Debt or Dying: The High Costs of Cancer Care in America, One Patient's Perspective ascopubs.org/doi/10.1200/...
#JCOOP #PatientPerspective #JCOJournals #financialtoxicity #oncsky #freetoread
#JCOOP #PatientPerspective #JCOJournals #financialtoxicity #oncsky #freetoread
ASCO Publications
ascopubs.org
January 15, 2025 at 3:40 PM
Debt or Dying: The High Costs of Cancer Care in America, One Patient's Perspective ascopubs.org/doi/10.1200/...
#JCOOP #PatientPerspective #JCOJournals #financialtoxicity #oncsky #freetoread
#JCOOP #PatientPerspective #JCOJournals #financialtoxicity #oncsky #freetoread
He woke up to a button and a life sentence.
Dr. Andrew Kooger recalls the haze of painkillers, the endless button pressing, and the chilling words he heard through the fog: “You’ll likely never walk again.”
#painmanagement #drsinicropi #andrewsstory #nevergiveup #healingjourney #patientperspective
Dr. Andrew Kooger recalls the haze of painkillers, the endless button pressing, and the chilling words he heard through the fog: “You’ll likely never walk again.”
#painmanagement #drsinicropi #andrewsstory #nevergiveup #healingjourney #patientperspective
May 22, 2025 at 12:31 PM
He woke up to a button and a life sentence.
Dr. Andrew Kooger recalls the haze of painkillers, the endless button pressing, and the chilling words he heard through the fog: “You’ll likely never walk again.”
#painmanagement #drsinicropi #andrewsstory #nevergiveup #healingjourney #patientperspective
Dr. Andrew Kooger recalls the haze of painkillers, the endless button pressing, and the chilling words he heard through the fog: “You’ll likely never walk again.”
#painmanagement #drsinicropi #andrewsstory #nevergiveup #healingjourney #patientperspective
The most important perspective in the room 🫀
Meredith O'Neal took the stage for the Paulin Keynote Lecture at NASCI 2026, sharing her patient experience with aortic disease; a powerful reminder of why cardiovascular imaging matters.
#NASCI26 #NASCI #CardiovascularImaging #PatientPerspective
Meredith O'Neal took the stage for the Paulin Keynote Lecture at NASCI 2026, sharing her patient experience with aortic disease; a powerful reminder of why cardiovascular imaging matters.
#NASCI26 #NASCI #CardiovascularImaging #PatientPerspective
September 27, 2026 at 4:20 PM
The most important perspective in the room 🫀
Meredith O'Neal took the stage for the Paulin Keynote Lecture at NASCI 2026, sharing her patient experience with aortic disease; a powerful reminder of why cardiovascular imaging matters.
#NASCI26 #NASCI #CardiovascularImaging #PatientPerspective
Meredith O'Neal took the stage for the Paulin Keynote Lecture at NASCI 2026, sharing her patient experience with aortic disease; a powerful reminder of why cardiovascular imaging matters.
#NASCI26 #NASCI #CardiovascularImaging #PatientPerspective
"I see what you've done for cancer and cancer patients, the results you've achieved, your superhuman efforts, your time-consuming work, and your dedication. I want to say that my respect for you.... grows exponentially every time"
#Oncology #PatientPerspective 2/2
#Oncology #PatientPerspective 2/2
an orange pumpkin with the words feeling grateful on it
ALT: an orange pumpkin with the words feeling grateful on it
media.tenor.com
December 6, 2025 at 12:15 PM
"I see what you've done for cancer and cancer patients, the results you've achieved, your superhuman efforts, your time-consuming work, and your dedication. I want to say that my respect for you.... grows exponentially every time"
#Oncology #PatientPerspective 2/2
#Oncology #PatientPerspective 2/2
It is so sad that people willingly and ignorantly or intentionally voted for this. #cancer #oncology #cancertreatment #cancerresearch #survivorship #ovariancancerawareness #MedTok #misinformation #PatientPerspective #science #medicalmisinformation #cancertok #cancertreatmenttrials #acedemia
March 25, 2025 at 4:13 PM
It is so sad that people willingly and ignorantly or intentionally voted for this. #cancer #oncology #cancertreatment #cancerresearch #survivorship #ovariancancerawareness #MedTok #misinformation #PatientPerspective #science #medicalmisinformation #cancertok #cancertreatmenttrials #acedemia
A comment I received that I think goes to all researchers:
"when I go for my oncology checkups, my respect for scientists grows even more as I see the advanced diagnostic tools and the new treatments I learn about when I talk to new patients
#Oncology #PatientPerspective
1/2
"when I go for my oncology checkups, my respect for scientists grows even more as I see the advanced diagnostic tools and the new treatments I learn about when I talk to new patients
#Oncology #PatientPerspective
1/2
a cartoon llama says " appreciate you " with its hands folded in prayer
ALT: a cartoon llama says " appreciate you " with its hands folded in prayer
media.tenor.com
December 6, 2025 at 12:15 PM
A comment I received that I think goes to all researchers:
"when I go for my oncology checkups, my respect for scientists grows even more as I see the advanced diagnostic tools and the new treatments I learn about when I talk to new patients
#Oncology #PatientPerspective
1/2
"when I go for my oncology checkups, my respect for scientists grows even more as I see the advanced diagnostic tools and the new treatments I learn about when I talk to new patients
#Oncology #PatientPerspective
1/2
Kudos to @whitneywarriors for doing an amazing job presenting at the #ACR25 #PatientPerspective session. By sharing her own challenges and solutions is key to advancing better care. #LADAorg #PatientVoice
@lupuschat.bsky.social @michiganlupus.bsky.social @masonicresearch.bsky.social
@lupuschat.bsky.social @michiganlupus.bsky.social @masonicresearch.bsky.social
October 30, 2025 at 7:56 PM
Kudos to @whitneywarriors for doing an amazing job presenting at the #ACR25 #PatientPerspective session. By sharing her own challenges and solutions is key to advancing better care. #LADAorg #PatientVoice
@lupuschat.bsky.social @michiganlupus.bsky.social @masonicresearch.bsky.social
@lupuschat.bsky.social @michiganlupus.bsky.social @masonicresearch.bsky.social
The #LADAOrg Team is excited to be here at #BIO2025 in Boston to bring the #PatientPerspective and partner with other stakeholders to advance global innovation that improves lives. Kudos to BIO
for developing a great program and our dear friend Paul for always being a good sport! 💜
for developing a great program and our dear friend Paul for always being a good sport! 💜
June 16, 2025 at 7:05 AM
The #LADAOrg Team is excited to be here at #BIO2025 in Boston to bring the #PatientPerspective and partner with other stakeholders to advance global innovation that improves lives. Kudos to BIO
for developing a great program and our dear friend Paul for always being a good sport! 💜
for developing a great program and our dear friend Paul for always being a good sport! 💜
#CKD patients' perspectives on #telemedicine in outpatient nephrology clinics during COVID-19 - convenient, yet face-to-face appointments preferred for establishing personal in health care.
DOI
doi.org/10.1177/2054...
#Patientperspective
@csnscn.bsky.social @cjkhd.bsky.social
DOI
doi.org/10.1177/2054...
#Patientperspective
@csnscn.bsky.social @cjkhd.bsky.social
Sage Journals: Discover world-class research
Subscription and open access journals from Sage, the world's leading independent academic publisher.
doi.org
January 22, 2025 at 4:09 PM
#CKD patients' perspectives on #telemedicine in outpatient nephrology clinics during COVID-19 - convenient, yet face-to-face appointments preferred for establishing personal in health care.
DOI
doi.org/10.1177/2054...
#Patientperspective
@csnscn.bsky.social @cjkhd.bsky.social
DOI
doi.org/10.1177/2054...
#Patientperspective
@csnscn.bsky.social @cjkhd.bsky.social
Kristy Coleman, ITP Contributor, discusses the challenges posed by insurance companies denying coverage and the importance of advocating for yourself.
Read more here: https://bit.ly/3VwdTs4
#RareDisease #ITP #PatientPerspective #MedSky #RareSky
Read more here: https://bit.ly/3VwdTs4
#RareDisease #ITP #PatientPerspective #MedSky #RareSky
September 23, 2025 at 5:00 PM
Kristy Coleman, ITP Contributor, discusses the challenges posed by insurance companies denying coverage and the importance of advocating for yourself.
Read more here: https://bit.ly/3VwdTs4
#RareDisease #ITP #PatientPerspective #MedSky #RareSky
Read more here: https://bit.ly/3VwdTs4
#RareDisease #ITP #PatientPerspective #MedSky #RareSky
In this month’s issue of #SGIMForum, authors Nelson, Hyde, Mookherjee, and McDonough present a rare case of rapid progression from autoimmune hypothyroidism to hyperthyroidism, highlighting the patient’s perspective.
Read more: buff.ly/yo3uAvf
#InternalMedicine #PrimaryCare #PatientPerspective
Read more: buff.ly/yo3uAvf
#InternalMedicine #PrimaryCare #PatientPerspective
January 22, 2026 at 6:01 PM
In this month’s issue of #SGIMForum, authors Nelson, Hyde, Mookherjee, and McDonough present a rare case of rapid progression from autoimmune hypothyroidism to hyperthyroidism, highlighting the patient’s perspective.
Read more: buff.ly/yo3uAvf
#InternalMedicine #PrimaryCare #PatientPerspective
Read more: buff.ly/yo3uAvf
#InternalMedicine #PrimaryCare #PatientPerspective
🧠 Patience takes practice
Bruce Campbell, Pompe contributor, shares how living with #PompeDisease has taught him to actively listen to his body and to respect its limits.
Read Bruce's story ➡️: https://bit.ly/4j22n2m
#RareDisease #PatientPerspective #RareVoices #PompeStrong
Bruce Campbell, Pompe contributor, shares how living with #PompeDisease has taught him to actively listen to his body and to respect its limits.
Read Bruce's story ➡️: https://bit.ly/4j22n2m
#RareDisease #PatientPerspective #RareVoices #PompeStrong
December 19, 2025 at 2:20 PM
🧠 Patience takes practice
Bruce Campbell, Pompe contributor, shares how living with #PompeDisease has taught him to actively listen to his body and to respect its limits.
Read Bruce's story ➡️: https://bit.ly/4j22n2m
#RareDisease #PatientPerspective #RareVoices #PompeStrong
Bruce Campbell, Pompe contributor, shares how living with #PompeDisease has taught him to actively listen to his body and to respect its limits.
Read Bruce's story ➡️: https://bit.ly/4j22n2m
#RareDisease #PatientPerspective #RareVoices #PompeStrong
Researchers at Leiden University Center for Infectious Diseases are studying the worldwide impact of UTIs, and your experience matters.
✅ Any gender, anywhere
✅ 18+ years old
✅ Experienced ≥1 UTI as an adult
🔗Find the survey link in our bio.
#bladdersmatter #stigma #patientperspective
✅ Any gender, anywhere
✅ 18+ years old
✅ Experienced ≥1 UTI as an adult
🔗Find the survey link in our bio.
#bladdersmatter #stigma #patientperspective
August 3, 2026 at 11:02 AM
Researchers at Leiden University Center for Infectious Diseases are studying the worldwide impact of UTIs, and your experience matters.
✅ Any gender, anywhere
✅ 18+ years old
✅ Experienced ≥1 UTI as an adult
🔗Find the survey link in our bio.
#bladdersmatter #stigma #patientperspective
✅ Any gender, anywhere
✅ 18+ years old
✅ Experienced ≥1 UTI as an adult
🔗Find the survey link in our bio.
#bladdersmatter #stigma #patientperspective
📅 📢 Webinaire ESE - 04/10 à 10h
"Living with Adrenocortical Carcinoma (ACC): Care, Support, and What’s Ahead" en présence de médecins et de patients. Traduction en français disponible !
📅 04/10/25 - 10h à 13h
📍 Lieu : à distance
📝 inscription: lnkd.in/dpk2WN7J
#patientperspective #endocrinology
"Living with Adrenocortical Carcinoma (ACC): Care, Support, and What’s Ahead" en présence de médecins et de patients. Traduction en français disponible !
📅 04/10/25 - 10h à 13h
📍 Lieu : à distance
📝 inscription: lnkd.in/dpk2WN7J
#patientperspective #endocrinology
October 2, 2025 at 4:42 PM
📅 📢 Webinaire ESE - 04/10 à 10h
"Living with Adrenocortical Carcinoma (ACC): Care, Support, and What’s Ahead" en présence de médecins et de patients. Traduction en français disponible !
📅 04/10/25 - 10h à 13h
📍 Lieu : à distance
📝 inscription: lnkd.in/dpk2WN7J
#patientperspective #endocrinology
"Living with Adrenocortical Carcinoma (ACC): Care, Support, and What’s Ahead" en présence de médecins et de patients. Traduction en français disponible !
📅 04/10/25 - 10h à 13h
📍 Lieu : à distance
📝 inscription: lnkd.in/dpk2WN7J
#patientperspective #endocrinology
When science is personal🎗
I'm a researcher—and a terminal patient. Cutting research funding isn't just political, it's life or death.
open.spotify.com/episode/7wrp...
#ScienceMatters #ResearchSavesLives #CancerResearch #PatientPerspective #FundScience #ClinicalTrials #BreastCancerAwareness
I'm a researcher—and a terminal patient. Cutting research funding isn't just political, it's life or death.
open.spotify.com/episode/7wrp...
#ScienceMatters #ResearchSavesLives #CancerResearch #PatientPerspective #FundScience #ClinicalTrials #BreastCancerAwareness
E25 – Science Under Threat: NIH Funding Cuts and the Future of Research
brainSTEM · Episode
open.spotify.com
April 4, 2025 at 11:57 PM
When science is personal🎗
I'm a researcher—and a terminal patient. Cutting research funding isn't just political, it's life or death.
open.spotify.com/episode/7wrp...
#ScienceMatters #ResearchSavesLives #CancerResearch #PatientPerspective #FundScience #ClinicalTrials #BreastCancerAwareness
I'm a researcher—and a terminal patient. Cutting research funding isn't just political, it's life or death.
open.spotify.com/episode/7wrp...
#ScienceMatters #ResearchSavesLives #CancerResearch #PatientPerspective #FundScience #ClinicalTrials #BreastCancerAwareness
A case report, #patientperspective, and literature review of P3-positive ANCA-associated vasculitis with primary focal segmental glomerulosclerosis. #kidneyresearch
@sagepub.com @csnscn.bsky.social
doi.org/10.1177/2054...
@sagepub.com @csnscn.bsky.social
doi.org/10.1177/2054...
July 13, 2026 at 2:02 PM
A case report, #patientperspective, and literature review of P3-positive ANCA-associated vasculitis with primary focal segmental glomerulosclerosis. #kidneyresearch
@sagepub.com @csnscn.bsky.social
doi.org/10.1177/2054...
@sagepub.com @csnscn.bsky.social
doi.org/10.1177/2054...
💡 “Hit it fast, hit it hard.”
Ed Tobias, MS Contributor, shares his view on how early, high-efficacy treatment can change the course of #MS and why he’s willing to take the risk.
Read the full column here: https://bit.ly/4bVwAOQ
#RareDisease #MultipleSclerosis #MS #MedSky #PatientPerspective
Ed Tobias, MS Contributor, shares his view on how early, high-efficacy treatment can change the course of #MS and why he’s willing to take the risk.
Read the full column here: https://bit.ly/4bVwAOQ
#RareDisease #MultipleSclerosis #MS #MedSky #PatientPerspective
April 8, 2026 at 7:48 PM
💡 “Hit it fast, hit it hard.”
Ed Tobias, MS Contributor, shares his view on how early, high-efficacy treatment can change the course of #MS and why he’s willing to take the risk.
Read the full column here: https://bit.ly/4bVwAOQ
#RareDisease #MultipleSclerosis #MS #MedSky #PatientPerspective
Ed Tobias, MS Contributor, shares his view on how early, high-efficacy treatment can change the course of #MS and why he’s willing to take the risk.
Read the full column here: https://bit.ly/4bVwAOQ
#RareDisease #MultipleSclerosis #MS #MedSky #PatientPerspective
How many countries implemented ambient listening as a patientsecurity measure? Also when it comes to research from EHR. #patientsvoice matters! #patientperspective
August 9, 2026 at 10:17 PM
How many countries implemented ambient listening as a patientsecurity measure? Also when it comes to research from EHR. #patientsvoice matters! #patientperspective
Sweden a bananarepublic on #patientrights
When are they going to invest and does Vårdanalys really know what it looks like from the #patientperspective?
#patientlagen #vårdpol #vardpol #svpol #patienträttigheter
When are they going to invest and does Vårdanalys really know what it looks like from the #patientperspective?
#patientlagen #vårdpol #vardpol #svpol #patienträttigheter
July 14, 2026 at 5:13 PM
Sweden a bananarepublic on #patientrights
When are they going to invest and does Vårdanalys really know what it looks like from the #patientperspective?
#patientlagen #vårdpol #vardpol #svpol #patienträttigheter
When are they going to invest and does Vårdanalys really know what it looks like from the #patientperspective?
#patientlagen #vårdpol #vardpol #svpol #patienträttigheter
Less than one month away! Hope to see you there!
#AuDA2025 #HearingLoss #LivingWithHearingLoss #PatientPerspective
#AuDA2025 #HearingLoss #LivingWithHearingLoss #PatientPerspective
March 6, 2025 at 12:14 AM
Less than one month away! Hope to see you there!
#AuDA2025 #HearingLoss #LivingWithHearingLoss #PatientPerspective
#AuDA2025 #HearingLoss #LivingWithHearingLoss #PatientPerspective
A decade with ovarian cancer reveals resilience, advocacy and the importance of evidence-based care from patients living the journey every day. #CancerSurvivorVoices #PatientPerspective #TCSC www.curetoday.com/view/10-thin...
10 Things I Learned After 10 Years With Ovarian Cancer | CURE
Stick your toes in the ocean. Feed the koi. Play make-believe carwash with a toddler. Hold his hand because he asks you to. Be present.
www.curetoday.com
January 23, 2026 at 11:53 AM
A decade with ovarian cancer reveals resilience, advocacy and the importance of evidence-based care from patients living the journey every day. #CancerSurvivorVoices #PatientPerspective #TCSC www.curetoday.com/view/10-thin...
Did you see❓ @hqip.bsky.social patient representative shares how being part of our Service User Network (SUN) has enabled her to use her lived experience, both as a patient and as a carer, to help shape healthcare improvement.
Read the article in full.⬇️
#PatientPerspective #PatientVoice
Read the article in full.⬇️
#PatientPerspective #PatientVoice
🗣️“We’re the ones receiving the care. We’re the only ones who can tell you if it’s working.”
Patient representative, Sadia, tells us why patient voice and data must shape healthcare improvement in @hqip.bsky.social latest patient perspective article: www.hqip.org.uk/patient-pers...
Patient representative, Sadia, tells us why patient voice and data must shape healthcare improvement in @hqip.bsky.social latest patient perspective article: www.hqip.org.uk/patient-pers...
March 13, 2026 at 10:10 AM
Did you see❓ @hqip.bsky.social patient representative shares how being part of our Service User Network (SUN) has enabled her to use her lived experience, both as a patient and as a carer, to help shape healthcare improvement.
Read the article in full.⬇️
#PatientPerspective #PatientVoice
Read the article in full.⬇️
#PatientPerspective #PatientVoice
A slide from Maureen Smith’s great presentation re: roles for patient partners in research.
#GenomicsSociety2019 @Maureenchats #PatientPerspective
#GenomicsSociety2019 @Maureenchats #PatientPerspective
June 17, 2025 at 9:09 PM
A slide from Maureen Smith’s great presentation re: roles for patient partners in research.
#GenomicsSociety2019 @Maureenchats #PatientPerspective
#GenomicsSociety2019 @Maureenchats #PatientPerspective
Richard Scheffer speaks to @paige_ai about his work as a patient advocate with @ProstateUK and his participation in the ARTICULATE PRO project at @NDSurgicalSci. Read more about his amazing journey:#prostatecancer #cancercare #patientperspective
paige.ai/blog/paige-tur…
paige.ai/blog/paige-tur…
January 20, 2025 at 12:29 PM
Richard Scheffer speaks to @paige_ai about his work as a patient advocate with @ProstateUK and his participation in the ARTICULATE PRO project at @NDSurgicalSci. Read more about his amazing journey:#prostatecancer #cancercare #patientperspective
paige.ai/blog/paige-tur…
paige.ai/blog/paige-tur…