Add to #Booksky #SickleCellDisease
Sickle cell disease isn't just a medical condition; it’s a history of racial bias in science. For too long, the "Black disease" label stunted research while millions suffered. "Curved Air" is the deep dive our community needs now. #BlackSky
BOOK REVIEW -- Curved Air: A Biography of Sickle Cell Anemia and the Quest to Cure the First Molecular Disease | BlackPressUSA
The content discusses the book "Curved Air" by Kevin Davies, exploring the complexities surrounding sickle cell disease (SCD). It highlights the historical context of SCD, its painful effects, and the stigma associated with it being regarded as a 'Black disease.' Davies emphasizes the urgency for further research and eventual cures, particularly after advancements like CRISPR gene-editing. The review suggests that although the book is informative, it may overwhelm some readers with technical language and could benefit from clearer presentations of complex ideas. The book is highly recommended for those seeking to understand SCD more deeply.
blackpressusa.com
September 14, 2026 at 7:01 PM
Add to #Booksky #SickleCellDisease
18/ Marilyn Hughes Gaston, MD
- research led to nat’l #sicklecelldisease screening program
- 1st Black woman to direct Bureau of Primary Health Care in US Health Resources & Services Administration
- 2nd Black woman to serve as asst Surgeon General
#BlackHistoryMonth #BHM
- research led to nat’l #sicklecelldisease screening program
- 1st Black woman to direct Bureau of Primary Health Care in US Health Resources & Services Administration
- 2nd Black woman to serve as asst Surgeon General
#BlackHistoryMonth #BHM
February 18, 2026 at 4:41 PM
18/ Marilyn Hughes Gaston, MD
- research led to nat’l #sicklecelldisease screening program
- 1st Black woman to direct Bureau of Primary Health Care in US Health Resources & Services Administration
- 2nd Black woman to serve as asst Surgeon General
#BlackHistoryMonth #BHM
- research led to nat’l #sicklecelldisease screening program
- 1st Black woman to direct Bureau of Primary Health Care in US Health Resources & Services Administration
- 2nd Black woman to serve as asst Surgeon General
#BlackHistoryMonth #BHM
Man functionally cured of sickle cell disease through gene therapy, Farrah Reed reports. Find this article and more at canadahealthwatch.ca #SickleCellDisease #HealthBreakthrough
June 24, 2026 at 7:09 PM
Man functionally cured of sickle cell disease through gene therapy, Farrah Reed reports. Find this article and more at canadahealthwatch.ca #SickleCellDisease #HealthBreakthrough
An experimental base editing strategy for #SickleCellDisease achieves high editing efficiency in hematopoietic stem cells (HSCs) from healthy macaques and persists over time after autologous HSC transplant, according to a new study in #ScienceTranslationalMedicine. https://scim.ag/4oCplzC
August 14, 2025 at 3:00 PM
An experimental base editing strategy for #SickleCellDisease achieves high editing efficiency in hematopoietic stem cells (HSCs) from healthy macaques and persists over time after autologous HSC transplant, according to a new study in #ScienceTranslationalMedicine. https://scim.ag/4oCplzC
Next week, I'll be presenting on the impact of #sicklecelldisease on maternal health - come check it out!
#womenshealth @unc-brc.bsky.social
#womenshealth @unc-brc.bsky.social
December 4, 2024 at 7:19 PM
Next week, I'll be presenting on the impact of #sicklecelldisease on maternal health - come check it out!
#womenshealth @unc-brc.bsky.social
#womenshealth @unc-brc.bsky.social
Thank you to #htrs2025 for the opportunity to talk about our work in #sicklecelldisease and #pregnancy today. @htrstoday.bsky.social @unc-brc.bsky.social
March 14, 2025 at 12:50 AM
Thank you to #htrs2025 for the opportunity to talk about our work in #sicklecelldisease and #pregnancy today. @htrstoday.bsky.social @unc-brc.bsky.social
@maxjordan.bsky.social shares #sicklecelldisease provider survey results on buprenorphine, highlighting the opportunity for increased education to help improve pain management for patients with #SCD. #ASH24 @ash-hematology.bsky.social @yale-hematology.bsky.social
ash.confex.com/ash/2024/web...
ash.confex.com/ash/2024/web...
December 8, 2024 at 1:57 PM
@maxjordan.bsky.social shares #sicklecelldisease provider survey results on buprenorphine, highlighting the opportunity for increased education to help improve pain management for patients with #SCD. #ASH24 @ash-hematology.bsky.social @yale-hematology.bsky.social
ash.confex.com/ash/2024/web...
ash.confex.com/ash/2024/web...
Pediatric pulmonologist here, happy to talk all things 🫁, inhalers, #asthma, #sicklecelldisease, rescue 🐶’s - speaking of, here’s a photo of our sweet boy who has been a huge source of support this week ❤️
November 9, 2024 at 1:09 AM
Pediatric pulmonologist here, happy to talk all things 🫁, inhalers, #asthma, #sicklecelldisease, rescue 🐶’s - speaking of, here’s a photo of our sweet boy who has been a huge source of support this week ❤️
As 2024 ends, we’re celebrating key discoveries by St. Jude scientists. In our first #ResearchWrapUp, we’re highlighting advances in #SickleCellDisease.
December 6, 2024 at 11:12 PM
As 2024 ends, we’re celebrating key discoveries by St. Jude scientists. In our first #ResearchWrapUp, we’re highlighting advances in #SickleCellDisease.
Children with sickle cell disease will have access to a dedicated clinic at SickKids thanks to The Prince Hall Family, and it will be named after a distinguished Ontario public servant. #SickKids #SickleCellDisease #PrinceHallFamily
nowtoronto.com/news/sickkid...
nowtoronto.com/news/sickkid...
SickKids is opening first-of-its-kind sickle cell clinic in Canada, and naming it after renowned Black community member - NOW Toronto
For the first time in Canada, children with sickle cell disease will have access to a dedicated clinic at SickKids — named in honour of a distinguished Ontario public servant.
nowtoronto.com
September 30, 2025 at 10:20 PM
Children with sickle cell disease will have access to a dedicated clinic at SickKids thanks to The Prince Hall Family, and it will be named after a distinguished Ontario public servant. #SickKids #SickleCellDisease #PrinceHallFamily
nowtoronto.com/news/sickkid...
nowtoronto.com/news/sickkid...
Do you live with Sickle Cell Disease, or have a loved one who does? What is one thing you wish people knew about SCD?
#sicklecell #sicklecelldisease #raredisease #chronicillness
#sicklecell #sicklecelldisease #raredisease #chronicillness
Golie-Lorenzo Green shares his personal experiences of this 'complex and devastating condition' with the goal of advancing public understanding, compassion, and treatment discovery of #SickleCellDisease.
Read here: https://bit.ly/4r73YXS
#RareDiseaseMonth #RareDisease
Read here: https://bit.ly/4r73YXS
#RareDiseaseMonth #RareDisease
Defying Early Prognosis, Texas Man Now Advocates for Others With Sickle Cell Disease
Doctors didn't expect Golie-Lorenzo Green, now 45 years old, to reach his 5th birthday
www.rarediseaseadvisor.com
February 18, 2026 at 5:43 PM
Do you live with Sickle Cell Disease, or have a loved one who does? What is one thing you wish people knew about SCD?
#sicklecell #sicklecelldisease #raredisease #chronicillness
#sicklecell #sicklecelldisease #raredisease #chronicillness
#ASH24 Late-Breaking Abstracts are out! Big news in #bloodclot treatment, #sicklecelldisease and heme malignancies!
#HemeSky #MedSky @marycushmanmd.bsky.social @ronakmistrydo.bsky.social @ash-hematology.bsky.social
ash.confex.com/ash/2024/web...
#HemeSky #MedSky @marycushmanmd.bsky.social @ronakmistrydo.bsky.social @ash-hematology.bsky.social
ash.confex.com/ash/2024/web...
66th ASH Annual Meeting: Late-Breaking Abstracts Session
ash.confex.com
November 25, 2024 at 9:40 PM
#ASH24 Late-Breaking Abstracts are out! Big news in #bloodclot treatment, #sicklecelldisease and heme malignancies!
#HemeSky #MedSky @marycushmanmd.bsky.social @ronakmistrydo.bsky.social @ash-hematology.bsky.social
ash.confex.com/ash/2024/web...
#HemeSky #MedSky @marycushmanmd.bsky.social @ronakmistrydo.bsky.social @ash-hematology.bsky.social
ash.confex.com/ash/2024/web...
Many thanks to @adrianwoolfson.bsky.social for his review of my new book "Curved Air" in the latest @science.org magazine, in which he writes:
"Curved Air succeeds because it refuses to equate molecular mastery with medical victory."
@harvardpress.bsky.social
#sicklecelldisease
"Curved Air succeeds because it refuses to equate molecular mastery with medical victory."
@harvardpress.bsky.social
#sicklecelldisease
My review of Kevin Davies’s @kevinadavies.bsky.social excellent new book Curved Air published in today’s edition of @thewallstreet.bsky.social
August 27, 2026 at 7:32 PM
Many thanks to @adrianwoolfson.bsky.social for his review of my new book "Curved Air" in the latest @science.org magazine, in which he writes:
"Curved Air succeeds because it refuses to equate molecular mastery with medical victory."
@harvardpress.bsky.social
#sicklecelldisease
"Curved Air succeeds because it refuses to equate molecular mastery with medical victory."
@harvardpress.bsky.social
#sicklecelldisease
Just started reading #Curved Air by @kevinadavies.bsky.social published by @harvardpress.bsky.social about the quest to cure sickle cell disease using gene editing #CRISPR #SickleCellDisease and which I am reviewing for @science.org
May 30, 2026 at 4:56 PM
Just started reading #Curved Air by @kevinadavies.bsky.social published by @harvardpress.bsky.social about the quest to cure sickle cell disease using gene editing #CRISPR #SickleCellDisease and which I am reviewing for @science.org
We are live from our weekly MAGIC meeting! 🧬
First up, Annarita Miccio sets the stage! 🩸 She is introducing the session and discussing editing approaches for hemoglobinopathies. Her team’s work on Sickle Cell Disease is paving the way for next-gen therapies for blood.
#sicklecelldisease
First up, Annarita Miccio sets the stage! 🩸 She is introducing the session and discussing editing approaches for hemoglobinopathies. Her team’s work on Sickle Cell Disease is paving the way for next-gen therapies for blood.
#sicklecelldisease
January 8, 2026 at 12:06 PM
We are live from our weekly MAGIC meeting! 🧬
First up, Annarita Miccio sets the stage! 🩸 She is introducing the session and discussing editing approaches for hemoglobinopathies. Her team’s work on Sickle Cell Disease is paving the way for next-gen therapies for blood.
#sicklecelldisease
First up, Annarita Miccio sets the stage! 🩸 She is introducing the session and discussing editing approaches for hemoglobinopathies. Her team’s work on Sickle Cell Disease is paving the way for next-gen therapies for blood.
#sicklecelldisease
Nirupama Ramadas, a postdoc in my lab, presented her new story on the role of angiogenesis factors in #sicklecelldisease at #HTRS2025. @unc-brc.bsky.social @htrstoday.bsky.social
March 15, 2025 at 1:23 AM
Nirupama Ramadas, a postdoc in my lab, presented her new story on the role of angiogenesis factors in #sicklecelldisease at #HTRS2025. @unc-brc.bsky.social @htrstoday.bsky.social
💝 This #ValentinesDay, we want improved access to high-quality outpatient care for individuals living with #SickleCell.
#HealthPolicyValentines #ConquerSCD #SickleCell #SCD #sicklecelldisease #FundHealth #DontCutCures
#HealthPolicyValentines #ConquerSCD #SickleCell #SCD #sicklecelldisease #FundHealth #DontCutCures
February 14, 2025 at 7:30 PM
💝 This #ValentinesDay, we want improved access to high-quality outpatient care for individuals living with #SickleCell.
#HealthPolicyValentines #ConquerSCD #SickleCell #SCD #sicklecelldisease #FundHealth #DontCutCures
#HealthPolicyValentines #ConquerSCD #SickleCell #SCD #sicklecelldisease #FundHealth #DontCutCures
Thinking that we should get this going with #ASH2024 - Come on, #MedSky
Let’s get the #SickleCellDisease community over here!
Let’s get the #SickleCellDisease community over here!
November 9, 2024 at 5:21 PM
Thinking that we should get this going with #ASH2024 - Come on, #MedSky
Let’s get the #SickleCellDisease community over here!
Let’s get the #SickleCellDisease community over here!
Home from #ASH2024.
Still can’t believe I went, having broken my ankle leaving my house to come! (seems like a month ago!) But I am so grateful to the hematology & specifically the #sicklecelldisease community of clinicians, researchers & patient advocates for making this 🫁 doc feel so welcome! 🙏🩸❤️
Still can’t believe I went, having broken my ankle leaving my house to come! (seems like a month ago!) But I am so grateful to the hematology & specifically the #sicklecelldisease community of clinicians, researchers & patient advocates for making this 🫁 doc feel so welcome! 🙏🩸❤️
December 11, 2024 at 5:22 AM
Home from #ASH2024.
Still can’t believe I went, having broken my ankle leaving my house to come! (seems like a month ago!) But I am so grateful to the hematology & specifically the #sicklecelldisease community of clinicians, researchers & patient advocates for making this 🫁 doc feel so welcome! 🙏🩸❤️
Still can’t believe I went, having broken my ankle leaving my house to come! (seems like a month ago!) But I am so grateful to the hematology & specifically the #sicklecelldisease community of clinicians, researchers & patient advocates for making this 🫁 doc feel so welcome! 🙏🩸❤️
Hey @ash-hematology.bsky.social any new #SickleCell providers and advocates making the journey across the @bsky.app bridge after yesterday’s talk by @shematologist.bsky.social
#ASH24
#SickleCellDisease
#ASH24
#SickleCellDisease
December 7, 2024 at 11:49 AM
Hey @ash-hematology.bsky.social any new #SickleCell providers and advocates making the journey across the @bsky.app bridge after yesterday’s talk by @shematologist.bsky.social
#ASH24
#SickleCellDisease
#ASH24
#SickleCellDisease
At a recent #MedicineGrandRounds, @childrensphila.bsky.social's Alexis Thompson discussed her groundbreaking research on #SickleCellDisease. Her clinical research was instrumental in the approval of the first gene therapies for sickle cell disease.
📸 by Clinton Louie
📸 by Clinton Louie
December 11, 2025 at 5:08 PM
At a recent #MedicineGrandRounds, @childrensphila.bsky.social's Alexis Thompson discussed her groundbreaking research on #SickleCellDisease. Her clinical research was instrumental in the approval of the first gene therapies for sickle cell disease.
📸 by Clinton Louie
📸 by Clinton Louie
It looks like we need to create a #SickleCell Starter Pack on here to bring all of our friends, community, and #Warriors together. Who have we got here amidst the bluer skies? #SCD #SickleCellDisease
November 16, 2024 at 8:37 PM
It looks like we need to create a #SickleCell Starter Pack on here to bring all of our friends, community, and #Warriors together. Who have we got here amidst the bluer skies? #SCD #SickleCellDisease
I’m honored to be in the room, listening, learning, and helping ensure our community remains part of the conversation.
#SickleCellDisease #SickleCellAwareness #HealthEquity #PatientAdvocacy #CongressionalBriefing
#SickleCellDisease #SickleCellAwareness #HealthEquity #PatientAdvocacy #CongressionalBriefing
September 24, 2026 at 3:47 PM
I’m honored to be in the room, listening, learning, and helping ensure our community remains part of the conversation.
#SickleCellDisease #SickleCellAwareness #HealthEquity #PatientAdvocacy #CongressionalBriefing
#SickleCellDisease #SickleCellAwareness #HealthEquity #PatientAdvocacy #CongressionalBriefing
Accelerating elimination of disparities in #SickleCellDisease care requires effective #HealthScienceDataProcess #SaaS web infrastructure
April 9, 2025 at 5:43 AM
Accelerating elimination of disparities in #SickleCellDisease care requires effective #HealthScienceDataProcess #SaaS web infrastructure