#RPAwarenessMonth
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retinauk.bsky.social
For our final Science Saturdays of #RPAwarenessMonth, we’re highlighting the chance to shape future RP research. Join our Lived Experience Panel to share your insights and guide studies. Learn more: retinauk.org.uk/get-involved/lived-experience/
#Accessible On a green background, large text reads “Science Saturdays,” with “Saturdays” highlighted in yellow. Below, text states: “Ger involved: Retina UK lived experience panel” An atom illustration appears on the right. At the bottom are the hashtag “#RPAwarenessMonth” and the Retina UK logo with “50 years” branding.
February 28, 2026 at 2:02 PM
canenmabel.bsky.social
Don't you just love bin day😡 #BlindLife #RPAwarenessMonth
#PavementParking
Photo of a red car parked mostly on the pavement next to two bins. The pavement is completely blocked.
February 27, 2026 at 3:20 PM
slcouncils.bsky.social
As #RPAwarenessMonth closes, Jack, Engagement Manager for the North East, shares a powerful update on living with Retinitis Pigmentosa.

“I won’t give up - blind or otherwise, I’ll always have something to smile about.”

Read his story on resilience and adapting to sight loss: https://bit.ly/4qVsxpS
Living with RP: Jack’s Story, Two Years On - Sight Loss Council
Two years ago, Jack shared his story of growing up with Retinitis Pigmentosa, speaking openly about diagnosis and learning to live proudly with sight loss.
bit.ly
February 27, 2026 at 10:00 AM
visionaryuk.bsky.social
Thank you so much Retina UK for sharing important information about retinitis pigmentosa on our social media takeover today as part of #RPAwarenessMonth and all the invaluable support you offer for people with this eye condition!
Retina UK logo with a gold “50” to it’s right.
February 25, 2026 at 5:05 PM
visionaryuk.bsky.social
Our community drives everything we do. If you’d like to support research, volunteer or share your story, explore opportunities at RetinaUK.org.uk/get-involved

#RPAwarenessMonth @retinauk.bsky.social
Image shows 21 of our volunteers all stood and sat on a stage smiling at the camera.
February 25, 2026 at 4:15 PM
visionaryuk.bsky.social
Join us at the 2026 Professionals’ Conference - a chance to learn, connect and share best practice across the sector. CPD accredited. Register your interest here: https://retinauk.org.uk/event/professionals-conference/

#RPAwarenessMonth Retina UK
Picture taken from 2025 Professsionals conference room. Image shows two women talking to each other, there are other people facing away from the camera.
February 25, 2026 at 3:30 PM
visionaryuk.bsky.social
Living with RP can affect more than vision.
Employment, education and confidence can all be impacted. Access to the right information and practical support is essential.

#RPAwarenessMonth @retinauk.bsky.social
Image shows a man that is walking through a wide corridor. He is using a white cane.
February 25, 2026 at 2:45 PM
visionaryuk.bsky.social
Accessible tech can make a real difference when living with RP.
Our Top Tech Tuesday series shares practical tips, tools and apps recommended by people with lived experience.
Discover more: retinauk.org.uk/resource/toptechtuesday/

#RPAwarenessMonth @retinauk.bsky.social
Woman using tech on phone.
February 25, 2026 at 2:01 PM
visionaryuk.bsky.social
Research into inherited retinal diseases is advancing.
From gene therapies to innovative clinical trials, progress is being made thanks to the commitment of researchers and our community. Read our most recent research news here: https://retinauk.org.uk/news/

#RPAwarenessMonth @retinauk.bsky.social
Picture shows two hands wearing green gloves. Surrounding the gloves is a table with numerous research equipment including bottles and testing samples.
February 25, 2026 at 12:30 PM
visionaryuk.bsky.social
A diagnosis of RP can feel overwhelming.
Connecting with others who understand can help. Our peer support and local groups offer safe spaces to share experiences and advice: https://retinauk.org.uk/information-and-support/services/local-peer-support-groups/

#RPAwarenessMonth @retinauk.bsky.social
Image shows 4 people standing and smiling at each other. There is a person to the left of the image facing away with long blonde hair.
February 25, 2026 at 11:45 AM
visionaryuk.bsky.social
If you or someone you support is navigating inherited sight loss, our Helpline team is here to listen and guide. Our trained volunteers all have lived experience of inherited sight loss.
Call 0800 111 4000 or email helpline@RetinaUK.org.uk

#RPAwarenessMonth @retinauk.bsky.social
Picture of person on the phone wearing a Retina UK t-shirt.
February 25, 2026 at 11:00 AM
visionaryuk.bsky.social
RP is a progressive inherited retinal condition.
It often begins with difficulty seeing in low light and can gradually affect peripheral vision.
No two people experience RP in the same way.

#RPAwarenessMonth @retinauk.bsky.social
Image is a close up of a person eye. The image shows brown eyebrows and an open eyelid.
February 25, 2026 at 10:15 AM
visionaryuk.bsky.social
We’re taking over today for #RPAwarenessMonth! Retinitis pigmentosa (RP) is a group of inherited retinal conditions causing progressive sight loss. Around 1 in 4,000 people are affected.

Don’t forget to follow @retinauk.bsky.social today as part of RP awareness month!
Retina UK logo with a gold “50” to it’s right.
February 25, 2026 at 9:30 AM
visionaryuk.bsky.social
We are excited to have @retinauk.bsky.social take over our social media as part of #RPAwarenessMonth to raise awareness of the eye condition retinitis pigmentosa and the support they offer.
Retina UK logo with a gold “50” to it’s right.
February 25, 2026 at 9:00 AM
canenmabel.bsky.social
I get this a lot. It's usually meant as a compliment. But most #blind people hate this phrase, so unless you know the person well, best not to use it. #RPAwarenessMonth
retinauk.bsky.social retinauk.bsky.social @retinauk.bsky.social · Feb 23
This week’s Myth Busting Monday tackles the phrase “you don’t look blind.” Sight loss isn’t always visible. RP varies day to day and person to person, and no one should have to “look” a certain way to be believed. Every experience is valid. #RPAwarenessMonth
#Accessible on a dark blue background, large text reads “Myth Busting Mondays,” with “Mondays” highlighted in yellow. Below, the myth is stated: “You don't look blind.” A yellow lightbulb illustration appears on the right. At the bottom are the hashtag “#RPAwarenessMonth” and the Retina UK logo with “50 years” branding
February 23, 2026 at 9:32 PM
retinauk.bsky.social
This week’s Myth Busting Monday tackles the phrase “you don’t look blind.” Sight loss isn’t always visible. RP varies day to day and person to person, and no one should have to “look” a certain way to be believed. Every experience is valid. #RPAwarenessMonth
#Accessible on a dark blue background, large text reads “Myth Busting Mondays,” with “Mondays” highlighted in yellow. Below, the myth is stated: “You don't look blind.” A yellow lightbulb illustration appears on the right. At the bottom are the hashtag “#RPAwarenessMonth” and the Retina UK logo with “50 years” branding
February 23, 2026 at 3:01 PM
slcouncils.bsky.social
“I was told I would never work.”

Dave, Engagement Manager for SE England, was diagnosed with RP at 16. He was told he’d eventually go blind and never work.

He’s now built a career across multiple roles, adapting as his sight changed.

Read his story for #RPAwarenessMonth 👉bit.ly/3YyUeJk
Dave Smith being interviewed during a simulation walk in Brighton. He is facing the news anchor, Ian Palmer and there is a camera man holding up a camera and filming them to the side. Dave Smith, Engagement Manager for South East England, pictured at the 2023 SLC Conference. Dave is speaking into a microphone.
February 23, 2026 at 10:00 AM
canenmabel.bsky.social
#RPAwarenessMonth
retinauk.bsky.social retinauk.bsky.social @retinauk.bsky.social · Feb 22
For our final Support Sundays of #RPAwarenessMonth, we're highlighting our Talk and Support service. Get regular phone catch-ups with a trained volunteer who understands life with RP. If you'd welcome a friendly call, contact 0300 111 4000 or email us at helplined@retinauk.org.uk
#Accessible On a purple background, large text reads “Support Sundays". Below, text states: “Retina UK Talk and Support service” A cartoon white hand with a pink heard above is to the right. At the bottom are the hashtag “#RPAwarenessMonth” and the Retina UK logo with “50 years” branding.
February 22, 2026 at 1:49 PM
retinauk.bsky.social
For our final Support Sundays of #RPAwarenessMonth, we're highlighting our Talk and Support service. Get regular phone catch-ups with a trained volunteer who understands life with RP. If you'd welcome a friendly call, contact 0300 111 4000 or email us at helplined@retinauk.org.uk
#Accessible On a purple background, large text reads “Support Sundays". Below, text states: “Retina UK Talk and Support service” A cartoon white hand with a pink heard above is to the right. At the bottom are the hashtag “#RPAwarenessMonth” and the Retina UK logo with “50 years” branding.
February 22, 2026 at 10:01 AM
canenmabel.bsky.social
#RPAwarenessMonth
retinauk.bsky.social retinauk.bsky.social @retinauk.bsky.social · Feb 21
This week’s Science Saturdays looks at early research exploring whether eye drops could one day deliver treatment for retinal disease. Scientists are testing nanoparticles that may reach the retina. Read more: https://retinauk.org.uk/news/could-eye-drops-treat-retinal-disease-in-the-future/
February 21, 2026 at 2:13 PM
slcouncils.bsky.social
RP affects everyone differently. One volunteer shares:

“One of the biggest changes RP has brought into my life is learning to ask for help and accept it… I find kindness in strangers every day, which is hugely life affirming.”

Read their stories: https://bit.ly/4rKJB2D

#RPAwarenessMonth
SLC graphic which includes teal and dark-blue curved shapes in the top-right corner and bottom left corner. Quote reads: ‘One of the biggest changes RP has brought into my life is learning to ask for help and accept it. I’ve always been very independent, so this was a huge shift for me. Now, I find kindness in strangers every day, which is hugely life affirming.’ Ann, North London Sight Loss Council. White text underneath reads ‘Retinitis Pigmentosa Awareness Month’ on a dark blue background.
February 20, 2026 at 10:00 AM
canenmabel.bsky.social
#nature #trees #blind #photography. One of the few good things about tunnel vision is that I often see things that others don't. Kind of ironic. I'm sure the people walking past seeing me take a photo of this thought I was mad😬 #RPAwarenessMonth
A tree stump with a heart shaped crevice in it which is filled with water and has a leaf in it. There is a smaller crevice just above the top of the Hart which has water and a small white feather in it.
February 18, 2026 at 8:24 AM
canenmabel.bsky.social
#RPAwarenessMonth
retinauk.bsky.social retinauk.bsky.social @retinauk.bsky.social · Feb 16
This week’s Myth Busting Monday tackles the idea that RP affects everyone the same. RP varies hugely from person to person - in symptoms, speed and impact. Every journey is different, and every experience is valid.

Let’s continue to bust the myths this #RPAwarenessMonth.
.
#Accessible on a dark blue background, large text reads “Myth Busting Mondays,” with “Mondays” highlighted in yellow. Below, the myth is stated: “RP affects everyone the same.” A yellow lightbulb illustration appears on the right. At the bottom are the hashtag “#RPAwarenessMonth” and the Retina UK logo with “50 years” branding
February 16, 2026 at 1:07 PM
retinauk.bsky.social
This week’s Myth Busting Monday tackles the idea that RP affects everyone the same. RP varies hugely from person to person - in symptoms, speed and impact. Every journey is different, and every experience is valid.

Let’s continue to bust the myths this #RPAwarenessMonth.
.
#Accessible on a dark blue background, large text reads “Myth Busting Mondays,” with “Mondays” highlighted in yellow. Below, the myth is stated: “RP affects everyone the same.” A yellow lightbulb illustration appears on the right. At the bottom are the hashtag “#RPAwarenessMonth” and the Retina UK logo with “50 years” branding
February 16, 2026 at 1:01 PM
slcouncils.bsky.social
This February is #RPAwarenessMonth 💜

Retinitis Pigmentosa affects everyone differently. We’re proud to share the voices of Sight Loss Council volunteers living with RP, the myths they face, and what helps them stay independent.

Read their stories: https://bit.ly/4rKJB2D
A six‑image collage created for Retinitis Pigmentosa Awareness Month. The top row is features SLC volunteers, Josie, Amin, and Dannie. The bottom row is features Gill, Johnny, and Ann. Dark blue text on a white background reads ‘Retinitis Pigmentosa Awareness Month. The Sight Loss Councils logo appears in the bottom right corner.
February 16, 2026 at 10:00 AM