#PatientCommunity
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retinaint.bsky.social
The new online home for Retina International is now live!
🔗 Visit the brand new Retina International website: www.retina-international.org
#WebsiteLaunch #Accessibility #GlobalRetinaCommunity #PatientCommunity #RetinaInternational
November 5, 2026 at 12:52 PM
ipopi.bsky.social
🇨🇿 We are delighted to welcome a new National Member Organisation (NMO) from the Czech Republic to the IPOPI global community!

United for Immunodeficiency Patients. 🧡💙

#IPOPI #CzechRepublic #PrimaryImmunodeficiencies #StrongerTogether #PatientCommunity
October 28, 2026 at 10:32 AM
smartpatients.bsky.social
In our latest Living With It conversation, Dee Sparacio, Women of Teal, and Meg McQuarrie of the Elixir Fund led our community in a discussion about what they needed after active treatment, and what they actually got. https://ow.ly/GmtK50ZZSHr

#SurvivorshipCarePlan #PatientCommunity #SmartPatients
October 22, 2026 at 9:10 PM
ipopi.bsky.social
🏆What a night! What a community! What incredible people!

❤️ Congratulations to all our winners, nominees and everyone who continues to push boundaries and inspire change. You are what makes this community so special!

#IPOPI #PIDChampionAwards #GPM2026 #PrimaryImmunodeficiencies #PatientCommunity
October 22, 2026 at 9:22 AM
smartpatients.bsky.social
Hair loss is one of the most visible parts of living with serious illness. #SmartPatients talk about it openly with each other: wigs, scarves, cold caps, and the day some of them decided to go without any of it. They share the hard parts and the tender parts.

#PeerSupport #PatientCommunity
October 14, 2026 at 7:00 PM
ipopi.bsky.social
💛 Thank you for being part of International Plasma Awareness Week 2026.

One donation. One shared journey. And many reasons to keep going.

#InternationalPlasmaAwarenessWeek #IPAW2026 #IPAW #PlasmaAwareness #PlasmaDonation #ThankYouDonors #PrimaryImmunodeficiencies #PIDs #PatientCommunity
October 10, 2026 at 10:17 AM
lumanity.bsky.social
Four advocates. Four conditions. Four communities transformed by the courage to speak up, push back, and drive change. Watch the full Voices of Rare Disease series: lumanity.com/perspectives...

#RareDisease #HealthcareAdvocacy #PatientCommunity
Real voices. Real impact. Rare disease, seen clearly. Advocates. Patients. Community builders. Four extraordinary people driving change across rare disease.
October 6, 2026 at 3:03 PM
ipopi.bsky.social
Welcome Singapore to the IPOPI community! 💙

Another country joins our growing global network, strengthening the voice of people living with primary immunodeficiencies and bringing our community even closer together.

#IPOPI #PrimaryImmunodeficiencies #PID #Singapore #PatientCommunity #GlobalNetwork
September 21, 2026 at 9:14 AM
montelwilliams.bsky.social
NEWS
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August 18, 2026 at 11:17 AM
milanmedicals.bsky.social
Venclexta 100 mg tablets

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#Venclexta #LeukemiaTreatment #CancerDrugs #CLL #AML #BCL2 #CancerFighter #CancerWarrior #PatientCommunity #LivingWithCancer #CancerSupport #TreatmentJourney#Hematology #Oncology #Pharmacy #Medication #TargetedTherapy
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Order Venclexta 100 mg Tablet (Venetoclax) online. Targeted therapy for CLL, SLL, and AML. Trusted source with global delivery at affordable prices.
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September 16, 2025 at 5:00 AM
themaxfoundation.org
You can learn more about patient support groups and other comprehensive support for people living with cancer here: buff.ly/H3Bdarv

#MaxRemembranceDay #PatientSupport #PatientCommunity #CommunityHealthcare #TheMaxFoundation
Overcoming Barriers to Access
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March 31, 2026 at 9:21 AM
demobotmd.bsky.social
Remember, you're never alone in this. Finding support and a community for your health journey can make all the difference. #findyourdonor #patientcommunity

→ Read Article
July 21, 2026 at 3:24 PM
montelwilliams.bsky.social
FACTS!

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@cannabis_patients
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#usa #patients #healthcare #mmj #mmjpatient #health #patient #patientcare #patientcommunity #well #education #community #care
December 1, 2025 at 1:14 PM
montelwilliams.bsky.social
NEWS you Might Have Missed
@empowering.endometriosis
@endometriosis.dietitian
@endogirlgang
@patientcommunity
#endometriosis #endometriosisawareness #endometriosiswarrior #mmj #mmjpatient #healthcare #usa #education #well #health #care
June 26, 2025 at 11:42 AM
fanews.bsky.social
Find FA support groups and resources: https://bit.ly/45HGcs0 #FriedreichsAtaxiaNews #FASupport #PatientCommunity #BioNews
June 10, 2026 at 2:30 AM
fanews.bsky.social
Find FA support groups and resources: https://bit.ly/45HGcs0 #FriedreichsAtaxiaNews #FASupport #PatientCommunity #BioNews
May 2, 2026 at 2:30 AM
fanews.bsky.social
Find FA support groups and resources: https://bit.ly/45HGcs0 #FriedreichsAtaxiaNews #FASupport #PatientCommunity #BioNews
January 27, 2026 at 3:30 AM
fanews.bsky.social
Find FA support groups and resources: https://bit.ly/45HGcs0 #FriedreichsAtaxiaNews #FASupport #PatientCommunity #BioNews
December 19, 2025 at 3:30 AM
fanews.bsky.social
Find FA support groups and resources: https://bit.ly/45HGcs0 #FriedreichsAtaxiaNews #FASupport #PatientCommunity #BioNews
September 23, 2025 at 4:30 AM
retinaint.bsky.social
Our board member, David Sanchez, joins experts like Dr. Jaume Català & Dr. Carmen Ayuso to discuss Hereditary Retinal Dystrophies, including #UsherSyndromeType1. Listen here: open.spotify.com/episode/4XHv... #RareDiseaseResearch #RetinalDystrophies #UsherSyndrome #PatientCommunity #VisionResearch
Distrofias hereditarias de retina | La Ciencia de lo Singular
La Ciencia de lo Singular · Episode
open.spotify.com
March 13, 2025 at 10:16 AM
laminopathies.bsky.social
We start tomorrow! 🧬
The Laminopathies Meeting begins with registration at 14:00 — we’re looking forward to seeing you all there!

More info: laminopathies.net

#Laminopathies #RareDisease #LMNA #Genetics #PatientCommunity
Homepage
laminopathies.net
May 20, 2025 at 5:59 PM
smartpatients.bsky.social
There are a range of ways people cope with a serious diagnosis. That’s because there’s no single right way to do it. At Smart Patients, members find each other wherever they are in that range. Learn more: https://www.smartpatients.com/

#SmartPatients #PatientCommunity #LivedExperience
August 12, 2026 at 4:40 PM
smartpatients.bsky.social
There's no manual for facing a serious diagnosis because there’s no perfect plan. That’s why people show up for each other and share what they've learned. That's what the Smart Patients community does and why we’re here for you when you need us.

#SmartPatients #PatientCommunity #YouAreNotAlone
July 8, 2026 at 3:45 PM
smartpatients.bsky.social
Does this sound familiar?

Some days with illness & caregiving are heavy. Other days someone says something so ridiculous you just have to laugh.

#SmartPatients are familiar with both. Community is for the hard stuff and the little moments that help get us through.

#Caregiving #PatientCommunity
July 2, 2026 at 9:45 PM
smartpatients.bsky.social
Today is World Clinical Trials Day. We’re thinking of Pete who's currently in a trial and sharing what he’s experiencing with other #SmartPatients. That’s what this community does.

We are all rooting for you, Pete! https://ow.ly/lhig50Z1Lx1

#ClinicalTrialsDay #KidneyCancer #PatientCommunity
May 20, 2026 at 6:01 PM