#MSSucks
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byte-mii.bsky.social
Aaand today it’s raining torrentially. Not enough to fix the drought though. My poor autoimmune self can’t hope to keep up or adapt fast enough. #chroniclife #chronicillness #ms #mssucks #autoimmune
September 23, 2026 at 11:26 AM
byte-mii.bsky.social
Why is so humid? It’s the end of September for goodness sake. I’m ready for the October slide but normally the CHANGE in weather causes that. Where’s my sweet spot where I can walk? #ms #mssucks #chroniclife #chronicillness #autoimmune
September 22, 2026 at 1:19 PM
byte-mii.bsky.social
Oh dear me, lit up the health bar in a bad way. Thanks to the small for the germs she brought home, so glad she bounced back beautifully while il still dragging myself across the bottom. #ms #mssucks #fatigue #chronicillness #chroniclife #autoimmune
September 20, 2026 at 6:50 AM
shannonsindorf.bsky.social
I am having a very hard time recovering from this trip. My limbs feel like lead. My eyes want to close. The #fatigue is next level. I need to get over this. Fast.

#ms #multiplesclerosis #chronicillness #mslife #chroniclife #autoimmune #mssucks
September 17, 2026 at 1:57 PM
mig1anc.eurosky.social
Prawda. Uzaleznienie od MS to nie tylko Win11.
To jego usługi i zamknięte
rozwiązania dodatkowe. Albo ActiveX które polozylo niejednego.
Więc migracja, która zaczyna
się od poczty, systemów współpracy i interakcji a kończy na zmianie OS na PC ma większy sens.

#MSsucks
The biggest Linux migration happening right now is a 30,000-PC escape from Microsoft
The deeper the migration goes, the less it looks like a mere operating-system project
www.makeuseof.com
September 15, 2026 at 3:48 PM
byte-mii.bsky.social
Ok it’s definitely humidity that affects my ability to walk more than temperature. 30° walking was easier than today. #ms #mssucks #chronicillness #autoimmune
August 29, 2026 at 9:29 AM
shannonsindorf.bsky.social
What an exhausting day. Physically, mentally, emotionally. I was diagnosed with #MS 20 years ago and the #fatigue still takes me by surprise every time.

I prepped dinner and told the family to cook it. I'm done.

#multiplesclerosis #chronicillness #mslife #chroniclife #autoimmune #mssucks
August 28, 2026 at 11:36 PM
saulalejandr0.bsky.social
Here’s an update on something that happened to me and please help by donating to my GoFundMe 🙏🏼
gofund.me/84eb4cab0
##mssucks##multiplesclerosis##gofundme
August 12, 2026 at 2:38 AM
byte-mii.bsky.social
Think I’ve succeeded in pushing myself into and #MS flare. Hoping flare. Tinnitus in my left ear and reduced hearing for the last 10 days. New symptom. How exciting. Steroid nasal spray before ENT and MRI incase that fixes it. #mssucks #autoimmune #chroniclife #chronicillness
August 11, 2026 at 7:06 PM
shannonsindorf.bsky.social
I think I threw myself into a mild #ms flare by sitting outside at a block party in 100 degree (38C) heat for four hours last weekend. Everything is worse. The current is stronger against me. Not sure what to do.

#multiplesclerosis #chronicillness #mslife #chroniclife #autoimmune #mssucks
August 8, 2026 at 2:29 AM
lorihosmer.bsky.social
I have multiple sclerosis. Year 15. In four days, I will captain Team Hosmer the 2025 ROC the Great Lakes Bike MS top fundraising teamfor a 30-mi bicycle ride to raise money for the National MS Society.
Please donate & share. Link in bio.
#iridewithms #mssucks #multiplesclerosis #charity #helpme
August 5, 2026 at 12:16 AM
lightningduck.bsky.social
Ugh..did too much this morning and suddenly hit a wall

#MSSucks #MultipleSclerosis #Nap #Spoons
July 30, 2026 at 8:55 PM
shannonsindorf.bsky.social
Rough morning walk. My back was messed up and I was stiff from my MS. It was not a good combination.

#ms #multiplesclerosis #chronicillness #mslife #chroniclife #autoimmune #mssucks
July 28, 2026 at 4:26 PM
byte-mii.bsky.social
Managed pain better by increasing meds. Fatigue is killing me and I can’t function. Of course. #ms #mssucks #autoimmune #chroniclife #chronicillness
July 20, 2026 at 2:45 PM
byte-mii.bsky.social
Maybe ashtanga yoga is the cure for my pain. Still have nerve pain to the left side but everything else hurts now too so I’m brain can’t pick any one to focus on and I’m bothered by it less. #ms #mssucks #pain #chronicpain #autoimmune #chroniclife #chronicillness
July 19, 2026 at 9:03 AM
byte-mii.bsky.social
Bad pain day. Actually bad pain few weeks but worse today. Choice of increase painkillers and be floored or not and be barely functional. #chroniclife #chronicillness #autoimmune #ms #mssucks
July 15, 2026 at 2:05 PM
lorihosmer.bsky.social
It's gonna be a FAFO sprint tri. Don't mind my computer glasses. Please donate to Bike MS ROC the Great Lakes so I can stop wearing padded spandex shorts in 88° weather and sit indoors instead. #mssucks
events.nationalmssociety.org/participants...
July 14, 2026 at 1:01 AM
shannonsindorf.bsky.social
I'm going to have to start getting up stupid early to be able to take my walks. Today 7:30 was already too late. It's like putting myself in the microwave. It would take me all day to recover.

#ms #multiplesclerosis #chronicillness #autoimmune #mssucks
July 13, 2026 at 8:28 PM
byte-mii.bsky.social
Spa day yesterday was amazing but I’m about as broken as I expected to be. I LOVE saunas and steam rooms but I know my MS does not. I made sure today is a day off to help recover from the nice thing. #ms #mssucks #chroniclife #chronicillness #autoimmune
July 4, 2026 at 6:09 AM
lorihosmer.bsky.social
This is a great week to donate to my Bike MS fundraiser for the @mssociety! We know we shouldn't be competing, but it is fundraising week and we want to be #1. Also, let's #cureMS so I don't have to get saddle sores every year! LOL
#teamhosmer #mssucks
events.nationalmssociety.org/participants...
June 29, 2026 at 11:39 PM
shannonsindorf.bsky.social
Somehow I end up exhausting myself making even my easy recipes. It's because of the #fatigue I already had going into today. But I love #cooking too much to stop.

#ms #multiplesclerosis #chronicillness #mslife #chroniclife #autoimmune #mssucks
June 29, 2026 at 8:05 PM
shannonsindorf.bsky.social
Woke up, got ready, went downstairs, and it's already too hot for my walk. I mean, I could, but the sun would drain me and I'm drained enough already. Pass.

#ms #multiplesclerosis #chronicillness #mslife #chroniclife #autoimmune #mssucks
June 27, 2026 at 1:38 PM
byte-mii.bsky.social
Ooohh I did think it would be better today. Or at least not worse. I was wrong. #ms #mssucks #fatigue #chronicillness #chroniclife #autoimmune
June 27, 2026 at 1:32 PM
byte-mii.bsky.social
Best sleep in a week or so. No recovery, in case anyone needed evidence sleep does not mean rest in #ms #mssucks #autoimmune #fatigue #chronicillness #chroniclife
June 26, 2026 at 5:26 AM
byte-mii.bsky.social
Thought I was doing quite well in this #ukheatwave as far as #ms goes. Today I’ve tripped over 5 times in one shift and given myself a (clean) needle stick due to a tremor I’ve been ignoring for a month or so in my left hand. Nope I was denying. #mssucks #autoimmune #chroniclife #chronicillness
June 25, 2026 at 6:31 PM