#MSLife
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tinameyer.bsky.social
Simple flowers bring positive feelings, enjoying the #FlowerPower everyday of my #MSLife

🌞💗 🌱
Pensées bi-colores violet blanches
May 25, 2025 at 2:02 PM
lomelindi12.bsky.social
#MSLife
lomelindi12.bsky.social Lomelindi12 @lomelindi12.bsky.social · May 15
Recommended by Prof Gavin Giovannoni (in relation to people with MS & carers). It sounds useful across the board. As a carer for 10 years in mum’s home & remaining responsible for her now, the realities are hard. I always preferred straight & irreverent talking
The Selfish Pig’s Guide to Caring
May 15, 2026 at 6:57 AM
lomelindi12.bsky.social
So fatigued today

All petrol has drained from my tank

I’m fortunate in that I have fatigue in bursts & then it lifts again

#MSLife
December 29, 2025 at 11:29 AM
itreallydoes.com
My brain’s got more tabs open than a conspiracy theorist’s browser, and at least five are frozen. Started a blog post… forgot it existed. Twice. Mental misfires are the best #MSBrainFog #MSLife #WhoNeedsMemory
https://mssucks.co/e
February 12, 2025 at 6:46 PM
msnewstoday.bsky.social
Why my cat helps when living with MS: https://bit.ly/3Vr7cas

#MSAwareness #ThisIsMS #MSLife #MSCommunity #MSSupport #MSFighter #MSNewsToday #Bionews
September 25, 2026 at 6:31 PM
hlever1.bsky.social
#MSlife
#MultipleSclerosis
#chronicillness
🎗️
December 9, 2025 at 10:34 PM
jobarraket.bsky.social
Vertigo. Can’t stand up with it…can’t lie down with it 🤢#MSLife
April 4, 2026 at 10:38 AM
msnewstoday.bsky.social
MS mental health—worse before better: https://bit.ly/3JYADOA

#MSAwareness #ThisIsMS #MSLife #MSCommunity #MSSupport #MSFighter #MSNewsToday #Bionews
May 1, 2026 at 6:31 PM
marcimccue.bsky.social
For others dealing with Multiple Sclerosis, because they or someone they know has been diagnosed with this crazy condition, I’ve created this custom feed for us.

Pin 📌 it to your home to see what the #MS community is talking about. Use #mslife to contribute.

Created with surf.social.
May 4, 2025 at 1:26 AM
jobarraket.bsky.social
Just spent 50 minutes with cold feet listening to the dinging, whirring and banging of the MRI machine #MSLife
June 15, 2026 at 11:24 AM
lomelindi12.bsky.social
T’ai chi in 30°. We were standing in shade.

Managed it, huzzah! Time was I couldn’t have stood up in it but since Lemtrada, I seem to cope better

#MSLife
July 13, 2026 at 12:48 PM
lomelindi12.bsky.social
Morning from the UK. Mercifully cooler today. I loathe the heat - it sets off eyelid spasms & chin muscle fasciculations (a feeling I hate)

I feel like I start resembling a tearful Popeye 😏

Have a good day

#MSLife
#MSFriday
May 29, 2026 at 5:19 AM
lomelindi12.bsky.social
Last MRI (November) is “stable”

That’s good news

Less good is that they are going to start rationing MRIs for those with stable disease. I expect I will be offered one every 2 years

I understand the finances, but “stable” can change very quickly

#MSLife
May 9, 2026 at 11:44 AM
lomelindi12.bsky.social
Wishing my MS teammates a decent Friday

(If it’s a crap Friday, I hear that too)

#MSLife
February 13, 2026 at 11:44 AM
ailsod.bsky.social
Annual MRI done and dusted. Thanks to all at UHG 😁
#MRI #MultipleSclerosis #MSLife
January 10, 2025 at 9:23 AM
itreallydoes.com
If my immune system put as much effort into protecting me as it does into ruining my life, I’d probably be a superhero by now.
#MSLife #MyImmuneSystemIsAnAsshole
MS Superhero
December 27, 2024 at 1:26 PM
ailsod.bsky.social
This. Oh absolutely this! 😂😂😂
#MS #MultipleSclerosis #MSLife #Accurate
May 7, 2025 at 2:49 PM
jobarraket.bsky.social
Tripping on the kerb into the grassy park is much better than tripping on the kerb into the footpath. Just saying #MSLife
April 5, 2026 at 9:21 AM
lomelindi12.bsky.social
There’d be an outcry if this was happening in other medical fields eg cancer

#MSFriday
#MSLife
Article in Private Eye - Neurology patients sometimes waiting a year & then either give up or get seriously ill or go private
July 24, 2026 at 11:04 AM
ailsod.bsky.social
Sad story... 🐶🐶🐶 #PoorDoggie 😕 #MultipleSclerosis #MSlife #RelapseStories
October 9, 2025 at 2:16 PM
lomelindi12.bsky.social
MRI 5 months ago

No letter with results

What’s the average timeframe in YOUR NHS trust?

#MSLife
April 8, 2026 at 6:56 PM
msnewstoday.bsky.social
Dealing with invisible MS symptoms and stigma: https://bit.ly/4mQ4oQc

#MSAwareness #ThisIsMS #MSLife #MSCommunity #MSSupport #MSFighter #MSNewsToday #Bionews
May 29, 2026 at 6:31 PM
sjsher.bsky.social
New homemade pants. Yes, it is spools of thread. Fabric from Treelotta. The shirt was purchased, but it's cute.
#sewingwithmusicinmind #newpants #sewing #mslife #sewingmystyle #sewgreat #hedypants
January 3, 2026 at 1:29 AM
lomelindi12.bsky.social
How’s things, MSers?

Very much taking precautions to avoid the flu bug that’s sweeping along here. Especially when the schools break up next week. Would be the last thing I need 😬

#MSFriday
#MSLife
December 12, 2025 at 7:48 AM
makersmarian.bsky.social
Take a minute to marvel. Breathe. #sunsets #mslife
March 27, 2025 at 2:05 AM