#RecoverTLC
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meactnet.bsky.social
Follow along with #MEAction Scientific Director Jaime Seltzer in the thread below!

#RecoverTLC #pwME #LongCovid #pwLC
exceedhergrasp1.bsky.social It's ME(Jaime) @exceedhergrasp1.bsky.social · Sep 10
Made it to RECOVER TLC!
Me, with my brown hair pulled back wearing a dark blue business jacket and a bright patterned yellow and blue shirt wearing glasses and a black face mask
September 10, 2025 at 3:41 PM
bhanlon15.bsky.social
Tuning into Day 2 of the RECOVER-TLC Workshop

#LongCOVID #RECOVERTLC
September 10, 2025 at 1:00 PM
meactnet.bsky.social
See thread below as #MEAction's Scientific Director, Jaime Seltzer, shares from the NIH RECOVER TLC meeting. #pwME #LongCovid #MECFS #MyalgicEncephalomyelitis #RecoverTLC
exceedhergrasp1.bsky.social It's ME(Jaime) @exceedhergrasp1.bsky.social · Sep 23
At RECOVER TLC, a meeting hosted at NIH to discuss treatment trials for Long COVID. I'll be on a panel later to discuss how what we know about other infection- associated chronic illnesses in trials for Long COVID.
Jaime Seltzer, a white woman with curly brown hair wears gray glasses, a light blue button down and black blazer. You can see her NIH name tag just out of frame Jaime and Angela side by side in the conference room at NIH. Angela has darker hair and is wearing a cream top. Both are wearing black face masks
September 23, 2024 at 2:11 PM
exceedhergrasp1.bsky.social
Folks, this will be today at 12pm ET. Hope you'll join me! #MECFS #LongCOVID #RECOVERTLC 🧪
exceedhergrasp1.bsky.social It's ME(Jaime) @exceedhergrasp1.bsky.social · Oct 1
All, I will be delivering a talk this Friday with INIM on RECOVER TLC: Lessons Learned and Next Steps. Hope you'll join me!

If you have questions about RECOVER TLC, you might consider asking them here. I'll do my best to address them in the Q&A! #MECFS #LongCOVID 🧪

Please share widely!
INIM Research Seminar Series: October 4, 2024, 12:30pm-1:30pm ET, Zoom. Jaime Seltzer, BS, MS Scientific Director, MEAction Researcher, Stanford Medicine Jaime Seltzer is the Scientific Director at the 501(c) nonprofit, MEAction, a researcher in Stanford Medicine, and a TIME100 Health Honoree, an award recognizing the 100 most influential people in healthglobally. She was recognized largely for her work on infection-associated chronic disease, especially myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) and Long COVID (PASC). Her areas of focus are patient-led research and clinical care initiatives, medical education, and large-sale epidemiological studies with rich patient input. Join Zoom meeting: https://nova.zoom.us/j/93815020978 Meeting ID: 938 1502 0978 Institute for Neuro-immune Medicine NSU Florida
October 4, 2024 at 12:54 PM
bhanlon15.bsky.social
Great to see Dr. David Kaufman, Center for Complex Diseases presenting at #RECOVERTLC today

Will discuss Glucose-like Peptide-1 Receptor Agonists (GLP-1 RAs)

#LongCOVID
September 9, 2025 at 6:07 PM
bhanlon15.bsky.social
#RECOVERTLC #LongCOVID
September 10, 2025 at 1:16 PM
bhanlon15.bsky.social
Stage Setting with Dr. Eldrin Lewis, Stanford University School of Medicine

#RECOVERTLC
September 9, 2025 at 7:48 PM
bhanlon15.bsky.social
Hopping on today's RECOVER-TLC update webinar

#LongCOVID #RECOVERTLC
January 10, 2025 at 7:08 PM
exceedhergrasp1.bsky.social
Panel questions right now, but we're talking very generally about the challenges around looking for biomarkers and treatments. I see we've got around 300 attendees virtually and about 100 present. #RECOVERTLC
September 10, 2025 at 3:06 PM
meactnet.bsky.social
RECOVER-TLC's next virtual webinar co-hosted by NIAID and FNIH will be on Friday, January 10, 2025, from 2:00-3:00 PM EST. This live webinar also will be recorded and posted online.
You can register for the webinar here: nih.zoomgov.com/webinar/regi...

#LongCovid #pwME #RecoverTLC
Graphic with blue circles and shapes with information on upcoming RECOVER-TLC webinar. Text: "RECOVER-TLC Webinar co-hosted by the National Institute of Allergy and Infectious Diseases (NIAID) and the Foundation for the National Institutes of Health (FNIH). Friday, January 10, 2025 2:00 to 3:00 pm EST. You can register for the webinar via Zoom at link in the post."
January 7, 2025 at 6:15 PM
bhanlon15.bsky.social
#RECOVERTLC
September 9, 2025 at 7:52 PM
meactnet.bsky.social
Rivka Solomon (a person with ME & Long Covid; a long-time advocate) shared her lived experience video created for the NIH RECOVER TLC meeting with us to pass along to our community. Thanks, RIvka!
youtu.be/4KvZw07hlcU

#RecoverTLC #NIH #PwME #MECFS #LongCovid #NIH
Rivka Solomon shares at NIH RECOVER TLC meeting
YouTube video by The ME Action Network
youtu.be
September 24, 2024 at 3:10 PM
bhanlon15.bsky.social
#RECOVERTLC #LongCOVID
September 10, 2025 at 1:19 PM
longcovidfam.bsky.social
That’s a wrap on Day 1 of the RECOVER-TLC Workshop for us. Families, researchers, and clinicians shared vital insights to shape the future of pediatric Long COVID research. We’ll be back tomorrow with more updates. #RECOVERTLC
September 10, 2025 at 11:01 AM
drinfosec.bsky.social
Short but good🧵from Dr. Ziyad Al-Aly with the slides he presented at today's NIH-Recover meeting:

"Number of approved medications for Long Covid is ZERO. This MUST change."
[ I added emphasis on 0 ]

threadreaderapp.com/thread/18382...

#Covid #LongCovid
Thread by @zalaly on Thread Reader App
@zalaly: Here are key slides of my talk at the NIH-RECOVER-TLC #RECOVERTLC nature.com/articles/s4159… The number of people with Long Covid is huge. This demands global attention. nature.com/articles/s...
threadreaderapp.com
September 23, 2024 at 9:10 PM
tomkindlon.bsky.social
4/

A report from the Solve ME/CFS Initiative on the second day of this conference discussing issues relating to treatment trials for long Covid

solvecfs.org/the-recover-...

#LongCovid #PASC #PwLC #RecoverTLC
Solve ME/CFS Initiative logo The RECOVER-TLC Event Day Two: Prioritization of Interventions, Study Design, and End Points
November 15, 2024 at 9:06 PM
bhanlon15.bsky.social
Jessica Martinez of The Gates Foundation

Discussion of Biomarkers

#RECOVERTLC #LongCOVID
September 10, 2025 at 3:13 PM
meactnet.bsky.social
RECOVER-TLC 2nd annual workshop goals:

- Update community

- Solicit community feedback on key aspects of TLC- intervention selections, protocol concepts/design, collaborations.

-Continue to highlight opportunities for additional clinical trials

#LongCovid #RecoverTLC #pwME
Photo of screen showing goals of workshop. Update community on yearly progress made in RECOVER-TLC. Solicit community feedback on key aspects of TLC- intervention selections, protocol concepts/design, collaborations. Continue to highlight opportunities for additional clinical trials based on what is known about agent mechanism of action, symptom burden and available interventions
September 9, 2025 at 1:27 PM
lccampaign.bsky.social
Thanks @npr.org @sarahboden.bsky.social for interviewing #LongCOVID patients & Long COVID Campaign on why additional NIH #RecoverTLC funds must prioritize launching robust clinical trials. 2025 research must directly focus on developing urgently needed tests & treatments. www.npr.org/2024/12/23/n...
Patients are frustrated that there isn't a reliable treatment yet for long COVID
Much of the NIH-funded research on long COVID has focused on observing and understanding the disease. Some patients and doctors say the research should pivot toward finding new treatments and drugs.
www.npr.org
December 23, 2024 at 9:40 PM
thesicktimes.org
Following our live blog of last week's #RecoverTLC meeting, which introduced a new phase of the National Institutes of Health's flagship #LongCOVID research program, @betsyladyzhets.bsky.social asked speakers and attendees to share reflections on the event. bit.ly/4eEuul6
“A good step”: Long COVID advocates and researchers respond to the RECOVER-Treating Long COVID meeting - The Sick Times
Last week, a research symposium in Bethesda, Maryland kicked off RECOVER-Treating Long COVID, a new phase of the National Institutes of Health (NIH)’s flagship research program. The meeting included t...
bit.ly
October 2, 2024 at 4:17 PM
openmedf.bsky.social
The RECOVER-TLC webinar recording from Nov 21, 2024, is now available! Watch here👉 ow.ly/nsyt50UsypF

📅 Next webinar: Jan 10, 2025 | 2–3 PM EST
🔗 Register: ow.ly/Sw5A50UsypC

Email your questions to recover-tlc-submissions@nih.gov or ask them live during the session.

#RECOVERTLC #LongCOVID #pwLC
The image shows an announcement for a webinar recording: RECOVER Treating Long COVID (TLC) Webinar – November 2024. It features a blurred background of an audience attending a presentation, with a speaker visible in the distance. The OMF logo is displayed in the top right corner.
December 17, 2024 at 2:11 PM
bhanlon15.bsky.social
#RECOVERTLC #LongCOVID
September 10, 2025 at 1:56 PM
bhanlon15.bsky.social
#RECOVERTLC
September 9, 2025 at 7:53 PM
bhanlon15.bsky.social
#LongCOVID #RECOVERTLC
January 10, 2025 at 7:13 PM