November 3, 2026 at 6:01 PM
October 26, 2026 at 7:01 PM
Sunday #stories: After a lifetime of surviving sickle cell disease and a broken health care system, a young man risks everything on a groundbreaking treatment.
www.youtube.com/watch?v=2oJQ...
www.youtube.com/watch?v=2oJQ...
Risking everything for a cure: my life with sickle cell
After a lifetime of surviving sickle cell disease and a broken health care system, a young man risks everything on a groundbreaking treatment.
#SickleCellDisease #SickleCellWarriers
Title: The…
www.youtube.com
November 1, 2026 at 7:02 PM
Sunday #stories: After a lifetime of surviving sickle cell disease and a broken health care system, a young man risks everything on a groundbreaking treatment.
www.youtube.com/watch?v=2oJQ...
www.youtube.com/watch?v=2oJQ...
A new Cochrane review found good evidence that blood transfusions reduce stroke risk in children with sickle cell disease, but little high-quality trial evidence for adults or for many other complications.
healthcaretoday.com/article/sick...
#SickleCellDisease #Cochrane #HealthcareNews
healthcaretoday.com/article/sick...
#SickleCellDisease #Cochrane #HealthcareNews
Sickle cell complications are not well studied
Patients are living longer, but trial evidence is lacking for the many complications of sickle cell diseases, a new Cochrane review has found.
healthcaretoday.com
November 2, 2026 at 6:42 AM
A new Cochrane review found good evidence that blood transfusions reduce stroke risk in children with sickle cell disease, but little high-quality trial evidence for adults or for many other complications.
healthcaretoday.com/article/sick...
#SickleCellDisease #Cochrane #HealthcareNews
healthcaretoday.com/article/sick...
#SickleCellDisease #Cochrane #HealthcareNews
‘Not Only Older People Have Strokes’: 12-Year-Old Girl Raises Awareness After Surviving Two Silent Strokes at Just 8: Tayshelice Hewitt was just eight years old when she suffered two strokes linked to sickle cell… #StrokeAwareness #SickleCellDisease #HealthEducation #ChildHealth #SilentStrokes
‘Not Only Older People Have Strokes’: 12-Year-Old Girl Raises Awareness After Surviving Two Silent Strokes at Just 8
Tayshelice Hewitt was just eight years old when she suffered two strokes linked to sickle cell disease. Now, she is using her…
The post ‘Not Only Older People Have Strokes’: 12-Year-Old Girl Raises Awareness After Surviving Two Silent Strokes at Just 8 appeared first on Shine My Crown.
dlvr.it
November 3, 2026 at 4:09 PM
‘Not Only Older People Have Strokes’: 12-Year-Old Girl Raises Awareness After Surviving Two Silent Strokes at Just 8: Tayshelice Hewitt was just eight years old when she suffered two strokes linked to sickle cell… #StrokeAwareness #SickleCellDisease #HealthEducation #ChildHealth #SilentStrokes
Delighted to be a first-time guest on “Sunday Extra” on @abcaustralia.bsky.social Radio hosted by Julian Morrow to chat about “Curved Air” — or as they dubbed it, “The mutation that bent blood”!
#sicklecelldisease
www.abc.net.au/listen/progr...
#sicklecelldisease
www.abc.net.au/listen/progr...
The mutation that bent blood: A history of sickle cell and the search for a cure - ABC listen
Right now there are between 20 to 30 trillion red blood cells coursing around your body, delivering oxygen to your organs and transporting carbon dioxide to your lungs for disposal.
All being well,...
www.abc.net.au
October 25, 2026 at 3:43 AM
Delighted to be a first-time guest on “Sunday Extra” on @abcaustralia.bsky.social Radio hosted by Julian Morrow to chat about “Curved Air” — or as they dubbed it, “The mutation that bent blood”!
#sicklecelldisease
www.abc.net.au/listen/progr...
#sicklecelldisease
www.abc.net.au/listen/progr...
See our free advice on how your school can support a student with sickle cell disease.
#sicklecell #sicklecellwarrior #sicklecellmatters #sicklecellsupport #sicklecelladvocate #sicklecellawareness #bloodcells #SickleCellDisease #SCD #SickleCellAnemia #School #UKSchools #teachers
#sicklecell #sicklecellwarrior #sicklecellmatters #sicklecellsupport #sicklecelladvocate #sicklecellawareness #bloodcells #SickleCellDisease #SCD #SickleCellAnemia #School #UKSchools #teachers
October 22, 2026 at 12:02 PM
See our free advice on how your school can support a student with sickle cell disease.
#sicklecell #sicklecellwarrior #sicklecellmatters #sicklecellsupport #sicklecelladvocate #sicklecellawareness #bloodcells #SickleCellDisease #SCD #SickleCellAnemia #School #UKSchools #teachers
#sicklecell #sicklecellwarrior #sicklecellmatters #sicklecellsupport #sicklecelladvocate #sicklecellawareness #bloodcells #SickleCellDisease #SCD #SickleCellAnemia #School #UKSchools #teachers
New research, expert perspectives, and meaningful discussions continue to shape how we think about #SickleCellDisease.
At #SCDAA2026, we spoke with a sickle cell expert about key themes emerging from this year's meeting. Watch the video to hear their perspective.
#Hematology #RBCHealth
At #SCDAA2026, we spoke with a sickle cell expert about key themes emerging from this year's meeting. Watch the video to hear their perspective.
#Hematology #RBCHealth
October 19, 2026 at 8:04 PM
New research, expert perspectives, and meaningful discussions continue to shape how we think about #SickleCellDisease.
At #SCDAA2026, we spoke with a sickle cell expert about key themes emerging from this year's meeting. Watch the video to hear their perspective.
#Hematology #RBCHealth
At #SCDAA2026, we spoke with a sickle cell expert about key themes emerging from this year's meeting. Watch the video to hear their perspective.
#Hematology #RBCHealth
In September, #SickleCellAwarenessMonth, an SRI updated overview of systematic reviews on #RedCellTransfusion interventions in #SickleCellDisease was published. We were delighted to interview Lise Estcourt, who led the overview, in a Talking Transfusion Podcast bonus episode. Links in replies🔗
#BHM
#BHM
October 16, 2026 at 9:33 AM
In September, #SickleCellAwarenessMonth, an SRI updated overview of systematic reviews on #RedCellTransfusion interventions in #SickleCellDisease was published. We were delighted to interview Lise Estcourt, who led the overview, in a Talking Transfusion Podcast bonus episode. Links in replies🔗
#BHM
#BHM
Did you know that #SickleCellDisease is more than a pain disorder? As we join the community at #SCDAA2026, we're sharing a few key facts that highlight the broad impact of sickle cell disease and the importance of continued education and scientific exchange.
#SCDAwareness
#SCDAwareness
October 14, 2026 at 2:05 PM
Did you know that #SickleCellDisease is more than a pain disorder? As we join the community at #SCDAA2026, we're sharing a few key facts that highlight the broad impact of sickle cell disease and the importance of continued education and scientific exchange.
#SCDAwareness
#SCDAwareness
The book educates readers from start to finish using word searches, crossword puzzles, secret codes, writing prompts, and more.
Ready to get your copy? Shop now on Amazon: www.amzn.to/47dAiQE
#SickleCellAwareness #SickleCell #SickleCellBooks #SickleCellDisease
Ready to get your copy? Shop now on Amazon: www.amzn.to/47dAiQE
#SickleCellAwareness #SickleCell #SickleCellBooks #SickleCellDisease
The Ultimate Sickle Cell Activity Book: An Educational Resource for Preteens and Teens.
The Ultimate Sickle Cell Activity Book: An Educational Resource for Preteens and Teens. [Cole, Elle, Hamernik, Kate] on Amazon.com. *FREE* shipping on qualifying offers. The Ultimate Sickle Cell Activity Book: An Educational Resource for Preteens and Teens.
www.amzn.to
October 10, 2026 at 4:41 PM
The book educates readers from start to finish using word searches, crossword puzzles, secret codes, writing prompts, and more.
Ready to get your copy? Shop now on Amazon: www.amzn.to/47dAiQE
#SickleCellAwareness #SickleCell #SickleCellBooks #SickleCellDisease
Ready to get your copy? Shop now on Amazon: www.amzn.to/47dAiQE
#SickleCellAwareness #SickleCell #SickleCellBooks #SickleCellDisease
A study from the American Journal of Hematology reveals that blood levels of hydroxyurea - the most commonly prescribed disease-modifying treatment in #SickleCellDisease - were undetectable in the majority of patients 🩸
@ashclinicalnews.bsky.social dives into the findings: https://bit.ly/4yItqqK
@ashclinicalnews.bsky.social dives into the findings: https://bit.ly/4yItqqK
October 8, 2026 at 1:00 PM
A study from the American Journal of Hematology reveals that blood levels of hydroxyurea - the most commonly prescribed disease-modifying treatment in #SickleCellDisease - were undetectable in the majority of patients 🩸
@ashclinicalnews.bsky.social dives into the findings: https://bit.ly/4yItqqK
@ashclinicalnews.bsky.social dives into the findings: https://bit.ly/4yItqqK
Thank you to all national coordinators, data managers and centres who make this possible! 🤝
Being a network is what makes RADeep work!
#RareAnaemias #SickleCellDisease #RealWorldEvidence #EHDS
@erneurobloodnet.bsky.social
Being a network is what makes RADeep work!
#RareAnaemias #SickleCellDisease #RealWorldEvidence #EHDS
@erneurobloodnet.bsky.social
October 7, 2026 at 1:34 PM
Thank you to all national coordinators, data managers and centres who make this possible! 🤝
Being a network is what makes RADeep work!
#RareAnaemias #SickleCellDisease #RealWorldEvidence #EHDS
@erneurobloodnet.bsky.social
Being a network is what makes RADeep work!
#RareAnaemias #SickleCellDisease #RealWorldEvidence #EHDS
@erneurobloodnet.bsky.social
🚨 New PECARN Study Alert! 🚨
The PECARN STArT trial asked an important question: Could IV arginine help children and young adults with sickle cell disease recover faster from acute pain episodes?
jamanetwork.com/jour...
#SPARC #PECARN #SickleCellDisease
The PECARN STArT trial asked an important question: Could IV arginine help children and young adults with sickle cell disease recover faster from acute pain episodes?
jamanetwork.com/jour...
#SPARC #PECARN #SickleCellDisease
October 7, 2026 at 4:00 PM
🚨 New PECARN Study Alert! 🚨
The PECARN STArT trial asked an important question: Could IV arginine help children and young adults with sickle cell disease recover faster from acute pain episodes?
jamanetwork.com/jour...
#SPARC #PECARN #SickleCellDisease
The PECARN STArT trial asked an important question: Could IV arginine help children and young adults with sickle cell disease recover faster from acute pain episodes?
jamanetwork.com/jour...
#SPARC #PECARN #SickleCellDisease
Holding books I created to help children and families better understand sickle cell disease reminds me: education crosses borders, and advocacy crosses oceans.
Visit www.cleverlychanging.com/shop to get a copy of my books.
#SickleCellDisease #ASCAT2026 #SickleCellAdvocacy
Visit www.cleverlychanging.com/shop to get a copy of my books.
#SickleCellDisease #ASCAT2026 #SickleCellAdvocacy
Shop - Cleverly Changing
Educating Parents and Advocating for Children
www.cleverlychanging.com
October 7, 2026 at 6:39 PM
Holding books I created to help children and families better understand sickle cell disease reminds me: education crosses borders, and advocacy crosses oceans.
Visit www.cleverlychanging.com/shop to get a copy of my books.
#SickleCellDisease #ASCAT2026 #SickleCellAdvocacy
Visit www.cleverlychanging.com/shop to get a copy of my books.
#SickleCellDisease #ASCAT2026 #SickleCellAdvocacy
The phase 3 STArT trial in @jama.com show IV arginine does not shorten time to crisis resolution for youth with #SickleCellDisease acute pain
Median time to crisis resolution was 60.8 hours with arginine vs. 65.8 hours with placebo
Read the article here:
🔗 https://bit.ly/3TImb2v
Median time to crisis resolution was 60.8 hours with arginine vs. 65.8 hours with placebo
Read the article here:
🔗 https://bit.ly/3TImb2v
Intravenous Arginine Does Not Shorten Pediatric SCD Acute Pain Episodes
Intravenous arginine therapy fails to reduce the time to crisis resolution in pediatric patients with SCD experiencing acute pain.
bit.ly
October 6, 2026 at 6:17 PM
The phase 3 STArT trial in @jama.com show IV arginine does not shorten time to crisis resolution for youth with #SickleCellDisease acute pain
Median time to crisis resolution was 60.8 hours with arginine vs. 65.8 hours with placebo
Read the article here:
🔗 https://bit.ly/3TImb2v
Median time to crisis resolution was 60.8 hours with arginine vs. 65.8 hours with placebo
Read the article here:
🔗 https://bit.ly/3TImb2v
The eye-systemic axis is at the heart of my clinical work, so it’s exciting to see where this is heading.
We have a great line-up exploring the connections between the eye and systemic health at MOSUK 2027 in London next year!
lnkd.in/p/ewGUutWj
We have a great line-up exploring the connections between the eye and systemic health at MOSUK 2027 in London next year!
lnkd.in/p/ewGUutWj
#ophthalmology #medicine #oculomics #mosuk #medicalophthalmology #giantcellarteritis #sicklecelldisease #medicaleducation #pregnancy #obstetricmedicine #gca #rheumatology #mededeee | Nima Ghadiri
👁️ 𝗝𝗼𝗶𝗻 𝘂𝘀 𝗶𝗻 𝗟𝗼𝗻𝗱𝗼𝗻 𝘁𝗼 𝗲𝘅𝗽𝗹𝗼𝗿𝗲 𝘁𝗵𝗲 𝗲𝘆𝗲–𝘀𝘆𝘀𝘁𝗲𝗺𝗶𝗰 𝗮𝘅𝗶𝘀 𝗮𝘁 𝘁𝗵𝗲 𝗠𝗲𝗱𝗶𝗰𝗮𝗹 𝗢𝗽𝗵𝘁𝗵𝗮𝗹𝗺𝗼𝗹𝗼𝗴𝘆 𝗦𝗼𝗰𝗶𝗲𝘁𝘆 𝗨𝗞 (𝗠𝗢𝗦𝗨𝗞) 𝗔𝗻𝗻𝘂𝗮𝗹 𝗠𝗲𝗲𝘁𝗶𝗻𝗴 𝟮𝟬𝟮𝟳
📅 Wednesday 24 February 2027 | 09.00–17.00
📍 International Students House, Lo...
lnkd.in
October 3, 2026 at 3:30 PM
The eye-systemic axis is at the heart of my clinical work, so it’s exciting to see where this is heading.
We have a great line-up exploring the connections between the eye and systemic health at MOSUK 2027 in London next year!
lnkd.in/p/ewGUutWj
We have a great line-up exploring the connections between the eye and systemic health at MOSUK 2027 in London next year!
lnkd.in/p/ewGUutWj
🩸September was #SickleCellAwareness month and also saw the publication of our updated overview of #systematicreviews, looking at red cell #transfusion interventions in #sicklecelldisease, and led by Professor Lise Estcourt.
@liseestcourt.bsky.social @thrinaline.bsky.social
#MedSky
@liseestcourt.bsky.social @thrinaline.bsky.social
#MedSky
October 2, 2026 at 11:08 AM
🩸September was #SickleCellAwareness month and also saw the publication of our updated overview of #systematicreviews, looking at red cell #transfusion interventions in #sicklecelldisease, and led by Professor Lise Estcourt.
@liseestcourt.bsky.social @thrinaline.bsky.social
#MedSky
@liseestcourt.bsky.social @thrinaline.bsky.social
#MedSky
As #SickleCellAwarenessMonth closes, we’re excited by advances in gene therapy, stem cell transplant & emerging approaches like CAR-T. We hope continued funding, research & innovation bring more treatment options and better outcomes for people with #SickleCellDisease.
September 30, 2026 at 3:35 PM
As #SickleCellAwarenessMonth closes, we’re excited by advances in gene therapy, stem cell transplant & emerging approaches like CAR-T. We hope continued funding, research & innovation bring more treatment options and better outcomes for people with #SickleCellDisease.
September is Sickle Cell Awareness Month. Living with Sickle Cell disease means managing constant fatigue, low energy, and severe pain attacks caused by stiff blood cells blocking small vessels. Awareness changes the way we see people. #SickleCellDisease #HealthAwareness
September 30, 2026 at 4:00 PM
September is Sickle Cell Awareness Month. Living with Sickle Cell disease means managing constant fatigue, low energy, and severe pain attacks caused by stiff blood cells blocking small vessels. Awareness changes the way we see people. #SickleCellDisease #HealthAwareness
Does IV arginine make a difference when it come to #pain crisis in patients with #SickleCellDisease? This recent PECARN trial in @JAMAnetwork sought to evaluate that question.
jamanetwork.com/jour...
jamanetwork.com/jour...
September 29, 2026 at 6:02 PM
Does IV arginine make a difference when it come to #pain crisis in patients with #SickleCellDisease? This recent PECARN trial in @JAMAnetwork sought to evaluate that question.
jamanetwork.com/jour...
jamanetwork.com/jour...
I’m honored to be in the room, listening, learning, and helping ensure our community remains part of the conversation.
#SickleCellDisease #SickleCellAwareness #HealthEquity #PatientAdvocacy #CongressionalBriefing
#SickleCellDisease #SickleCellAwareness #HealthEquity #PatientAdvocacy #CongressionalBriefing
September 24, 2026 at 3:47 PM
I’m honored to be in the room, listening, learning, and helping ensure our community remains part of the conversation.
#SickleCellDisease #SickleCellAwareness #HealthEquity #PatientAdvocacy #CongressionalBriefing
#SickleCellDisease #SickleCellAwareness #HealthEquity #PatientAdvocacy #CongressionalBriefing
#Novo #obesity #patentprotection #Wegovy #weightloss #Ozempic #diabetes #CagriSema #Foundayo #Haematology #haemophiliaA #Frehemgo #sicklecelldisease #PNH #blooddisorders #endocrinedisorders #liverdiseases #cardiovasculardisease #consumerRx #pain #addiction #menshealth #womenshealth
zurl.co/Lmdba
zurl.co/Lmdba
Under pressure, Novo lays out blockbuster launch plans
Novo has revealed a plan to launch five or more blockbusters between now and 2030 that it hopes will grow annual revenues by around $23bn.
zurl.co
September 24, 2026 at 8:52 AM
September is #SickleCellAwarenessMonth. #SickleCellDisease is a #RareDisease impacting 100K people in the US. Read SWHR’s blog to learn about rare disease research and hear working group member Maia Lang share her experience with sickle cell disease: https://ow.ly/g41V50ZOuzn. #SWHRtalksRareDisease
September 19, 2026 at 8:35 PM
September is #SickleCellAwarenessMonth. #SickleCellDisease is a #RareDisease impacting 100K people in the US. Read SWHR’s blog to learn about rare disease research and hear working group member Maia Lang share her experience with sickle cell disease: https://ow.ly/g41V50ZOuzn. #SWHRtalksRareDisease
🔗Links to:
🔷Interventions for chronic kidney disease in people with #sicklecelldisease
www.cochranelibrary.com/cdsr/doi/10....
🔷Interventions for improving adherence to iron chelation therapy in people with #sicklecell disease or #thalassaemia
www.cochranelibrary.com/cdsr/doi/10....
🔷Interventions for chronic kidney disease in people with #sicklecelldisease
www.cochranelibrary.com/cdsr/doi/10....
🔷Interventions for improving adherence to iron chelation therapy in people with #sicklecell disease or #thalassaemia
www.cochranelibrary.com/cdsr/doi/10....
www.cochranelibrary.com
September 18, 2026 at 11:30 AM
🔗Links to:
🔷Interventions for chronic kidney disease in people with #sicklecelldisease
www.cochranelibrary.com/cdsr/doi/10....
🔷Interventions for improving adherence to iron chelation therapy in people with #sicklecell disease or #thalassaemia
www.cochranelibrary.com/cdsr/doi/10....
🔷Interventions for chronic kidney disease in people with #sicklecelldisease
www.cochranelibrary.com/cdsr/doi/10....
🔷Interventions for improving adherence to iron chelation therapy in people with #sicklecell disease or #thalassaemia
www.cochranelibrary.com/cdsr/doi/10....