#MECharter meeting with an ICB this morning.
Resting beforehand so I can articulate the need effectively 💪
#pwME #MEcfs
Resting beforehand so I can articulate the need effectively 💪
#pwME #MEcfs
March 7, 2025 at 8:39 AM
#MECharter meeting with an ICB this morning.
Resting beforehand so I can articulate the need effectively 💪
#pwME #MEcfs
Resting beforehand so I can articulate the need effectively 💪
#pwME #MEcfs
With the M.E.-Friendly Hospital Charter, hospitals can provide better care for M.E. patients. Start the conversation with your health org today—change is possible!
https://buff.ly/3YUOvhV (link on bio)
#pwME #MECharter
https://buff.ly/3YUOvhV (link on bio)
#pwME #MECharter
November 7, 2024 at 7:56 PM
With the M.E.-Friendly Hospital Charter, hospitals can provide better care for M.E. patients. Start the conversation with your health org today—change is possible!
https://buff.ly/3YUOvhV (link on bio)
#pwME #MECharter
https://buff.ly/3YUOvhV (link on bio)
#pwME #MECharter
🚨 Every hospital should be M.E.-friendly! Raise awareness by asking your local health org to adopt our M.E.-Friendly Hospital Charter for better, safer care for all with M.E.
More info and resources - https://buff.ly/4emZwND
#pwME #MECharter
More info and resources - https://buff.ly/4emZwND
#pwME #MECharter
November 16, 2024 at 1:06 PM
🚨 Every hospital should be M.E.-friendly! Raise awareness by asking your local health org to adopt our M.E.-Friendly Hospital Charter for better, safer care for all with M.E.
More info and resources - https://buff.ly/4emZwND
#pwME #MECharter
More info and resources - https://buff.ly/4emZwND
#pwME #MECharter
🌍 People with M.E. face unique challenges in hospitals. The M.E.-Friendly Hospital Charter outlines vital steps for safe, respectful care. Let's make this change happen locally!
More info and resources - https://buff.ly/4emZwND
#pwME #MEcfs #MECharter
More info and resources - https://buff.ly/4emZwND
#pwME #MEcfs #MECharter
November 28, 2024 at 7:10 PM
🌍 People with M.E. face unique challenges in hospitals. The M.E.-Friendly Hospital Charter outlines vital steps for safe, respectful care. Let's make this change happen locally!
More info and resources - https://buff.ly/4emZwND
#pwME #MEcfs #MECharter
More info and resources - https://buff.ly/4emZwND
#pwME #MEcfs #MECharter
In Foggy HQ.....
#MECharter in da house!!
If you don't know what the M.E. Charter is check out mefoggydog.org
#pwME #MEcfs
#MECharter in da house!!
If you don't know what the M.E. Charter is check out mefoggydog.org
#pwME #MEcfs
April 3, 2025 at 1:31 PM
In Foggy HQ.....
#MECharter in da house!!
If you don't know what the M.E. Charter is check out mefoggydog.org
#pwME #MEcfs
#MECharter in da house!!
If you don't know what the M.E. Charter is check out mefoggydog.org
#pwME #MEcfs
Every regional healthcare organisation across the whole of the UK has now been contacted by me with details of the #MECharter and a request for a meeting.
I have meetings booked in with some orgs from 3 of the 4 nations 💪
N.I. emails sent today.
Let's talk.
#pwME
I have meetings booked in with some orgs from 3 of the 4 nations 💪
N.I. emails sent today.
Let's talk.
#pwME
February 11, 2025 at 12:31 PM
Every regional healthcare organisation across the whole of the UK has now been contacted by me with details of the #MECharter and a request for a meeting.
I have meetings booked in with some orgs from 3 of the 4 nations 💪
N.I. emails sent today.
Let's talk.
#pwME
I have meetings booked in with some orgs from 3 of the 4 nations 💪
N.I. emails sent today.
Let's talk.
#pwME
Whoop!
We are very pleased to launch our 'secret project'!!
Introducing the 'M.E.-Friendly Hospital Charter'!!! https://buff.ly/3C3hWFK
Collaborative work between ME Foggy Dog, Stripy Lightbulb CIC, the M.E. community, various stakeholders, and @Sanphire.
#MECharter #pwME #MEcfs
We are very pleased to launch our 'secret project'!!
Introducing the 'M.E.-Friendly Hospital Charter'!!! https://buff.ly/3C3hWFK
Collaborative work between ME Foggy Dog, Stripy Lightbulb CIC, the M.E. community, various stakeholders, and @Sanphire.
#MECharter #pwME #MEcfs
October 29, 2024 at 11:30 AM
Whoop!
We are very pleased to launch our 'secret project'!!
Introducing the 'M.E.-Friendly Hospital Charter'!!! https://buff.ly/3C3hWFK
Collaborative work between ME Foggy Dog, Stripy Lightbulb CIC, the M.E. community, various stakeholders, and @Sanphire.
#MECharter #pwME #MEcfs
We are very pleased to launch our 'secret project'!!
Introducing the 'M.E.-Friendly Hospital Charter'!!! https://buff.ly/3C3hWFK
Collaborative work between ME Foggy Dog, Stripy Lightbulb CIC, the M.E. community, various stakeholders, and @Sanphire.
#MECharter #pwME #MEcfs
RSPB, #MECharter, and #PIP are all on my agenda today.
Link to Diane Abbott's Westminster Hall debate is in next post 👇
#PwME #DisabilityCutsKill
Link to Diane Abbott's Westminster Hall debate is in next post 👇
#PwME #DisabilityCutsKill
May 7, 2025 at 8:53 AM
RSPB, #MECharter, and #PIP are all on my agenda today.
Link to Diane Abbott's Westminster Hall debate is in next post 👇
#PwME #DisabilityCutsKill
Link to Diane Abbott's Westminster Hall debate is in next post 👇
#PwME #DisabilityCutsKill
It went REALLY well
'I can't see why we wouldn't implement it. It's free and will lead to kindness, dignity, and respect for a patient community. Leave it with me'.
#pwME #MECharter
'I can't see why we wouldn't implement it. It's free and will lead to kindness, dignity, and respect for a patient community. Leave it with me'.
#pwME #MECharter
a close up of a woman 's face with her hand on her face
ALT: a close up of a woman 's face with her hand on her face
media.tenor.com
February 7, 2025 at 10:36 AM
It went REALLY well
'I can't see why we wouldn't implement it. It's free and will lead to kindness, dignity, and respect for a patient community. Leave it with me'.
#pwME #MECharter
'I can't see why we wouldn't implement it. It's free and will lead to kindness, dignity, and respect for a patient community. Leave it with me'.
#pwME #MECharter
Another very positive #MECharter meeting was had 🥳
In the 'UK nations regional healthcare org Charter engagement league'......
Wales is top!
Scotland is in 2nd place.
Come on England and Northern Ireland...catch up!
#pwME #MEcfs
In the 'UK nations regional healthcare org Charter engagement league'......
Wales is top!
Scotland is in 2nd place.
Come on England and Northern Ireland...catch up!
#pwME #MEcfs
April 1, 2025 at 2:58 PM
Another very positive #MECharter meeting was had 🥳
In the 'UK nations regional healthcare org Charter engagement league'......
Wales is top!
Scotland is in 2nd place.
Come on England and Northern Ireland...catch up!
#pwME #MEcfs
In the 'UK nations regional healthcare org Charter engagement league'......
Wales is top!
Scotland is in 2nd place.
Come on England and Northern Ireland...catch up!
#pwME #MEcfs
Thank you to Hannah from The Canary for writing an article about our new project! 😍
Read all about the 'M.E.-Friendly Hospital Charter' below
thecanary.co/uk/news/2024...
#MECharter #BedForSevereME #pwME #SevereME
Read all about the 'M.E.-Friendly Hospital Charter' below
thecanary.co/uk/news/2024...
#MECharter #BedForSevereME #pwME #SevereME
A long-term ME/CFS campaigner just launched a hospital care charter for ME - and it’s already taking off
A long-term ME/CFS campaigner has launched a hospital charter for ME to ensure patient-centred care - and the NHS is already engaging.
thecanary.co
October 29, 2024 at 4:12 PM
Thank you to Hannah from The Canary for writing an article about our new project! 😍
Read all about the 'M.E.-Friendly Hospital Charter' below
thecanary.co/uk/news/2024...
#MECharter #BedForSevereME #pwME #SevereME
Read all about the 'M.E.-Friendly Hospital Charter' below
thecanary.co/uk/news/2024...
#MECharter #BedForSevereME #pwME #SevereME
📢 M.E. patients, your voice matters! Reach out to your health org to support the M.E.-Friendly Hospital Charter. Together, we can ensure hospitals meet our specific needs.
Info and resources - https://buff.ly/4emZwND
#pwME #MEcfs #MECharter
Info and resources - https://buff.ly/4emZwND
#pwME #MEcfs #MECharter
November 22, 2024 at 7:08 PM
📢 M.E. patients, your voice matters! Reach out to your health org to support the M.E.-Friendly Hospital Charter. Together, we can ensure hospitals meet our specific needs.
Info and resources - https://buff.ly/4emZwND
#pwME #MEcfs #MECharter
Info and resources - https://buff.ly/4emZwND
#pwME #MEcfs #MECharter
To counter the rubbish of the past few days, Foggy has news.....
*Foggy* Two more regional healthboards want to chat about the #MECharter!!
You can still help - all info is on the link in 2nd post 👇
Change is brewing ....
*Foggy* Just like tea!
#pwME #MEAwarenessMonth
1/
*Foggy* Two more regional healthboards want to chat about the #MECharter!!
You can still help - all info is on the link in 2nd post 👇
Change is brewing ....
*Foggy* Just like tea!
#pwME #MEAwarenessMonth
1/
May 16, 2025 at 2:11 PM
To counter the rubbish of the past few days, Foggy has news.....
*Foggy* Two more regional healthboards want to chat about the #MECharter!!
You can still help - all info is on the link in 2nd post 👇
Change is brewing ....
*Foggy* Just like tea!
#pwME #MEAwarenessMonth
1/
*Foggy* Two more regional healthboards want to chat about the #MECharter!!
You can still help - all info is on the link in 2nd post 👇
Change is brewing ....
*Foggy* Just like tea!
#pwME #MEAwarenessMonth
1/
This week is always difficult for me (personal reasons). Causes all sorts of mood dips and negative feelings.
Yesterday, after 'celebrating' the #MECharter in a NHS collab meeting, I received a phone call. One of the other VCSEs is run by a #pwME. They 1/
Yesterday, after 'celebrating' the #MECharter in a NHS collab meeting, I received a phone call. One of the other VCSEs is run by a #pwME. They 1/
December 12, 2024 at 9:06 AM
This week is always difficult for me (personal reasons). Causes all sorts of mood dips and negative feelings.
Yesterday, after 'celebrating' the #MECharter in a NHS collab meeting, I received a phone call. One of the other VCSEs is run by a #pwME. They 1/
Yesterday, after 'celebrating' the #MECharter in a NHS collab meeting, I received a phone call. One of the other VCSEs is run by a #pwME. They 1/
work commitments tomorrow. ICB #MECharter meeting 🥳 and a chat with a phD student about Mitochondrial Dysfunction research.
Today's medical and dog appointments are nearly done and dusted. Then the aggressive rest can begin!
I have 'mild' M.E.
5/5
#pwME #Health
Today's medical and dog appointments are nearly done and dusted. Then the aggressive rest can begin!
I have 'mild' M.E.
5/5
#pwME #Health
June 10, 2025 at 9:42 AM
work commitments tomorrow. ICB #MECharter meeting 🥳 and a chat with a phD student about Mitochondrial Dysfunction research.
Today's medical and dog appointments are nearly done and dusted. Then the aggressive rest can begin!
I have 'mild' M.E.
5/5
#pwME #Health
Today's medical and dog appointments are nearly done and dusted. Then the aggressive rest can begin!
I have 'mild' M.E.
5/5
#pwME #Health
Lots of ICBs/Health Boards have been in touch in the past week re #MECharter meetings.
Positive ☺️
But, one ICB emailed today with 'we are waiting for the delivery plan. There will probably be overlaps'.
Um...nope.
Did they read the Charter?
Created by #pwME, FOR pwME.
#MEcfs
Positive ☺️
But, one ICB emailed today with 'we are waiting for the delivery plan. There will probably be overlaps'.
Um...nope.
Did they read the Charter?
Created by #pwME, FOR pwME.
#MEcfs
March 24, 2025 at 12:18 PM
Lots of ICBs/Health Boards have been in touch in the past week re #MECharter meetings.
Positive ☺️
But, one ICB emailed today with 'we are waiting for the delivery plan. There will probably be overlaps'.
Um...nope.
Did they read the Charter?
Created by #pwME, FOR pwME.
#MEcfs
Positive ☺️
But, one ICB emailed today with 'we are waiting for the delivery plan. There will probably be overlaps'.
Um...nope.
Did they read the Charter?
Created by #pwME, FOR pwME.
#MEcfs
Meeting at 10am today
'I would be more than happy to meet with you to discuss how we can support our hospital providers to consider the #MECharter with a view to providing information that can be passed to our provider organisations for further consideration.
#pwME #ME
'I would be more than happy to meet with you to discuss how we can support our hospital providers to consider the #MECharter with a view to providing information that can be passed to our provider organisations for further consideration.
#pwME #ME
a woman says " this is really important " while looking at the camera
ALT: a woman says " this is really important " while looking at the camera
media.tenor.com
February 7, 2025 at 9:28 AM
Meeting at 10am today
'I would be more than happy to meet with you to discuss how we can support our hospital providers to consider the #MECharter with a view to providing information that can be passed to our provider organisations for further consideration.
#pwME #ME
'I would be more than happy to meet with you to discuss how we can support our hospital providers to consider the #MECharter with a view to providing information that can be passed to our provider organisations for further consideration.
#pwME #ME
#MECharter is coming along nicely. I've now had 16 positive responses/meetings with regional healthcare providers.
Info - mefoggydog.org/me-friendly-...
If you haven't contacted YOUR regional org yet, please do. #UK- wide campaign.
Thanks for supporting 🙏
#pwME
2/
Info - mefoggydog.org/me-friendly-...
If you haven't contacted YOUR regional org yet, please do. #UK- wide campaign.
Thanks for supporting 🙏
#pwME
2/
M.E.-Friendly Hospital Charter | ME Foggy Dog
It's intended to relieve M.E. patients of self-advocacy burdens by ensuring hospitals adhere to compassionate and M.E. appropriate care standards.
mefoggydog.org
April 15, 2025 at 2:55 PM
#MECharter is coming along nicely. I've now had 16 positive responses/meetings with regional healthcare providers.
Info - mefoggydog.org/me-friendly-...
If you haven't contacted YOUR regional org yet, please do. #UK- wide campaign.
Thanks for supporting 🙏
#pwME
2/
Info - mefoggydog.org/me-friendly-...
If you haven't contacted YOUR regional org yet, please do. #UK- wide campaign.
Thanks for supporting 🙏
#pwME
2/
ME Foggy Dog is campaigning for #SocialChange for #pwME within hospitals with TWO campaigns.
Please get involved if you haven't already.
All info via links below
#MECharter - www.mefoggydog.org/me-friendly-...
#NHSProtocol4SevereME - www.mefoggydog.org/nhs-protocol...
#pwME #MEcfs
Please get involved if you haven't already.
All info via links below
#MECharter - www.mefoggydog.org/me-friendly-...
#NHSProtocol4SevereME - www.mefoggydog.org/nhs-protocol...
#pwME #MEcfs
M.E.-Friendly Hospital Charter | ME Foggy Dog
It's intended to relieve M.E. patients of self-advocacy burdens by ensuring hospitals adhere to compassionate and M.E. appropriate care standards.
www.mefoggydog.org
December 7, 2024 at 12:47 PM
ME Foggy Dog is campaigning for #SocialChange for #pwME within hospitals with TWO campaigns.
Please get involved if you haven't already.
All info via links below
#MECharter - www.mefoggydog.org/me-friendly-...
#NHSProtocol4SevereME - www.mefoggydog.org/nhs-protocol...
#pwME #MEcfs
Please get involved if you haven't already.
All info via links below
#MECharter - www.mefoggydog.org/me-friendly-...
#NHSProtocol4SevereME - www.mefoggydog.org/nhs-protocol...
#pwME #MEcfs
mefoggydog.org/me-friendly-ho…
Over 20 meetings have been held already- early days but positive.#PwMEM#MECharterer
2/2
Over 20 meetings have been held already- early days but positive.#PwMEM#MECharterer
2/2
https://mefoggydog.org/me-friendly-ho…
May 16, 2025 at 2:11 PM
mefoggydog.org/me-friendly-ho…
Over 20 meetings have been held already- early days but positive.#PwMEM#MECharterer
2/2
Over 20 meetings have been held already- early days but positive.#PwMEM#MECharterer
2/2
💙 M.E. can be invisible, but your care shouldn’t be. Ask your regional health organisation to implement the M.E.-Friendly Hospital Charter for informed, compassionate care.
More info - https://buff.ly/4emZwND
#MECharter #pwME #MEcfs #MEAwarenessHour
More info - https://buff.ly/4emZwND
#MECharter #pwME #MEcfs #MEAwarenessHour
M.E.-Friendly Hospital Charter | ME Foggy Dog
It's intended to relieve M.E. patients of self-advocacy burdens by ensuring hospitals adhere to compassionate and M.E. appropriate care standards.
buff.ly
November 13, 2024 at 8:03 PM
💙 M.E. can be invisible, but your care shouldn’t be. Ask your regional health organisation to implement the M.E.-Friendly Hospital Charter for informed, compassionate care.
More info - https://buff.ly/4emZwND
#MECharter #pwME #MEcfs #MEAwarenessHour
More info - https://buff.ly/4emZwND
#MECharter #pwME #MEcfs #MEAwarenessHour
Launched last week!!!
Check out our M.E.-Friendly Hospital Charter - www.mefoggydog.org/me-friendly-...
Much more work to do.....get involved! 💙 Read how via the link above.
#pwME #MECharter #NHS
Check out our M.E.-Friendly Hospital Charter - www.mefoggydog.org/me-friendly-...
Much more work to do.....get involved! 💙 Read how via the link above.
#pwME #MECharter #NHS
M.E.-Friendly Hospital Charter | ME Foggy Dog
It's intended to relieve M.E. patients of self-advocacy burdens by ensuring hospitals adhere to compassionate and M.E. appropriate care standards.
www.mefoggydog.org
November 4, 2024 at 6:00 PM
Launched last week!!!
Check out our M.E.-Friendly Hospital Charter - www.mefoggydog.org/me-friendly-...
Much more work to do.....get involved! 💙 Read how via the link above.
#pwME #MECharter #NHS
Check out our M.E.-Friendly Hospital Charter - www.mefoggydog.org/me-friendly-...
Much more work to do.....get involved! 💙 Read how via the link above.
#pwME #MECharter #NHS
We are clipping our own wings.
We will not be pursuing two proposed projects so we can concentrate our efforts on work associated with our #MECharter campaign and training courses.
We do not currently have any volunteers and were risking being spread too thin.
#pwME #MEcfs #SocialEnterprise
We will not be pursuing two proposed projects so we can concentrate our efforts on work associated with our #MECharter campaign and training courses.
We do not currently have any volunteers and were risking being spread too thin.
#pwME #MEcfs #SocialEnterprise
two men are talking to each other and one of them is saying " don 't clip my wings let me fly "
ALT: two men are talking to each other and one of them is saying " don 't clip my wings let me fly "
media.tenor.com
November 25, 2024 at 11:04 AM
We are clipping our own wings.
We will not be pursuing two proposed projects so we can concentrate our efforts on work associated with our #MECharter campaign and training courses.
We do not currently have any volunteers and were risking being spread too thin.
#pwME #MEcfs #SocialEnterprise
We will not be pursuing two proposed projects so we can concentrate our efforts on work associated with our #MECharter campaign and training courses.
We do not currently have any volunteers and were risking being spread too thin.
#pwME #MEcfs #SocialEnterprise
We are slowly and steadily (with the #ME community's help) reaching every regional care provider with our #MECharter.
We are also speaking to various universities on including elements of the Charter within their healthcare courses.
lnkd.in/ei6pJN86
We are also speaking to various universities on including elements of the Charter within their healthcare courses.
lnkd.in/ei6pJN86
M.E. Friendly Hospital Charter | Stripy Lightbulb CIC
It's intended to relieve M.E. patients of self-advocacy burdens by ensuring hospitals adhere to compassionate and M.E. appropriate care standards.
www.stripylightbulb.com
January 31, 2025 at 9:58 AM
We are slowly and steadily (with the #ME community's help) reaching every regional care provider with our #MECharter.
We are also speaking to various universities on including elements of the Charter within their healthcare courses.
lnkd.in/ei6pJN86
We are also speaking to various universities on including elements of the Charter within their healthcare courses.
lnkd.in/ei6pJN86