#RareButStrong
💜 Today is #RareDiseaseDay—a day to listen, learn, and support the 1 in 10 people living with a rare disease.

Awareness leads to understanding, and understanding leads to change. Let’s amplify rare voices and stand together in solidarity. 💙

#RareButStrong #ChronicIllness #DisabilityAwareness
February 28, 2025 at 4:08 PM
July 31, 2025 at 9:38 AM
💙 RARE but STRONG! 💙

If you had to describe your rare disease in just one word, what would it be? 🤔✨

Drop your word in the comments and let’s raise awareness together! 👇💬

#RareButStrong #RareDiseaseAwareness #OneWordChallenge #YouAreNotAlone #peoplecareai
March 18, 2025 at 8:38 PM
🎥 Call for Video Clips – Run for Rare Pakistan 🏃‍♂️🇵🇰

Joining our 15 March – Run for Rare Pakistan? Send us your short video clip by 15 March to be featured.

Alone we are rare, together we are strong 💚

#RunForRarePakistan
#MuscularDystrophyPakistan
#RareButStrong
#15March
March 2, 2026 at 11:29 PM
Rare diseases are rare individually — but together they affect millions.
In Pakistan, families face delayed diagnosis & limited support.
Muscular Dystrophy Pakistan stands for early diagnosis, newborn screening & national awareness.
Rare is not weak. 💜
#RareDiseaseDay #MDPakistan #RareButStrong
February 28, 2026 at 5:37 AM
Meet Diana Kidder! From health challenges to advocacy, Diana’s story inspires current & future generations alike. We are honored to spread her message.
#LipodystrophyAwareness #WeAreUnited #RareButStrong #Lipodystrophy #Lipodystrophyunited
April 1, 2025 at 3:47 PM
Meet Laura Fry! We'd like to thank her for sharing her journey of strength, resilience, and hope. Stay tuned as she shares her story in her own words.
#LipodystrophyAwareness #WeAreUnited #RareButStrong #Lipodystrophy #Lipodystrophyunited
March 31, 2025 at 10:06 PM
Meet Jennifer Hepler! Her lipodystrophy journey is filled with courage and shows the power of community and advocacy. We're honored to share her story.
#LipodystrophyAwareness #WeAreUnited #RareButStrong #Lipodystrophyunited #Lipodystrophy
March 31, 2025 at 9:07 PM
🎥 “We know our bodies way better than anyone can guess.”
For #WorldLipodystrophyDay, Briana Steiner shares her story and the importance of being heard, understood, and connected. 💙
#WLD2025 #WeAreUnited #LipodystrophyAwareness #RareButStrong #LipodystrophyUnited #Lipodystrophy
March 31, 2025 at 6:05 PM
🎥 Andra Stratton, co-founder of Lipodystrophy United, kicks off World Lipodystrophy Day with a
powerful message of hope, unity, and action.
💙✨
Today, we shine a light on this rare condition and the incredible strength of our community.
#WorldLipodystrophyDay #LipodystrophyAwareness #RareButStrong
March 31, 2025 at 3:07 PM
Over 300 million people worldwide live with a rare disease. 💜 This Rare Disease Day, February 28th, we’re amplifying voices, sharing stories, and standing with the rare disease community.

Learn more: www.sobi.com/en/news-rele...
#RareDiseaseDay #RareButStrong
More Than You Can Imagine – Rare Disease Day 2025
More Than You Can Imagine – Rare Disease Day 2025
www.sobi.com
February 27, 2025 at 2:46 PM