New on SurgOnc Today!
We explore the role of genetics in pheochromocytoma and paraganglioma (PPGL), from identifying patients who should undergo germline testing to understanding how genetic findings can influence surgical decision-making and long-term surveillance. https://ow.ly/Zy2v510481i
We explore the role of genetics in pheochromocytoma and paraganglioma (PPGL), from identifying patients who should undergo germline testing to understanding how genetic findings can influence surgical decision-making and long-term surveillance. https://ow.ly/Zy2v510481i
November 5, 2026 at 9:00 PM
New on SurgOnc Today!
We explore the role of genetics in pheochromocytoma and paraganglioma (PPGL), from identifying patients who should undergo germline testing to understanding how genetic findings can influence surgical decision-making and long-term surveillance. https://ow.ly/Zy2v510481i
We explore the role of genetics in pheochromocytoma and paraganglioma (PPGL), from identifying patients who should undergo germline testing to understanding how genetic findings can influence surgical decision-making and long-term surveillance. https://ow.ly/Zy2v510481i
💚 NET Cancer Day is November 10!
Chad, Lacey, and Jennifer remind us why early diagnosis and patient advocacy matter.
Pheochromocytoma and paraganglioma (PPGL) belong in the neuroendocrine cancer conversation.
Learn more: pheopara.org/awareness/ne...
#NETCancerDay #LetsTalkAboutNETs
Chad, Lacey, and Jennifer remind us why early diagnosis and patient advocacy matter.
Pheochromocytoma and paraganglioma (PPGL) belong in the neuroendocrine cancer conversation.
Learn more: pheopara.org/awareness/ne...
#NETCancerDay #LetsTalkAboutNETs
November 6, 2026 at 11:00 AM
💚 NET Cancer Day is November 10!
Chad, Lacey, and Jennifer remind us why early diagnosis and patient advocacy matter.
Pheochromocytoma and paraganglioma (PPGL) belong in the neuroendocrine cancer conversation.
Learn more: pheopara.org/awareness/ne...
#NETCancerDay #LetsTalkAboutNETs
Chad, Lacey, and Jennifer remind us why early diagnosis and patient advocacy matter.
Pheochromocytoma and paraganglioma (PPGL) belong in the neuroendocrine cancer conversation.
Learn more: pheopara.org/awareness/ne...
#NETCancerDay #LetsTalkAboutNETs
🌍 A stronger tomorrow, together! 💚
PPA and NORD are developing the Global Pheo Para Patient & Provider Registry to advance PPGL research and inform better care.
📅 Coming in 2027. Enrollment isn't open yet.
📲 Scan the QR code to sign up for updates.
#PheoPara #PPGL #RareDisease
PPA and NORD are developing the Global Pheo Para Patient & Provider Registry to advance PPGL research and inform better care.
📅 Coming in 2027. Enrollment isn't open yet.
📲 Scan the QR code to sign up for updates.
#PheoPara #PPGL #RareDisease
October 30, 2026 at 6:51 AM
🌍 A stronger tomorrow, together! 💚
PPA and NORD are developing the Global Pheo Para Patient & Provider Registry to advance PPGL research and inform better care.
📅 Coming in 2027. Enrollment isn't open yet.
📲 Scan the QR code to sign up for updates.
#PheoPara #PPGL #RareDisease
PPA and NORD are developing the Global Pheo Para Patient & Provider Registry to advance PPGL research and inform better care.
📅 Coming in 2027. Enrollment isn't open yet.
📲 Scan the QR code to sign up for updates.
#PheoPara #PPGL #RareDisease
💚 This October, we focused on PPGL awareness, peer support, specialized care, and research.
Help Pheo Para Alliance continue supporting patients and building a stronger future.
Donate: pheopara.org/donate
#PheoPara #PPGL #RareDisease
Help Pheo Para Alliance continue supporting patients and building a stronger future.
Donate: pheopara.org/donate
#PheoPara #PPGL #RareDisease
October 30, 2026 at 6:52 AM
💚 This October, we focused on PPGL awareness, peer support, specialized care, and research.
Help Pheo Para Alliance continue supporting patients and building a stronger future.
Donate: pheopara.org/donate
#PheoPara #PPGL #RareDisease
Help Pheo Para Alliance continue supporting patients and building a stronger future.
Donate: pheopara.org/donate
#PheoPara #PPGL #RareDisease
A new review explores the potential role of protein acylation in succinate dehydrogenase (SDH)-deficient pheochromocytoma and paraganglioma (PPGL).
🔗 doi.org/10.1530/ERC-...
🔗 doi.org/10.1530/ERC-...
November 5, 2026 at 2:28 PM
A new review explores the potential role of protein acylation in succinate dehydrogenase (SDH)-deficient pheochromocytoma and paraganglioma (PPGL).
🔗 doi.org/10.1530/ERC-...
🔗 doi.org/10.1530/ERC-...
💚 You don't have to navigate pheo para alone.
PPA's One-on-One Peer Navigation Program connects you with someone who understands your experience and offers lived-experience support.
📲 Scan the QR code to connect.
#PheoPara #PPGL #RareDisease
PPA's One-on-One Peer Navigation Program connects you with someone who understands your experience and offers lived-experience support.
📲 Scan the QR code to connect.
#PheoPara #PPGL #RareDisease
October 22, 2026 at 12:40 PM
💚 You don't have to navigate pheo para alone.
PPA's One-on-One Peer Navigation Program connects you with someone who understands your experience and offers lived-experience support.
📲 Scan the QR code to connect.
#PheoPara #PPGL #RareDisease
PPA's One-on-One Peer Navigation Program connects you with someone who understands your experience and offers lived-experience support.
📲 Scan the QR code to connect.
#PheoPara #PPGL #RareDisease
💙 Rare should not mean overlooked.
People with pheochromocytoma or paraganglioma (PPGL) may face delays in diagnosis.
Know the signs. Ask questions. Share to raise awareness.
Suspect. Detect.
#PPGL #PheoParaAlliance #KnowTheSigns
People with pheochromocytoma or paraganglioma (PPGL) may face delays in diagnosis.
Know the signs. Ask questions. Share to raise awareness.
Suspect. Detect.
#PPGL #PheoParaAlliance #KnowTheSigns
October 19, 2026 at 6:47 AM
💙 Rare should not mean overlooked.
People with pheochromocytoma or paraganglioma (PPGL) may face delays in diagnosis.
Know the signs. Ask questions. Share to raise awareness.
Suspect. Detect.
#PPGL #PheoParaAlliance #KnowTheSigns
People with pheochromocytoma or paraganglioma (PPGL) may face delays in diagnosis.
Know the signs. Ask questions. Share to raise awareness.
Suspect. Detect.
#PPGL #PheoParaAlliance #KnowTheSigns
A new study evaluates the effects of glucagon-like peptide 1 receptor agonist (GLP-1RA) semaglutide, metformin and insulin on fresh patient-derived PPGL primary cultures, providing novel data on their effects.
🔗 Read the research: doi.org/10.1530/ERC-26-0283
🔗 Read the research: doi.org/10.1530/ERC-26-0283
![SPECIAL COLLECTION
Advances and Innovations: The Next Chapter in Pheochromocytoma and Paraganglioma
-
New Research
Effects of a GLP-1 agonist and antidiabetic therapies on pheochromocytoma/paraganglioma growth
Katharina Wang, Priska Stempfle, Julia Hamati, Alessa Fischer, Umberto Maccio, Achim Weber, Mercedes Robledo, Julian Maurer, Lea Peischer, Astrid Reul, Elena Kuzmenko, Alexander Huber, Diana Vetter, Jose Oberholzer, Nicole Reisch, Petra Zimmermann, Thomas Knösel, Matthias K Auer, Christian Lottspeich, Felix Beuschlein, Constanze Hantel, Ashley B Grossman, Karel Pacak, Kathrin Zitzmann, Christoph J Auernhammer, Svenja Nölting
-
[Endocrine-Related Cancer logo]](https://cdn.bsky.app/img/feed_thumbnail/plain/did:plc:tz24324hsnfcpiasjdseop73/bafkreiaibf2xnnu5nnyjf5utfpnnckvwa5gfrmt4bkwj4fqtxwzv3vfftu)
October 20, 2026 at 8:38 AM
A new study evaluates the effects of glucagon-like peptide 1 receptor agonist (GLP-1RA) semaglutide, metformin and insulin on fresh patient-derived PPGL primary cultures, providing novel data on their effects.
🔗 Read the research: doi.org/10.1530/ERC-26-0283
🔗 Read the research: doi.org/10.1530/ERC-26-0283
💙 Scanxiety is real. You're not alone.
Waiting for scans or results can be overwhelming for people living with PPGL.
Jonathan Pascual, NP, shares 3 practical strategies for managing scanxiety. ▶️ Watch his video!
💬 What helps you cope?
#Scanxiety #PPGL #PheoParaAlliance
Waiting for scans or results can be overwhelming for people living with PPGL.
Jonathan Pascual, NP, shares 3 practical strategies for managing scanxiety. ▶️ Watch his video!
💬 What helps you cope?
#Scanxiety #PPGL #PheoParaAlliance
October 15, 2026 at 11:38 AM
💙 Scanxiety is real. You're not alone.
Waiting for scans or results can be overwhelming for people living with PPGL.
Jonathan Pascual, NP, shares 3 practical strategies for managing scanxiety. ▶️ Watch his video!
💬 What helps you cope?
#Scanxiety #PPGL #PheoParaAlliance
Waiting for scans or results can be overwhelming for people living with PPGL.
Jonathan Pascual, NP, shares 3 practical strategies for managing scanxiety. ▶️ Watch his video!
💬 What helps you cope?
#Scanxiety #PPGL #PheoParaAlliance
SDH gene variant types differentially influence the risk of thoracic-abdominal paraganglioma-pheochromocytoma (PPGL) and head and neck paraganglioma (HNPGL), but quantitative correlations were lacking.
#genomics #HereditaryCancer #ClinicalGenetics
#genomics #HereditaryCancer #ClinicalGenetics
Succinate dehydrogenase (SDHB, SDHC, SDHD) gene variants significantly modify clinical outcomes in paraganglioma-pheochr
Hereditary paraganglioma and pheochromocytoma linked to SDH genes: genotype-phenotype correlations · Genet Med 2026
www.genox-veille.fr
October 13, 2026 at 1:00 PM
SDH gene variant types differentially influence the risk of thoracic-abdominal paraganglioma-pheochromocytoma (PPGL) and head and neck paraganglioma (HNPGL), but quantitative correlations were lacking.
#genomics #HereditaryCancer #ClinicalGenetics
#genomics #HereditaryCancer #ClinicalGenetics
💚 Step Five Matters: You Don't Have to Do This Alone.
Living with PPGL? Pheo Para Alliance offers peer support, trusted resources, and patient navigation to help you move forward.
🤝 Find your community:
pheopara.org/community/re...
#PPGL #PheoPara #PatientSupport
Living with PPGL? Pheo Para Alliance offers peer support, trusted resources, and patient navigation to help you move forward.
🤝 Find your community:
pheopara.org/community/re...
#PPGL #PheoPara #PatientSupport
October 12, 2026 at 3:02 PM
💚 Step Five Matters: You Don't Have to Do This Alone.
Living with PPGL? Pheo Para Alliance offers peer support, trusted resources, and patient navigation to help you move forward.
🤝 Find your community:
pheopara.org/community/re...
#PPGL #PheoPara #PatientSupport
Living with PPGL? Pheo Para Alliance offers peer support, trusted resources, and patient navigation to help you move forward.
🤝 Find your community:
pheopara.org/community/re...
#PPGL #PheoPara #PatientSupport
Newly diagnosed with pheochromocytoma or paraganglioma (PPGL)? 💚 You don't have to navigate it alone.
Pheo Para Alliance offers patient guides in English, Spanish & French, plus peer support and patient navigation.
Find support: pheopara.org/community/resources
#PPGL #RareDisease
Pheo Para Alliance offers patient guides in English, Spanish & French, plus peer support and patient navigation.
Find support: pheopara.org/community/resources
#PPGL #RareDisease
October 12, 2026 at 11:07 AM
Newly diagnosed with pheochromocytoma or paraganglioma (PPGL)? 💚 You don't have to navigate it alone.
Pheo Para Alliance offers patient guides in English, Spanish & French, plus peer support and patient navigation.
Find support: pheopara.org/community/resources
#PPGL #RareDisease
Pheo Para Alliance offers patient guides in English, Spanish & French, plus peer support and patient navigation.
Find support: pheopara.org/community/resources
#PPGL #RareDisease
💚 Your time. Your voice. Your impact.
Pheo Para Alliance is looking for volunteers to support the PPGL community through Peer Navigation, advocacy & our Gratitude Team.
Interested? Join us:
zeffy.com/en-US/ticketing/volunteer-with-the-pheo-para-alliance
#PheoParaAlliance #PPGL #Volunteer
Pheo Para Alliance is looking for volunteers to support the PPGL community through Peer Navigation, advocacy & our Gratitude Team.
Interested? Join us:
zeffy.com/en-US/ticketing/volunteer-with-the-pheo-para-alliance
#PheoParaAlliance #PPGL #Volunteer
October 5, 2026 at 8:27 AM
💚 Your time. Your voice. Your impact.
Pheo Para Alliance is looking for volunteers to support the PPGL community through Peer Navigation, advocacy & our Gratitude Team.
Interested? Join us:
zeffy.com/en-US/ticketing/volunteer-with-the-pheo-para-alliance
#PheoParaAlliance #PPGL #Volunteer
Pheo Para Alliance is looking for volunteers to support the PPGL community through Peer Navigation, advocacy & our Gratitude Team.
Interested? Join us:
zeffy.com/en-US/ticketing/volunteer-with-the-pheo-para-alliance
#PheoParaAlliance #PPGL #Volunteer
Metachronous contralateral pheochromocytoma detected 62 years after initial surgery. Read more in #JCEM Case Reports: https://bit.ly/3SPYhSA @endocrinesociety.bsky.social
Metachronous contralateral pheochromocytoma detected 62 years after initial surgery
Abstract. Pheochromocytoma and paraganglioma (PPGL) are neuroendocrine tumors with malignant potential. Although surgery is often curative, local recurrenc
bit.ly
October 5, 2026 at 5:42 PM
Metachronous contralateral pheochromocytoma detected 62 years after initial surgery. Read more in #JCEM Case Reports: https://bit.ly/3SPYhSA @endocrinesociety.bsky.social
💚 Introducing The Pheo Para Navigator, our new newsletter!
Explore updates, resources, community news, and insights for the PPGL community in our first edition.
🔗 pheopara.org/2026/10/pheo-para-navigator
#PheoParaNavigator #PheoParaAlliance #PPGL
Explore updates, resources, community news, and insights for the PPGL community in our first edition.
🔗 pheopara.org/2026/10/pheo-para-navigator
#PheoParaNavigator #PheoParaAlliance #PPGL
October 4, 2026 at 2:54 PM
💚 Introducing The Pheo Para Navigator, our new newsletter!
Explore updates, resources, community news, and insights for the PPGL community in our first edition.
🔗 pheopara.org/2026/10/pheo-para-navigator
#PheoParaNavigator #PheoParaAlliance #PPGL
Explore updates, resources, community news, and insights for the PPGL community in our first edition.
🔗 pheopara.org/2026/10/pheo-para-navigator
#PheoParaNavigator #PheoParaAlliance #PPGL
Be a Force for Good. 💚
Jonathan Pascual turned his experience living with metastatic paraganglioma into action through JP’s Backyard Ultra.
Together, this incredible community generated $100,000+ in donations and in-kind support for the PPGL community.
#PheoParaAlliance #PPGL
Jonathan Pascual turned his experience living with metastatic paraganglioma into action through JP’s Backyard Ultra.
Together, this incredible community generated $100,000+ in donations and in-kind support for the PPGL community.
#PheoParaAlliance #PPGL
October 2, 2026 at 2:26 PM
Be a Force for Good. 💚
Jonathan Pascual turned his experience living with metastatic paraganglioma into action through JP’s Backyard Ultra.
Together, this incredible community generated $100,000+ in donations and in-kind support for the PPGL community.
#PheoParaAlliance #PPGL
Jonathan Pascual turned his experience living with metastatic paraganglioma into action through JP’s Backyard Ultra.
Together, this incredible community generated $100,000+ in donations and in-kind support for the PPGL community.
#PheoParaAlliance #PPGL
💚 An unforgettable evening of hope, generosity & community.
The Circle of Hope Gala brought our community together in support of Pheo Para Alliance, celebrating inspiring stories and extraordinary generosity.
Thank you to everyone who made it possible. 💚
#CircleOfHope #PheoParaAlliance #PPGL
The Circle of Hope Gala brought our community together in support of Pheo Para Alliance, celebrating inspiring stories and extraordinary generosity.
Thank you to everyone who made it possible. 💚
#CircleOfHope #PheoParaAlliance #PPGL
October 2, 2026 at 1:27 PM
💚 An unforgettable evening of hope, generosity & community.
The Circle of Hope Gala brought our community together in support of Pheo Para Alliance, celebrating inspiring stories and extraordinary generosity.
Thank you to everyone who made it possible. 💚
#CircleOfHope #PheoParaAlliance #PPGL
The Circle of Hope Gala brought our community together in support of Pheo Para Alliance, celebrating inspiring stories and extraordinary generosity.
Thank you to everyone who made it possible. 💚
#CircleOfHope #PheoParaAlliance #PPGL
🧬 National Hereditary Cancer Week
Genetic testing may help people with PPGL understand inherited risk and guide care for themselves and their families.
Talk with your healthcare team or a genetic counselor about whether testing is right for you.
#PPGL #HereditaryCancerWeek #GeneticTesting
Genetic testing may help people with PPGL understand inherited risk and guide care for themselves and their families.
Talk with your healthcare team or a genetic counselor about whether testing is right for you.
#PPGL #HereditaryCancerWeek #GeneticTesting
September 30, 2026 at 6:12 AM
🧬 National Hereditary Cancer Week
Genetic testing may help people with PPGL understand inherited risk and guide care for themselves and their families.
Talk with your healthcare team or a genetic counselor about whether testing is right for you.
#PPGL #HereditaryCancerWeek #GeneticTesting
Genetic testing may help people with PPGL understand inherited risk and guide care for themselves and their families.
Talk with your healthcare team or a genetic counselor about whether testing is right for you.
#PPGL #HereditaryCancerWeek #GeneticTesting
❤️ Heart Health Day
For people with functional PPGL, elevated catecholamines can affect more than blood pressure—they may also stress the heart.
Talk with your healthcare team about monitoring your cardiovascular health. ❤️
#PPGL #PheoParaAlliance #HeartHealth
For people with functional PPGL, elevated catecholamines can affect more than blood pressure—they may also stress the heart.
Talk with your healthcare team about monitoring your cardiovascular health. ❤️
#PPGL #PheoParaAlliance #HeartHealth
September 29, 2026 at 7:17 AM
❤️ Heart Health Day
For people with functional PPGL, elevated catecholamines can affect more than blood pressure—they may also stress the heart.
Talk with your healthcare team about monitoring your cardiovascular health. ❤️
#PPGL #PheoParaAlliance #HeartHealth
For people with functional PPGL, elevated catecholamines can affect more than blood pressure—they may also stress the heart.
Talk with your healthcare team about monitoring your cardiovascular health. ❤️
#PPGL #PheoParaAlliance #HeartHealth
💚 You don’t have to navigate the PPGL journey alone.
Join our Peer Support Meeting to connect with people who understand.
📅 Oct. 6
🕠 5:30 PM PT | 6:30 MT | 7:30 CT | 8:30 ET
#PPGL #PeerSupport
Join our Peer Support Meeting to connect with people who understand.
📅 Oct. 6
🕠 5:30 PM PT | 6:30 MT | 7:30 CT | 8:30 ET
#PPGL #PeerSupport
September 28, 2026 at 6:22 AM
💚 You don’t have to navigate the PPGL journey alone.
Join our Peer Support Meeting to connect with people who understand.
📅 Oct. 6
🕠 5:30 PM PT | 6:30 MT | 7:30 CT | 8:30 ET
#PPGL #PeerSupport
Join our Peer Support Meeting to connect with people who understand.
📅 Oct. 6
🕠 5:30 PM PT | 6:30 MT | 7:30 CT | 8:30 ET
#PPGL #PeerSupport
💚 Peer Support Meeting — Tomorrow!
You don’t have to navigate the PPGL journey alone. Connect with others who understand, share experiences, and find support.
🕘 9 AM PT | 10 AM MT | 11 AM CT | 12 PM ET
🔗 Register through the link in our bio.
#PPGL #PeerSupport #PheoPara
You don’t have to navigate the PPGL journey alone. Connect with others who understand, share experiences, and find support.
🕘 9 AM PT | 10 AM MT | 11 AM CT | 12 PM ET
🔗 Register through the link in our bio.
#PPGL #PeerSupport #PheoPara
September 24, 2026 at 6:27 AM
💚 Peer Support Meeting — Tomorrow!
You don’t have to navigate the PPGL journey alone. Connect with others who understand, share experiences, and find support.
🕘 9 AM PT | 10 AM MT | 11 AM CT | 12 PM ET
🔗 Register through the link in our bio.
#PPGL #PeerSupport #PheoPara
You don’t have to navigate the PPGL journey alone. Connect with others who understand, share experiences, and find support.
🕘 9 AM PT | 10 AM MT | 11 AM CT | 12 PM ET
🔗 Register through the link in our bio.
#PPGL #PeerSupport #PheoPara
On #RareCancerDay, we’re raising awareness of pheochromocytoma and paraganglioma (PPGL). 💚
Share this post to help make rare cancers like PPGL more visible.
#PheoParaAlliance #PPGL #RareCancer
Share this post to help make rare cancers like PPGL more visible.
#PheoParaAlliance #PPGL #RareCancer
September 23, 2026 at 11:02 AM
On #RareCancerDay, we’re raising awareness of pheochromocytoma and paraganglioma (PPGL). 💚
Share this post to help make rare cancers like PPGL more visible.
#PheoParaAlliance #PPGL #RareCancer
Share this post to help make rare cancers like PPGL more visible.
#PheoParaAlliance #PPGL #RareCancer
On #RareCancerDay, we stand with everyone affected by rare cancers and the PPGL community working toward better answers, knowledgeable care, stronger support, and greater awareness.
Together, we can make rare more visible.
#PheoParaAlliance #PPGL #RareCancer #Pheochromocytoma #Paraganglioma
Together, we can make rare more visible.
#PheoParaAlliance #PPGL #RareCancer #Pheochromocytoma #Paraganglioma
September 23, 2026 at 7:26 AM
On #RareCancerDay, we stand with everyone affected by rare cancers and the PPGL community working toward better answers, knowledgeable care, stronger support, and greater awareness.
Together, we can make rare more visible.
#PheoParaAlliance #PPGL #RareCancer #Pheochromocytoma #Paraganglioma
Together, we can make rare more visible.
#PheoParaAlliance #PPGL #RareCancer #Pheochromocytoma #Paraganglioma
Looking for a reliable colour coated roofing sheet supplier in Kanpur? 🏗️ RSG Profile Manufacturing offers roofing solutions for industrial sheds, warehouses, and commercial projects.
#RoofingSheets #Kanpur #Construction
rsgprofilesheets.com/products/col...
#RoofingSheets #Kanpur #Construction
rsgprofilesheets.com/products/col...
Colour Coated Roofing Sheet
High-quality colour coated roofing sheets manufactured using Galvalume, PPGI, PPGL, and Aluminium-Zinc coated base material. Ideal for industrial, commerci
rsgprofilesheets.com
September 21, 2026 at 12:14 PM
Looking for a reliable colour coated roofing sheet supplier in Kanpur? 🏗️ RSG Profile Manufacturing offers roofing solutions for industrial sheds, warehouses, and commercial projects.
#RoofingSheets #Kanpur #Construction
rsgprofilesheets.com/products/col...
#RoofingSheets #Kanpur #Construction
rsgprofilesheets.com/products/col...