#RPAwarenessMonth
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canenmabel.bsky.social
I get this a lot. It's usually meant as a compliment. But most #blind people hate this phrase, so unless you know the person well, best not to use it. #RPAwarenessMonth
retinauk.bsky.social retinauk.bsky.social @retinauk.bsky.social · Feb 23
This week’s Myth Busting Monday tackles the phrase “you don’t look blind.” Sight loss isn’t always visible. RP varies day to day and person to person, and no one should have to “look” a certain way to be believed. Every experience is valid. #RPAwarenessMonth
#Accessible on a dark blue background, large text reads “Myth Busting Mondays,” with “Mondays” highlighted in yellow. Below, the myth is stated: “You don't look blind.” A yellow lightbulb illustration appears on the right. At the bottom are the hashtag “#RPAwarenessMonth” and the Retina UK logo with “50 years” branding
February 23, 2026 at 9:32 PM
canenmabel.bsky.social
Don't you just love bin day😡 #BlindLife #RPAwarenessMonth
#PavementParking
Photo of a red car parked mostly on the pavement next to two bins. The pavement is completely blocked.
February 27, 2026 at 3:20 PM
canenmabel.bsky.social
#RPAwarenessMonth
retinauk.bsky.social retinauk.bsky.social @retinauk.bsky.social · Feb 22
For our final Support Sundays of #RPAwarenessMonth, we're highlighting our Talk and Support service. Get regular phone catch-ups with a trained volunteer who understands life with RP. If you'd welcome a friendly call, contact 0300 111 4000 or email us at helplined@retinauk.org.uk
#Accessible On a purple background, large text reads “Support Sundays". Below, text states: “Retina UK Talk and Support service” A cartoon white hand with a pink heard above is to the right. At the bottom are the hashtag “#RPAwarenessMonth” and the Retina UK logo with “50 years” branding.
February 22, 2026 at 1:49 PM
canenmabel.bsky.social
#RPAwarenessMonth
retinauk.bsky.social retinauk.bsky.social @retinauk.bsky.social · Feb 21
This week’s Science Saturdays looks at early research exploring whether eye drops could one day deliver treatment for retinal disease. Scientists are testing nanoparticles that may reach the retina. Read more: https://retinauk.org.uk/news/could-eye-drops-treat-retinal-disease-in-the-future/
February 21, 2026 at 2:13 PM
canenmabel.bsky.social
#RPAwarenessMonth
retinauk.bsky.social retinauk.bsky.social @retinauk.bsky.social · Feb 16
This week’s Myth Busting Monday tackles the idea that RP affects everyone the same. RP varies hugely from person to person - in symptoms, speed and impact. Every journey is different, and every experience is valid.

Let’s continue to bust the myths this #RPAwarenessMonth.
.
#Accessible on a dark blue background, large text reads “Myth Busting Mondays,” with “Mondays” highlighted in yellow. Below, the myth is stated: “RP affects everyone the same.” A yellow lightbulb illustration appears on the right. At the bottom are the hashtag “#RPAwarenessMonth” and the Retina UK logo with “50 years” branding
February 16, 2026 at 1:07 PM
canenmabel.bsky.social
#RPAwarenessMonth
retinauk.bsky.social retinauk.bsky.social @retinauk.bsky.social · Feb 8
Welcome to Support Sundays for #RPAwarenessMonth. Today we’re signposting the Retina UK Helpline, run by volunteers with lived experience of sight loss. If you need information, reassurance or someone who truly gets it, we’re here to listen. Call 0300 111 4000 or email helpline@RetinaUK.org.uk.
#Accessible On a purple background, large text reads “Support Sundays". Below, text states: “Retina UK Helpline.” A cartoon white hand with a pink heard above is to the right.. At the bottom are the hashtag “#RPAwarenessMonth” and the Retina UK logo with “50 years” branding.
February 8, 2026 at 9:12 PM
canenmabel.bsky.social
#RPAwarenessMonth
retinauk.bsky.social retinauk.bsky.social @retinauk.bsky.social · Feb 7
Welcome to Science Saturdays for #RPAwarenessMonth. Each week we’ll share the latest RP research. This week: SparingVision has begun dosing patients in their first‑in‑human trial of SPVN20, a treatment aimed at advanced RP.

Read more: retinauk.org.uk/news/
#Accessible On a green background, large text reads “Science Saturdays,” with “Saturdays” highlighted in yellow. Below, text states: “Flipping the switch on RP: SparingVision doses patients in their first in-human clinical trial for SPVN20.” An atom illustration appears on the right. At the bottom are the hashtag “#RPAwarenessMonth” and the Retina UK logo with “50 years” branding.
February 7, 2026 at 7:56 PM
canenmabel.bsky.social
#nature #trees #blind #photography. One of the few good things about tunnel vision is that I often see things that others don't. Kind of ironic. I'm sure the people walking past seeing me take a photo of this thought I was mad😬 #RPAwarenessMonth
A tree stump with a heart shaped crevice in it which is filled with water and has a leaf in it. There is a smaller crevice just above the top of the Hart which has water and a small white feather in it.
February 18, 2026 at 8:24 AM
retinauk.bsky.social
For our final Support Sundays of #RPAwarenessMonth, we're highlighting our Talk and Support service. Get regular phone catch-ups with a trained volunteer who understands life with RP. If you'd welcome a friendly call, contact 0300 111 4000 or email us at helplined@retinauk.org.uk
#Accessible On a purple background, large text reads “Support Sundays". Below, text states: “Retina UK Talk and Support service” A cartoon white hand with a pink heard above is to the right. At the bottom are the hashtag “#RPAwarenessMonth” and the Retina UK logo with “50 years” branding.
February 22, 2026 at 10:01 AM
retinauk.bsky.social
For our final Science Saturdays of #RPAwarenessMonth, we’re highlighting the chance to shape future RP research. Join our Lived Experience Panel to share your insights and guide studies. Learn more: retinauk.org.uk/get-involved/lived-experience/
#Accessible On a green background, large text reads “Science Saturdays,” with “Saturdays” highlighted in yellow. Below, text states: “Ger involved: Retina UK lived experience panel” An atom illustration appears on the right. At the bottom are the hashtag “#RPAwarenessMonth” and the Retina UK logo with “50 years” branding.
February 28, 2026 at 2:02 PM
retinauk.bsky.social
Welcome to Support Sundays for #RPAwarenessMonth. Today we’re signposting the Retina UK Helpline, run by volunteers with lived experience of sight loss. If you need information, reassurance or someone who truly gets it, we’re here to listen. Call 0300 111 4000 or email helpline@RetinaUK.org.uk.
#Accessible On a purple background, large text reads “Support Sundays". Below, text states: “Retina UK Helpline.” A cartoon white hand with a pink heard above is to the right.. At the bottom are the hashtag “#RPAwarenessMonth” and the Retina UK logo with “50 years” branding.
February 8, 2026 at 1:01 PM
visionaryuk.bsky.social
We are excited to have @retinauk.bsky.social take over our social media as part of #RPAwarenessMonth to raise awareness of the eye condition retinitis pigmentosa and the support they offer.
Retina UK logo with a gold “50” to it’s right.
February 25, 2026 at 9:00 AM
retinauk.bsky.social
This week’s Myth Busting Monday tackles the idea that RP only affects older adults. RP can begin at any age, with early signs often appearing in childhood or teenage years. Every timeline is different, and every experience is valid.

Let’s bust the myths this #RPAwarenessMonth.
#Accessible on a dark blue background, large text reads “Myth Busting Mondays,” with “Mondays” highlighted in yellow. Below, the myth is stated: “RP only affects older adults.” A yellow lightbulb illustration appears on the right. At the bottom are the hashtag “#RPAwarenessMonth” and the Retina UK logo with “50 years” branding.
February 9, 2026 at 12:02 PM
retinauk.bsky.social
Welcome to Science Saturdays for #RPAwarenessMonth. Each week we’ll share the latest RP research. This week: SparingVision has begun dosing patients in their first‑in‑human trial of SPVN20, a treatment aimed at advanced RP.

Read more: retinauk.org.uk/news/
#Accessible On a green background, large text reads “Science Saturdays,” with “Saturdays” highlighted in yellow. Below, text states: “Flipping the switch on RP: SparingVision doses patients in their first in-human clinical trial for SPVN20.” An atom illustration appears on the right. At the bottom are the hashtag “#RPAwarenessMonth” and the Retina UK logo with “50 years” branding.
February 7, 2026 at 10:30 AM
canenmabel.bsky.social
#RPAwarenessMonth
Although I wasn't diagnosed until I was an adult, I now know I had issues as a child and as a teenager, especially night blindness. Just because you know one person with RP does not mean you know all about RP. That includes me! I know my RP.
retinauk.bsky.social retinauk.bsky.social @retinauk.bsky.social · Feb 9
This week’s Myth Busting Monday tackles the idea that RP only affects older adults. RP can begin at any age, with early signs often appearing in childhood or teenage years. Every timeline is different, and every experience is valid.

Let’s bust the myths this #RPAwarenessMonth.
#Accessible on a dark blue background, large text reads “Myth Busting Mondays,” with “Mondays” highlighted in yellow. Below, the myth is stated: “RP only affects older adults.” A yellow lightbulb illustration appears on the right. At the bottom are the hashtag “#RPAwarenessMonth” and the Retina UK logo with “50 years” branding.
February 10, 2026 at 2:43 PM
retinauk.bsky.social
This week’s Myth Busting Monday tackles the idea that RP affects everyone the same. RP varies hugely from person to person - in symptoms, speed and impact. Every journey is different, and every experience is valid.

Let’s continue to bust the myths this #RPAwarenessMonth.
.
#Accessible on a dark blue background, large text reads “Myth Busting Mondays,” with “Mondays” highlighted in yellow. Below, the myth is stated: “RP affects everyone the same.” A yellow lightbulb illustration appears on the right. At the bottom are the hashtag “#RPAwarenessMonth” and the Retina UK logo with “50 years” branding
February 16, 2026 at 1:01 PM
retinauk.bsky.social
This week’s Myth Busting Monday tackles the phrase “you don’t look blind.” Sight loss isn’t always visible. RP varies day to day and person to person, and no one should have to “look” a certain way to be believed. Every experience is valid. #RPAwarenessMonth
#Accessible on a dark blue background, large text reads “Myth Busting Mondays,” with “Mondays” highlighted in yellow. Below, the myth is stated: “You don't look blind.” A yellow lightbulb illustration appears on the right. At the bottom are the hashtag “#RPAwarenessMonth” and the Retina UK logo with “50 years” branding
February 23, 2026 at 3:01 PM
retinauk.bsky.social
Myth Busting Mondays is here for #RPAwarenessMonth. Each week we’ll tackle a common misconception about RP. Today’s myth: RP leads to complete blindness. RP affects everyone differently, and every journey is valid.

Let’s bust the myths together this month!
#Accessible on a dark blue background, large text reads “Myth Busting Mondays,” with “Mondays” highlighted in yellow. Below, the myth is stated: “RP leads to complete blindness.” A yellow lightbulb illustration appears on the right. At the bottom are the hashtag “#RPAwarenessMonth” and the Retina UK logo with “50 years” branding.
February 2, 2026 at 11:01 AM
slcouncils.bsky.social
This February is #RPAwarenessMonth 💜

Retinitis Pigmentosa affects everyone differently. We’re proud to share the voices of Sight Loss Council volunteers living with RP, the myths they face, and what helps them stay independent.

Read their stories: https://bit.ly/4rKJB2D
A six‑image collage created for Retinitis Pigmentosa Awareness Month. The top row is features SLC volunteers, Josie, Amin, and Dannie. The bottom row is features Gill, Johnny, and Ann. Dark blue text on a white background reads ‘Retinitis Pigmentosa Awareness Month. The Sight Loss Councils logo appears in the bottom right corner.
February 16, 2026 at 10:00 AM
visionaryuk.bsky.social
We’re taking over today for #RPAwarenessMonth! Retinitis pigmentosa (RP) is a group of inherited retinal conditions causing progressive sight loss. Around 1 in 4,000 people are affected.

Don’t forget to follow @retinauk.bsky.social today as part of RP awareness month!
Retina UK logo with a gold “50” to it’s right.
February 25, 2026 at 9:30 AM
visionaryuk.bsky.social
RP is a progressive inherited retinal condition.
It often begins with difficulty seeing in low light and can gradually affect peripheral vision.
No two people experience RP in the same way.

#RPAwarenessMonth @retinauk.bsky.social
Image is a close up of a person eye. The image shows brown eyebrows and an open eyelid.
February 25, 2026 at 10:15 AM
visionaryuk.bsky.social
Our community means everything to us and to each other. They're the reason we can support those with inherited sight-loss conditions through research and practical support. You can get involved in fundraising or volunteering too: retinauk.org.uk/get-involved/

#RPawarenessMonth @retinauk.bsky.social
Picture of our volunteers on the stage at our annual conference smiling at the camera.
February 20, 2025 at 4:50 PM
visionaryuk.bsky.social
A diagnosis of RP can feel overwhelming.
Connecting with others who understand can help. Our peer support and local groups offer safe spaces to share experiences and advice: https://retinauk.org.uk/information-and-support/services/local-peer-support-groups/

#RPAwarenessMonth @retinauk.bsky.social
Image shows 4 people standing and smiling at each other. There is a person to the left of the image facing away with long blonde hair.
February 25, 2026 at 11:45 AM
slcouncils.bsky.social
February is Retinitis Pigmentosa Awareness Month. In this powerful personal essay, Liam O’Carroll reflects on living with RP, exploring vision, identity and creativity - and reminding us that RP is not one story, but many. 👉 https://bit.ly/3Zh6I90

#RPAwarenessMonth #RetinitisPigmentosa
Liam O'Carroll, sits on a wooden chair during a Q&A panel. He is holding a Sight Loss Council leaflet in one hand and a microphone in the other. He is wearing a white hoodie which has the Sight Loss Councils logo on the front. In the background, tables, chairs and green plants feature.
February 6, 2026 at 10:08 AM
retinauk.bsky.social
This week’s Support Sundays highlights our Peer Support Groups, bringing people affected by inherited sight loss together to share experiences and connect. Join online or in person across the UK. Learn more: retinauk.org.uk/information-and-support/services/local-peer-support-groups/
#Accessible On a purple background, large text reads “Support Sundays". Below, text states: “Retina UK Local Peer Support Groups.” A cartoon white hand with a pink heard above is to the right. At the bottom are the hashtag “#RPAwarenessMonth” and the Retina UK logo with “50 years” branding.
February 15, 2026 at 11:01 AM