#Neuropalliative
I’m interested in hearing more about Neuropalliative too.
October 3, 2023 at 9:00 PM
Afternoon sessions beginning - I'm attending "Calm Your Nerves: Clinical Tips from Neuropalliative Experts to ease Your Neurophobia"

It is only 25mins, but honestly could be an hour session or half-day pre-con.

#HAPC26 #Neuropalliative
March 5, 2026 at 9:09 PM
Love connecting IRL! Thanks #hapc for coming to Denver. See you in San Diego (and on the zoom). #communityoverchaos

And International Neuropalliative Care Society meeting in September!

@aahpm.bsky.social @hollyby.bsky.social @ctsinclair.bsky.social
February 8, 2025 at 7:31 PM
Important advances in neuropalliative care are informed by people with lived experience.
Dr Benzi Kluger kicking off the 5th #INPCS meeting. #neuropalliative
September 10, 2025 at 3:45 PM
Boosting quality of life in serious neurologic disease is key! 🚀 Neuropalliative care seeks to reduce suffering—time to focus on research priorities! #NeuropallCare PMID:39899319, JAMA Neurol 2025, @JAMANeuro @BraydonDymm https://doi.org/10.1001/jamaneurol.2024.4932 #Medsky #Pharmsky #RNAsky 🧪
https://doi.org/10.1001/jamaneurol.2024.4932
No description available
doi.org
March 15, 2025 at 2:10 AM
Did you know Gold Award winner Lauren Treat is not only a phenomenal humanist and neuropalliative specialist - she also karaokes like a fiend?
What an amazing night with the Child Neurology Foundation!
October 9, 2025 at 5:16 PM
Afternoon sessions 🧠 Drs. Tarini Goyal & Mara Lugassy with practical tips on serious illness conversations and end-of-life care, plus Dr. Lucy Zhang on brain injury in patients on mechanical circulatory support.

#Neurohospitalist #NeuroPalliative #NHS2026 #NeuroSky #MedSky
October 2, 2026 at 7:16 PM
Next session: Lean on Me: Rehabilitation & Durable Medical Equipment in Serious Neurologic Illness with Grace Suttle & Rita Crooms.

Cognition and communication are often hidden drivers of distress in #neuropalliative cases. They impact loss of autonomy, and increased caregiver burden.

#hapc26
March 5, 2026 at 9:34 PM
A great conceptual model on bereaved dementia caregiving, proposed by Dr Zach Baker, of Arizona State University. Presenting at #INPCS #neuropalliative
September 10, 2025 at 5:22 PM
Just finished a week long research conference at Rush University through Transforming Chaplaincy’s Chaplaincy Research Summer Institute. I couldn’t be more grateful to the Neuropalliative clinic @urmc for investing in my professional development.
July 18, 2025 at 6:52 PM
In today’s #GrandRounds, child neurology resident-invited speaker Audrey Foster-Barber, MD, PhD, from UCSF, discussed the growing field of pediatric neuropalliative care. She shared suggestions and resources for helping families while also providing support for clinicians.
April 10, 2026 at 9:13 PM
Any other chaplains facilitating #kap? I’ve been working on an offshoot of a research project with neuropalliative patients and it’s fascinating work. Feeling grateful for the palliative department buy-in on spiritual care being an important component of this work. #hapc #chaplaincy #ketamine
December 19, 2024 at 1:05 AM
Starting the @childneurosoc.bsky.social annual meeting with the award ceremony! 🎉

Peds neuropalliative care specialist Lauren Treat won the Gold award for her commitment to the patient & caregiver experience!

Here's a 2021 podcast interview w Dr Treat: sageneuroscience.libsyn.com/jcn-what-you...
October 8, 2025 at 12:27 PM
Dr. Lauren Treat on the importance of compassion and prognostic awareness in pediatric neuropalliative care, receiving the Arnold P. Gold Foundation Humanism in
Medicine Award at the @childneurosoc.bsky.social #CNSAM:
October 8, 2025 at 12:25 PM
A full day of patient and caregiver visits followed by clinical bioethics class. I’m tired and happy. Husband made steak salad for dinner. I made Manhattans
#chaplaincy #neuropalliative #bioethics #marriage
January 29, 2025 at 1:43 AM
What are the perceptions of clinicians referring to a novel pediatric #neuropalliative clinic? In the latest issue of #pedneuro, Lin et al explores these perceptions.

Read here: buff.ly/v2nBte7
December 26, 2025 at 6:03 PM
On Dec 2, Dr Benzi Kluger delivered the 2024 Fortitude lecture as part of the Clinical Faculty Scholars Program @cctsi.bsky.social. #cuanschutz

He was introduced by Dr Jean Kutner. Both are international leaders in #palliativecare, and generous #mentors. #gratitude for such talented, caring people
December 7, 2024 at 11:11 PM
#PalliativeCare SW can help with helping patients and caregivers understand access to Medicaid, publicly funded Home Care Programs, and Disease-specific non-profits like ALS Network, Parkinson's Foundation, CurePSP, The Epilepsy Foundation

#hapc26 #neuropalliative #PalliativeCare #SocialWork
March 5, 2026 at 9:27 PM
In PD, consider Consider a 3-month supply of non-hospice formulary medications before hospice enrollment.

If needing to wean dopaminergic therapies at EOL, do so slowly when possible to avoid NLMS

#hapc26 #neuropalliative #PalliativeCare
March 5, 2026 at 9:15 PM
Moving onto seizures -

Don't reflexively scheule benzos at EOL when oral route is threatened. If prognosis i weeks or more alertness matters.

There were many other great slides but I did not get a picture.

#hapc26 #neuropalliative #PalliativeCare
March 5, 2026 at 9:20 PM
Neuropalliative care is designed to address the unique supportive care needs of patients with neurological illness, including those in neuro-intensive care units. Spiritual care is a vital component in the provision of holistic and humanized care #hapc #spiritalcare link.springer.com/article/10.1...
Palliative Care Spiritual Assessment and Goals-of-Care Discussions in the Neurocritical Care Unit: Collaborating with Chaplains - Neurocritical Care
Introduction Neuropalliative care is an emerging subspecialty of palliative care designed to address the unique supportive care needs of patients with serious neurological illness, including those rec...
link.springer.com
March 12, 2025 at 3:38 PM
A tip from this session that I haven't heard of are shaping molds that can make pureed food look like the food it is supposed to be. Like a pile of peas.

If anyone has experience with this, I would like to hear how it went!

pureefoodmolds.com

#NeuroPalliative #HAPC26 #HAPC #Palliative #Dysphagia
March 5, 2026 at 9:40 PM
I have the next six days off. Deep breath. So needed. Such intensity today. Integration with #kap patient and doctor, VSED and MAID discussions, hospice preparation, DV and safety planning. #neuropalliative #hapc #chaplaincy thank goodness for transdisciplinary support, and cookies.
December 20, 2024 at 11:27 PM
Learn how by promoting NeuroPalliative Care the @ualberta.bsky.social is transforming the world of Parkinson's disease treatment – Dr. Janis M. Miyasaki shares insights on the importance of living well now & improving patient quality of life. @aanmember.bsky.social #AANAM youtu.be/mFQQ3RsVyGE
Promoting NeuroPalliative Care in the Clinic, Research and Around the World
YouTube video by WebsEdgeMedicine
youtu.be
April 9, 2025 at 3:59 PM