 AM
Zu #MECFS gibt es heute gleich zwei gute Nachrichten aus Österreich:
1. ME/CFS ist im Regierungsprogramm von ÖVP, @spoe.at und @neos.eu verankert.
bsky.app/profile/mecf...
1. ME/CFS ist im Regierungsprogramm von ÖVP, @spoe.at und @neos.eu verankert.
bsky.app/profile/mecf...
February 27, 2025 at 6:39 PM
Zu #MECFS gibt es heute gleich zwei gute Nachrichten aus Österreich:
1. ME/CFS ist im Regierungsprogramm von ÖVP, @spoe.at und @neos.eu verankert.
bsky.app/profile/mecf...
1. ME/CFS ist im Regierungsprogramm von ÖVP, @spoe.at und @neos.eu verankert.
bsky.app/profile/mecf...
1) 🧬 New results from the LOCOME project. It applied the combinatorial analytics of PrecisionLife on data from DecodeME.
The 259 genes that were most associated with ME/CFS pointed to "neurological dysregulation, inflammation, cellular stress responses, and calcium signaling"
The 259 genes that were most associated with ME/CFS pointed to "neurological dysregulation, inflammation, cellular stress responses, and calcium signaling"
December 6, 2025 at 4:30 PM
1) A new study by the group of Benjamin Natelson reports abnormal breathing patterns in ME/CFS patients during an exercise test.
42% met the criteria for dysfunctional breathing compared to 16% in controls.
42% met the criteria for dysfunctional breathing compared to 16% in controls.
November 11, 2025 at 3:26 PM
6) The most interesting result was on chromosome 13 because it matched with expression of the gene CLYBL in the brain region called the putamen (part of the basal ganglia).
CLYBL encodes a mitochondrial enzyme and is involved in vitamin B12 metabolism.
CLYBL encodes a mitochondrial enzyme and is involved in vitamin B12 metabolism.
September 18, 2026 at 11:14 AM
1) New sociology paper on severe ME/CFS. The authors analyzed 342 messages on Twitter/X to get insights into the daily reality of people with severe ME/CFS.
They highlight the feeling of being trapped by the illness, profound isolation and longing for the outside world.
They highlight the feeling of being trapped by the illness, profound isolation and longing for the outside world.
November 27, 2025 at 5:52 PM
1) In-depth Canadian study on 78 Long Covid patients with ME/CFS. They compared these to 62 controls who were infected by SARS-CoV-2 but did not develop complications.
Too many findings to mention them all, but here are some interesting results...
Too many findings to mention them all, but here are some interesting results...
November 12, 2025 at 5:13 PM
1) An overview of positive developments in ME/CFS research 👇
The European Union awarded €7.5 to a ME/CFS consortium that will conduct multi-omics and test biomarkers in hundreds of patients. It will connect and harmonize five biobanks across the continent.
bsky.app/profile/mecf...
The European Union awarded €7.5 to a ME/CFS consortium that will conduct multi-omics and test biomarkers in hundreds of patients. It will connect and harmonize five biobanks across the continent.
bsky.app/profile/mecf...
1) 🇪🇺 Good news! The European Union has awarded € 7.5 million for a big ME/CFS consortium that will study biological mechanisms in hundreds of patients.
This is a major milestone for ME/CFS research in Europe.
This is a major milestone for ME/CFS research in Europe.
July 5, 2026 at 10:11 AM
1) An overview of positive developments in ME/CFS research 👇
The European Union awarded €7.5 to a ME/CFS consortium that will conduct multi-omics and test biomarkers in hundreds of patients. It will connect and harmonize five biobanks across the continent.
bsky.app/profile/mecf...
The European Union awarded €7.5 to a ME/CFS consortium that will conduct multi-omics and test biomarkers in hundreds of patients. It will connect and harmonize five biobanks across the continent.
bsky.app/profile/mecf...
Thread zur Studie: bsky.app/profile/mecf...
1) Had a closer look at the BioMapAI paper in Nature Medicine that is getting a lot of media coverage.
The research group of Derya Unutmaz (@DeryaTR_) and Julia Oh at The Jackson Laboratory created an impressive rich dataset and analyzed it using a deep neural network.
The research group of Derya Unutmaz (@DeryaTR_) and Julia Oh at The Jackson Laboratory created an impressive rich dataset and analyzed it using a deep neural network.
July 27, 2025 at 8:08 AM
Thread zur Studie: bsky.app/profile/mecf...
1) This study from Cornell University tested more than 6000 proteins before and after two exercise tests.
It found altered patterns in ME/CFS patients compared to controls, particularly in proteins involved in the immune system, signal transduction, and muscle contraction.
It found altered patterns in ME/CFS patients compared to controls, particularly in proteins involved in the immune system, signal transduction, and muscle contraction.
November 16, 2025 at 2:12 PM
Yes the most powerful is now 7 Tesla, which has been used in a couple of ME/CFS studies:
See:
bsky.app/profile/mecf...
bsky.app/profile/mecf...
See:
bsky.app/profile/mecf...
bsky.app/profile/mecf...
1) 🇦🇺 Australian researchers measured connectivity between brain regions during a cognitive task. They put healthy controls, ME/CFS patients and Long Covid patients in a powerful 7 Tesla MRI scanner.
The controls showed increased connectivity, while the patients did not.
The controls showed increased connectivity, while the patients did not.
March 20, 2026 at 12:43 PM
Yes the most powerful is now 7 Tesla, which has been used in a couple of ME/CFS studies:
See:
bsky.app/profile/mecf...
bsky.app/profile/mecf...
See:
bsky.app/profile/mecf...
bsky.app/profile/mecf...
1) 🇩🇪 Researchers from Munich tested microcirculation in the eyes of Long Covid patients.
They weren't interested in eyesight, but used the eye to study circulation and endothelial function in the brain. They call it a "accessible surrogate of cerebral microvascular function"
They weren't interested in eyesight, but used the eye to study circulation and endothelial function in the brain. They call it a "accessible surrogate of cerebral microvascular function"
February 1, 2026 at 5:39 PM
1) 🧬 New results from the LOCOME project. It applied the combinatorial analytics of PrecisionLife on data from DecodeME.
The 259 genes that were most associated with ME/CFS pointed to "neurological dysregulation, inflammation, cellular stress responses, and calcium signaling"
The 259 genes that were most associated with ME/CFS pointed to "neurological dysregulation, inflammation, cellular stress responses, and calcium signaling"
December 5, 2025 at 2:58 PM
1) "Given the lack of sound research support for graded exercise therapy in ME/CFS, the contraindication of graded exercise therapy by best practice guidelines in the US and the UK and patient reports of iatrogenic harm, the RACGP guideline [..] should be withdrawn immediately."
March 6, 2026 at 5:11 PM
1) Two age peaks: a fascinating paper confirmed two peaks for when people get ME/CFS: around 16 years old and in the mid thirties.
The early onset in adolescence was associated with severe ME/CFS, an infectious onset, and having relatives with the disease.
A brief summary...
The early onset in adolescence was associated with severe ME/CFS, an infectious onset, and having relatives with the disease.
A brief summary...
March 23, 2026 at 5:55 PM
1) 🇩🇪 The university hospital of Regensburg looked at the effect of general analgesia in 15 ME/CFS patients and matched controls.
No severe hypotension or perioperative adverse events were found although ME/CFS patients had a higher increase in pain afterwards.
No severe hypotension or perioperative adverse events were found although ME/CFS patients had a higher increase in pain afterwards.
April 10, 2026 at 2:44 PM
8) In Australia, Dr. Christopher Armstrong’s team received $1 in government funding for their project "Energy inefficiency in Long COVID and ME/CFS."
bsky.app/profile/mecf...
bsky.app/profile/mecf...
1) 🇦🇺 Some good news: Dr. Christopher Armstrong and his team received $1 million from the Australian government’s Medical Research Future Fund (MRFF) for their project "Energy inefficiency in Long COVID and ME/CFS."
July 5, 2026 at 10:11 AM
8) In Australia, Dr. Christopher Armstrong’s team received $1 in government funding for their project "Energy inefficiency in Long COVID and ME/CFS."
bsky.app/profile/mecf...
bsky.app/profile/mecf...
1) A small in-depth study found B-cells from ME/CFS patients to have more lipids. The authors write:"To our surprise, ME/CFS LCLs exhibited an accumulation of lipids including fatty acids"
This could indicate a metabolic deficit or differences in B-cell signalling and receptors
This could indicate a metabolic deficit or differences in B-cell signalling and receptors
January 17, 2026 at 5:36 PM
1) A research team from Arizona university used Invasive cardiopulmonary exercise testing (iCPET) in ME/CFS and Long Covid patients.
They found that muscle oxygen diffusion was the most impaired parameter.
They found that muscle oxygen diffusion was the most impaired parameter.
September 4, 2025 at 5:43 PM
Really, this? Still??
It's hard enough to get appropriate care without self-professed "experts" telling medical students why we don't need appropriate care.
#MECF #healthcare #MillionsMissing #disability
It's hard enough to get appropriate care without self-professed "experts" telling medical students why we don't need appropriate care.
#MECF #healthcare #MillionsMissing #disability
🧵
"Updated Medical Textbook Still Promotes Biopsychosocial Ideology" By David Tuller @davetuller1.bsky.social
virology.ws/2025/07/04/t...
#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME
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"Updated Medical Textbook Still Promotes Biopsychosocial Ideology" By David Tuller @davetuller1.bsky.social
virology.ws/2025/07/04/t...
#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME
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July 5, 2025 at 4:38 PM
Really, this? Still??
It's hard enough to get appropriate care without self-professed "experts" telling medical students why we don't need appropriate care.
#MECF #healthcare #MillionsMissing #disability
It's hard enough to get appropriate care without self-professed "experts" telling medical students why we don't need appropriate care.
#MECF #healthcare #MillionsMissing #disability
5) The German government has launched the ‘Decade against post-infectious diseases’. They plan to spend € 500 million in research on ME/CFS and Long Covid.
bsky.app/profile/mecf...
bsky.app/profile/mecf...
1) 🇩🇪 Some really good news! Germany plans to invest half a billion euros in research on diseases such as ME/CFS and Long Covid.
They are calling it "The National Decade Against Post-Infectious Diseases"
They are calling it "The National Decade Against Post-Infectious Diseases"
July 5, 2026 at 10:11 AM
5) The German government has launched the ‘Decade against post-infectious diseases’. They plan to spend € 500 million in research on ME/CFS and Long Covid.
bsky.app/profile/mecf...
bsky.app/profile/mecf...
1) Saw some skepticism about DecodeME, asking if it is overhyped.
As an account that focuses on critically analyzing research (our name was 'ME/CFS Skeptic' for a reason!), we think it’s the real deal.
Here are a couple of reasons why it stands out. 🧵
As an account that focuses on critically analyzing research (our name was 'ME/CFS Skeptic' for a reason!), we think it’s the real deal.
Here are a couple of reasons why it stands out. 🧵
August 10, 2025 at 1:09 PM