Regulators need to hear the real, day-to-day impact from patients & families. The #PSCcommunity must stand together to share the reality of #PSC and urgent need for safe treatments that work. Open globally (16+) to patients, carers, and loved ones | 15–20 mins | 100% Anonymous
➡️ buff.ly/qrprQCK

“Hope isn’t just a feeling, it’s about taking action.” Paula Hanford from @PSCSupportUK highlights how uniting as a global #PSCcommunity amplifies our voices & drives breakthrough research. Let’s move hope into action for everyone affected by PSC.
#PSCAwarenessDay @europeliver #ELPA#LetsBeatPSC

Whatever you need to navigate PSC, we’ve got your back.
✅ Specialist Helpline Nurse
✅ Medically-verified info
✅ Private peer support group
✅ Live webinars & In-person events
Connect with the #PSCcommunity and learn more about available support.
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If you are a friend or family member of someone with PSC, we're here for you too. PSC stands for primary sclerosing cholangitis but there’s more to PSC than a long name.
👉 pscsupport.org.uk/know-someone... #LetsBeatPSC #PSCCommunity #PSC

Living with PSC can feel isolating, but you’re not alone.
🧑‍🤝‍🧑 Connect with others by joining our private FB group.
📧 Sign up for our newsletter to get the latest PSC news, webinars, and in-person Info Days.
ℹ️ pscsupport.org.uk/connect-with...
#LetsBeatPSC #PSCSupport #PSCCommunity

Lucy is taking on @SemideParis this Sunday! 🇫🇷👟10 years after her first half, she’s feeling a bit "creaky" but motivated to run for a special young man & the whole #PSCcommunity. Wish her luck as she tackles 13.1 miles for a cure!
➡️ buff.ly/pvgpx1X #LetsBeatPSC

#Bileductcancer (#CCA) is hard to spot. Why? Because it hides behind the symptoms of PSC. By investing in a diverse range of projects, from 3D bile ducts to the #AspPSC clinical trial, we're working to give the #PSCcommunity better outcomes.
Find out more: pscsupport.org.uk/tackling-cho...

Wishing you all a safe, happy and healthy Christmas from all of us at PSC Support. #LetsBeatPSC #TogetherWeCan #PSCSupport #RareDiseaseCommunity #PSCCommunity

You are not alone 💙

Support is available through our private Facebook Group, helpline, website, YouTube videos and social media. Navigating PSC can be challenging, but you don’t have to do it on your own.
➡️ pscsupport.org.uk/get-support/ #LetsBeatPSC #PSCSupport #PSCCommunity

Some studies hint that coffee might be linked to slower PSC progression, though we still need more research to be sure (Sources in thread).

One thing we are sure of: we won’t rest until we find effective PSC treatments.
#PSCSupport #LetsBeatPSC #PSCResearch #PSCcommunity

Today marks the start of the @rarediseaseday campaign, the 100-day countdown to this global awareness event. 💬 Would you like to share your PSC story for #RareDiseaseDay?
Get in touch with us at hello@pscsupport.org.uk. #LetsBeatPSC #RareDiseases #PSCCommunity #PatientStories

“Patients and families need support and updated information.”
Teresa Casanovas of @EuropeLiver highlights how new #clinicaltrials and global collaboration bring fresh hope to the #PSCcommunity.
Together, we turn knowledge into action and research into hope.
#GlobalPSCAwarenessDay #ELPA #LetsBeatPSC