Exteemely pleased to announce that the NWO (Dutch Research Council) has granted my four year research project on:
"Dying a Continuous Death: A Critical Phenomenology of Living Death, Social Death and Suicide Ideation amongst #LongCovid Patients in the Netherlands and Germany"
"Dying a Continuous Death: A Critical Phenomenology of Living Death, Social Death and Suicide Ideation amongst #LongCovid Patients in the Netherlands and Germany"
July 4, 2025 at 11:47 AM
Last Monday, the workshop I organised on #PostviralEthics took place at the Radboud University (Netherlands). Below is a summary of its contents. #LongCovid #MECFS #Lyme #Qfever #HIV
February 5, 2025 at 3:39 PM
Last Monday, the workshop I organised on #PostviralEthics took place at the Radboud University (Netherlands). Below is a summary of its contents. #LongCovid #MECFS #Lyme #Qfever #HIV
The Birmingham Post, England. 8th April 1996. About Q Fever but mentions...well, you can guess. #qfever #myalgicencephalomyelitis #cfsme #myalgice #mecfs
April 8, 2025 at 9:35 PM
The Birmingham Post, England. 8th April 1996. About Q Fever but mentions...well, you can guess. #qfever #myalgicencephalomyelitis #cfsme #myalgice #mecfs
ANNOUNCEMENT: international (hybrid) workshop on POSTVIRAL ETHICS
Date: 3 February 2025
Place: Radboud University
Workshop details and the programme can be found here:
www.ru.nl/en/about-us/...
Registration here:
forms.office.com/pages/respon...
#LongCovid #AIDS #MECFS #Lyme #Qfever #HIV #Ethics
Date: 3 February 2025
Place: Radboud University
Workshop details and the programme can be found here:
www.ru.nl/en/about-us/...
Registration here:
forms.office.com/pages/respon...
#LongCovid #AIDS #MECFS #Lyme #Qfever #HIV #Ethics
Postviral Ethics - RCPS & PCNN | Radboud University
Workshop for Post-COVID patients and organisations concerned with Post-COVID.
www.ru.nl
January 6, 2025 at 1:14 PM
ANNOUNCEMENT: international (hybrid) workshop on POSTVIRAL ETHICS
Date: 3 February 2025
Place: Radboud University
Workshop details and the programme can be found here:
www.ru.nl/en/about-us/...
Registration here:
forms.office.com/pages/respon...
#LongCovid #AIDS #MECFS #Lyme #Qfever #HIV #Ethics
Date: 3 February 2025
Place: Radboud University
Workshop details and the programme can be found here:
www.ru.nl/en/about-us/...
Registration here:
forms.office.com/pages/respon...
#LongCovid #AIDS #MECFS #Lyme #Qfever #HIV #Ethics
September 4, 2025 at 12:01 AM
There is chronic wasting disease in deer in NY as well. Just. I got qFever from livestock. Wildlife... Soooooo many diseases and parasites.
August 8, 2024 at 4:07 PM
There is chronic wasting disease in deer in NY as well. Just. I got qFever from livestock. Wildlife... Soooooo many diseases and parasites.
September 4, 2025 at 12:01 AM
When you try & do the right thing by telling the truth, when you have near nothing left of your health-why is it that instead of others trying to help, you instead get seemingly endlessly punished by bureaucracy for the audacity of being still alive? #chronicillness #qfever #invisibleillness #auspol
March 3, 2025 at 11:45 AM
When you try & do the right thing by telling the truth, when you have near nothing left of your health-why is it that instead of others trying to help, you instead get seemingly endlessly punished by bureaucracy for the audacity of being still alive? #chronicillness #qfever #invisibleillness #auspol
📣 Q fever poses diagnostic and management challenges. This multinational position paper systematically assesses various countries' responses to #Qfever outbreaks and provides recommendations for future management.
#IDSky #clinmicro #episky #Coxiella #zoonosis
https://ow.ly/HeQx50ZsckH
#IDSky #clinmicro #episky #Coxiella #zoonosis
https://ow.ly/HeQx50ZsckH
July 24, 2026 at 2:30 PM
📣 Q fever poses diagnostic and management challenges. This multinational position paper systematically assesses various countries' responses to #Qfever outbreaks and provides recommendations for future management.
#IDSky #clinmicro #episky #Coxiella #zoonosis
https://ow.ly/HeQx50ZsckH
#IDSky #clinmicro #episky #Coxiella #zoonosis
https://ow.ly/HeQx50ZsckH
Some hard truths.
Your lived experience does not trump science, data and facts. It is bad for you, scientists and medics are working on it. It is not a risk for the fast majority (>99.9%) of people. Don’t try to force it on other people. Those getting LongFlu, Qfever or other symptoms also didn't.
Your lived experience does not trump science, data and facts. It is bad for you, scientists and medics are working on it. It is not a risk for the fast majority (>99.9%) of people. Don’t try to force it on other people. Those getting LongFlu, Qfever or other symptoms also didn't.
December 7, 2025 at 4:55 PM
Some hard truths.
Your lived experience does not trump science, data and facts. It is bad for you, scientists and medics are working on it. It is not a risk for the fast majority (>99.9%) of people. Don’t try to force it on other people. Those getting LongFlu, Qfever or other symptoms also didn't.
Your lived experience does not trump science, data and facts. It is bad for you, scientists and medics are working on it. It is not a risk for the fast majority (>99.9%) of people. Don’t try to force it on other people. Those getting LongFlu, Qfever or other symptoms also didn't.
More #Qfever #onehealth - Prof L Epelboin talks about the French Guiana experience.
🌎 Highest rates (~30/100k yearly) globally
😷 Driven by virulent MST17 strain
🧢 QF causes 25% of CAP in Cayenne & worst in E
euro. ethnic.
🦥 Outbreaks linked to sloths and capybara
#qfig #IDsky @qfig.bsky.social
🌎 Highest rates (~30/100k yearly) globally
😷 Driven by virulent MST17 strain
🧢 QF causes 25% of CAP in Cayenne & worst in E
euro. ethnic.
🦥 Outbreaks linked to sloths and capybara
#qfig #IDsky @qfig.bsky.social
June 15, 2025 at 11:10 AM
More #Qfever #onehealth - Prof L Epelboin talks about the French Guiana experience.
🌎 Highest rates (~30/100k yearly) globally
😷 Driven by virulent MST17 strain
🧢 QF causes 25% of CAP in Cayenne & worst in E
euro. ethnic.
🦥 Outbreaks linked to sloths and capybara
#qfig #IDsky @qfig.bsky.social
🌎 Highest rates (~30/100k yearly) globally
😷 Driven by virulent MST17 strain
🧢 QF causes 25% of CAP in Cayenne & worst in E
euro. ethnic.
🦥 Outbreaks linked to sloths and capybara
#qfig #IDsky @qfig.bsky.social
Hoewel het #BPS model mooi klinkt, is het wetenschappelijk problematisch & heeft het voor #PAIS patiënten tot een groot epistemisch onrecht geleid. Patienten werden niet gehoord en liepen (en lopen) ook nog eens lichamelijke en psychische schade op. #Qfever #MECFS #MCAS #LongCovid #Ethics 1/3
June 28, 2025 at 10:45 AM
For today's prompt I chose a drawing with a message. Who's gonna lift the heavy weight of post acute illness syndromes (pais) like LongCovid, ME/cfs, long lyme, post sepsis, qfever fatigue?
(If you haven't heard of this I invite you to look into it and see if […]
[Original post on mastodon.social]
(If you haven't heard of this I invite you to look into it and see if […]
[Original post on mastodon.social]
October 9, 2025 at 1:21 PM
For today's prompt I chose a drawing with a message. Who's gonna lift the heavy weight of post acute illness syndromes (pais) like LongCovid, ME/cfs, long lyme, post sepsis, qfever fatigue?
(If you haven't heard of this I invite you to look into it and see if […]
[Original post on mastodon.social]
(If you haven't heard of this I invite you to look into it and see if […]
[Original post on mastodon.social]
Dr Horvath et al outlined a diagnostic stewardship intervention for #qfever PCR (w/ compat. clin. synd.)
'TLC for Q':
🍽️ Thrombocytopenia,
🥩 raised LFTs
🎈 raised CRP
assoc w/ increase PCR+ in acute QF. Machine learning algorithm found 85% sens, 65% spec.
#IDsky #Qfig @qfig.bsky.social
'TLC for Q':
🍽️ Thrombocytopenia,
🥩 raised LFTs
🎈 raised CRP
assoc w/ increase PCR+ in acute QF. Machine learning algorithm found 85% sens, 65% spec.
#IDsky #Qfig @qfig.bsky.social
June 14, 2025 at 8:07 AM
Dr Horvath et al outlined a diagnostic stewardship intervention for #qfever PCR (w/ compat. clin. synd.)
'TLC for Q':
🍽️ Thrombocytopenia,
🥩 raised LFTs
🎈 raised CRP
assoc w/ increase PCR+ in acute QF. Machine learning algorithm found 85% sens, 65% spec.
#IDsky #Qfig @qfig.bsky.social
'TLC for Q':
🍽️ Thrombocytopenia,
🥩 raised LFTs
🎈 raised CRP
assoc w/ increase PCR+ in acute QF. Machine learning algorithm found 85% sens, 65% spec.
#IDsky #Qfig @qfig.bsky.social
From ME Research UK:
Researchers suggest that coxiella bacteria, commonly found in farm animals, may contribute towards the development of dysautonomia and ME/CFS: tinyurl.com/yvvd5mmr
#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME #qfever
Researchers suggest that coxiella bacteria, commonly found in farm animals, may contribute towards the development of dysautonomia and ME/CFS: tinyurl.com/yvvd5mmr
#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME #qfever
![Dysautonomia, Coxiella, and ME/CFS Coxiella burnetii (the bacterium that causes Q fever) naturally infects farm animals, such as goats, sheep, and cows. In humans, it is suggested that it could contribute to post-infectious syndromes such as ME/CFS. According to researchers based in Serbia, dysautonomia (autonomic nervous system dysfunction) may play a role in chronic Coxiella-related disease.
Methods: 100 participants (35 with ME/CFS) who demonstrated specific IgM antibodies to Coxiella burnetii, plus 56 healthy age- and sex-matched controls, were evaluated for autonomic function.
Key finding: Dysautonomia was significantly more prevalent in the Coxiella group than in the control group. The researchers suggest "Coxiella burnetii infection may trigger persistent autonomic dysfunction, potentially contributing to the development of ME/CFS..."
Miloyanoyi6, B.et al (2025). Autonomic Dysfunction in Patients with gra SEARCH Acute Infection with Coxiella burnetii. Pathogens, [online] RE UK INFORM. INFLUENCE. INVEST. SCO36942](https://cdn.bsky.app/img/feed_thumbnail/plain/did:plc:43rudsv62fuwsmnk7oppgtdy/bafkreia5xuxlyoawpd4jwdpf2cjl4uiu3smxepcvg2la3hud4vfa73oeoa)
February 22, 2026 at 11:35 PM
From ME Research UK:
Researchers suggest that coxiella bacteria, commonly found in farm animals, may contribute towards the development of dysautonomia and ME/CFS: tinyurl.com/yvvd5mmr
#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME #qfever
Researchers suggest that coxiella bacteria, commonly found in farm animals, may contribute towards the development of dysautonomia and ME/CFS: tinyurl.com/yvvd5mmr
#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME #qfever
several manifestations of #Qfever: asymptomatic; flu like syndrome; pneumonia; hepatitis & occasionally meningitis or endocarditis. Possibly, his coworkers could have had the flu like syndrome of Q fever.
May 15, 2026 at 11:32 PM
several manifestations of #Qfever: asymptomatic; flu like syndrome; pneumonia; hepatitis & occasionally meningitis or endocarditis. Possibly, his coworkers could have had the flu like syndrome of Q fever.
I got a bounceback email from the Form 4 folks today when I was trying to send 2 Qfever reports. How can they shut down a program like that?
October 11, 2025 at 2:52 AM
I got a bounceback email from the Form 4 folks today when I was trying to send 2 Qfever reports. How can they shut down a program like that?
#Qfever pneumonia: severe headache is present in 75% of patients and is a useful clue to diagnosis. Multiple rounded opacticies are v suggestive of Q fever that follows exposure to infected parturient cats
May 15, 2026 at 11:33 PM
#Qfever pneumonia: severe headache is present in 75% of patients and is a useful clue to diagnosis. Multiple rounded opacticies are v suggestive of Q fever that follows exposure to infected parturient cats
I'm very glad she got to the bottom of her post-infectious illness and found a treatment, albeit arduous. BUT once again a familiar story: she was on her own finding solutions.
#QFever #MECFS
search.app/4hLLU
#QFever #MECFS
search.app/4hLLU
'My life was transformed when I got rare sheep disease on holiday'
Caithness famer Sally Crowe was left bedbound for almost two years and struggled with the after-effects of Q fever for more than a decade.
search.app
February 7, 2026 at 2:37 PM
I'm very glad she got to the bottom of her post-infectious illness and found a treatment, albeit arduous. BUT once again a familiar story: she was on her own finding solutions.
#QFever #MECFS
search.app/4hLLU
#QFever #MECFS
search.app/4hLLU
#Qfever detected in several forest #reindeer at the #GaiaZOO, #Kerkrade, #Netherlands
outbreaknewstoday.substack.com/p/q-fever-de...
outbreaknewstoday.substack.com/p/q-fever-de...
Q fever detected in several forest reindeer at the GaiaZOO, Kerkrade, Netherlands
The Netherlands RIVM reports four forest reindeer at the GaiaZOO zoo in Kerkrade have been diagnosed with Q fever through laboratory tests after a miscarriage.
outbreaknewstoday.substack.com
June 15, 2025 at 7:35 PM
#Qfever detected in several forest #reindeer at the #GaiaZOO, #Kerkrade, #Netherlands
outbreaknewstoday.substack.com/p/q-fever-de...
outbreaknewstoday.substack.com/p/q-fever-de...
#Qfever well documented in military stationed in Iraq. Infection acquired by inhalation of #Coxiella burnetii from soil or fomites contaminated w/urine, feces or parturition products of cattle, goats, sheep. Organisms can survive in fomites for months. Pic Ref radiopedia
September 3, 2025 at 11:58 PM